Endometriosis - Getting the word out.

[smylesman2005]

I've had three surgeries from this stuff. I'm glad this is on the internet :)

[Delahock]

this video is sooo inspiring.My mom had this and it was a miracle that she was able to have me. Unfortunatly she did have a misscarriage before me...now im 17, and before a few months ago I never realized that endometriosis was carried on by genetics usually. Now im looking at the symtoms, and realizing hey...i have all of these..I had a plan to have a family and now i'm learning I may never even get to have one child. havent even been diagnosed and id be lying if i said i wasnt scared.

[lucyinatree]

Thanks for the video. If this was a male issue it would be taken more seriously - leaflets &info everywhere. Women are just expected to suffer and are dismissed as weak or hysterical. I am 31 this has taken nearly 20 years to be diognoised for me. Its horrendous. I have lost my life so far to it. Im hoping my treatement which comes next year works. 2 weeks ago I went to a doc she said nothing wrong with me 2 weeks later I got a second opinion she was stunned how its been missed & how bad it is.

[MsEndoworld]

video's like theses are fantastic for all women going through this condition.

i myself was used as a case study at UCL Hospital in london for the severeness of my endometriosis, message me if u like to ask me any questions.x

[SuperMandaPanda17]

Im 16 and already have stage two endometriosis, my family doesnt understand how i feel about having this disease and neither do my friends. in a sense i feel alone in this fight. im weak and sleepy and in pain everyday. my family thinks i sleep just because im lazy but thats not it.. they dont get that i can be feeling fine one minute and the next be feeling horrible or completely weak. idk why they dont understand why it hurts me so much.

[FrozenFireFairy]

@SuperMandaPanda17 it is really hard to make people understand what they will never feel. If the worst pain they have ever felt was a papercut, they think that is the worst pain in the world. If your post pain is your gut wrenching half the time, it's hard for them to tell the difference between the two. Sometimes, you just have to know that they don't really mean to hurt your feelings, they will just never understand. That's a good thing really, I would hate if everyone had felt this pain.

[pregnancymiracles1]

This video clip is pretty decent, thank you for taking the time to upload it

[injuryism]

I really appreciate this video. My boyfriend showed this to me. I have had endometriosis since I was about 10, and they didn't believe anything was wrong with me aside from laziness. I am about to go into my 5th surgery February 11th 2011 and I am very nervous about it because it's gotten so much worse. The last surgery I had they punctured my bladder leaving me with a catheder for 3 months. Thank you for posting this video. People like you really do help people like me.

[FrozenFireFairy]

@injuryism I am sorry you have needed so many surgeries. It seems that every one we have just seems a little bit harder to recover from, doesn't it? I know you will be alright though. To have made it through what you have means you are strong; despite our bodies we are strong. It sounds like your boyfriend is an amazing person. Make sure you don't push him away during recovery and just remember that accepting help is neccessary for proper recovery. You will be fine. :) Good luck.

[chumpey]

My girlfriend has this condition and is suffering similarly. Bless your heart, it sounds so horrendous. I'm trying to be a good boyfriend for her but it is hard between the pain and depression.

This condition needs more attention!!

[FrozenFireFairy]

@chumpey It is really hard to be on the opposite side of Endo. I live in pain so long that I have learned to not let people touch me because I know they inflict more pain not realizing it. In the end, I have made it so even the ones I love can't touch me. You will have your hands full, and need to realize even if she isn't a cuddle bug, it really is not you. It's the one disease where you can actually believe someone when they say that.

[alm7989]

My daughter and I have been discussing this disease, since it runs in our family, I as the mother had Endometriosis, but did not know anything at all about it except the pain. Nothing was every explained. My daughter has been experience symptoms since the beginning of her period at 13. She is now 21. Thank you for guiding us and answering so many unanswered questions and leading us to this great site.

[chezally]

I did this ireport on Endometriosis for CNN.

Feel good ;)

WorldWideWeb - ireport.cnn.com/docs/DOC-48402­5

[FrozenFireFairy]

Wow, I had no idea people were still commenting on my video. I'm glad it has helped inform people of whats going on with Endometriosis. I'm really sorry to hear that so many of you have it, although I do believe it is a break through in medicine for it to be diagnosed so widely. Only 20 years ago most of us would have gone without diagnosis. Maybe in another 20 there will be a cure or better medicine. I wish you all luck and thank you for the support in building this community of awareness.

[TheMissisAngy]

I Have PMDD And was 2 days ago diagnosed with this..I had to c-sections as well..I'm 32 and Was curious if anyone else noticed a link between PMDD and this???

[ozmonto]

I'm so sorry you have lost your uterus at suc a young age. I'm 26 and have been struggling with the disease and it's counterparts for years, but I would urge other sufferers to seriously consider having the mirena iud inserted - it has put me in remission for 2.5 years so far:)

[iluvHN42]

Im 18. My gynecologist thinks I have endometriosis. I'm having a laperoscopy the 1st of October. I'm nervous about it:(

[dangraves3031]

Look into raw foods.

[percussionqueen1]

Thank you for being brave and sharing your story. You are absolutely right! If we as women do not make our voices heard in the medical/health insurance community more young girls will have to suffer needlessly. I share the same concerns that my nieces will have similar experiences as I was nine years old when my symptoms first developed. So be persistent ladies. Do not let anyone tell you that your experiences are not valid or valuable!

[maddybum111]

started drinking apple cider vinegar it helps with the pelvic pain one glass of water and 1 table spoon of vinegar..at night

[AmbroseAmdis1]

hai really need to find somebody who clicks with me

[Luvmypets123]

In agony yet again after having a total hyst 5 years ago !

I sure sign you have Endo is a bleeding or sore, red naval.

[shockingalternative]

my 16 yr old sister has been having strange, painful symptoms since she started her period and i'm wondering if it's endometriosis. she has chest pain come on only during her cycles, hot flashes/low grade fevers, bloody nose, and was earlier seen by er because of painful "ovaries"... they vaguely diagnoses cysts. she's about to go on a treadmill and tons of other tests.. it would be closure if she really ended up having this..at least it's an answer. :(

[suevasu]

Try Alternate Nostril Breathing - Anulom Vilom - Nadi Shodhana are the other names. It is an ancient breathing technique to purify the nadis, chakras and heal the body. Look it up on utube. Try it religiously for a few months. Love and Blessings. Also Sanskrit Mantra is very powerful -

AUM RAM RAMAYA SWAHA

RAMA (just the sound)

Mahamrityunjaya Mantra - Look it up on utube.

[MultiWendy27]

@suevasu

I have severe pain last year and dr said I have developed from endo to cyst. I am scared it will lead to more. I am now eating unproductive pill everyday n stop when period comes.

[TheUrbanhippy]

I have it too. I find myself deciding not to eat so I don't have bowel movements. It hurts too much. Could endo be causing a new eating disorder?

[norther4life]

@TheUrbanhippy I do the same thing and I think you're right about that. Ever since I got sick with endometriosis it isn't easy to eat, and as the disease progresses, I eat less and less. I am currently 35 pounds underweight and even on my good days I feel terrified to eat either because I fear pain or because of all the previous vomiting and pain I just don't want anything to do with food.

[taleana2002]

@norther4life Wow, Im so glad to know im not the only one hating food, but at the same time it freaks me out to think theres no cure, and some women have died from it turning into cancer! Freaky

[rjamshed]

i am so sorry about what you are going through. i have been dignosed with endometriosis - stage 4 and i had to have a two serguries - the doctor suspected i had it before but only confirmed it after my first surgery which required the removal of chocklate cysts

[need2know4]

Hey, does anyone know can endo turn into cycst or something else like cancer? I have had endo for 10 years. One thing I will swear by is to stay away from meat and dairy and please don't drink alcohol. This will agravate it!The only relief I got was through eating right and exercise. I fasted . I also drink organic apple cider vinegar and drink green tea. All this helps. I'm off track again.Stay away from stress. I support all ladies with these issues. We will get through this!!!

[luckyguerin13]

I feel all your pain. :( Been dealing it since I started my period. It's just gotten intolerable in the last 5 years. :/

[FailtacularWin]

Ohh I hate it so damn much....

I wish there was a fucking cure.

I've only had it for 2 years.. I cant imagine having it for another 30

[Luvmypets123]

@FailtacularWin

I fucking hate it , too !

5 years after having a COMPLETE surgical hysterectomy/ooperectomy and I'm in bloody agony .

[Oracle176x]

I have it too. I hate the idea of getting fat from the treatment. I'm going to start treatment on Monday.

[fetymann]

...have any of you women read the website endo101 (dot) com ????

[nothungryxx]

i was diagnosed with this disease a few days ago...but i didnt take the painkillers..my mom told me im overreacting about the pain...=( she doesnt know cos she takes pills. But still it hurts like hell.. I hope u get better xx

[ladydayana]

How your doctor did came out with the diagnose? I think my doc may have come with the rong diagnosis... plz let me know.

[christmas1971]

I am so sorry to hear about your mom's reaction. I dealt w/ this reaction from family and ER dr.'s even after they would find ovarian cysts AND a 10 yr. documented history of gyno treatment and surgeries. One Dr. was so mean in an ER 2 yrs. ago, 2 wks. before a hysterectomy that was scheduled at that same hospital, I wrote the med. board and he was reviewed for an entire yr! I got addicted to pain meds. you wont even know it until it's too late. im in NA now. you know your body take care of you!

[2xfalcons]

i was diagnosed when i was 24 with this. Had it severe aparently so had to have total hysterectomy and now 10 years on still have the terrible pains and its just back the way it was except now im looking at going in and having part of my bowel and stomach taken out along with other affected parts, i cannot hold down a fulltime job anymore as pain is so incredible, you name it ive had it done pretty much and have one kidney now so cant take alot of the pain relief either IT SUCKS THIS DISEASE!!

[X4592]

This disease sucks. I'm having surgery on March 9th. I'm 18 years old and have had this for three years.

[Bridgejones08]

i recently found out i had this after suffering for years, it's terribly painful, i was also told i have a non canerous growth, it's a real bitch. thanx 4 vid,

[EndoSteph]

I also have both of those things. Endometriosis for me has been hell. I have it in my bowls and all outside of my uterus. They are talking about taking out my ovaries now, but of coarse that is not sure to help. I have had it since I was 24 at least, I think longer. Thanks for this blog.

[LyssaBabe96]

I'm not so sure if i have this or not! Im only 13. I recently had lower back pain, cramps ive vomited last night. I've tried to talk to my mom about this, but she wont believe me. Is there any other way to figure out if I have this?

[xxsaulalover4everxx]

im 15 and i can hardly walk i have leg pains and what u have the lower bak pain cramps to where its hard to breath i have vomited i go though it 7 days i cant hold my pee it hurts too bad n no meds work 4 me n thats how mine is so we went to dr today n they highly think i have this blah but ya o well i guess it hurts but i dont know for sure if i have it its weird to hear i might have this wow

[xxsaulalover4everxx]

but now im puking n ya its painful pplu seriously curl up n a ball n scream n pain n cry 4 hours well i do at least

[FailtacularWin]

So do I :(

[TeamKilday]

I've been tested for endometriosis because I have severe cramping every month and my husband and I have been trying to conceive for 1.5 years. The tests came back negative, but I still know what other ladies go through. On my honeymoon I was hospitalized because I was vomiting and passing out from pain which happens on my worst months. The hard part for me is, because I don't ACTUALLY have the disease, my work things I'm slack for calling in sick some months. They don't realise I can't function.

[LadyVailen]

could it be something else? That sounds severe and not normal. A relative of mine suffered an it turned out she had a tilted womb, and endo can only really be found by explorative surgery.

Sorry you're having a hard time :(

[TeamKilday]

I have another appointment with the fertility specialist next month, I might ask her about a tilted womb.

[Booliocious]

people don't understand, and don't show empathy for those who don't know what it is and don't have it, , they are scared and are ignorant i know im a 33 year old single mom, and ive gone thru alot in the past few years to understand, ive known theres somehitng wrong, but not been able to put a name on whats really going on with my health, after seeing your vid, it helps, thank you. I can't function in a normal relationship over my health problems, b/c they refuse to understand.

[Booliocious]

Your not alone girl, I feel for you, I'm very lucky and blessed for my two son's that I do have and have gone what I've gone thru is painful, and depressing, it's been hard, i also been diagnosed with a pro-lapsed uterus and weakened cervix, I've gone thru alot of crap with doctors, and keep getting support i need to find out whats wrong, all i get is that i have benign cysts, that's it, they don't tell me anything else,

[Booliocious]

So this is what I have, why hadn't they told me after losing 8 children and what it's called? I have two large cysyts in my L ovarie and scarring diagnosed since i was 16, i also get fatigued fast, and anemic with high blood presure, i had no period now for about 2 months, I'm not pregnant, i had testing done, im ok, but im confused and a bit worried, i had my 2nd son two years ago and i had heavy bleeding and cramps since in my left side.

[coralostomy]

please view my video jailbreak 2009 its to raise money for endometriosis Uk and to help raise awareness. Thankyou

[MustBeDreaming06]

My mother suffers from endometriosis, and for years she would lose any child she attempted to have naturally. I was born after a high risk pregnancy thanks to invitro fertilization. A year after I was born, my mom was once again pregnant with my little brother via the same method, but unfortunately she miscarried. No one deserves to suffer through endometriosis.

[Piscess86]

Does the pain also occur a few weeks before your period? like during ovulation?

[Phalanxangel]

I could only pray for the strength you have! I'm paranoid that I might have it so I'm going to get a checkup...fertility is really important to me.

[9800515]

I am a guy.. A guy that is now making a donation. This desease should not have the right to exist.

[amytamez]

Thank you! And yes, it should not have the right to exist. Thank you so much.

[9800515]

Don't thank me! Thank Amber (FrozenFireFairy)! By the way, do you know how to contact this user? I'd like to contact her, to thank her for one thing. I've tried sending her a msg on here but she rarely logs on. :-(

LOTS of gratatude to anyone who has contact with this brave girl & would pass on my desire to support her & offer my help. Thank You.

[amytamez]

No, I don´t know how apart of the msg thing. Sorry.

[sjhuycke]

Thank you for posting this. The word does need to get out!

[slumlumm]

I hope this is helpfull, its done wonders for me, good luck:

Dandelion may also enhance the body's ability to absorb iron from foods or supplements. Vitamin C promotes healing of the tissue damaged by cysts and scarring. Flaxseed helps control inflammation and Vitamin E assists in hormone production

[slumlumm]

Good Info:

Wild Yam Root contains a constituent that may work as a natural alternative to estrogen. Chaste Tree is used to balance hormone levels. Dong Quai is considered the female Ginseng and is a traditional herb for women's health. Calcium supplementation with Magnesium can provide relief for pain caused by Endometriosis. The Lipotropic combination of Milk Thistle extract, Choline, Inositol, L-Methionine and Dandelion can stimulate the liver to clear excess fat and estrogen from the body

[slumlumm]

i have endo and im the opposite of you, i never bleed at all! huh! its so tough , but you have it worst than me. you are so strong , God bless u!

[whateveraz]

Thanks for taking the time to post this video. What do you do about the chronic fatigue? Do you feel tierd all the time and have you found anything to help with that?

I admire your strength..... :-) Smiles T

[slumlumm]

Check out the diet for endometriosis at the Endoresolve site. It might really help u , it has saved me so much trouble!

Good luck!

[sugarbron]

i also suffer with that and i dont know if i can have children but i havent seen about it but there is a god

[SarahRachel59]

Lack of Progesterone, or an imbalance of Estrogen being higher than the Progesterone in the body also is a MAJOR cause of Endo.

So get your hormone levels checked regularly!

And if you're overweight, you're going to have Estrogen-like factories in your fat cells that won't necessarily show up but will have the same effect on your body as Estrogen, meaning that you may need to supplement with BIOIDENTICAL Progesterone.

[LimpLoser]

i like to fuck women in the ass

[6miranda0]

listen girl...I had endomretriosis....I have followed a detoxifying protocol and my endometruiosis is GONE WITH THE WIND.. If you want to believe that you are chronically ill for life, go ahead and believe it if not, send me an e-mail and I will indicate you what to do to get simply CURED!

[xdrowningxdollyx]

I've tried all sorts of shit, and not a one of them has helped me significantly. if you "claim" to know the "cure-all" for endo, the post a video already.

[6miranda0]

for xdrowningxdollyx: I do not understand what's the fight about and believe it is not with me, I however posted an entry below and want to insist once more that I have cured myself of endometriosis. No fuss no lie. If you want to know what I did, please, send me an e-mail. You can do at home what I did. It is not simple but it can be done. If you are not interested that's OK with me. I do not necessarily want you to believe in any thing and for sure has nothing to sell you.

[xdrowningxdollyx]

There is no fight, i'm just saying i've tried everything and nothing helps. It's just that nobody wants to be chronically ill, no one wants to believe they are, and having endo, as you most likely know is NOT fun. So when you post a seemingly sarcastic comment directed towards people who you should be more so sympathizing with, it's a little irritating. But sure, i'm interested to know what you did, no guarantee i'll do it, but sure.

[6miranda0]

xdrowningxdollyx: is "the bad grammatical" message for me? English is not my mother language, so no offense at all but I do not like the tone and would want an explanation. Further: I couldn't really care if you cure yourself or not, so what's this "guarantee" idea about? It was simple: if yu were really interested I inform you FOR FREE!

It was offered as HELP.

Got it now?

Send me an e-mail if you are still interested

[chem092008]

I don't know why people are posting harsh messages about women with endometriosis-it itsn't something you can control having-I have it and I didn't do anything to deserve having it. It's painful and horrible. I had the surgery (which you have to have to diagnose it) and my follow up treatments aren't working right-it's misserable! It causes infertility. The comments bashing people with it are from uninformed morons! Best wishes to those that have been harmed by it!

[6miranda0]

chem02008: I have cured myself of endometriosis. You can do it at home. It is not easy but can be done. Again, I do not sell or have any believe system to defend. I was just super ill, in hell with pain (as you well know) and now I am cured and full of energy. I also lost lots of weight. My health requires of maintenance: simple body cleansings which I carry twince a year at home, without pain or medicines. If this sounds interesting to you I will give you the indications. Write me an e-mail.

[beaverballs6]

emiranda0 someone i care a great deal for has endometriosis. would love the info to pass on. please overlook the stupid nickname, very serious about the inquiry.

[lovechild872]

really, how'd u do it and howdid u first discover u had endometiosis?

[6miranda0]

I was in severepain 20 days a month every month of the year. So, I went to the gynecologist.

[mieery]

this is the curse bitches deserve

[xdrowningxdollyx]

Sounds like someones just a little bit bitter.

[blueearing29]

Endometriosis HAS A CURE! Anyone who has it should see a chinese doctor in order to have the liver treated! In Chinese medicine there is a cure! BTW , I'm European, not Chinese, but I strongly recommend it.

[SlayNKitti]

Thanks For Sharing. I Just Recently Found Out I Have It Aswell.

[z28chic]

I have had chronic pelvic pain for a year now & I had a laproscopy done today & they cconfirmed I have endometriosis. They burned off what they could but most was on my bladder :(

[disturbedxbeauty]

i was diagnosed with endometriosis in january. it kills me.

[29tryzel]

i was diagnosed on the 25th March, 2008 . I am presently on the lupron shot. it does not help. well its my fourth lets hope the sixth one help (lol). be encourage you are not alone

[firegal2k]

LolliSmith- Sorry, one more thing. Did you say you still have your ovaries but they removed your uterus? That's why you still have the disease! If you are this bad off, why hang on to your ovaries which is what's producing the hormones and agging on the disease? Remember, remove all the hormones and the disease will dry up. That is the only cure. The disease stops when women start menopause. What would be worse for your future, 40yrs of more agony & surgeries or menop? This is for everyone. LOL

[firegal2k]

LolliSmith - Just wondering, if the hormones you tried were THE PILL?...or were they some other type of hormone pills? If these tumors grow from hormones, and your ovaries produce hormones, and THE PILL stops your ovaries from producing hormones, wouldn't THE PILL be worth a try? Mine didn't grow while I was on the PILL for 19 yrs, until I got off it. Plus, there are many different types of B.C. PILLS & different strengths so you could try various types. Ask you doctor what've you got to loose?

[firegal2k]

(Part 2 of 2) Remember the pill keeps your ovaries from producing hormones so couldn't it prevent masses from forming?

My surgeon said no but I'm not so sure. He did say the only thing that stops endo is when you finally start menopause. So perhaps removing the ovaries or ovaries & uterus & bring on early menop is the answer. I'm going to try getting back on the pill to see if it shrinks this 3rd one. I'll keep you posted. If the pill doesn't help you, ask your doctor about surgery.

[firegal2k]

(Part 1 of 2) There is a 100% cure. It's called menopause. I'm 45 and just found out I have Endo. 2 prior surgeries to remove massesin '03 & '06. Now a third which fluctuates in size so we're monitoring it every 4 months. If you've been diagnosed with endoe, get an ultrasound with every annual papsmear to monitor for growths. All I know is prior to my first mass at age 41, I was on the pill for 19 years and never had a mass until AFTER I stopped the pill in '02. Coincidence???

[LollieSmith]

I believe that there are other cures out there but thanks to the big fertility business they will never let us know.

[emdc123]

sucks to be a girl

[sara2618]

Aww thanks for sharing, and god bless!

[barberian6]

I think it is extremely irresponsible of you to pass this disease to your child... YOu want to bitch about this, but if you really loved your child, you would not put the child through such.

I believe this also with any genetical disease. YOu stop disease by not passing it along.!!!!

[lostorfound19]

i concider stupidity a disease. fuck you

[chris20rock2000]

It was not my wish. Any female can have it. Am a nurse. Please be supportive. Any disease means your dynamic state of health is affected. It affect you, your family, your friend. May God bless you all.

[xdrowningxdollyx]

Well, then i guess that means you with your bad grammatical genes, and over all stupidity, will not be breeding. Other wise that would be child abuse, passing down the dumb gene like that . . . how dare you even think about doing such a thing.

[liljon15cp]

This girl can't read!

[bead162002]

understand the pain...i have endo too it is hard to describe to people....take care

[Screengems1]

and is horribly painful, debilitizing. its horrible

[JellyKimSugarBoom14]

Oh my word that sounds really painful. I hope that u will get better.

[jeffsadowski]

Can they remove the growths?

[pacificyellowmermaid]

I have endo, i had 2 surgeries, 3 hormonal treatments..and is still there, will be always there. Unfortunatelly for us.

thax for taking your time to share ur problem at the end is very complicated and paindful.

Nobody in my family had it,im the first.

[GeminiAuntie]

I just found out that I might have endometriosis. I find out for sure on the 12th through a laproscopy. Thanks for sharing. It's nice knowing that if I have this that I won't be alone and will have people to talk to. Thanks for sharing!

[Earthlinked]

My ex-wife had Endometriosis on her fallopian tubes. Her Louisiana doctor knew nothing about it. When she moved to Atlanta - we had a daughter and 3 years later - twin daughters - all through invetro fertilization!!

[Earthlinked]

My ex-wife had Endometriosis on her fallopian tubes. Her Louisiana doctor knew nothing about it. When she moved to Atlanta - we had a daughter and 3 years later - all through invetro fertilization!!

[diabolikitty]

I have endo and I understand you.

Thanks for the video

I'll put it in my blog to spread the word

[gothmab]

endometriosis CAN kill you. Why? Because the pain is so bad that you will do ANYTHING to stop the pain. Suicide. Whatever. The worst thing is that it makes the period last longer, so I bleed for half my life. 18 day periods of incredible pain are not abnormal, and I hate god.

[vilaash]

I would love to add this video to my myspace profile. you will find the link on my youtube profile

[jmandyboo]

i have endo and its horrible and u almost cant live a "normal" life. i take ovcon 35 where ur periods r very lite and u only get it 3 times a year its awsome. they found it when i had internal bleeding and the pain was so bad, my back hurt cuz the blood stated goin towards the kidneys worst pain ever. if u have any crapms that r not normal,check it out right away cuz i had an ovarian cyst that ruptured which would explain the internal bleeding.i guess what doesnt kill us makes us stronger

[NeshamaBirth]

oh! I feel your pain. I have endometriosis. I live in pain almost constanty. 

Thank you for putting information out there!

[azeem2503]

Wishing you good health always. Thank you for sharing.

[aaronic21]

In the UK, the incidence is around 20%, although because most endometriosis is asymptomatic, only 1-2% of women are ever diagnosed. ~Heres a fact for you: IUCDs & Tampons make it worse (they supposedly cause retrograde flow), and anything that stops menstruation will make it better (COC, Zoladex, Danazol, Progestogens etc). Woo hoo, I am doing Obstetrics and gynaecology at the moment at Northwick Park Hospital, London

[endowoman]

It has been proven that endo is a metaplastic process, this rules out the retrograde theory concept. Do some research on it and teach your professors something.

[micktaylor20]

I don't know if you've heard this or not, but there is scientific evidence that regular orgasms can prevent or lessen the severity of endometriosis. If you don't believe me, research it on the internet or ask your doctor. I'm not sure how it works but somehow it makes your reproductive system better able to determine where exactly our cervix is and where you uterus should end and your normal vaginal tissue start.

[neelubird]

Thank you for sharing this. I have CFS/ME which is completely different but it's stupid how so many of us with chronic illnesses are treated so badly by doctors that we have to fight so hard for the care every single one of us should have been entitled to in the first place.

[endowoman]

There is mounting evidence that endometriosis is a metaplastic disease. That is, women with endometriosis carry genes in their body that cause normal tissue to change into a uterine like form (endometriosis). Pass it on.

[PeacefulKrasimir]

God is a bastard. I hate when women suffers and men dont

[cymbalic]

Yes, if there is a god, he's a FUCKING bastard. I wish all the women here good luck. Stay strong and hang in there!

[Fabianx88]

aww i am your man! i would take care of you :-)

[amannndaa]

That is so awful!! I'm so sorry you have to go through this..

[MoochieCarol]

Though I don't know you, I am very proud of the courage it took to speak to the rest of us, bringing this horrible issue to light. I too am facing a complete hysterectomy

I am so sorry you had to suffer like this. It is not fair to you or any other woman!!! Though you may not realize it, you have made the world a better place than it was before you came in it. You are a special young lady.

[teenzine2]

...With all of the money that was spent thus far over the past year (way more than I have) just to find out that among other things I have pre-cancerous cells in my cervix, I don't think I can afford financially or time-wise to get an MRI with no insurance and being a student, the little $90 a week I do get from my job goes towards bills. Do you know of a foundation that could support a person in my situation?

[teenzine2]

...With all of the money that was spent thus far over the past year (way more than I have) just to find out that among other things I have pre-cancerous cells in my cervix, I don't think I can afford financially or time-wise to get an MRI with no insurance and being a student, the little $90 a week I do get from my job goes towards bills. Do you know of a foundation that could support a person in my situation?

[teenzine2]

I'll admit that I'm a hypochondriac but doctors did find precancerous cells in my cervix and I have most of the symptoms of endometriosis though treated for them separately because I didn't see a relation until I gave up because the doctor's "solutions" either didn't work or made my symptoms worse...

[FrozenFireFairy]

I dont' know a foundation like that, but you can usually find clinics that will take you for $20.00 a visit. That's what I've been doing for a long time now.

[milkseducerx0x]

Good luck with everything.

[dazedcs]

she is not hot

[tatie610]

i'm not even halfway through your video but i'm already teary eyed. i just found out last week i have endometriosis (we're looking at 6.5cm in diameter cysts) and i probably havent accepted this fact yet but i know when i finish watching you video i'll feel better. thanks and good luck to all of us.

[FrozenFireFairy]

You will be okay. ;) Endo, once diagnosed, can be redused and helped in many ways. You WILL be okay. :)

[insanebro]

ohh man u almost made me throw up lol because whenever i get blood pictures or inside body pictures in my head and thinking about doctors giving surgery makes me sick i cant help it.. i dont know whats it called when u get sick for looking at surgery but i got to much detail from u.. even if am a guy just stoping buy to learn about women hahah dont think i can hang. and i know i got some problems 2 but not serious stuff like that.

[FrozenFireFairy]

I appreciate that you tried. It's nice to know a guy did try.  It's not easy to hear sometimes. So thank you.

[Fournote]

One of my best friends has this. She's only a stage one, so she's not as bad off as some people, but when the time rolls around for her to have her surgery, she feels it pretty bad. I hope a cure rolls around soon. My prayers are with you and all the other millions of suffering women out there.

[FrozenFireFairy]

I have never heard it in stages. I really hope she's okay though. She'll likely be fine, but surgery can be scary. Just keep possitive for her. :)

[brokendoll8777777]

i have endo, yeppers.

i dunno, sucks i guess. tomorrow i fear i'm going to get my period (i lack much cycle) and yet i only started work a week ago, so if i have to be on t3's/perks/demeral i wonder how they will respond :S

thanks for this

[FrozenFireFairy]

You will be okay.  But I would check out that website and look into alternative treatments then the normal deal with it or just take it out.

[FrozenFireFairy]

You will be okay, I promise. I know it sounds like I can't promise that, but I know in the end, we ARE okay. We are strong...you are strong.

[sandyanna]

I praise you for your openness in sharing this with us.

[FrozenFireFairy]

Wow, you just made me think about something...I'm an organ donar. I need to see if I could do that if I were to die or not because of this disease. Dang it.

[JeremyDeathStar]

Can you accept a donor uterus/phallopian tubes? I'm asking because I know of women getting trans-gender surgeries and if they don't want them, I can ask the doctors if their giving them away.

[FrozenFireFairy]

ROFLMMFAO Ahem...*Clearing throat and being serious now.* Hun, for those of us who have it taken out, a lot of women still have it elsewhere. A new uterus, if it WAS even possible, would be easily contaminated and ruined again with the disease. But I have never heard of one being given to a new person, like normal organs from an organ donnar.

[verityp]

Your video made me cry, ive just been diagnosed with severe endo in june and next week im having an operation to burn some of it off, im so so scared.

I really admire your strength. removing ur uterus is not an easy thing. I pray you get to adopt some beautiful babies one day because you deserve them for your sacrifice.

[dvs60]

i hope your medical procedure goes 100%

[dvs60]

i hope your medical procedure goes 100% with out failure. And thank you FrozenFireFairy for educateing me on endometriosis. I never knew of it and its effects on woman who have it till i watched your video.

[FrozenFireFairy]

Thank you for wanting to learn. It helps to have people actually know what's going on. It's hard for women to get attention to it...especially young women. So thank you.