As a lupus patient since 2000 and having overcome a life threatening case, means loving it and understanding it. My dog died from lupus in 2006 after I recovered..My sister now afflicted. love and love more...rest and rest more.
Oh, also have high blood pressure, could that also be connected? Both my babies I had to have early as well, due to severe Preaclampsia while pregnant.
I'm trying to find out if Lupus is what I am suffering from. I just now finally got insurance. However, my last blood test was negative, but I was told that can happen. I get the pain all the time in my bones and muscles. I get the mouth ulcers, nausia, tiredness, and I have a mild red area across my cheeks and nose. The doctor even noticed that, but yet the blood test was negative. Lupus also runs in my family. My cousin and my Aunt both had it, they have both passed away. My cousin was 26.
I am the first recorded male in medical history to have Lupus. I was in San Fransico University Hospital 1964-1965. I am now turning to be 52. I am healthy, have my scars from exploritory surgery and skin graghs that were sent to Boston for research. Had the Butterflies on the face. Had to relearn to walk again. Just want to wish you all the best and let you know that miracles do happen.
@crywolfman A KID IN OUR SCHOOL ALSO SUFFERS LUPUS I THINK HE IS 10 OR 11 YEARS OLD . I HOPE THEY WILL FIND A CURE NOW ,SO THAT BOY WILL LIVE IN PARADISE. HIS CLASSMATES TOLD ME THAT HE HAS CELLS THAT EATS HIS OTHERS CELLS.AND I HOPE YOU WILL BE CURED.
Michael Jackson had Lupus and Vitiligo. The shit people put him through for suffering from real and potentially emotionally and physically debilitating diseases. This is reflective of our attitudes in general. People need to see other people as humans. We are all humans. We all have disabilities, some more obvious than others. It's time we stop judging and abusing people and find out who they really are inside. No one wants to be alone.
My aunt recently passes, august 10th, 2009, from lupus. it attacked her lungs, plus she amonia and ARDS disease..she passed and its the worst thing ever!!!!!
Lupus does kill,,and it sucks,,
my family is donating to the foundation i think, and at my aunts funeral they had flyers and wristbands to spread awareness.
she has had lupus since she was little, and she died at age 43, although her birthday was a week today.
Great video.. and I'm so happy to see Michael Douglas involved in awareness. I just read through all the heart breaking comments. I too have lupus, which, triggered overlapping diseases.... It's hard, very hard but if we all pull together, if we all help spread awareness, then we will have more hope than we could ever imagine. Awareness brings research, research brings better treatment and eventually a cure.
I am living with lupus day by day. participated in the LFNC run/walk since last year. when i had my biggest and worse flare up. im strugglin to find medical/fiancial assistance.
If you'd like to write me, please do. I too have had a tremendous time trying to get medical treatment ever since I became to sick to work and my ins ran out.. You can't buy insurance once you are sick they won't accept you. I know. There are some programs that are not perfect but do help.
If anyone here needs help with getting medical care, please feel free to write me anytime.
Other day I was in D. Home and Health, and there was a special program about lupus, that showed a woman that died because she didn't want to use the medicines, and after 3 months, she died. She used to get very mad at her mother just because of the effects of the "Lupus". I think is very said the lifes of the people that have Lupus, but if they want to survive, they have to fight for it. And that is something she didn't do, she let the Lupus take her to God's hand!
Thank God their is hope for new treatments and hopefully a cure one day. Im 36 and I have Lupus. Most days I feel like Im dying inside. The pain, fatigue and loss of mental alertness is horrible. Arthritis has taken over most of my joints and back. Some days I cant walk, even with medications. My dr believes my kidneys are starting to shut down now. Please be there for the person you know who has Lupus. Its hard enough just to get up in the morning, .God Bless, Lana
sorry i just found this or i would have replied sooner. there are people out there with worse cases then i do, but i find it hard to deal with. i've been hospitalized multiple times, and i'm just always tired. do you have it?
I have had lupus since 1989 and I have had 50%kidney damage,but they are functioning 100% now thanks to cytoxan.
I am taking cellcept 500 mg every day,2 mg prednisone everyday and aralen 250 mg, I believe I am in remission and thank god everyday for a good and symptom free day!
I have had Lupus for over 45 years, having been diagnosed at age 13, in 1968. It took years to diagnose but I had nearly all the classic symptoms, but back then little was known about the disease. By the time the picked up on it serious damage had occurred to my kidneys. I spent 3 months in the Melbourne Royal Childrens Hospital where they gave me 3 months to 2 years to live, but here I am aged 54 and still going. I have endured many medical problems over the years but am still fighting on.
Doctors here in the UK are very reluctant to diagnose patients with Lupus - I'm 51. A year ago, I was diagnosed with a connective tissue disorder (autoimmune) ?? with raised lupus anti-coagulant antibodies, high blood pressure and Raynaud's Phenomena?? Plaquenil does help, but I still have flare-ups and constant pain and swelling throughout my joints and muscles together with overwhelming tiredness, weakness and depression. I do believe STRESS is at the root of this disease! I long for a CURE.
My mom has SLE lupus, and Arthritus, her lupus is spreading and she has been through Kemo and Radiation, Mexotrexate, and Prednisone and nothing has helped at all.
My dad left us when I was 4 (im currently 16) and She worked 3 jobs when he left, she still works a full time job, but she has Heart Kidney and Lung problems. This dieses is horrible, not only is it fatal it is slow and painfull. I have been reasearching it for Days streight. thanks for your comments :)
Too bad none of these faces are of a victim of Neuropsychiatric Lupus. Lupus attacked my wifes brain 11 years ago! If you have lived well for 20 years with this disease, thank your lucky stars. I have watched lupus literally kill every aspect of my wifes life. She prays for death everyday.
my God i know this is bad i watched my friend go through that she has good days and bad days, after 20 years i got my dx. what ive learned is that sle lupus affects everyone diffrently. i try to fight but some days are hard. i cant tell my family everything so i pray and wait for God to heal me. be blessed 66godsgirl.
I have educated myself (sometimes I think a little too much) I like this video, the only thing that bothered me is they didn't have any children in this video. It's almost as though "it's an adult disease" News Flash, It's Not. It's just more commonly found in minority women during child bearing ages. It CAN and DOES IMPACT YOUNGER CHILDREN. My daughter was 6yrs old in Mar08 when she had her 1st Flare-Up. I can only hope and pray any future flare-up doesn't mimic the 1st one. It was scary.
Thank you for posting this video. I feel less alone seeing others' stories. I have been dealing with SLE for just over one year now, and have been struggling very hard to accept it and what it puts me through every day.
This video is a good educational tool for family and friends of lupus sufferers to
watch, so they can be more understanding of their loved ones' suffering.
im 19 years old and i have lupus since i was 12 yrs old and da only thing i hope and i whish ind this world is someone to find the cure for lupus =(..and please pray for all of us who have lupus =)
I have a younger sisters,,that was diagnosed with lupus 18 years ago,,she has been suffering ever since,,she takes daily 5mg pills of prednisone and the side effects of it are taking its toll..now lupus is an immune problem ..right.? well i her older brother i am 38 and have been diagnosed with pemphigus feracious another immune problem..also have to take predinison at 20mg daily.the side effects arent as bad in me as her but in time we both will have reumitoid arthritus she deserves better life
Wonderful video. I like to see faces so I can identify with people. I am living with Lupus myself. It's also good to see a celebrity endorse the cause. We don't see that too often. Great job!
It's really good to see a star like Michahel Douglas spread the word on Lupus. I have never seen this on TV. If it has been, it hasn't been in the major TV markets for long. Very unfortunate. We need more recognition!
I'm just trying to learn more about it since I find out on monday if I am diagnosed with Lupus. I have been putting off getting tests done because I couldn't afford it.
I remember a new girl at school in elementary. She was petite, but acted really mature and wore perfectly stylish clothes. I thought she was the coolest. Then at recess she couldn't go outside and couldn't participate in phy-ed. She then told me that she had Lupus. She said her bones would break if she were hit.
to zillertaller "is it especilly black women that get lupus?"
No, the occurance is indeed higher in women of African, Asian or Hispanic descent. But I am white and the docs say I have it.
The only positive thing about the diagnosis, I guess, is that I have never enjoyed a good day as much as I do now, knowing that it well might be the last one!
I got lupus when i was 10 and i would wake up every morning and throw up and have pain and be tierd, I hope they find a cure the medicene has so many side effects
I was diagnosed with Lupus in 2003 and the summer of 2006 I couldnt get off the couch anymore without help. I would cry out for someone to help me do something as simple as go to the bathroom. I was dx with lupus pneumonitis and I was put on 24 hours oxygen. In novemeber of 2006 I woke up one morning with an excruciating headache and I took my Blood pressure it was 220/150 I knew I was in trouble. 8 TIA's and a pontine stroke. The medicine for Lupus is devastating but their keeping me alive.
I was diagnosed with lupus one year ago, and I suffer occasionally with sore ankles and hands.... Prednisone was a miracle - but I was on it for nearly a year. I've been on Plaquenil for more than 6 months and my pain occurs daily now. I've also now been diagnosed with fibromyalgia. That pain sucks! Although this is all a burden and interferes with my daily life - I thought this video was very dooming and scary..... Almost makes me worry even more!
I'm 31. Diagnosed of lupus july 2006.I feel and almost look perfectly okay now. Although I feel occasional arthritis and heavy legs after few minutes walk. But this happens very seldom.
This video has been extremely helpful to me in so many ways,just seeing the faces of other people with lupus has atleast helped me release there is other sufferers out there!I had many ailments over the years that were misdiagnosed but only 6 months ago was i properly diagnosed with this lonely and frusterating illness.Thankfully i have 4 children but my husband doesn't seem to be too understanding as i seem to be the picture of health!Oh the joys of lupus .
Maybe you should suggest that your husband watch some videos here on YouTube about lupus, then maybe he will understand better. If he really loves you, he should be able to do that much for you, right?
I'm so sorry to hear about your mom and your having to grow up without her. Lupus is a terrible disease. We've made great strides and the life expectancy is so much better than when you were born. You take care of yourself and stay on top of your physical exams. Mom would want that.
I was diagnosed with Lupus in 1999 at the age of 20, and I don't have anyone to talk to about it, well no one that understands what I go through on a daily basis. The video and even some of the comments bring me to tears because I feel all of your pain. It's scary not knowing what the future holds.
all i can hope is that your doing well :) and i think your a hero for holding out this long i would be glad to have a lupus walk or day named after you :)
i hav lupus 2...im nikky,but i believed im going to be cured...its very hard to deal with the symptoms of lupus...now im 16, i was 13 when i was diagnosed...lets help people with lupus...
I was diagnosed 25 yrs. ago. I had many odd illness that couldn't be diagnosed when I was small. Now it all makes sense. I was so desperately sick after giving birth to my children and still they didn't know what was wrong. Stress is what through me into a lupus flair when I was finally diagnosed. I was in bed for months. Later, I had a job then which nearly killed me and now it's very dangerous for me to over do. I have lung disease, 2 lung surgeries, heart problems all caused from lupus.
I've got lupus too!. I'm 13 years old, and only have had it for a couple months. Tomorrow, I'm going to a lupus walk! I'm on prednisone, and have the puffy face to prove it! Lets find a cure for lupus!
My sister sarah wade jones passed away from lupus may 12 2008.She tried numerous expieramental drugs,she said if trying that could help 1 person it would be worth it.She got through everyday with a smile thanks too her relationship with jesus christ,she gave me inspiration just you ladies and men do.I pray that they find a cure and for gods grace for everyone of you.
This is such a horrible disease. I just recently lost my sister to this disabilatating disease. I hope one day there will be a cure so families won't have to lose a loved one to it anymore. I pray everyday for a cure.
hi my name is nina mcknight ,, my mom is 36 years old && she's been diagnosed with lupus &&& she's been strugglin for years she was born 1971 and she had open heart surgey and died june 16 2008 i love u mom R.I.P :]
I have been diagnosed with Lupus since December...the pain is terrible and still wont subside, it is a ravaging disease which makes my life pretty chaotic
i've got SLE nurphritis or somthing it's too do with kidney's probably not as worse s some others but it's still annoying... makes me unique in a way i guess being 16 i can't do somethings that my friends or family can do but i still manage just have hope and you'll push through...
i got diagnosed with lupus at 14. i knew nothing about it and i mean nothing i didn't even know it existed . i got caught right in the nick of time. if i didn't get treatments when i did i would be on dialysis right now. thank god for doctors who know what there doing =] god bless everyone. i am now 17 and doing pretty good. still on lots of meds & after getting 6 months of chemo i'm living. god is my healer let him be yours too.
i just lost a friend to this terrible disease, also my grandmother, the love of my life had this is disease sine the late 70's, but now she's in remission thanks to JEHOVAH for sparing her life!
i have lupus i am 14 now i was 12 when i was diagnosed. i was sick for months before i was diagnosed.I was literally dieing. i Has pains everywhere. for weeks. i have much more i am going to make a video~!
On September 10, 2001 my sister Sophie, who was misdiagnosed as having the flu, died right on her wedding day from the disease, the day before the 9/11 attacks and two days before my tenth birthday. I've always worn white shirts and blouses since then. We of course sued the doctor for the misdiagnosing the disease. I will fight until my dying day to rid of this disease
Oh my goodness! I'm sorry to hear about this. Lupus is often misdiagnosed. your situation is very unique and i commend you for your determination to fight for the cause...I ahve been living with lupus since 2003...
I've been fighting Lupus for 14 long and hard years. The treatment sucks and thats why alot of patients eventually give up on it. I myself gave up on taking prednisone because of the negative side effects. For all those with Lupus, may God be with you and fight the fight!
hi, i am 20 yrs old and i was diagnosed with lupus a yr ago in february. i was hurting so bad i could not walk, get dressed myself, get up or move. i could not eat anything. i ended up in the hospital in August of 07 w/ bloodclots, i was dying. im still scared.
Thank you for this video.... I lost my mother less than a year ago from this terrible disease. We need to raise awareness to find a cure... thank you for making a start. xx
i really hope they find a cure or better drugs for lupus - i cant wait!!! thanks for all the effort! may god bless you all! doctor, patients families and friends
My cousin has Lupus and is scared she is going to die and before her 3 daughters are old enough to care for themselves. This woman is in and out of the hospital. He husband died last year and she is a single mom. She had him set up a trust for them to make sure her daughter can go to college if she dies.
i have lupus.. and i sleep waaayyy to much.. my hair started falling out little by little last year.. i have long golden hair so it was really hard i didnt know if i should cut it or not. I didn't, because i have faith that i'll keep living til i die of old age. So im keeping a part of me, im not destroying me.
This is great! Thank you! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with a chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared up at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it....Thank you for this video! Well done!
This video made me cry. I understand everything that those women are going through cause I have Lupus. I've had it for the past 13yrs along with kidney failure.
As a lupus patient since 2000 and having overcome a life threatening case, means loving it and understanding it. My dog died from lupus in 2006 after I recovered..My sister now afflicted. love and love more...rest and rest more.
PetsNPatients 1 month ago
it is unclear. genetics could play a role. you cannot 'catch' lupus like a cold though.
myalr 2 years ago
My mom has lupus :(
M2Snipes 2 years ago
Oh, also have high blood pressure, could that also be connected? Both my babies I had to have early as well, due to severe Preaclampsia while pregnant.
Mojosfire 2 years ago
it is very unlikely if your ana was negative.
TOOLGODDESSTT 2 years ago
I'm trying to find out if Lupus is what I am suffering from. I just now finally got insurance. However, my last blood test was negative, but I was told that can happen. I get the pain all the time in my bones and muscles. I get the mouth ulcers, nausia, tiredness, and I have a mild red area across my cheeks and nose. The doctor even noticed that, but yet the blood test was negative. Lupus also runs in my family. My cousin and my Aunt both had it, they have both passed away. My cousin was 26.
Mojosfire 2 years ago
it does not always show in the blood but u can still have it it can lie doormeant for years.
gumlover2 2 years ago
Hi.
I am the first recorded male in medical history to have Lupus. I was in San Fransico University Hospital 1964-1965. I am now turning to be 52. I am healthy, have my scars from exploritory surgery and skin graghs that were sent to Boston for research. Had the Butterflies on the face. Had to relearn to walk again. Just want to wish you all the best and let you know that miracles do happen.
M
crywolfman 2 years ago 4
jUST WONDERING HOW DID YOU GET THIS, IN CAN IT BE AVOIDED?
BruBoyz 2 years ago
@crywolfman A KID IN OUR SCHOOL ALSO SUFFERS LUPUS I THINK HE IS 10 OR 11 YEARS OLD . I HOPE THEY WILL FIND A CURE NOW ,SO THAT BOY WILL LIVE IN PARADISE. HIS CLASSMATES TOLD ME THAT HE HAS CELLS THAT EATS HIS OTHERS CELLS.AND I HOPE YOU WILL BE CURED.
ADDUSTACKERS 2 years ago 2
Michael Jackson had Lupus and Vitiligo. The shit people put him through for suffering from real and potentially emotionally and physically debilitating diseases. This is reflective of our attitudes in general. People need to see other people as humans. We are all humans. We all have disabilities, some more obvious than others. It's time we stop judging and abusing people and find out who they really are inside. No one wants to be alone.
TheRaGiTe 2 years ago 18
My aunt recently passes, august 10th, 2009, from lupus. it attacked her lungs, plus she amonia and ARDS disease..she passed and its the worst thing ever!!!!!
Lupus does kill,,and it sucks,,
my family is donating to the foundation i think, and at my aunts funeral they had flyers and wristbands to spread awareness.
she has had lupus since she was little, and she died at age 43, although her birthday was a week today.
Email me to get involved in donations and stuff.
ill try my best.
greendayfan1690 2 years ago
Great video.. and I'm so happy to see Michael Douglas involved in awareness. I just read through all the heart breaking comments. I too have lupus, which, triggered overlapping diseases.... It's hard, very hard but if we all pull together, if we all help spread awareness, then we will have more hope than we could ever imagine. Awareness brings research, research brings better treatment and eventually a cure.
Keeping everyone in my thoughts and prayers.
Michellemlm 2 years ago
I am living with lupus day by day. participated in the LFNC run/walk since last year. when i had my biggest and worse flare up. im strugglin to find medical/fiancial assistance.
Kinkyell 2 years ago
There is no way to get coverage to treat my Lupus.
What did I do to deserve this?... Not the disease, the disparity of medical help. Why should I suffer and not those who can get treatment?
I here you America.
wishyoucared 2 years ago
If you'd like to write me, please do. I too have had a tremendous time trying to get medical treatment ever since I became to sick to work and my ins ran out.. You can't buy insurance once you are sick they won't accept you. I know. There are some programs that are not perfect but do help.
If anyone here needs help with getting medical care, please feel free to write me anytime.
Michellemlm 2 years ago
and where do you live? ( in the US?)
thiebvan 2 years ago
mi gf has lupus she feels tired a lot and hurt one day and then doesnt the next i feel soo badd for her but i cant rly do ne thing
kac2rhyme 2 years ago 3
Other day I was in D. Home and Health, and there was a special program about lupus, that showed a woman that died because she didn't want to use the medicines, and after 3 months, she died. She used to get very mad at her mother just because of the effects of the "Lupus". I think is very said the lifes of the people that have Lupus, but if they want to survive, they have to fight for it. And that is something she didn't do, she let the Lupus take her to God's hand!
PriscillaPacheco08 2 years ago 2
Thank God their is hope for new treatments and hopefully a cure one day. Im 36 and I have Lupus. Most days I feel like Im dying inside. The pain, fatigue and loss of mental alertness is horrible. Arthritis has taken over most of my joints and back. Some days I cant walk, even with medications. My dr believes my kidneys are starting to shut down now. Please be there for the person you know who has Lupus. Its hard enough just to get up in the morning, .God Bless, Lana
lanabradshaw 2 years ago
I am 14 and have recently been diagnosed with lupus. fighters, stay strong. there will be a cure one day.
bandie2themaximum 2 years ago 3
bandie2themaximum is it really bad for you?
thiebvan 2 years ago
sorry i just found this or i would have replied sooner. there are people out there with worse cases then i do, but i find it hard to deal with. i've been hospitalized multiple times, and i'm just always tired. do you have it?
bandie2themaximum 2 years ago
i have it i get out of breath just trying to lay down in bed
HaloNerd121 2 years ago
My Lupus is in remission right now. I am Dorian in the video. May God bless you all!!
sweetd1962 2 years ago 2
I have had lupus since 1989 and I have had 50%kidney damage,but they are functioning 100% now thanks to cytoxan.
I am taking cellcept 500 mg every day,2 mg prednisone everyday and aralen 250 mg, I believe I am in remission and thank god everyday for a good and symptom free day!
beverlyann1962 2 years ago
I have had Lupus for over 45 years, having been diagnosed at age 13, in 1968. It took years to diagnose but I had nearly all the classic symptoms, but back then little was known about the disease. By the time the picked up on it serious damage had occurred to my kidneys. I spent 3 months in the Melbourne Royal Childrens Hospital where they gave me 3 months to 2 years to live, but here I am aged 54 and still going. I have endured many medical problems over the years but am still fighting on.
Kerriev1 2 years ago
More videos like this (only for physicians) at symposier (.com)
drzugo 2 years ago
There will be a cure one day. Believe.
Meoww81 2 years ago 3
Doctors here in the UK are very reluctant to diagnose patients with Lupus - I'm 51. A year ago, I was diagnosed with a connective tissue disorder (autoimmune) ?? with raised lupus anti-coagulant antibodies, high blood pressure and Raynaud's Phenomena?? Plaquenil does help, but I still have flare-ups and constant pain and swelling throughout my joints and muscles together with overwhelming tiredness, weakness and depression. I do believe STRESS is at the root of this disease! I long for a CURE.
1IvoryLady 2 years ago
My mom has SLE lupus, and Arthritus, her lupus is spreading and she has been through Kemo and Radiation, Mexotrexate, and Prednisone and nothing has helped at all.
My dad left us when I was 4 (im currently 16) and She worked 3 jobs when he left, she still works a full time job, but she has Heart Kidney and Lung problems. This dieses is horrible, not only is it fatal it is slow and painfull. I have been reasearching it for Days streight. thanks for your comments :)
zurbaburger 2 years ago
Too bad none of these faces are of a victim of Neuropsychiatric Lupus. Lupus attacked my wifes brain 11 years ago! If you have lived well for 20 years with this disease, thank your lucky stars. I have watched lupus literally kill every aspect of my wifes life. She prays for death everyday.
Lupusology 3 years ago
my God i know this is bad i watched my friend go through that she has good days and bad days, after 20 years i got my dx. what ive learned is that sle lupus affects everyone diffrently. i try to fight but some days are hard. i cant tell my family everything so i pray and wait for God to heal me. be blessed 66godsgirl.
66godsgirl 2 years ago
I have educated myself (sometimes I think a little too much) I like this video, the only thing that bothered me is they didn't have any children in this video. It's almost as though "it's an adult disease" News Flash, It's Not. It's just more commonly found in minority women during child bearing ages. It CAN and DOES IMPACT YOUNGER CHILDREN. My daughter was 6yrs old in Mar08 when she had her 1st Flare-Up. I can only hope and pray any future flare-up doesn't mimic the 1st one. It was scary.
Radarlover78 3 years ago
Thank you for posting this video. I feel less alone seeing others' stories. I have been dealing with SLE for just over one year now, and have been struggling very hard to accept it and what it puts me through every day.
This video is a good educational tool for family and friends of lupus sufferers to
watch, so they can be more understanding of their loved ones' suffering.
RavenBettyBlue 3 years ago
You CAN LIVE WELL with Lupus.
I have had it over 20 yrs. Was told I'd have no kids and have 3 sons now 19, 16 and 12....
BELIEVE in YOURSELF!
Mothersload 3 years ago 3
im 19 years old and i have lupus since i was 12 yrs old and da only thing i hope and i whish ind this world is someone to find the cure for lupus =(..and please pray for all of us who have lupus =)
diianiixii 3 years ago 3
i 'll pray for u and all of those who have lupus !
jeremynobigdeal 3 years ago 3
I have a younger sisters,,that was diagnosed with lupus 18 years ago,,she has been suffering ever since,,she takes daily 5mg pills of prednisone and the side effects of it are taking its toll..now lupus is an immune problem ..right.? well i her older brother i am 38 and have been diagnosed with pemphigus feracious another immune problem..also have to take predinison at 20mg daily.the side effects arent as bad in me as her but in time we both will have reumitoid arthritus she deserves better life
tattooedglass 3 years ago
Wonderful video. I like to see faces so I can identify with people. I am living with Lupus myself. It's also good to see a celebrity endorse the cause. We don't see that too often. Great job!
theleepchatchannel 3 years ago
It's really good to see a star like Michahel Douglas spread the word on Lupus. I have never seen this on TV. If it has been, it hasn't been in the major TV markets for long. Very unfortunate. We need more recognition!
cheeseblinzes 3 years ago
Just wanted to say that Lyme disease can mimic Lupus amongst many other diseases. Will be happy to email anyone a Lyme disease brochure. God bless
ecftube 3 years ago
I'm just trying to learn more about it since I find out on monday if I am diagnosed with Lupus. I have been putting off getting tests done because I couldn't afford it.
checkopocket 3 years ago
I remember a new girl at school in elementary. She was petite, but acted really mature and wore perfectly stylish clothes. I thought she was the coolest. Then at recess she couldn't go outside and couldn't participate in phy-ed. She then told me that she had Lupus. She said her bones would break if she were hit.
lostindreams3 3 years ago
I'm a 36 year old woman living with lupus. I hope that they one day will find a cure.
yvetterene 3 years ago
is it especilly black women that get lupus?
zillertaller 3 years ago
to zillertaller "is it especilly black women that get lupus?"
No, the occurance is indeed higher in women of African, Asian or Hispanic descent. But I am white and the docs say I have it.
The only positive thing about the diagnosis, I guess, is that I have never enjoyed a good day as much as I do now, knowing that it well might be the last one!
The silver lining :) for now at least :(
iniquissima 2 years ago
some girl i like alot has lupus and i really hope there's gonna be a cure soon. i'll be praying (:
braboi 3 years ago
I got lupus when i was 10 and i would wake up every morning and throw up and have pain and be tierd, I hope they find a cure the medicene has so many side effects
littleinsteinsown 3 years ago
I was diagnosed with Lupus in 2003 and the summer of 2006 I couldnt get off the couch anymore without help. I would cry out for someone to help me do something as simple as go to the bathroom. I was dx with lupus pneumonitis and I was put on 24 hours oxygen. In novemeber of 2006 I woke up one morning with an excruciating headache and I took my Blood pressure it was 220/150 I knew I was in trouble. 8 TIA's and a pontine stroke. The medicine for Lupus is devastating but their keeping me alive.
AmyTx 3 years ago
I was diagnosed with lupus one year ago, and I suffer occasionally with sore ankles and hands.... Prednisone was a miracle - but I was on it for nearly a year. I've been on Plaquenil for more than 6 months and my pain occurs daily now. I've also now been diagnosed with fibromyalgia. That pain sucks! Although this is all a burden and interferes with my daily life - I thought this video was very dooming and scary..... Almost makes me worry even more!
alygirl06 3 years ago
I'm 31. Diagnosed of lupus july 2006.I feel and almost look perfectly okay now. Although I feel occasional arthritis and heavy legs after few minutes walk. But this happens very seldom.
akomeyam 3 years ago
I was diagnose last year in September 08
smoocherooch 3 years ago
I have a friend right now who is on life support because of lupus, I'm praying 4 him. Let us find a cure
Panovich04 3 years ago
This video has been extremely helpful to me in so many ways,just seeing the faces of other people with lupus has atleast helped me release there is other sufferers out there!I had many ailments over the years that were misdiagnosed but only 6 months ago was i properly diagnosed with this lonely and frusterating illness.Thankfully i have 4 children but my husband doesn't seem to be too understanding as i seem to be the picture of health!Oh the joys of lupus .
kezzie74 3 years ago
Maybe you should suggest that your husband watch some videos here on YouTube about lupus, then maybe he will understand better. If he really loves you, he should be able to do that much for you, right?
RavenBettyBlue 3 years ago
My Mom was diagnosed with lupus at age 11. She passed away 10 minutes after i was born. they couldn't give her any treatment. it was rare back then.
heroesfann 3 years ago
I'm so sorry to hear about your mom and your having to grow up without her. Lupus is a terrible disease. We've made great strides and the life expectancy is so much better than when you were born. You take care of yourself and stay on top of your physical exams. Mom would want that.
cheeseblinzes 3 years ago
all of you ppl are brave and good at heart :) take it strong and never give up. i feel for all of you
darryl349 3 years ago 2
Trying to actually get a diagnosis is the most difficult thing. people don't understand. Makes me want to give up. I am so tired of this...
kakera 3 years ago
I was diagnosed with Lupus in 1999 at the age of 20, and I don't have anyone to talk to about it, well no one that understands what I go through on a daily basis. The video and even some of the comments bring me to tears because I feel all of your pain. It's scary not knowing what the future holds.
mckinneymisses78 3 years ago
all i can hope is that your doing well :) and i think your a hero for holding out this long i would be glad to have a lupus walk or day named after you :)
darryl349 3 years ago
i hav lupus 2...im nikky,but i believed im going to be cured...its very hard to deal with the symptoms of lupus...now im 16, i was 13 when i was diagnosed...lets help people with lupus...
mhinenidhiane 3 years ago 2
i have lupus for 5 years and its a really horrible disease
95678521 3 years ago
I was diagnosed 25 yrs. ago. I had many odd illness that couldn't be diagnosed when I was small. Now it all makes sense. I was so desperately sick after giving birth to my children and still they didn't know what was wrong. Stress is what through me into a lupus flair when I was finally diagnosed. I was in bed for months. Later, I had a job then which nearly killed me and now it's very dangerous for me to over do. I have lung disease, 2 lung surgeries, heart problems all caused from lupus.
terrig52 3 years ago
I've got lupus too!. I'm 13 years old, and only have had it for a couple months. Tomorrow, I'm going to a lupus walk! I'm on prednisone, and have the puffy face to prove it! Lets find a cure for lupus!
kathstew48 3 years ago 2
sarah wade jones had lupus
brimchanel 3 years ago
My sister sarah wade jones passed away from lupus may 12 2008.She tried numerous expieramental drugs,she said if trying that could help 1 person it would be worth it.She got through everyday with a smile thanks too her relationship with jesus christ,she gave me inspiration just you ladies and men do.I pray that they find a cure and for gods grace for everyone of you.
brimchanel 3 years ago
This is such a horrible disease. I just recently lost my sister to this disabilatating disease. I hope one day there will be a cure so families won't have to lose a loved one to it anymore. I pray everyday for a cure.
popithasalor 3 years ago
The Alliance for lupus research walk in NYC is being held October 11!! Please walk to raise awarness and raise money to find a cure.
I HAVE LUPUS AS WELL!
domichica 3 years ago
hi my name is nina mcknight ,, my mom is 36 years old && she's been diagnosed with lupus &&& she's been strugglin for years she was born 1971 and she had open heart surgey and died june 16 2008 i love u mom R.I.P :]
nina31789 3 years ago
oh yeah prednisone blows...everyone fight the good fight
SxEshawn 3 years ago
I have been diagnosed with Lupus since December...the pain is terrible and still wont subside, it is a ravaging disease which makes my life pretty chaotic
SxEshawn 3 years ago
this is a great video
i was diagnosed with lupus in 1997 aged 19yrs
i was 7-8 months preg with my 1st child
ive had 3 clots
1 in my right leg and 2 in my left lung
at the moment im on warfrin to thin my flood and i get the off flair once every yr in my back
the doctors are saying now i have suspected tissue damage due to lupus
nayz123 3 years ago
i've got SLE nurphritis or somthing it's too do with kidney's probably not as worse s some others but it's still annoying... makes me unique in a way i guess being 16 i can't do somethings that my friends or family can do but i still manage just have hope and you'll push through...
ch1Co4019rep 3 years ago 2
i got diagnosed with lupus at 14. i knew nothing about it and i mean nothing i didn't even know it existed . i got caught right in the nick of time. if i didn't get treatments when i did i would be on dialysis right now. thank god for doctors who know what there doing =] god bless everyone. i am now 17 and doing pretty good. still on lots of meds & after getting 6 months of chemo i'm living. god is my healer let him be yours too.
kmrx09 3 years ago
my mother has lupus =(
brokenXXXglass 3 years ago
i just lost a friend to this terrible disease, also my grandmother, the love of my life had this is disease sine the late 70's, but now she's in remission thanks to JEHOVAH for sparing her life!
mizzmuffin23 3 years ago 3
BOLOX!!!!...
i have lupus i am 14 now i was 12 when i was diagnosed. i was sick for months before i was diagnosed.I was literally dieing. i Has pains everywhere. for weeks. i have much more i am going to make a video~!
xshexyxox 3 years ago
On September 10, 2001 my sister Sophie, who was misdiagnosed as having the flu, died right on her wedding day from the disease, the day before the 9/11 attacks and two days before my tenth birthday. I've always worn white shirts and blouses since then. We of course sued the doctor for the misdiagnosing the disease. I will fight until my dying day to rid of this disease
carinalillithkell 3 years ago 11
Oh my goodness! I'm sorry to hear about this. Lupus is often misdiagnosed. your situation is very unique and i commend you for your determination to fight for the cause...I ahve been living with lupus since 2003...
theleepchatchannel 2 years ago
Amen, I can relate.
SunshineBox 3 years ago
I have Lupus I am not treatable but my two sisters have lupus and are treatable,
mother have two forms of lupus and Hepatitis C before she died
My Mother Died from it March 4th 08
Thank You For putting this out there.
Most people I tell about it think it is no big deal.....
It is such a painful disorder mentally emotionally and physically.
Lets Find a Cure...
Blessings M
imtzgal 3 years ago
I've been fighting Lupus for 14 long and hard years. The treatment sucks and thats why alot of patients eventually give up on it. I myself gave up on taking prednisone because of the negative side effects. For all those with Lupus, may God be with you and fight the fight!
blkhatch978 3 years ago
hi, i am 20 yrs old and i was diagnosed with lupus a yr ago in february. i was hurting so bad i could not walk, get dressed myself, get up or move. i could not eat anything. i ended up in the hospital in August of 07 w/ bloodclots, i was dying. im still scared.
muddystingy 4 years ago
Thank you for this video.... I lost my mother less than a year ago from this terrible disease. We need to raise awareness to find a cure... thank you for making a start. xx
chanstarug 4 years ago
i feel so sorry and its so brave of you prople to be on the video xx syke xx
bexy00285 4 years ago
i really hope they find a cure or better drugs for lupus - i cant wait!!! thanks for all the effort! may god bless you all! doctor, patients families and friends
maritalinda25 4 years ago
i lost my mom to lupus.
she was 41
and i was 13
my sister was 17
adicesonp 4 years ago
My cousin has Lupus and is scared she is going to die and before her 3 daughters are old enough to care for themselves. This woman is in and out of the hospital. He husband died last year and she is a single mom. She had him set up a trust for them to make sure her daughter can go to college if she dies.
Noosa1978 4 years ago
i have lupus.. and i sleep waaayyy to much.. my hair started falling out little by little last year.. i have long golden hair so it was really hard i didnt know if i should cut it or not. I didn't, because i have faith that i'll keep living til i die of old age. So im keeping a part of me, im not destroying me.
LadyArgonaut 4 years ago
Thank you.
mommytorres 4 years ago
My best friend kaitlin has lunas and i love her to death! she is amazing and aweseomly great!
kenster1028 4 years ago
wow i had no idea that michael douglas supports lupus researches!
that's awesome!
lalari 4 years ago
I have Lupus and just have had a flare 2 weeks ago.
ettaetta33 4 years ago
This is great! Thank you! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with a chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared up at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it....Thank you for this video! Well done!
patientspride 4 years ago
Wonderful video! Great way to increase awareness! Thanks for posting this! : )
methos1789 4 years ago
My favourite aunt passed away from lupus related complications in 1998...I miss her terribly...
brinbran 4 years ago
thank you .....i lost my mom to lupus when i was 5
devildog3535 4 years ago
In the search box type in: LUPUS AWARENESS INFOMERCIAL. Comment on it if u like. TELL ALL!!!
am6662006 4 years ago
This video made me cry. I understand everything that those women are going through cause I have Lupus. I've had it for the past 13yrs along with kidney failure.
DarkRomance30 4 years ago