Tuberous Sclerosis Surgery

[krazykelly25]

I am so glad me and my family aren't alone. My sister died due to the condition and my other is dying now in the same way. I have it and so does my mother. You can only have so many surgerys before they can't do anything, we cover it up well but we all have problems and people need awareness about things like this. God bless you.

[SassieLassie3]

My bf just got this done the 26th and i was worried but now that i have watched this i have no worries becuz i know my bf will be ok and he wont have no seizures no more!

[alexwinter666]

May God bless and protect any child who has to go through this.

[aknlbragg22]

My daughter has TSC and may have to have the surgery and the images are scary, but the outcome of no seizures, no seizure meds is what we want.

[morningview612]

I too have TSC . I also had neurosurgery at NYU Medical Center&Dr. Weiner was also my surgeon. My surgery was for tumor resection. I had a very large brain tumor. This was my 2nd neurosurgery. My 1rst one was in 1994 at Children's Hospital Of Philadelphia&80% of my tumor was removed. 12 years later my tumor grew back&had to be removed again. This time it was done at NYU. When I awoke from surgery, my sis told me that the entire tumor was removed! Dr. Weiner did an AMAZING job!

[tsmomof2plus1]

My son had this surgery about 2 years ago. He has been seizure and med free for two years now. Thanks so much for posting this more people need to know about this aweful disease called Tuberous Sclerosis. So thank you again for spreading the word.

[cjkrinsky]

Thank you for raising awareness about tuberous sclerosis complex.