thank you so so so much for posting this, what you described is how i feel every day and its so hard because people don't know what its like, I'm in year 12 (the last year of high school in australia) and I've had chronic fatigue for 3 years now and its still such a struggle. do you have any tips on how you cope with it because i was getting better but then i just had a huge down. I've also been diagnosed with depression. I'm just so glad you made this video so i know I'm not alone.
@Samsmilify Hello there! WOW I'm glad this helped and you like it hehe :) I'm very sorry that you have had it for 3 years!! And that you've been diagnosed with depression ;( How I cope with it is proberly a mixture of things, I try to ignore it (I don't mean like forget about it and do myself harm) I just mean, to think of it as not a big deal (well pretend it isn't anyway) I sort of think "Okay, so my body is hurting- it's suppose to" And I'd laugh about it, I'll inbox cause can't write much :)
@selena324 :) aw thank you for saying.. thank you!! hehe :) Yeah it is difficult, and it's even more difficult when you don't have the support. So you say no one understands, do you want to expand on that? I really want you to have help and support, because we deserve to :) All the best, God belss xxxx
@Enchantelover247 Its hard for me because my husband is a paramedic and works with a lot of dr's who believe the CFS is a "blanket term" and don't really believe in it. My husband see's how I struggle, but in the beginning I felt as if he didn't believe me. Some dr's made me feel like it was all in my head or I was going crazy until I found a dr who diagnosed me. Some people don't understand when they don't see anything physical.
@selena324 oh I see :( I'm sorry, I have a teacher at my school who is my head of year, and she is in charge of me - she don't believe me either, and the other week I went to the doctors cause I was really really concerned of my lungs, my breathing and my heart- and he didn't really believe me, so he just said I was fine, but when you know there's something wrong and a doctor tells you there isn't - it really annoys you!! You think, what do you do now- one thing for sure, it's scary having this!
@Enchantelover247 It sux when no one wants to listen, they make ya feel like your crazy (at least thats how they make me feel). I'm here if you ever need to talk, feel free to inbox me I'm also on facebook
@selena324 Yeah, I know what you mean!! Today there's this man coming to talk to me about home tuition - I hope I'll be getting it soon :) And thank you SO much - support means alot hehe :)
@Bettylalunaful aw I'm SO sorry <3 But all we can do is carry on, cause that's the only way we can get better :) I wish you the best of luck, and I have subscribed to you; lots and lots of love, Katie ~<3
@Enchantelover247 yes I do and that is why I am so touched by your fighting attitude. I understand there are varying degrees and symptoms wax and wane and some are literally bed bound...but for those of us affected not as severely, we still need outlets, and understanding, and a sense of feeling connected and so what you are doing is so beautiful because it is a way of fighting back...I hope and pray that things do not get worse...I am fortunate not to be bed bound, but I was at one point...
Hang in there, we will all beat this someday...great video and I'm glad you are still fighting and doing some of the things you love...be happy, be blessed, and always in God's care...
@Bettylalunaful Awwww Thank you SO much for your support- it seriously means the world at the moment, as I'm sure you can imagine. So have you got CFS/ME? I wish you all the best, God bless <3
i mean dancing is my lifeee i knew i couldnt be in bed for the rest of my lifeee !!! its scary aswell cause u dont know if ul be able to do what u use to be able to !!! like i was doing 20 hours of dancing everyweek be4 i got ill but i tell you the more classes i do my body just gets use to it !!!! like i just remember 6 months ago i couldnt even walk for 5 mins without being ill and shattered and tired
@dancekidlee woah! You've done so well!!!! I love Ballet aswell-acting is my life, and I'm missing out in that, in horse riding, school and Ballet. I hope my recovery is as quick as yours :) and as well !
well im not 100 percent yett but im deffo getting there im doing like 10 hours a week of dancing plus i walk !!! well basically i saw this docter in london whos private and he works with people who has got it and he has got everyone back to what they r doing !! i saw a nutritionist who sorted my diet out and this docter !! basically its about pacing urself !! but it does work cause in september i was 5 mins of ballet no and now im 2 hours
@dancekidlee There's a doctor ? Would it be worth going there? I mean I've got a nutritionist (well, just started) London isn't that far from where I live :)
yeah keep positive and you will ;) i just remember lying in bed and thinking im never gona dance or walk again !! but i did itttttt !! it wass hard workkk i can tell you that but its worth it ;) good luckkkk
yeahh its important to see a nutritionistt because it has helped mee for dancing again and needing the energy to danceee !! yeahh i knoww what gcses are haha i did them !!! well i am back at ballet school 5 days a week !!! so it can be doneee !! are you from london ??
@dancekidlee Yeah I know, but it's private, cause NHS don't supply in this area so I have to pay :( And oh my gosh! I use to do Ballet too, I really miss it, did you watch the Nutcracker on BBC Four yesturday night? And no I don't live in London, I live in the West Midlands :) And Congrats on your achievment to get back to Ballet, you should make Youtube videos !!!!
@Enchantelover247 yeah but its worth ittt at the end of the day !!!! haha well i am on some youtube videos :) thank youu !! just dont let the illness destroy ur lifee cause anyone can beat it :)
@dancekidlee Well, I'm not too good, but because it's Christmas, it's kind of the case of thinking "Screw it" -you know? I'm not good at walking in places other then my house really, I hate public places, I get bad Brain Fog and I kind of think I'm dead! Never mind, and thanks for all the support -helps alot! x
@Enchantelover247 yeah i did that a few times i thought f**k it il go and do what i want but i paid the pricee !! are you seeing anyone for it ?? so do u go to school ??
@dancekidlee Yeah, you do have to be careful otherwise your gonna have a couple of days feeling crap!! I am currently seeing a Physio therapist, nutritionist, therapist (I use to) and then also I will see in a couple of months time a Pysico therapist. And no I'm not going to school at the moment :( I'm missing all my classes for GCSE (if you know what they are) So it kinda sucks, but I've got to just carry on
best thing i can say is dont pushh ittt !! try and improve what you do everyweek !! i had to take a yr off ballet school so when i started back in september i could only do 5 mins a day and by the beggining of december i could a hr and 45 mins everyday plus walkinggg and everything !!! but next term ive got to build up another 2 hours but i know i will be able to do 4 hours of intense dance training everyday !! are you seeing anyone for it ?? i saw a nutritionist and a docter in harley street !!
my symtoms was boiling hot couldnt sleep sore throat fuzziness in my head . headaches shattered all the timee and tired constantlyyy and always felt weak with no energy !!!but month by month it start going awayy !!! i got the illness in 2010 and now im back dancing !! just keep positive and u will get there !!!!
@dancekidlee OH WOAH! You've been through alot, I get more of the cold -like symptoms though, they're horibble either way though :( That sounds really good -you've beatin it!! I use to go to Ballet alot, I really miss it. But you are right, you have to keep positive. Thanks for sharing your experience with me, All the best for the future :)
it gets easier every month !! trust me there is a light at the end of the tunnel !! its so hard aswell when your young and just wana get out but u cant !!! are you seeing anyone at the moment ???
hey just wana let you know you can through it !! i suffered it last yr and now im back at ballet school in london training again !!! i basically got a virus infection and it didnt go !!! had ablood test and didnt show nothing !! then i saw this docter in harley street who has got me back dancing again !! i thought i would be bed bound for the rest of my lifee !! it has to be one of the worst things you ever have to go through !! But i appreciate everything now i doo !! it gets easier every mont
hey, i think i have this but i dont have it that bad. i been trying to get answers for years, im tired of people saying it's all in my head. brain fog is the worst! you're beautiful i pray for you for all the best! take care
@rainwhisperss Hi there! Thank you SO kindly to your such lovely comments :) now it has been proven that CFS/ME isn't 'in your head' but sadly alot of docters think this and therefore there's not much support in terms of the NHS. I also have Brain fog aswell which is horibble, I mostly have it when I'm in public places or even at my home :( I also hope you get better :) Is there any treatment what-so-ever that your trying?
@Enchantelover247 no, cause i dont know wht to do , i think its either cfs or adrenal fatigue, i couldnt sleep last night cause something got me excited and when i get excited my adrenline kicks in, i slept for 4 hours woke up felt woke up felt like a truck ran me over, and been dizzy all day and achy. also i just recently got multiple food allergies so i have to watch what i eat, i also got hot in the face a lot with red rashes but it might be from the allergies.
@rainwhisperss aw, okay well I don't know much about adrenal fatigue, but what I gather from you is that when you get excited, adrenaline kicks in, but when you calm down you go very tired. But when you calm down, you seem to experience cfs/me symptoms. And for your allergies, well as you said; you may think that the hot flushes and the red rashes is due to your allergies - that maybe the case but hot flushes and also itchy like skin is known as a symptom to cfs/me! CONFUSING I know :P
@Enchantelover247 really? do you get red face rashes that are hot? also does your neck get tight feel like someone is choking you especially on one side? =)
@rainwhisperss I don't, no; but I do get a tight neck sometimes -everyone is different with their symptoms. I'm not an expert or anything but from my own knowledge I suspect that something like your allergies started you to have cfs/me, or perhaps another illness caused your cfs/me and then your allergies started. Either way I reckon that your illnesses are interlocked with each other. Now I really do recommend you to get another annualise and some help, but not from the hospital.
@Enchantelover247 how did you get diagnosed? what kind of doctor did you see? what tests did you have done? i been to so many doctors but no answers, the hospitals suck, i need to go to the endocronologist i think, i went a long time ago and he said i have pcos but its more then that, plus i didnt really get testing done with him or suspect cfs at that time. so how did you get your diagnosis?
@rainwhisperss Well I did see a doctor, that suspected it from my explanation on how I feel, she addmitted me to the Hospital, the Hospital has given me Physio sessions. And then I've gone off on my own trail which is private and you pay for it. They specialise in this area and they have lots of treatments you can try. At the moment from the company I'm having herbal tablets (which have worked in the past) and then I'll start seeing a nutritionist and I perhaps will try acupressure :)
thank you so so so much for posting this, what you described is how i feel every day and its so hard because people don't know what its like, I'm in year 12 (the last year of high school in australia) and I've had chronic fatigue for 3 years now and its still such a struggle. do you have any tips on how you cope with it because i was getting better but then i just had a huge down. I've also been diagnosed with depression. I'm just so glad you made this video so i know I'm not alone.
Samsmilify 3 days ago
@Samsmilify Hello there! WOW I'm glad this helped and you like it hehe :) I'm very sorry that you have had it for 3 years!! And that you've been diagnosed with depression ;( How I cope with it is proberly a mixture of things, I try to ignore it (I don't mean like forget about it and do myself harm) I just mean, to think of it as not a big deal (well pretend it isn't anyway) I sort of think "Okay, so my body is hurting- it's suppose to" And I'd laugh about it, I'll inbox cause can't write much :)
Enchantelover247 2 days ago
@enchantedlover247 thank you for posting this, it's so difficult and no one around me understands.
selena324 2 weeks ago
@selena324 :) aw thank you for saying.. thank you!! hehe :) Yeah it is difficult, and it's even more difficult when you don't have the support. So you say no one understands, do you want to expand on that? I really want you to have help and support, because we deserve to :) All the best, God belss xxxx
Enchantelover247 2 weeks ago
@Enchantelover247 Its hard for me because my husband is a paramedic and works with a lot of dr's who believe the CFS is a "blanket term" and don't really believe in it. My husband see's how I struggle, but in the beginning I felt as if he didn't believe me. Some dr's made me feel like it was all in my head or I was going crazy until I found a dr who diagnosed me. Some people don't understand when they don't see anything physical.
selena324 2 weeks ago
@selena324 oh I see :( I'm sorry, I have a teacher at my school who is my head of year, and she is in charge of me - she don't believe me either, and the other week I went to the doctors cause I was really really concerned of my lungs, my breathing and my heart- and he didn't really believe me, so he just said I was fine, but when you know there's something wrong and a doctor tells you there isn't - it really annoys you!! You think, what do you do now- one thing for sure, it's scary having this!
Enchantelover247 2 weeks ago
@Enchantelover247 It sux when no one wants to listen, they make ya feel like your crazy (at least thats how they make me feel). I'm here if you ever need to talk, feel free to inbox me I'm also on facebook
selena324 2 weeks ago
@selena324 Yeah, I know what you mean!! Today there's this man coming to talk to me about home tuition - I hope I'll be getting it soon :) And thank you SO much - support means alot hehe :)
Enchantelover247 2 weeks ago
ps...but I am still disabled by it, and limited in many ways, and very weak and I'm sure you know the drill...hugs!
Bettylalunaful 3 weeks ago
@Bettylalunaful aw I'm SO sorry <3 But all we can do is carry on, cause that's the only way we can get better :) I wish you the best of luck, and I have subscribed to you; lots and lots of love, Katie ~<3
Enchantelover247 3 weeks ago
@Enchantelover247 yes I do and that is why I am so touched by your fighting attitude. I understand there are varying degrees and symptoms wax and wane and some are literally bed bound...but for those of us affected not as severely, we still need outlets, and understanding, and a sense of feeling connected and so what you are doing is so beautiful because it is a way of fighting back...I hope and pray that things do not get worse...I am fortunate not to be bed bound, but I was at one point...
Bettylalunaful 3 weeks ago
Hang in there, we will all beat this someday...great video and I'm glad you are still fighting and doing some of the things you love...be happy, be blessed, and always in God's care...
Bettylalunaful 3 weeks ago
@Bettylalunaful Awwww Thank you SO much for your support- it seriously means the world at the moment, as I'm sure you can imagine. So have you got CFS/ME? I wish you all the best, God bless <3
Enchantelover247 3 weeks ago
This is such an unnecessary syndrome perpetuated by the stupid patient groups who would rather fight than get well
freespeechisataste 2 months ago
@freespeechisataste what do u mean ?
dancekidlee 1 month ago
i mean dancing is my lifeee i knew i couldnt be in bed for the rest of my lifeee !!! its scary aswell cause u dont know if ul be able to do what u use to be able to !!! like i was doing 20 hours of dancing everyweek be4 i got ill but i tell you the more classes i do my body just gets use to it !!!! like i just remember 6 months ago i couldnt even walk for 5 mins without being ill and shattered and tired
dancekidlee 2 months ago
@dancekidlee woah! You've done so well!!!! I love Ballet aswell-acting is my life, and I'm missing out in that, in horse riding, school and Ballet. I hope my recovery is as quick as yours :) and as well !
Enchantelover247 2 months ago
well im not 100 percent yett but im deffo getting there im doing like 10 hours a week of dancing plus i walk !!! well basically i saw this docter in london whos private and he works with people who has got it and he has got everyone back to what they r doing !! i saw a nutritionist who sorted my diet out and this docter !! basically its about pacing urself !! but it does work cause in september i was 5 mins of ballet no and now im 2 hours
dancekidlee 2 months ago
@dancekidlee There's a doctor ? Would it be worth going there? I mean I've got a nutritionist (well, just started) London isn't that far from where I live :)
Enchantelover247 2 months ago
yeah keep positive and you will ;) i just remember lying in bed and thinking im never gona dance or walk again !! but i did itttttt !! it wass hard workkk i can tell you that but its worth it ;) good luckkkk
dancekidlee 2 months ago
@dancekidlee Okay thanks I will- if you don't mind asking me but how did you get better ? :)
Enchantelover247 2 months ago
yeahh its important to see a nutritionistt because it has helped mee for dancing again and needing the energy to danceee !! yeahh i knoww what gcses are haha i did them !!! well i am back at ballet school 5 days a week !!! so it can be doneee !! are you from london ??
dancekidlee 2 months ago
@dancekidlee Yeah I know, but it's private, cause NHS don't supply in this area so I have to pay :( And oh my gosh! I use to do Ballet too, I really miss it, did you watch the Nutcracker on BBC Four yesturday night? And no I don't live in London, I live in the West Midlands :) And Congrats on your achievment to get back to Ballet, you should make Youtube videos !!!!
Enchantelover247 2 months ago
@Enchantelover247 yeah but its worth ittt at the end of the day !!!! haha well i am on some youtube videos :) thank youu !! just dont let the illness destroy ur lifee cause anyone can beat it :)
dancekidlee 2 months ago
@dancekidlee Oh cool, and yeah thanks for all your kind words- I think every day i get that bit more determined to beat it ! Lots Of Love :)
Enchantelover247 2 months ago
how are you getting on ??? r u able to walk much and excercise ??? trust me it will get easierr
dancekidlee 2 months ago
@dancekidlee Well, I'm not too good, but because it's Christmas, it's kind of the case of thinking "Screw it" -you know? I'm not good at walking in places other then my house really, I hate public places, I get bad Brain Fog and I kind of think I'm dead! Never mind, and thanks for all the support -helps alot! x
Enchantelover247 2 months ago
@Enchantelover247 yeah i did that a few times i thought f**k it il go and do what i want but i paid the pricee !! are you seeing anyone for it ?? so do u go to school ??
dancekidlee 2 months ago
@dancekidlee Yeah, you do have to be careful otherwise your gonna have a couple of days feeling crap!! I am currently seeing a Physio therapist, nutritionist, therapist (I use to) and then also I will see in a couple of months time a Pysico therapist. And no I'm not going to school at the moment :( I'm missing all my classes for GCSE (if you know what they are) So it kinda sucks, but I've got to just carry on
Enchantelover247 2 months ago
Comment removed
dancekidlee 2 months ago
best thing i can say is dont pushh ittt !! try and improve what you do everyweek !! i had to take a yr off ballet school so when i started back in september i could only do 5 mins a day and by the beggining of december i could a hr and 45 mins everyday plus walkinggg and everything !!! but next term ive got to build up another 2 hours but i know i will be able to do 4 hours of intense dance training everyday !! are you seeing anyone for it ?? i saw a nutritionist and a docter in harley street !!
dancekidlee 2 months ago
my symtoms was boiling hot couldnt sleep sore throat fuzziness in my head . headaches shattered all the timee and tired constantlyyy and always felt weak with no energy !!!but month by month it start going awayy !!! i got the illness in 2010 and now im back dancing !! just keep positive and u will get there !!!!
dancekidlee 2 months ago
@dancekidlee OH WOAH! You've been through alot, I get more of the cold -like symptoms though, they're horibble either way though :( That sounds really good -you've beatin it!! I use to go to Ballet alot, I really miss it. But you are right, you have to keep positive. Thanks for sharing your experience with me, All the best for the future :)
Enchantelover247 2 months ago
it gets easier every month !! trust me there is a light at the end of the tunnel !! its so hard aswell when your young and just wana get out but u cant !!! are you seeing anyone at the moment ???
dancekidlee 2 months ago
hey just wana let you know you can through it !! i suffered it last yr and now im back at ballet school in london training again !!! i basically got a virus infection and it didnt go !!! had ablood test and didnt show nothing !! then i saw this docter in harley street who has got me back dancing again !! i thought i would be bed bound for the rest of my lifee !! it has to be one of the worst things you ever have to go through !! But i appreciate everything now i doo !! it gets easier every mont
dancekidlee 2 months ago
hey, i think i have this but i dont have it that bad. i been trying to get answers for years, im tired of people saying it's all in my head. brain fog is the worst! you're beautiful i pray for you for all the best! take care
rainwhisperss 2 months ago
@rainwhisperss Hi there! Thank you SO kindly to your such lovely comments :) now it has been proven that CFS/ME isn't 'in your head' but sadly alot of docters think this and therefore there's not much support in terms of the NHS. I also have Brain fog aswell which is horibble, I mostly have it when I'm in public places or even at my home :( I also hope you get better :) Is there any treatment what-so-ever that your trying?
Enchantelover247 2 months ago
@Enchantelover247 no, cause i dont know wht to do , i think its either cfs or adrenal fatigue, i couldnt sleep last night cause something got me excited and when i get excited my adrenline kicks in, i slept for 4 hours woke up felt woke up felt like a truck ran me over, and been dizzy all day and achy. also i just recently got multiple food allergies so i have to watch what i eat, i also got hot in the face a lot with red rashes but it might be from the allergies.
rainwhisperss 2 months ago
@rainwhisperss aw, okay well I don't know much about adrenal fatigue, but what I gather from you is that when you get excited, adrenaline kicks in, but when you calm down you go very tired. But when you calm down, you seem to experience cfs/me symptoms. And for your allergies, well as you said; you may think that the hot flushes and the red rashes is due to your allergies - that maybe the case but hot flushes and also itchy like skin is known as a symptom to cfs/me! CONFUSING I know :P
Enchantelover247 2 months ago
@Enchantelover247 really? do you get red face rashes that are hot? also does your neck get tight feel like someone is choking you especially on one side? =)
rainwhisperss 2 months ago
@rainwhisperss I don't, no; but I do get a tight neck sometimes -everyone is different with their symptoms. I'm not an expert or anything but from my own knowledge I suspect that something like your allergies started you to have cfs/me, or perhaps another illness caused your cfs/me and then your allergies started. Either way I reckon that your illnesses are interlocked with each other. Now I really do recommend you to get another annualise and some help, but not from the hospital.
Enchantelover247 2 months ago
@Enchantelover247 how did you get diagnosed? what kind of doctor did you see? what tests did you have done? i been to so many doctors but no answers, the hospitals suck, i need to go to the endocronologist i think, i went a long time ago and he said i have pcos but its more then that, plus i didnt really get testing done with him or suspect cfs at that time. so how did you get your diagnosis?
rainwhisperss 2 months ago
@rainwhisperss Well I did see a doctor, that suspected it from my explanation on how I feel, she addmitted me to the Hospital, the Hospital has given me Physio sessions. And then I've gone off on my own trail which is private and you pay for it. They specialise in this area and they have lots of treatments you can try. At the moment from the company I'm having herbal tablets (which have worked in the past) and then I'll start seeing a nutritionist and I perhaps will try acupressure :)
Enchantelover247 2 months ago
Comment removed
leh96 4 months ago
emotional :')
AFrog1nABlender 4 months ago
@AFrog1nABlender yeah, tis a bit :)
Enchantelover247 4 months ago