Great speech, though I disagree about retrovirals being a good treatment. There are over 200 medications that can be used to treat CFS/ME, including some that can occasionally even be curative, and dozens that are far safer than retrovirals. Low dose naltrexone is a better treatment for HIV/AIDS than HAART and we already know it often works like a charm in CFS/ME.
Yes, we need more studies, more research, but if people want to experiment with drugs on their own, there are better options.
@DiamonDie Hello, I should point out, no one is claiming antiretrovirals are a good treatment for ''CFS/ME''. CFS/ME is a political construct and doesn't exist as there is no test. The CDC confirm XMRV is a genuine human retrovirus. Retroviruses are treated with anti retroviral drug therapy. I am sure ''CFS/ME'' can be treated by LDN and just about anything else because the cohort is highly hetereogenous and thus has a multitude of causes and will react to treatment through various means.
Thank you Mindy. Watching this, listening to it, gave me chills and brought me to tears. You are a profoundly exceptional public speaker. I live in the UK and I’ve had ME for 17 plus years. Housebound for 10 years, bedridden for 7, coming on 8 years.
I can’t tell you how grateful I am for all the honest investigative journalism you have done. I’m sure I say this for thousands of other ME sufferers too ill to speak out: Thank you for speaking for me.
Why no treatment for ME patients? Because ME is not properly diagnosed. The shell game is ME/CFS. ME is not CFS and should never be diagnosed as such. CFS brings in the wrong cohort. She is talking about ME. This is a CFS committee. It is up to us. If we want help we need to be properly diagnosed with ME.
@thx1138mindlock I know it says the transcript is at cfs central, and I'm sure it's there, but I can't find it. Could you please put a DIRECT link to it? Thanks so much.
@thx1138mindlock THANK YOU. I can't find it there, alas. It was taken down, or, now that I think of it, it might be a Blogger problem. It's not working today so I'll check it out again in the next few days. Thank you again.
Great speech, though I disagree about retrovirals being a good treatment. There are over 200 medications that can be used to treat CFS/ME, including some that can occasionally even be curative, and dozens that are far safer than retrovirals. Low dose naltrexone is a better treatment for HIV/AIDS than HAART and we already know it often works like a charm in CFS/ME.
Yes, we need more studies, more research, but if people want to experiment with drugs on their own, there are better options.
DiamonDie 9 months ago
@DiamonDie Hello, I should point out, no one is claiming antiretrovirals are a good treatment for ''CFS/ME''. CFS/ME is a political construct and doesn't exist as there is no test. The CDC confirm XMRV is a genuine human retrovirus. Retroviruses are treated with anti retroviral drug therapy. I am sure ''CFS/ME'' can be treated by LDN and just about anything else because the cohort is highly hetereogenous and thus has a multitude of causes and will react to treatment through various means.
thx1138mindlock 9 months ago 2
Thank you Mindy. Watching this, listening to it, gave me chills and brought me to tears. You are a profoundly exceptional public speaker. I live in the UK and I’ve had ME for 17 plus years. Housebound for 10 years, bedridden for 7, coming on 8 years.
I can’t tell you how grateful I am for all the honest investigative journalism you have done. I’m sure I say this for thousands of other ME sufferers too ill to speak out: Thank you for speaking for me.
rachelswirls 9 months ago
Thank you so much for this, Mandy. A passionate, articulate speech.
Katyak11 9 months ago
Thank you for your efforts in editing and uploading these vids!
RyuBlade1980 9 months ago
Beautiful!
justinreilly1 9 months ago
Thank you, Mindy. Very powerful.
ellebee4 9 months ago 3
Why no treatment for ME patients? Because ME is not properly diagnosed. The shell game is ME/CFS. ME is not CFS and should never be diagnosed as such. CFS brings in the wrong cohort. She is talking about ME. This is a CFS committee. It is up to us. If we want help we need to be properly diagnosed with ME.
mclaughlinjilld 9 months ago
Comment removed
SFCEMInvestigacion 9 months ago
Comment removed
SFCEMInvestigacion 9 months ago
@thx1138mindlock I know it says the transcript is at cfs central, and I'm sure it's there, but I can't find it. Could you please put a DIRECT link to it? Thanks so much.
SFCEMInvestigacion 9 months ago
Time someone spoke clear! Thanks Mindy!
SFCEMInvestigacion 9 months ago
This is so good adn so long overdue. Thank you for speaking out on our behalf - we lack the energy for a fight - we are trying to stay alive.
brenwoo39 9 months ago 3
@thx1138mindlock THANK YOU. I can't find it there, alas. It was taken down, or, now that I think of it, it might be a Blogger problem. It's not working today so I'll check it out again in the next few days. Thank you again.
VideoGirlDolcezza 9 months ago
Powerful. Do you know if there is a trasncript of this?
VideoGirlDolcezza 9 months ago
Why did Wanda Jones refuse to commit to helping Mindy Kitei? It is shameful.
mercurialism 9 months ago 2
I'm blown away by the passion of mindy's speach, thank you so much xx
theonlyfluffyone 9 months ago 3
As ever Mindy is an inspiration to us all!
towersisters 9 months ago 7
Liked.
ThreesecondHero 9 months ago 2
Thanks, thx1138mindlock, for getting this important video up. Thank you, Mindy, for speaking out so powerfully for us! Terrific job!
JSS1138 9 months ago 11