I pretty much cried through this entire vid. I think i'm in mourning over the things I can't do. I want so badly for the people around me to understand. I can't even find a doctor that knows anything here in Florida.
Hello, i'm Charlie, i'm 15 and my mum is a sufferer from M.E.
it's not nice to see someone special to you, be in pain, 24/7 and also knowing there is nothing you can do to make her better. My mum has had M.E for 5/6 years now, and she things havent got any easier. Also her friends don't hardly see her.. she feels alone, because i can't always be there for her. Her friends don't understand what she is going through, and honestly...i didnt quite understand either...til i watched this video.
I am 25 years old and have had ME for 1.5 years now. I have been in denial for much of it. Please visit this website which I have just found recently. It has a great deal of useful info.
I'm glad to find there are other people out there who understand. I'm tired of feeling like people don't give me the "right" to be sick, just because I don't have cancer or "look" sick.
As if it isn't hard enough. It is very alienating and I hope and pray for you all.
I would give everything I have, all my possessions and everything just to feel okay again. I'm 24 years old and people really don't see how hard it makes even a simple task like studying for school or even hanging up clothes. Everyone says "you look fine" but the only way I can describe it is feeling like you're going to pass out after staying up for 3 days, but you can't actually sleep. You're too tired to sleep. Too tired to eat, and even if you do eat/work out it doesn't feel any better.
i was diagnosed with M.E last year and i lost all my friends due to my illness im 15 i now have part time schooling and home tuition although the docs think i will have it for the rest of my life this vid touched my heart thankyou ever so much for making it
The ONE thing that can be said is - this is NOT a "New Disease"!! It has gone by several different names in different times in history! Such as "Pernicious Anemia", and a variety of others! I remember my Mother speaking about my Grandmother - how she "took to her bed because she 'couldn't do anything anymore'"!
My Mother had the SAME EXACT symptoms after the age of 45 or so! And, guess what? I never put it together before this video! I"m showing symptoms too!
I've had cfs for the past 15 years, I'm now 50. I was a young energetic mother of three children doing triathlons when I contracted CMV. Watching this video, like others, touched my heart. It also made me realise that I'm not alone. Thank you.
I sat and cried watching this as it describes this horrific illness and its many sypmtoms and how it makes us feel so accurately. I have been ill with ME for 4 years, I am 37. I am mostly housebound and bedbound. I had to fight for my ill health retirement and my state benefits when I was at my lowest ebb and had no strength to fight. I dont feel anyone who hasnt got this illness trully understands my suffering. Thank you so so much for making this video, I will post it on my facebook page.
I was diagnosed with both ME/CFS and Fibromyalgia just over a year ago. Watching your video has heloed by me not feeling so alone with this illness. My Doctor gives me 21 pills a day to help control the pain, but offers no sign of a cure. I was a recovery driver for the AA. Now I have difficulty just brushing my teath. Lets work together to push for a cure, It's not in the mind, It's in the body. Thanks again .
the waking exhaustion and constant pain are the first giveaway signs, i get so tired and forgetful its not even funny anymore plus the added complication of depression on top oh and the never ending headaches , oh to be well again sigh sigh sigh
thank you so much this made me tear up i have had it for nearly 8 years and counting i am not even 21. this has ruined my teenage experience lost me friends stopped me from nursing and taken away a lot of my self identity i dont not feel compleate with this illness this is not really me i am so much more - i will be so much more as will u all love to all and a speedy recovery xxx
I've had M.E/CFS for 4 years. I've just left a 6th Form that didn't understand,but I'm now at Uni. Its important to find things that make you happy &lift your spirits;this is how I aim to recover from this illness. I don't have that many friends anymore,but you soon realise how special those who stick by you really are. I know what its like to have terrible days. But it's what makes the better days worth remembering.
This was sooo good. I sent it to my Sons, Mother and a couple of friends... It so describes what I go thru with Fibromyalgia... Thank-You sooo much... ooxxox
This video explains what it is like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It is one of my favorites because it tells it like it is.
I have posted this to my Facebook page... it's wierd, I felt really emotional and just cried whilst watching this towards the end... it's wierd that everything I feel, is written down here... it's amazing when someone actually understands. Thank you for making this video.
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
Been three years. I've been held back and now my younger sister has more qualifications than me. I still haven't done my GCSE's and i'm coming 18. CFS blows.
I have suffered with CFIDS for 6 years. And it still seems to be getting worse. This video, and others like it, help me so much. The one thing that I don't have, and can't seem to find within myself, is hope.
@Lchristyhastings Dear Christy , I'm so identified with your story because I had suffered from CFS for 7 years. I truly understands your situation and your lack of hope. I truly know that the CFS sufferers CAN NOT hold the hope by themselves. Therefore , I keep the hope together with you in my heart, and you should know that IT IS POSSIBLE to recover CFS. I did. This video made me cry , literally , because of what I had been through , and for the sufferers. Christy,I wish you are healed !!!
Hi, I'm a 20 years old girl from Indonesia.I've been fighting for this illness too and figured it out just now that it is ME. Struggling this plus depression felt like I didn't even Alive/exist. The fog was around, the anxiety...very bothering. two years ago I slept 12 hours a day (night sleep only) and now, with just stay home and try to relax, I sleep 8 to 10 hours. Tried the tapping but I was just to tired to tap my fingers. I didn't know a lot of people getting thru this too. Thx 4 the vid!
I have had chronic fatigue syndrome my entire life...I have had 2 just muscle my way through life...lately, I have seen a sleep doctor who says I have sleep apnea, insomnia, also had 2 iron infusion, take iron pills, but nothing have given me any energy, I have always been anemic so, I thought it was my anemia causing me so many problems....so, I decided to see a hematologist and she says my white blood cell are low/immature so I had a bone marrow biops
This video also made me cry. I have had ME/CFS for nearly 7 years. It made me feel that there was someone else out there that truly understands. It also brought home to me exactly what I have been through and still live through although slightly improving. This illness should not be flippantly dismissed, it is REAL, we are REAL and this is what we have to manage on a daily basis before we and even look at coping with normal day to day things. I admire anyone living with ME/CFS. X
Very informative video. Lot's of good information. Wish there was a cure. I was in a wheelchair for 2 years and did Biofeedback, meditation and yoga. The wheelchair is not retired in my garage. Now if there was a way to get rid of the exhaustion and pain.
Thanks for the great video. All family members, friends and medical people need to watch it.
Very good video!! I'm a FMS/CFS sufferer....and this video made me cry. It hit the nail EXACTLY on the head....It says everything I need to say to my family and friends, only I have a very hard time expressing and defining how I feel....Due to my "FibroFog", it's very difficult to find the correct words. I'm so thankful for videos like this one!! They should air this on Prime Time T.V.....every single day!!!
@tdihler I couldn't have said that any better,TY! I'm in Australia .. very hard to get a Dr here to understand.. last one told me he 'didn't believe in FM .. like it was a religion or s'thing! I've been aware of being 'different' since a kid .. always been 'sick' .. always get 'spacialy lost' .. always ache .. get fog attacks .. wake up more tired than before I slept .. get all the 'tummy' stuff .. wake up feeling sick evry day .. hurt all over most days .. & YES, stress makes sit so much worse
extremely isolated and misunderstood.... i dont know if i suffer from this but this is exactly how i feel day in and day out but i just get called lazy
Nara. It really is heartening to know that people are trying to understand this awful, awful affliction, because that's what this THING is, an affliction. Keep the spirits up, and keep the faith that there will be some wonder cure available to us all in the near future.
I had extreme CFS for 2 years. I did kriya yoga practice daily and after 2 years there was an improvement, it is now another 1.5 years since then and I am almost fully functional, I am short of 3 hours in the morning but very good for the majority of the day. I know I will get back to 100% this year so I just wanted to say that if you are open to it please try kriya yoga. It will still take time but you can definitely come out of it. Good Luck to you all!
We are all working so hard to raise awareness about these Invisible Diseases! Please, my friends, do not give up! I will not stop fighting for every one of you. ..For us.
I always say; though my body is weak, my spirit is not!
This is the best video I've encountered, including writings, describing the torments CFS sufferers endure! I am one of them, although moderately, with some days better than others! It is a living hell when you're homebound, lonely, no one really understands, thinking you're just a hypochondriac and lazy! When all you want to do is to be rid of this dreadful disease and live a normal energetic life!!
Phenomenal video... I cried thru it. You hit on so many of the biggest issues w/ CFS - yes, the physical is awful, but the effects it has on ur life emotionally, mentally and socially is the worst part, and you explained that perfectly. Thank you so much for this video - I'll be passing it on to the family members and old "friends" who just don't seem to get it. If this video doesn't make them understand, nothing will.
wow i think this video is brilliant! it's simple but very powerful and moving. i have had m.e/cfs for nearly 7 years now and this really sumed up what it's like. i hope more people with watch it and get a glimpse of what it's like and spread the awareness of it!! worth watching!
After 30 + years of CFS, having come down with it as a teenager, and now turning 50 next year, went it came to the end I just started crying. I cried at the last bit. All the memories of the long struggle over all those younger years. That struggle a thousand days the same blur to one day in human memory, each day trying to repeat the same thing. go forward. I am doing better now. I function equiv to 3 active days a week. Thanks. Well done. The best!
I'm 53, I have CFS for several years now. I thank God I'm just a "stay at home" house wife. I spend much of my day in bed. It's hard for me to just get the coffee maker ready for the following morning. Sometimes when my husband talks to me or ask me a question, I tell him that I am too tired to talk. So I just listen to him and let him do most of the talking. Do any of you have this symptom of being too tired to talk?
I'm glad I came across this video. It's exactly like you described, running on a dead battery. The problem is even after a performing a certain task, it only gets harder the second time. I've been taking multi-vitamins from Jamiesons. It's labeled Stress Ease. I highly recommend it for any one who goes through this.
I've had ME for years, yet I also have severe Astma and for the last, at least, 7 years every doctor has said to me "ah it's just Astma". I kept saying what was really stopping my days, all the symptoms that come with ME, but noone listened. Until last december I got a kind doctor to run alot of tests with me. Now I'm diagnosed with ME and yet still... my bf today said I professed to have this illness, that it was just depression and it was me not taking care of my body that caused this :'(
I have had cfs/me since november 1996. I first had glandular fever then post viral fatigue and then cfs. i was a fitness fanatic and very strong and would have described myself as masculine and physical in my very essence. I have had two serious cycles of the illness however i have recoverd to a point but am not the same man i was. I would like to say that yoga and progressive muscular relaxation helped me immensley and just to say try either of these as it might help. Regards to me sufferers.
hi i am 14 years old an i was searchiiing in the internet these strange feeling i had for 3 years by far and at first said nah come on i dont relly have this but unfourtunatley i have all the symptons my teachers call me lazy eventhough i work so hard but amalways tired i sleep for 10 hours wake up and still the same tired level idk wut to am failing 3 subjects by now
we saw this at skool today, were doing an assembly about it because one of my bffs has it, she got it bad this time last year and has just started coming back into skool for a lesson a day ;-;
This is it, in a nut shell. I am fighting my employer and trying to hang on to what I have, with little if any understanding from others. I used to be a fit go getter who works in the City and cycled 60 miles a week and am now one of the people you describe in your video. Thanks you for the video and I hope it helps. Regards, Sam (London)
Brought me to tears. It is hard to watch. That is my life being described. The loss was the worst, because I have lost everything mentioned. Because this disease is so devastating, helping others understand it is vital. Thank You!!
Excellent, i'm not alone.. i used to be a fit agile strong and active engineer with masses of stamina... now cant even lift my small toolbox....somebody must be able to help me.....
Im feeling sleepy the whole day, hmm, been happening for quite a few days already. I just feel soo sleepy when i wake up? Is it this virus im having? My body is prone to little muscle aches when i hardly exercise at all.
In part to that, My concentration has distrupted totally because i just keep feeling sleepy. I have re-occuring low grade fever, which i treat by drinking alot of water... DOES ANYONE FEEL THIS WAY LIKE I DO?
iv suffered with m.e for 16 years now and alot of people dont understand us. I cant work I had to gve up my nursing job wich shattered my dreams
i hope people find help watching these videos.
at least you can put in a video what we go through as i can never get people to understand what i go through and who alot of other people go through as well.
@lauragblueeyes That sucks really. I've been going through the same phase for over 3 years. In 2008 I had 5 different jobs coz I couldn't maintain them for long. I thought I was being lazy but I ended up learning that it's chemical and not psychological. Try taking Jamieson's Multivitamin Stress Ease. It's over the counter drugs, it helped me.
im 14 and i have had chronic fatigue syndrome for over seven months now. i didnt know anything about the illness before i got it, but now i can sympathise with others who have it. i have missed a lot of school (which ultimately might take effect on the results of my GCSEs) and lost most of my friends (even though i didnt have many to start off with) but i dont care, im just trying to get better.
My friends did not understand and kept teasing and mocking me, they did not relise how much it was hurting. i told them to watch this video and then look into my eyes and say that i'm faking it. It wasn't thier fault, how can they be expected to understand, anyway thanks for making them open their eyes and relise that what i and many other people have is real and hurting.
This video is the best tool I know for giving family and friends an idea of what CFS feels like. It also highlights one of the most important aspects of the illness - social isolation and depression. I have been ill for three years. We need more information like this out there to inform the public about this poorly understood illness.
When I first got the disease I was not able to walk for 5 minutes. I almost slept all day and only came out for food. I had headaches, and oh so many muscle aches. You know what muscles are when you feel this.
I've had cognitive behavioral therapy with physical training. Currently using extra vitamine b12 (intramusculair injections) , multivitamines and folic acid. I highly recommend it.
I don't, nor any of the people I know have this kind of illness, but I can immagine how it must be to be exchaused all the time.... I know how horrible borring / unsocial you feel when your not out with friends because your tired.. beeing like that each day would be a nightmare..
I'll add this to my favorites, might not be much, but maybe someone by a chance comes across the video and "opens" their eyes. 1 here, 1 there, it's all that matters.
I used to be an extremely optimistic and energetic 7 year old. Then i caught some really strange virus. I was hospitalized for 3 months with mono-like symptoms. I was never the same. I show ALL of the said symptoms. I almost certain it's post-viral fatigue. Thanks for the vid. At least i'm not alone.
i cannot thank you enough! The tears i have shed during this video have enlightened me to get as many friends and family to watch this! I am lacking so badly in support, i feel i can't go on like this, but with your help and this fantastic video, my hope has been reignited. Many many many kind thanks to you for taking the time to create this! For all other sufferers, you have my love and respect. For all those who know someone who suffers and supports them, thank you from the bottom of my heart!
My family wouldn't even spend 10 minutes of their healthy lives to watch this!!! Don't wait for your family to accept or change, just concentrate on getting well again!! I am far from healthy but MUCH less disabled than I was 6 years ago, and I'm not giving up!
This brought tears to my eyes. I can't remember how long I've tried to explain how bad CFS can be, and here is a video that tells people EVERYTHING that CFS does to you.
I always try to do my best not to let this illness define who I am or what I can do. Even some of my closest friends don't know how ill I really am. To all CFS sufferers, be brave and keep fighting!
That is the best video I have seen! WOW WOW WOW & a BIG THANK YOU Most all my family turned their backs on me due to a reaction from Ambien. My son, 28, gave my hubby an ultimatum. Take mom (that's me) to emergency psy or he would get a restraining order. Well, 2 days ago my one year RO was up! Haven't heard from either of my late 20 something boys in a few years-I really don't remember anymore! I have to block that emotional pain out or it will further distroy my health. God Help US!
All I can say is WOW! This truly describes what my wife has had to live through for the last 14 years. To all sufferers, my prayers and hope that GOD will lead the researchers to a cure. To those that are family an friends, please try to understand that this is truly a dibilitating illness, and please make sure that you let them know you truly do care about them and for them. Thanks to Sleepydust for such a wonderful - and eye opening - video. Mark
Such a brilliantly made video - thankyou so much, Sleepydust. Fed up with having to keep explaining why I'm ill. If someone told you they had cancer, you wouldn't press them for more details, would you? It's videos like these that makes people aware that this is an illness and not just a frame of mind to "snap out of". Once people realise that, hopefully it will mean governmet funding for research in the near future.
For all sufferers and their supporters - God bless and take care x
I am bawling my eye's out, it's a great video and i have sent it to my family, I have had it for 5 years and no longer have friends or a socialife or can work etc, and it is crushing every part of me slowly, the only thing it didn't show was how you can be crying one minute then fine the next or how your mood's change so rapidly.
great video and thank you for putting it on you tube.
Thanks people to upload this vid!!, at last my family found something to beliveme (not psicological) Almost 2 years chronic, but since child very mild, but enough to lost many many things during life time. Now no money, no job, not chance to buy medicine, but thanks to God and Jesuschrist, I am returning to life (back to gym, and some social), no more suicide thoughts. Friends, find your formulas as I did: diet, no tv, no agressive videos, love instead of hate, etc.
I've had this for 4 years I'm now 15, and I'm so lonely, my friends even old ones don't seem to know where to stand with me, I haven't spoken to anyone about this, even my sister and father think I'm faking even with medical proof.
I really hope that your family is going to accept that it is real, even if they don't understand it! When they do it'll be a lot easier for you to life and maybe get better! Best of luck!
If you want to talk or anything just send a PM or think about this video: YOUR NOT ALONE!!
i think ive had this for my whole life and always thought it was my fault for being always tired and exahsted when i wake up and cant function at school or anything else at all i feel so tired its just so painfull going like this and not that much people knowing its not ur fault just like everybody that just thinks 'oh well hes just a lazy little punk that dosent wanna try'... sometimes im to tired to sit in my commputer chair and i have to lay down or sit in a way that i dont use energy.helpplz
I've had m.e now for 15 years, i'm 23 now and its just a cycle - feel better, then relapse, feel better, relapse etc this video really puts into words everything i've been through. x
I really know how you feel as i have cfs/me. I feel i lost my family and friend over it. I find most doctor dont understand how it , breaks your body and mind down
I find some Doctor just think your putting it on. I got cfs at age 35 and my life has taken a bad turn.
I just wanted to say , as a non-sufferer, that my support goes out to all of you. There was a congres in Bruxelles yesterday about it, so ME becomes less misunderstood, and so people will understand the severity of it. I hope these efforts will have its positive effects on everyone.
This honestly made me cry. I've had post viral fatigue syndrome for about 7 years, and although I am able to lead a relatively normal life, it's still very difficult to live with and quite painful sometimes. I hope that someday there's an effective treatment but for now I just want to say to everyone to hang in there and I hope you all had a good day today. I also want to say to the non-sufferers, thanks for all your support, every little bit helps - Kiera, almost 17
This clip says it all, i'v had CFS for 3 years now and though its better than it once was i'm still in pain. At its most severe it affected everything i did, no one seemed to think it was much of a problem. I am lucky, at least i could get out of bed, good luck to everyone with this just remember that your not alone.
In the last 3 years CFS/ME has taken almost everything from me. I'm an RN but can no longer work. Even if I could no one would hire me after looking at my attedance history. I've lost my career, credibility, health, many friends, financially we are in ruins. I feel helpless, guilty and lazy. It's not just me that suffers from this but my whole family too. It's so unfair. WHY ME?!?! WHY US!?!?
I have had M.E for 10 years now.. im 25 years old and i just got the diagnostic 6 months ago... and im finally starting to get healthy... which means i can leave the house and visit friends <3
hey i understand this i have had this for like 7 months before now its gone i know some of u give hope but thats only due to the mental fatigue let me tell you all there is always going to be a cause for it no matter what theres always a cause i remember feeling that there was no hope but trust me i am completely back to normal i lost everythin inculdin long term relationship and sport future but just the relief of feeling back to normal and being able to be happy is pricless trust me.
this illness has been the death of me literaly and figuratively im tired constantly and my memory is totally gone . i would not hire me so why would i expect someone else to ? too bad docs dont understand i also have the lovely fibro and hypoglycemia that go along with this sometimes prayers for all hang in there u r NOT alone 20yrs old K.Y.
When I saw this video I became a bit emotional. I didn't have ME but I had a quite severe form of mononucleosis, which lasted about two years. Also constant pain, fatigue, etc. I got better but I am constantly struggling with some symptoms, fortunately in a very mild form, and I can go to work and have a relatively normal life. I really know that feeling of utter hopelessness, don't go through it alone, feel free to message me so we can chat! There is always hope! Take care!
Thank you for sharing this video...I have ME since giving birth at my daughter(31yo)...they thought I had postnatal depression...and had to go on working with lots of medecines...none seems to help me. Afther giving birth at my son (23 yo)...I am in the worriest position. First doctors thought I had MS but I did'nt want to do more research, because by all research they needed to use medecines or radiation, I became worser. Allergies became part of the symptoms.Now I cannot look even after myself
Excellent video, everyone in the medical profession/government should see it. I have had ME for sometime it is only recently people are beginnning to see it as an illness.
Well done! THANK YOU! This video is a short snippet into what people like me have to suffer through every day. I've had CFS/M.E. & FM for years now & I just keep getting worst. I have very "few rare" good days, which doesn't mean I am not suffering from at least 1 or more of an "invisible" symptom(s). I have been bedbound, severely depressed, hopeless & consider suicide VERY often. I can't begin to name all that I have lost. I dream & hope God will bless me with good health for my son...
Ditto. I was bedridden from 2003 2006. This video says it all. Thank you for your courage of expressing how you feel. I share your same emotions. I send great health to all of our children!
i understand! i was like this before and just 2 months ago i am out of all of these terrible disease. what i did is changing diet. keep trying everything you can think of. diet is good for "yeast related" cfs, which suit my case.
I'm in tears right now because this video describes my life. I was diagnosed a few months ago, although I've probably had M.E. for about five years. I'm 16 now, and I can't go to school. I've been bedbound since December with almost all of the symptoms. People just don't understand... I've lost quite a few friends and I feel like there is no hope. The pain and all the debilitating symptoms is just indescribable. I used to have a life but within a day all that changed. M.E./CFIDS is life ruining.
I saw your comment and I was really touched by it. I am 17 years old and I also have CFS. When it first started everything changed from having a life to staying at home, not going to school, in and out the hospital, being in clinics... It's really awful having this and I wanted you to know that you're not alone ;)
Thank you very much for this video which speaks for us who who suffer under M.E./CFS. I am 49 years of age and I have had it throughout my adult life. As bad as the disease is, and the poverty and loneliness it can cause, the worst part for me is the misunderstanding, judging, disrespect, and rejection from other people. When that treatment comes from family members it hurts the most. People can be very shallow and cruel, taking their own good health for granted.
I have just recently been diagnosed. This video made me cry because I felt as though it was describing my life. My case is thankfully not so severe that it has taken everything away. Except that I've had a bad week. I've only gotten out of bed twice. And my whole body hurts. I wanted to become a doctor. I'm usually an optimist, but right now, I feel as though my future has been stolen away. I just have to believe that it's going to get better.
i'm trying to find out stuff about why i'm so tired. i was working like a dog and suddenly i feel like i ran into a wall. i've been canceling engagements left and right. ate a big bowl of salad and it went away for a couple of hours. making it thru a 10 hr. work day feels like a marathon. it's not always present but hits w/out warning. it's driving me nuts
This is a great video. Exactly what you try to put across to people but noone seems to just quite understand what your trying to say. I'm quite lucky in the way that I have good days that I can go to work and even go out for a meal. But there are days, weeks and even months when I'm nothing more than a wreck. I really feel for people who have it worse than I do, and I always worry that one day good days will stop happening.
A wonderful video. I've had this illness for 19 years. Before that I was a clinical psychologist, an avid sailor/bike, had many friends. It knocked me down in the course of one day. This video brings tears. Pris
the feeling of no1 understanding or listening to you is awful! people thinking your imagining it. people just taking the piss. i hope i find out whats wrong with me soon. im 17 and fed up! 2 years of tests that are coming back normal... x
I can never think well enough to be able to explain to someone the extent of all that's going on with me, nor the severity of the symptoms. I showed it to my best friend today, and it said what I could never put into words. I am SO thankful for this video.
Omg I always feel tired and always thought that it was because of my brain...But now I saw this video I think I have it..Unable to attend school, always light-headed and tired, both mentally and phisically, unable to walk larger distances, can somebody please say if I have this illness or not? pls someone tell me whats going on with me? because it's ruining my school career and a goddamn chanse to get myself a job! I feel for everyone who deals with this, have hope all.
I'm really scared... I think I have ME, and every time I read anything about it, it feels more and more likely that I do. Everything matches the way I feel, but I can't find a way to tell my parents...
Such a brilliant video, I often show it to friends and family. I think its touching and real and as a suffer of M.E/CFS I think it shows how real and awful the illness can be.
in sick of this illness..Im so motivated to do so much but so limited by fatigue...everyone thinks I have a personalityi disorder and says to me its all in my head..they think im making it up to get attention...it really hurts that nobody can see it
Like many people, this video has brought me to tears. I've been dealing with CFS for six years, since I was 17.
I'm so happy the strides in awareness we have achieved but there needs to be so much more.
We know first hand how much this disease can take away. Keep strong brothers and sisters, Stay informed. There is not a day that goes by that I do not search the internet for news regarding CFS.
Oh my, when I saw this video it really helped me so much, I am trying to reach out in my community so people will understand what people with M.E. have to go through. I send out a big HUG to all who are struggling with this chronic disease! Sandi
You are not alone!! I felt it like you to!! I could not bring all this things to words.. I feel myself very misunderstood and alone- but God carries me in his arms- no matter how difficult it may be in the dailiylife with this illness. Rest in his arms. He will ALWAYS HELP YOU if you believe in Jesus..
Excellent video. It brought me to tears. My parents knew someone who had ME. She recently passed away. She lived a sad, lonely, life and her children ignored her.
that is so sad isnt it. My family, apart from my daughter and husband dont care. I know its rotton but if they could be in my body for just one month then it would be such a different story
I have ME/CFS, this is a great film to show family & friends what people like us go through each day never knowing if this is to be a good day or not. I feel i didn't do myself any favours coping without help while i was ill & renovating my house, now i know i should have payed outside builders to do the work & life could have been much easier, so now unable to work & pour brain function plus 210,000 over draft its hard to see a way out since i get no help with gov grants ect. love & hope to all
First ME attack was in 6th grade, 1958. ME wasn't discovered until mid-80's. My attacks (1 week to 8 months) for 30 years. Finally diagnosed '88 when Mono kicked it up. Managed to work until 7 years ago until it became so bad I couldn't walk any distance without collapsing. I am now 61 & on Disability. Have many good days, but can NEVER commit to anything. Lonely life, but have love & support from siblings & few friends. Life is discouraging - I still try to do things, but always relapse.
This video made me cry. Its not often that happens. Thanks for making it, it has helped me open my eyes to how my girlfriend (who has ME) is feeling. Although her's is only mild considering what others go through, so much in this video pulled strings at my heart and has allowed me to feel empathy at some kind of level with what she goes through.
I've only had M.E for about a year now. But, i can barely cope. i'm 14, and have lost so many friends due to this. I can no longer attend school, and this is the most important year of my school life. GCSE's- i cant do them :(
I've posted this video on my bebo page, so hopefully people will be able to understand
OMG this video is the best ive seen on M.E. Ive had it for 4 years now and somtimes get real scared it will never go. It helps me so much to see im not the only one,i often feel like it...this video says everything ive tried to explain to people.
I am presently seeing a doctor for conditions that are just like this. I am awaiting results from a gamut of test. I do not even know if this can be detected. As an additional symptom I crash extremely hard after any substantial meal. It is like a roller coaster right now. The second I go up fast for a short burst I know the crash is equally bad. I have to fight to get the simplest things done.
I had "it" too. I believe that the term is used because they haven't a clue what is wrong and many of us have quite different pathologies. So they should just call it unknown illness. "M.E." sounds like a baffle 'em with science" name- that also means little. How did I recover? Slowly. Frightened. This was in 1992-4
i've had CFS for 6 years now and I'm currently trying to finish year 12, this really just summed it all up perfectly, got a bit teary actually. I think i like this video so much because it explains so eloquently the symptoms i suffer but in a way i could never express to my friends myself, maybe through embarrassment or pride or worry that they believe im just lazy. thankyou very much for taking the time to post this, it made me feel a little better on a very bad day, and that means the world.
Chronic fatigue is now a proven disease, with research showing it includes impairment of the immune system. It drives you crazy but it's not "in your mind".
Of all those dozen or so "cures" that people tell you about? Pick the top 3 or 4 and do those consistently, and take it easy on yourselves.
Don't listen to people who haven't had it, who tell you to push thru it (really stupid advice), or to fix your attitutde. Eat well, rest when you can, de-stress...take care.
As a sufferer of ME/CFS I broke down and cried at this video. It made me realise that there are people out there who understand and know what myself and others are going through!!! Hang on in there my fellow sufferers!!!!
That's what I wanted to write down after I've seen the video. I'm too tired, my concentration is horrible and I'm too confused to tell it the way you did Ang. So thank you for this reaction and your encouragement!
Lots of Love for all the sufferers of ME/CFS and their families.
had CFS since 23 until recently, terrible disease..thing is I had severe depression/anxiety before..the severe chronic insomnia and endocrine/immune system damage of that catapulted me into CFS/fibro..however it is an organic illness and what doctors aren't intelligent enough to understand is the principle of INteractive INdependence in such Syndrome disorders..depression is INteractive (contributes/worsens CFS) but curing the depression doesn't get rid of the real organic damage accrued
I had it since 23 until about30..some symptoms etc do relapse occasionally..took me a superhuman effort and determination to generally get to level at now..got a full time job and busy social life, 99 % better..for me it was a mixture of T3 thyroxine deficiency (suspected in most fibro/CFS sufferers), suppressed immune system, allergies as a result (candida believe it or not!), interactive but Independent depression/anxiety..bloody complicated illness and those who promise 'magic bullets' lie
I pretty much cried through this entire vid. I think i'm in mourning over the things I can't do. I want so badly for the people around me to understand. I can't even find a doctor that knows anything here in Florida.
MyMaxKali 2 months ago
Hello, i'm Charlie, i'm 15 and my mum is a sufferer from M.E.
it's not nice to see someone special to you, be in pain, 24/7 and also knowing there is nothing you can do to make her better. My mum has had M.E for 5/6 years now, and she things havent got any easier. Also her friends don't hardly see her.. she feels alone, because i can't always be there for her. Her friends don't understand what she is going through, and honestly...i didnt quite understand either...til i watched this video.
TheCharlieeLouisee 6 months ago
I am 25 years old and have had ME for 1.5 years now. I have been in denial for much of it. Please visit this website which I have just found recently. It has a great deal of useful info.
I'm glad to find there are other people out there who understand. I'm tired of feeling like people don't give me the "right" to be sick, just because I don't have cancer or "look" sick.
As if it isn't hard enough. It is very alienating and I hope and pray for you all.
redchilidoll 10 months ago 9
I would give everything I have, all my possessions and everything just to feel okay again. I'm 24 years old and people really don't see how hard it makes even a simple task like studying for school or even hanging up clothes. Everyone says "you look fine" but the only way I can describe it is feeling like you're going to pass out after staying up for 3 days, but you can't actually sleep. You're too tired to sleep. Too tired to eat, and even if you do eat/work out it doesn't feel any better.
DeltaElite121 1 year ago 5
i was diagnosed with M.E last year and i lost all my friends due to my illness im 15 i now have part time schooling and home tuition although the docs think i will have it for the rest of my life this vid touched my heart thankyou ever so much for making it
Sophieepie 1 year ago 6
The ONE thing that can be said is - this is NOT a "New Disease"!! It has gone by several different names in different times in history! Such as "Pernicious Anemia", and a variety of others! I remember my Mother speaking about my Grandmother - how she "took to her bed because she 'couldn't do anything anymore'"!
My Mother had the SAME EXACT symptoms after the age of 45 or so! And, guess what? I never put it together before this video! I"m showing symptoms too!
paulakaye5 1 year ago
I've had cfs for the past 15 years, I'm now 50. I was a young energetic mother of three children doing triathlons when I contracted CMV. Watching this video, like others, touched my heart. It also made me realise that I'm not alone. Thank you.
MsKrusie 1 year ago 2
I sat and cried watching this as it describes this horrific illness and its many sypmtoms and how it makes us feel so accurately. I have been ill with ME for 4 years, I am 37. I am mostly housebound and bedbound. I had to fight for my ill health retirement and my state benefits when I was at my lowest ebb and had no strength to fight. I dont feel anyone who hasnt got this illness trully understands my suffering. Thank you so so much for making this video, I will post it on my facebook page.
rosybunny100 1 year ago 4
I'm 20 now. What I wouldn't give to go back in time and warn my 17 year old self to make the most of things.
Denomar 1 year ago 2
I was diagnosed with both ME/CFS and Fibromyalgia just over a year ago. Watching your video has heloed by me not feeling so alone with this illness. My Doctor gives me 21 pills a day to help control the pain, but offers no sign of a cure. I was a recovery driver for the AA. Now I have difficulty just brushing my teath. Lets work together to push for a cure, It's not in the mind, It's in the body. Thanks again .
zodiacmk11 1 year ago
the waking exhaustion and constant pain are the first giveaway signs, i get so tired and forgetful its not even funny anymore plus the added complication of depression on top oh and the never ending headaches , oh to be well again sigh sigh sigh
hobbily 1 year ago
thank you so much this made me tear up i have had it for nearly 8 years and counting i am not even 21. this has ruined my teenage experience lost me friends stopped me from nursing and taken away a lot of my self identity i dont not feel compleate with this illness this is not really me i am so much more - i will be so much more as will u all love to all and a speedy recovery xxx
iluvlaughinghard 1 year ago
I've had M.E/CFS for 4 years. I've just left a 6th Form that didn't understand,but I'm now at Uni. Its important to find things that make you happy &lift your spirits;this is how I aim to recover from this illness. I don't have that many friends anymore,but you soon realise how special those who stick by you really are. I know what its like to have terrible days. But it's what makes the better days worth remembering.
spamsalot 1 year ago 3
A very good online friend of mine suffer this. And i feel very sad for him because he is a sweet guy.
TashaRichardsonFan 1 year ago
This was sooo good. I sent it to my Sons, Mother and a couple of friends... It so describes what I go thru with Fibromyalgia... Thank-You sooo much... ooxxox
SuzetteMW 1 year ago
This video explains what it is like to have Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. It is one of my favorites because it tells it like it is.
janeann00 1 year ago
I have posted this to my Facebook page... it's wierd, I felt really emotional and just cried whilst watching this towards the end... it's wierd that everything I feel, is written down here... it's amazing when someone actually understands. Thank you for making this video.
jimgem85 1 year ago 4
i describe the tiredness as feeling hit by a train when i wake up
blackkat77 1 year ago 4
I have had ME/CFS for over 3 yrs im 17 now
i even lost my last 2 yrs of school and i dont see my friends anymore
i even tried The Lightning Process and Acupuncture but they didnt work for me
It really has ruined my life
PeaceLoveandDreams 1 year ago
I am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure of this horrific condition without drugs, and am living proof you can cure this and take back your life. Symptoms are mistaken for the cause and treatments that help do not cure. Please, do not be discouraged by failed hope and keep going!!!
Valerie Lumley, Recovered Fibromyalgic and author of
"Curing Chronic Fibromyalgia - Choosing What Works"
ValerieLumley 1 year ago
I have a close friend with CFS. I say 'close friend', closer than a friend I'd say. >_>
I would try and help him more, but he's stubborn and can still do a lot of things himself, he just gets really bad insomnia and exhaustion.
I live too far away to be able to really lend a hand though. =[ but I wanna learn more about this illness. Thanks for the video!
HamHamSky 1 year ago
I'm 13 and have had this for 3 yrs. This video made me cry. My auntie who is like a sister also has this. This video ss it up perfectly x
skullzy1 1 year ago 3
Been three years. I've been held back and now my younger sister has more qualifications than me. I still haven't done my GCSE's and i'm coming 18. CFS blows.
LordofAnnoyence 1 year ago
I have suffered with CFIDS for 6 years. And it still seems to be getting worse. This video, and others like it, help me so much. The one thing that I don't have, and can't seem to find within myself, is hope.
Lchristyhastings 1 year ago
@Lchristyhastings Dear Christy , I'm so identified with your story because I had suffered from CFS for 7 years. I truly understands your situation and your lack of hope. I truly know that the CFS sufferers CAN NOT hold the hope by themselves. Therefore , I keep the hope together with you in my heart, and you should know that IT IS POSSIBLE to recover CFS. I did. This video made me cry , literally , because of what I had been through , and for the sufferers. Christy,I wish you are healed !!!
Ashapa1 1 year ago
so important to raise awareness of this dibilitating disease!
MrCatwoman09 1 year ago
good video, very helpful to me
Colvee09 1 year ago
Thank you. It's hard to explain to outsiders, even family, what it is. This helped where my words cannot.
SpauldingTBear 1 year ago
Hi, I'm a 20 years old girl from Indonesia.I've been fighting for this illness too and figured it out just now that it is ME. Struggling this plus depression felt like I didn't even Alive/exist. The fog was around, the anxiety...very bothering. two years ago I slept 12 hours a day (night sleep only) and now, with just stay home and try to relax, I sleep 8 to 10 hours. Tried the tapping but I was just to tired to tap my fingers. I didn't know a lot of people getting thru this too. Thx 4 the vid!
Rinnist 1 year ago
I have had chronic fatigue syndrome my entire life...I have had 2 just muscle my way through life...lately, I have seen a sleep doctor who says I have sleep apnea, insomnia, also had 2 iron infusion, take iron pills, but nothing have given me any energy, I have always been anemic so, I thought it was my anemia causing me so many problems....so, I decided to see a hematologist and she says my white blood cell are low/immature so I had a bone marrow biops
MsBlackBeautee 1 year ago
This video also made me cry. I have had ME/CFS for nearly 7 years. It made me feel that there was someone else out there that truly understands. It also brought home to me exactly what I have been through and still live through although slightly improving. This illness should not be flippantly dismissed, it is REAL, we are REAL and this is what we have to manage on a daily basis before we and even look at coping with normal day to day things. I admire anyone living with ME/CFS. X
RozLong1 1 year ago
Very informative video. Lot's of good information. Wish there was a cure. I was in a wheelchair for 2 years and did Biofeedback, meditation and yoga. The wheelchair is not retired in my garage. Now if there was a way to get rid of the exhaustion and pain.
Thanks for the great video. All family members, friends and medical people need to watch it.
SilverMoon49 1 year ago
Thanks for posting this vid. I have had ME myself and know the difficulties surrounding both the illness physically and socially.
indiemuzochick 1 year ago
This video is really useful to show people to help them understand thank you for making it!
I hope other M.E/CFS suffers are as well as possible today!
KirariFairy 1 year ago
Very good video!! I'm a FMS/CFS sufferer....and this video made me cry. It hit the nail EXACTLY on the head....It says everything I need to say to my family and friends, only I have a very hard time expressing and defining how I feel....Due to my "FibroFog", it's very difficult to find the correct words. I'm so thankful for videos like this one!! They should air this on Prime Time T.V.....every single day!!!
tdihler 1 year ago 2
@tdihler I couldn't have said that any better,TY! I'm in Australia .. very hard to get a Dr here to understand.. last one told me he 'didn't believe in FM .. like it was a religion or s'thing! I've been aware of being 'different' since a kid .. always been 'sick' .. always get 'spacialy lost' .. always ache .. get fog attacks .. wake up more tired than before I slept .. get all the 'tummy' stuff .. wake up feeling sick evry day .. hurt all over most days .. & YES, stress makes sit so much worse
NoDraMuzz 1 year ago
extremely isolated and misunderstood.... i dont know if i suffer from this but this is exactly how i feel day in and day out but i just get called lazy
zaazi123 1 year ago 2
Nara. It really is heartening to know that people are trying to understand this awful, awful affliction, because that's what this THING is, an affliction. Keep the spirits up, and keep the faith that there will be some wonder cure available to us all in the near future.
murphyaran 1 year ago
This viedo make you want to cry
n300zx1 1 year ago
I love this video it made me cry, because it is me.......
katierad 1 year ago
@katierad me tooo :( people just make you feel worse like its your own fault
zaazi123 1 year ago
great music
Nezmundo00 1 year ago
I had extreme CFS for 2 years. I did kriya yoga practice daily and after 2 years there was an improvement, it is now another 1.5 years since then and I am almost fully functional, I am short of 3 hours in the morning but very good for the majority of the day. I know I will get back to 100% this year so I just wanted to say that if you are open to it please try kriya yoga. It will still take time but you can definitely come out of it. Good Luck to you all!
thegreenandredtoad 1 year ago
Please could you tell me the music in this video?
Nezmundo00 1 year ago
We are all working so hard to raise awareness about these Invisible Diseases! Please, my friends, do not give up! I will not stop fighting for every one of you. ..For us.
I always say; though my body is weak, my spirit is not!
We are in this together.
Sending Love...
DrFrankyDolan 1 year ago 84
Thanks for sharing this video, it is very touching and beautiful. :D
TashaRichardsonFan 1 year ago
This is the best video I've encountered, including writings, describing the torments CFS sufferers endure! I am one of them, although moderately, with some days better than others! It is a living hell when you're homebound, lonely, no one really understands, thinking you're just a hypochondriac and lazy! When all you want to do is to be rid of this dreadful disease and live a normal energetic life!!
Magyar487 1 year ago
Phenomenal video... I cried thru it. You hit on so many of the biggest issues w/ CFS - yes, the physical is awful, but the effects it has on ur life emotionally, mentally and socially is the worst part, and you explained that perfectly. Thank you so much for this video - I'll be passing it on to the family members and old "friends" who just don't seem to get it. If this video doesn't make them understand, nothing will.
faeridream 1 year ago
wow i think this video is brilliant! it's simple but very powerful and moving. i have had m.e/cfs for nearly 7 years now and this really sumed up what it's like. i hope more people with watch it and get a glimpse of what it's like and spread the awareness of it!! worth watching!
banff21twilight 1 year ago
very powerful & simply put ..........
muskettball 1 year ago
i have fibromialgy and cronic fatigue than 4 years ago is very strong this ilness
MultiCherryLips 1 year ago
After 30 + years of CFS, having come down with it as a teenager, and now turning 50 next year, went it came to the end I just started crying. I cried at the last bit. All the memories of the long struggle over all those younger years. That struggle a thousand days the same blur to one day in human memory, each day trying to repeat the same thing. go forward. I am doing better now. I function equiv to 3 active days a week. Thanks. Well done. The best!
Cdownunder001 1 year ago 4
Oh this is such wonderful news. Well done. I really admire your great courage.
God bless you and I hope you keep improving.
Anne
FreeBritain1 1 year ago
thanks. that just about sums it all up. so frustrating i have suffered 4 15 years. any advise please post!
rbealey1 1 year ago 3
I'm 53, I have CFS for several years now. I thank God I'm just a "stay at home" house wife. I spend much of my day in bed. It's hard for me to just get the coffee maker ready for the following morning. Sometimes when my husband talks to me or ask me a question, I tell him that I am too tired to talk. So I just listen to him and let him do most of the talking. Do any of you have this symptom of being too tired to talk?
SuperChicagolady 1 year ago 4
@SuperChicagolady yes, i remember that, you cant talk or even listen. especially in the morning, i cant answer questions for a couple of hours.
gemini222ify 1 year ago
I'm glad I came across this video. It's exactly like you described, running on a dead battery. The problem is even after a performing a certain task, it only gets harder the second time. I've been taking multi-vitamins from Jamiesons. It's labeled Stress Ease. I highly recommend it for any one who goes through this.
3DeeFanatic 1 year ago 2
I love this video
so moving
could anyone tell me what the music is please?
X
xFunnixBunnixClarkyx 1 year ago
I've had ME for years, yet I also have severe Astma and for the last, at least, 7 years every doctor has said to me "ah it's just Astma". I kept saying what was really stopping my days, all the symptoms that come with ME, but noone listened. Until last december I got a kind doctor to run alot of tests with me. Now I'm diagnosed with ME and yet still... my bf today said I professed to have this illness, that it was just depression and it was me not taking care of my body that caused this :'(
Janeheartilly 2 years ago 3
I have had cfs/me since november 1996. I first had glandular fever then post viral fatigue and then cfs. i was a fitness fanatic and very strong and would have described myself as masculine and physical in my very essence. I have had two serious cycles of the illness however i have recoverd to a point but am not the same man i was. I would like to say that yoga and progressive muscular relaxation helped me immensley and just to say try either of these as it might help. Regards to me sufferers.
gregingram1970 2 years ago 3
hi i am 14 years old an i was searchiiing in the internet these strange feeling i had for 3 years by far and at first said nah come on i dont relly have this but unfourtunatley i have all the symptons my teachers call me lazy eventhough i work so hard but amalways tired i sleep for 10 hours wake up and still the same tired level idk wut to am failing 3 subjects by now
jeager22 2 years ago 3
we saw this at skool today, were doing an assembly about it because one of my bffs has it, she got it bad this time last year and has just started coming back into skool for a lesson a day ;-;
toontownsrs 2 years ago
This is it, in a nut shell. I am fighting my employer and trying to hang on to what I have, with little if any understanding from others. I used to be a fit go getter who works in the City and cycled 60 miles a week and am now one of the people you describe in your video. Thanks you for the video and I hope it helps. Regards, Sam (London)
sammie747 2 years ago
Brought me to tears. It is hard to watch. That is my life being described. The loss was the worst, because I have lost everything mentioned. Because this disease is so devastating, helping others understand it is vital. Thank You!!
bhernandez5984 2 years ago 3
amazing ! i never understood till now. i have been in and out of work.
kudakay2000 1 year ago
Excellent, i'm not alone.. i used to be a fit agile strong and active engineer with masses of stamina... now cant even lift my small toolbox....somebody must be able to help me.....
rubblelover 2 years ago 2
Im feeling sleepy the whole day, hmm, been happening for quite a few days already. I just feel soo sleepy when i wake up? Is it this virus im having? My body is prone to little muscle aches when i hardly exercise at all.
In part to that, My concentration has distrupted totally because i just keep feeling sleepy. I have re-occuring low grade fever, which i treat by drinking alot of water... DOES ANYONE FEEL THIS WAY LIKE I DO?
shahil101able 2 years ago
Hope is still there..May God give you the courage..
dayohus 2 years ago
iv suffered with m.e for 16 years now and alot of people dont understand us. I cant work I had to gve up my nursing job wich shattered my dreams
i hope people find help watching these videos.
at least you can put in a video what we go through as i can never get people to understand what i go through and who alot of other people go through as well.
lauragblueeyes 2 years ago
@lauragblueeyes That sucks really. I've been going through the same phase for over 3 years. In 2008 I had 5 different jobs coz I couldn't maintain them for long. I thought I was being lazy but I ended up learning that it's chemical and not psychological. Try taking Jamieson's Multivitamin Stress Ease. It's over the counter drugs, it helped me.
3DeeFanatic 1 year ago 2
im 14 and i have had chronic fatigue syndrome for over seven months now. i didnt know anything about the illness before i got it, but now i can sympathise with others who have it. i have missed a lot of school (which ultimately might take effect on the results of my GCSEs) and lost most of my friends (even though i didnt have many to start off with) but i dont care, im just trying to get better.
AshTheFallenAngel 2 years ago
My friends did not understand and kept teasing and mocking me, they did not relise how much it was hurting. i told them to watch this video and then look into my eyes and say that i'm faking it. It wasn't thier fault, how can they be expected to understand, anyway thanks for making them open their eyes and relise that what i and many other people have is real and hurting.
Weallmustlivetodie 2 years ago
This video is the best tool I know for giving family and friends an idea of what CFS feels like. It also highlights one of the most important aspects of the illness - social isolation and depression. I have been ill for three years. We need more information like this out there to inform the public about this poorly understood illness.
QueenAdelaide79 2 years ago
My life in 9 minutes & 16 seconds! Thankyou.
traceynorthernstar 2 years ago 3
iv sufferd from M.E for 2 years now and this is such an amazing video,the music realy goes with it...thankuu so much for making this xxx
Tulipflowerz 2 years ago
When I first got the disease I was not able to walk for 5 minutes. I almost slept all day and only came out for food. I had headaches, and oh so many muscle aches. You know what muscles are when you feel this.
I've had cognitive behavioral therapy with physical training. Currently using extra vitamine b12 (intramusculair injections) , multivitamines and folic acid. I highly recommend it.
MerinaWish 2 years ago
God bless all of you. Do your medical tests show nothing? Liver, thyroid, anything?
I hope that one day you'll all be freed to live healthy lives. And may those around you give you the love and understanding we all need.
Nu13th 2 years ago
Great reminder.
I don't, nor any of the people I know have this kind of illness, but I can immagine how it must be to be exchaused all the time.... I know how horrible borring / unsocial you feel when your not out with friends because your tired.. beeing like that each day would be a nightmare..
I'll add this to my favorites, might not be much, but maybe someone by a chance comes across the video and "opens" their eyes. 1 here, 1 there, it's all that matters.
Thanks for remind us others...
TheVeryEnd87 2 years ago
I used to be an extremely optimistic and energetic 7 year old. Then i caught some really strange virus. I was hospitalized for 3 months with mono-like symptoms. I was never the same. I show ALL of the said symptoms. I almost certain it's post-viral fatigue. Thanks for the vid. At least i'm not alone.
macwild1234 2 years ago
such a perfect video, thankyou X
ljmacbeth 2 years ago
i cannot thank you enough! The tears i have shed during this video have enlightened me to get as many friends and family to watch this! I am lacking so badly in support, i feel i can't go on like this, but with your help and this fantastic video, my hope has been reignited. Many many many kind thanks to you for taking the time to create this! For all other sufferers, you have my love and respect. For all those who know someone who suffers and supports them, thank you from the bottom of my heart!
FuriousAngelDee 2 years ago 4
My family wouldn't even spend 10 minutes of their healthy lives to watch this!!! Don't wait for your family to accept or change, just concentrate on getting well again!! I am far from healthy but MUCH less disabled than I was 6 years ago, and I'm not giving up!
TizzysAngel 2 years ago
Excellent video! 5*
StopUnumNow 2 years ago
This brought tears to my eyes. I can't remember how long I've tried to explain how bad CFS can be, and here is a video that tells people EVERYTHING that CFS does to you.
I always try to do my best not to let this illness define who I am or what I can do. Even some of my closest friends don't know how ill I really am. To all CFS sufferers, be brave and keep fighting!
Midnorme 2 years ago 3
That is the best video I have seen! WOW WOW WOW & a BIG THANK YOU Most all my family turned their backs on me due to a reaction from Ambien. My son, 28, gave my hubby an ultimatum. Take mom (that's me) to emergency psy or he would get a restraining order. Well, 2 days ago my one year RO was up! Haven't heard from either of my late 20 something boys in a few years-I really don't remember anymore! I have to block that emotional pain out or it will further distroy my health. God Help US!
kozmoproduction 2 years ago
All I can say is WOW! This truly describes what my wife has had to live through for the last 14 years. To all sufferers, my prayers and hope that GOD will lead the researchers to a cure. To those that are family an friends, please try to understand that this is truly a dibilitating illness, and please make sure that you let them know you truly do care about them and for them. Thanks to Sleepydust for such a wonderful - and eye opening - video. Mark
WelbyUTube 2 years ago
Such a brilliantly made video - thankyou so much, Sleepydust. Fed up with having to keep explaining why I'm ill. If someone told you they had cancer, you wouldn't press them for more details, would you? It's videos like these that makes people aware that this is an illness and not just a frame of mind to "snap out of". Once people realise that, hopefully it will mean governmet funding for research in the near future.
For all sufferers and their supporters - God bless and take care x
Scuzzymel 2 years ago 3
I am bawling my eye's out, it's a great video and i have sent it to my family, I have had it for 5 years and no longer have friends or a socialife or can work etc, and it is crushing every part of me slowly, the only thing it didn't show was how you can be crying one minute then fine the next or how your mood's change so rapidly.
great video and thank you for putting it on you tube.
swayde32 2 years ago 4
Thanks people to upload this vid!!, at last my family found something to beliveme (not psicological) Almost 2 years chronic, but since child very mild, but enough to lost many many things during life time. Now no money, no job, not chance to buy medicine, but thanks to God and Jesuschrist, I am returning to life (back to gym, and some social), no more suicide thoughts. Friends, find your formulas as I did: diet, no tv, no agressive videos, love instead of hate, etc.
Krieghalter1 2 years ago
I've had this for 4 years I'm now 15, and I'm so lonely, my friends even old ones don't seem to know where to stand with me, I haven't spoken to anyone about this, even my sister and father think I'm faking even with medical proof.
Anyway good luck to other sufferers
os100594 2 years ago
You are not alone : )
rockthecroc 2 years ago
I really hope that your family is going to accept that it is real, even if they don't understand it! When they do it'll be a lot easier for you to life and maybe get better! Best of luck!
If you want to talk or anything just send a PM or think about this video: YOUR NOT ALONE!!
A seventeen year old girl from the Netherlands!
Hummol 2 years ago
Thanks.
sueysa 2 years ago
Comment removed
XMALTESER 2 years ago
i think ive had this for my whole life and always thought it was my fault for being always tired and exahsted when i wake up and cant function at school or anything else at all i feel so tired its just so painfull going like this and not that much people knowing its not ur fault just like everybody that just thinks 'oh well hes just a lazy little punk that dosent wanna try'... sometimes im to tired to sit in my commputer chair and i have to lay down or sit in a way that i dont use energy.helpplz
fizzy408 2 years ago
I've had m.e now for 15 years, i'm 23 now and its just a cycle - feel better, then relapse, feel better, relapse etc this video really puts into words everything i've been through. x
86Tanyasm 2 years ago
I really know how you feel as i have cfs/me. I feel i lost my family and friend over it. I find most doctor dont understand how it , breaks your body and mind down
I find some Doctor just think your putting it on. I got cfs at age 35 and my life has taken a bad turn.
ritalinla40 2 years ago
I just wanted to say , as a non-sufferer, that my support goes out to all of you. There was a congres in Bruxelles yesterday about it, so ME becomes less misunderstood, and so people will understand the severity of it. I hope these efforts will have its positive effects on everyone.
lifegiving09 2 years ago
i moved up north for a year the dry cold air.
realy helped my condition i thought it was almost gone been suffering with it for 4 years.
came back to the coastal areas for 6 weeks it flared up again.
Arkstrikle 2 years ago
This honestly made me cry. I've had post viral fatigue syndrome for about 7 years, and although I am able to lead a relatively normal life, it's still very difficult to live with and quite painful sometimes. I hope that someday there's an effective treatment but for now I just want to say to everyone to hang in there and I hope you all had a good day today. I also want to say to the non-sufferers, thanks for all your support, every little bit helps - Kiera, almost 17
EvilLollie 2 years ago 19
One of my friend online have very serve cfs, he was bedridden for a very long time.
TashaRichardsonFan 2 years ago
This clip says it all, i'v had CFS for 3 years now and though its better than it once was i'm still in pain. At its most severe it affected everything i did, no one seemed to think it was much of a problem. I am lucky, at least i could get out of bed, good luck to everyone with this just remember that your not alone.
Weallmustlivetodie 2 years ago
In the last 3 years CFS/ME has taken almost everything from me. I'm an RN but can no longer work. Even if I could no one would hire me after looking at my attedance history. I've lost my career, credibility, health, many friends, financially we are in ruins. I feel helpless, guilty and lazy. It's not just me that suffers from this but my whole family too. It's so unfair. WHY ME?!?! WHY US!?!?
JustaWyomingGirl 2 years ago 6
I have PVFS and although no way as bad as ME this video has been useful.
I plan to complete a long cycle tour to raise some money for ME suffers when i'm not so tired!
friendlypete10 2 years ago 2
hi friendly pete10,
I have pvfs too. How long have you had it now? What are you current symptoms?? Sorry to bombard but its rare to be able to just ask someone!!
Thanks )
pashleylouise 2 years ago
Such a moving and realistic truth. Thank you.
FibroMeandCFShope 2 years ago
I have CFS at the moment, it started a view months ago. It's really terrifying, espessially at the beginning.
GingerAutie 2 years ago
I have had M.E for 10 years now.. im 25 years old and i just got the diagnostic 6 months ago... and im finally starting to get healthy... which means i can leave the house and visit friends <3
NexXxoR666 2 years ago
hey i understand this i have had this for like 7 months before now its gone i know some of u give hope but thats only due to the mental fatigue let me tell you all there is always going to be a cause for it no matter what theres always a cause i remember feeling that there was no hope but trust me i am completely back to normal i lost everythin inculdin long term relationship and sport future but just the relief of feeling back to normal and being able to be happy is pricless trust me.
faris2k6 2 years ago
This video captures it all. Thank you so much.
genuality 2 years ago
this illness has been the death of me literaly and figuratively im tired constantly and my memory is totally gone . i would not hire me so why would i expect someone else to ? too bad docs dont understand i also have the lovely fibro and hypoglycemia that go along with this sometimes prayers for all hang in there u r NOT alone 20yrs old K.Y.
swedderb 2 years ago
i have had it 4 4 years now:-(
i wish it would all just go away:-(
it dosent help that people dont belive it actally excist:-(
i was bedbound 2 summers ago and had 2 go 2 hospital 4 2 and a half months..........
any one else who has it hang in there.
i guess were all in this 2 gether:-)
dont give up hope.....
zefrongurl4567 2 years ago
I just wanted to share my friend had this really bad but Jesus saved her and healed her. I pray that you all will get well and find hope.
truthbeknowen 2 years ago 2
i must say that i am extremely severely affected. or ULTRA affected.
Slazzy 2 years ago
When I saw this video I became a bit emotional. I didn't have ME but I had a quite severe form of mononucleosis, which lasted about two years. Also constant pain, fatigue, etc. I got better but I am constantly struggling with some symptoms, fortunately in a very mild form, and I can go to work and have a relatively normal life. I really know that feeling of utter hopelessness, don't go through it alone, feel free to message me so we can chat! There is always hope! Take care!
GiDaOne 2 years ago
i do have the first symptoms which u show in the vid... always extremely fatigued. and most of the other if not all.
Slazzy 2 years ago
ive just had loadsa bloodtests done like about 6 cos they thought something was wrong with my thyroid but i actually have CFS ?? weird
ilove2dance4eva 2 years ago
Thank you for sharing this video...I have ME since giving birth at my daughter(31yo)...they thought I had postnatal depression...and had to go on working with lots of medecines...none seems to help me. Afther giving birth at my son (23 yo)...I am in the worriest position. First doctors thought I had MS but I did'nt want to do more research, because by all research they needed to use medecines or radiation, I became worser. Allergies became part of the symptoms.Now I cannot look even after myself
7jelena7 2 years ago
Excellent video, everyone in the medical profession/government should see it. I have had ME for sometime it is only recently people are beginnning to see it as an illness.
cmchadburn 2 years ago 11
Well done! THANK YOU! This video is a short snippet into what people like me have to suffer through every day. I've had CFS/M.E. & FM for years now & I just keep getting worst. I have very "few rare" good days, which doesn't mean I am not suffering from at least 1 or more of an "invisible" symptom(s). I have been bedbound, severely depressed, hopeless & consider suicide VERY often. I can't begin to name all that I have lost. I dream & hope God will bless me with good health for my son...
haydensmommy0706 2 years ago 4
god bless u...He cares for you...
livingfaith17 2 years ago
Ditto. I was bedridden from 2003 2006. This video says it all. Thank you for your courage of expressing how you feel. I share your same emotions. I send great health to all of our children!
genuality 2 years ago
Comment removed
KerliFanatic 2 years ago 2
dear KerliFanatic,
i understand! i was like this before and just 2 months ago i am out of all of these terrible disease. what i did is changing diet. keep trying everything you can think of. diet is good for "yeast related" cfs, which suit my case.
keep hope.
yunyi2009gmail 2 years ago
I'm in tears right now because this video describes my life. I was diagnosed a few months ago, although I've probably had M.E. for about five years. I'm 16 now, and I can't go to school. I've been bedbound since December with almost all of the symptoms. People just don't understand... I've lost quite a few friends and I feel like there is no hope. The pain and all the debilitating symptoms is just indescribable. I used to have a life but within a day all that changed. M.E./CFIDS is life ruining.
KerliFanatic 2 years ago 5
Dont give up your hope, but keep fighting for your life..I am 18 and I am in just same situastion like you..
Big hugs to u<3
A girl from Norway...
livingfaith17 2 years ago
I saw your comment and I was really touched by it. I am 17 years old and I also have CFS. When it first started everything changed from having a life to staying at home, not going to school, in and out the hospital, being in clinics... It's really awful having this and I wanted you to know that you're not alone ;)
Hummol 2 years ago
Thank you very much for this video which speaks for us who who suffer under M.E./CFS. I am 49 years of age and I have had it throughout my adult life. As bad as the disease is, and the poverty and loneliness it can cause, the worst part for me is the misunderstanding, judging, disrespect, and rejection from other people. When that treatment comes from family members it hurts the most. People can be very shallow and cruel, taking their own good health for granted.
TheAncientTones 2 years ago 3
I can relate totally to your comment!
God Bless
jonesyhemi123 2 years ago
I have just recently been diagnosed. This video made me cry because I felt as though it was describing my life. My case is thankfully not so severe that it has taken everything away. Except that I've had a bad week. I've only gotten out of bed twice. And my whole body hurts. I wanted to become a doctor. I'm usually an optimist, but right now, I feel as though my future has been stolen away. I just have to believe that it's going to get better.
honeybee4500 2 years ago 2
i'm trying to find out stuff about why i'm so tired. i was working like a dog and suddenly i feel like i ran into a wall. i've been canceling engagements left and right. ate a big bowl of salad and it went away for a couple of hours. making it thru a 10 hr. work day feels like a marathon. it's not always present but hits w/out warning. it's driving me nuts
ronaldreika 2 years ago
This is a great video. Exactly what you try to put across to people but noone seems to just quite understand what your trying to say. I'm quite lucky in the way that I have good days that I can go to work and even go out for a meal. But there are days, weeks and even months when I'm nothing more than a wreck. I really feel for people who have it worse than I do, and I always worry that one day good days will stop happening.
CMcIntosh85 2 years ago
A wonderful video. I've had this illness for 19 years. Before that I was a clinical psychologist, an avid sailor/bike, had many friends. It knocked me down in the course of one day. This video brings tears. Pris
poeticinspire 2 years ago
i dont know if i actually have this
but i certainly have osme symptoms
the feeling of no1 understanding or listening to you is awful! people thinking your imagining it. people just taking the piss. i hope i find out whats wrong with me soon. im 17 and fed up! 2 years of tests that are coming back normal... x
vickyedgey 2 years ago
I can never think well enough to be able to explain to someone the extent of all that's going on with me, nor the severity of the symptoms. I showed it to my best friend today, and it said what I could never put into words. I am SO thankful for this video.
DovesSweetSonnet 2 years ago
Omg I always feel tired and always thought that it was because of my brain...But now I saw this video I think I have it..Unable to attend school, always light-headed and tired, both mentally and phisically, unable to walk larger distances, can somebody please say if I have this illness or not? pls someone tell me whats going on with me? because it's ruining my school career and a goddamn chanse to get myself a job! I feel for everyone who deals with this, have hope all.
JohnnyX1239 2 years ago
I'm really scared... I think I have ME, and every time I read anything about it, it feels more and more likely that I do. Everything matches the way I feel, but I can't find a way to tell my parents...
Khirrna 2 years ago
Such a brilliant video, I often show it to friends and family. I think its touching and real and as a suffer of M.E/CFS I think it shows how real and awful the illness can be.
Aeryn87 2 years ago
in sick of this illness..Im so motivated to do so much but so limited by fatigue...everyone thinks I have a personalityi disorder and says to me its all in my head..they think im making it up to get attention...it really hurts that nobody can see it
falladina1 2 years ago
Thanks for this vid. I've just embedded it on my website where I have my story of CFS. Thank you :-)
riteasrain 2 years ago
I've endured this for the past 4 years myself, this video sums up how I feel pretty acurately.
cinnamontasticles 2 years ago
lets talk about cures please. Anyone been cured? How? what helps?? thanks
forestskog 2 years ago
Like many people, this video has brought me to tears. I've been dealing with CFS for six years, since I was 17.
I'm so happy the strides in awareness we have achieved but there needs to be so much more.
We know first hand how much this disease can take away. Keep strong brothers and sisters, Stay informed. There is not a day that goes by that I do not search the internet for news regarding CFS.
Much love.
TimeWillShadow 2 years ago 3
I used to have ME for 19 years until I did the Lightning Process! There is hope out there ! do it!
mrskaykins 2 years ago
I wish my family understood. I wish doctors understood. I wish our society understood. Hope.
Has anyone seen dr. lerner? I met him and I am interested in his treatments.
chronicillness23 3 years ago
Oh my, when I saw this video it really helped me so much, I am trying to reach out in my community so people will understand what people with M.E. have to go through. I send out a big HUG to all who are struggling with this chronic disease! Sandi
besteasycash4you 3 years ago
This video made me cry because it said everything ive wanted to say but couldnt put in words. I dont feel so alone with this illness now...
gillbatty 3 years ago 3
You are not alone!! I felt it like you to!! I could not bring all this things to words.. I feel myself very misunderstood and alone- but God carries me in his arms- no matter how difficult it may be in the dailiylife with this illness. Rest in his arms. He will ALWAYS HELP YOU if you believe in Jesus..
livingfaith17 2 years ago
Excellent video. It brought me to tears. My parents knew someone who had ME. She recently passed away. She lived a sad, lonely, life and her children ignored her.
sweetestnou 3 years ago 5
that is so sad isnt it. My family, apart from my daughter and husband dont care. I know its rotton but if they could be in my body for just one month then it would be such a different story
gillbatty 3 years ago
I have ME/CFS, this is a great film to show family & friends what people like us go through each day never knowing if this is to be a good day or not. I feel i didn't do myself any favours coping without help while i was ill & renovating my house, now i know i should have payed outside builders to do the work & life could have been much easier, so now unable to work & pour brain function plus 210,000 over draft its hard to see a way out since i get no help with gov grants ect. love & hope to all
k31thleo 3 years ago 3
First ME attack was in 6th grade, 1958. ME wasn't discovered until mid-80's. My attacks (1 week to 8 months) for 30 years. Finally diagnosed '88 when Mono kicked it up. Managed to work until 7 years ago until it became so bad I couldn't walk any distance without collapsing. I am now 61 & on Disability. Have many good days, but can NEVER commit to anything. Lonely life, but have love & support from siblings & few friends. Life is discouraging - I still try to do things, but always relapse.
PatchDee 3 years ago
I will pray for you! Dont give up your hope!! =))
livingfaith17 2 years ago
This video made me cry. Its not often that happens. Thanks for making it, it has helped me open my eyes to how my girlfriend (who has ME) is feeling. Although her's is only mild considering what others go through, so much in this video pulled strings at my heart and has allowed me to feel empathy at some kind of level with what she goes through.
Thanks for opening my eyes :-)
TurboBailey 3 years ago 12
Wow I have have thiss illness for overa decade. It's not easy to deal with.
ringnebulablue 3 years ago
Thankyou SOOO Much for this video!!
Means alot, bought me to tears :(
I've only had M.E for about a year now. But, i can barely cope. i'm 14, and have lost so many friends due to this. I can no longer attend school, and this is the most important year of my school life. GCSE's- i cant do them :(
I've posted this video on my bebo page, so hopefully people will be able to understand
my heart is with you all :) We'll get throug it!!
Much Love, Take Care!
Fiona xxx
AnaGreatestAsset 3 years ago 2
OMG this video is the best ive seen on M.E. Ive had it for 4 years now and somtimes get real scared it will never go. It helps me so much to see im not the only one,i often feel like it...this video says everything ive tried to explain to people.
gillbatty 3 years ago
I am presently seeing a doctor for conditions that are just like this. I am awaiting results from a gamut of test. I do not even know if this can be detected. As an additional symptom I crash extremely hard after any substantial meal. It is like a roller coaster right now. The second I go up fast for a short burst I know the crash is equally bad. I have to fight to get the simplest things done.
isegoria1 3 years ago
i've had this for 8 years and finally found out what was wrong with me 2 weeks ago.i found this video really good and touching.
red28mil 3 years ago
I had "it" too. I believe that the term is used because they haven't a clue what is wrong and many of us have quite different pathologies. So they should just call it unknown illness. "M.E." sounds like a baffle 'em with science" name- that also means little. How did I recover? Slowly. Frightened. This was in 1992-4
megawatti007 3 years ago
Beautiful video. Very informative.
koalastephanie 3 years ago
i had that but now i have insomnia it stresses me out to know i cant sleep so idk what to do
BRONXPEPE 3 years ago
i've had CFS for 6 years now and I'm currently trying to finish year 12, this really just summed it all up perfectly, got a bit teary actually. I think i like this video so much because it explains so eloquently the symptoms i suffer but in a way i could never express to my friends myself, maybe through embarrassment or pride or worry that they believe im just lazy. thankyou very much for taking the time to post this, it made me feel a little better on a very bad day, and that means the world.
cardy71 3 years ago
Chronic fatigue is now a proven disease, with research showing it includes impairment of the immune system. It drives you crazy but it's not "in your mind".
Of all those dozen or so "cures" that people tell you about? Pick the top 3 or 4 and do those consistently, and take it easy on yourselves.
Don't listen to people who haven't had it, who tell you to push thru it (really stupid advice), or to fix your attitutde. Eat well, rest when you can, de-stress...take care.
DrHMFIC 3 years ago 2
As a sufferer of ME/CFS I broke down and cried at this video. It made me realise that there are people out there who understand and know what myself and others are going through!!! Hang on in there my fellow sufferers!!!!
Love Ang (AKA, Sleepin Beauty) xxx
littleang100 3 years ago 11
That's what I wanted to write down after I've seen the video. I'm too tired, my concentration is horrible and I'm too confused to tell it the way you did Ang. So thank you for this reaction and your encouragement!
Lots of Love for all the sufferers of ME/CFS and their families.
Big Hug, Sokotosh X
sokotosh 3 years ago 5
I have felt like this every since the gulf war in 1990. Its a somber reality.
souleeze 3 years ago
had CFS since 23 until recently, terrible disease..thing is I had severe depression/anxiety before..the severe chronic insomnia and endocrine/immune system damage of that catapulted me into CFS/fibro..however it is an organic illness and what doctors aren't intelligent enough to understand is the principle of INteractive INdependence in such Syndrome disorders..depression is INteractive (contributes/worsens CFS) but curing the depression doesn't get rid of the real organic damage accrued
vincent4500 3 years ago 4
I had it since 23 until about30..some symptoms etc do relapse occasionally..took me a superhuman effort and determination to generally get to level at now..got a full time job and busy social life, 99 % better..for me it was a mixture of T3 thyroxine deficiency (suspected in most fibro/CFS sufferers), suppressed immune system, allergies as a result (candida believe it or not!), interactive but Independent depression/anxiety..bloody complicated illness and those who promise 'magic bullets' lie
vincent4500 3 years ago
i have M.E
being a 14 year old teenager at school, people seem to think all i do is skive.
which is totally wrong.
LaceyDollie 3 years ago