Important Ehlers Danlos Syndrome stories I wanted to share

[tiredmommyspinning]

I've been watching a lot of videos on EDS my mom is going to be taking the test soon to see if she has EDS. All our lives my mom and brother and I have always talked about our backwards knees as we call them. We all half extremely flexible joints. My brother can twist his arm all the way around so it looks like t is broken. I can not even tell you how many times I have fallen because my ankle or knee or hip popped out of place. I am excited to hear my moms diagnosis.

[peaceduv02]

I have a question...if I have Ehlers Danlos Hypermobile...Over time, is it going to continue to get worse??? My knees and shoulders give me the most problems...

[sehan1228]

@peaceduv02 Unfortunately, yes it will.I was diagnosed 3 years ago with types 3 & 4.Its not easy, but most can live a mostly normal life.

[suicidewins]

What is this video actually about? I clicked on it because the chick who made it is hot. Now I see her rambling on about some mysterious illness. Huh?

[3007885]

you still look pretty

[MissMochibon]

I had never heard of ehlers-danlos but have had joint problems my whole life. Most recently, my knee has been popping, even without provocation in bed. I would wake up with a swollen leg and in incredible pain. I went to my doctor and was misdiagnosed with runner's knee. I told my sister about the problems I have been having. She connected that with my abnormally soft skin and flexibility and suggested it may be EDS. I'm going to the doctor on the 12th to be tested.

[pluggindahoes]

Much love...hope things work out btw your gorgeous PEACE

[fast00pl]

nice to see you again, bless ya !

[WildBlue77]

You are an amazing person, and you are definitely a shining light to those seeking understanding of life with EDS (or VEDS and other types of the syndrome). A wonderful, personal and outreaching video - 5* and a favourite, and a definite sub to your channel. Thanks so much for all you, love Ruby Rose

[partylineboy23]

Think you look great , you always have my support , thank you for being you !

[philblunt420]

Very classy comment there iRewel.

[serenity151979]

I've just found your videos and I want to say thanks for sharing your thoughts, I have just been diagnosed with EDS hypermobility at thirty after a lifetime of knowing something was wrong and having it dismissed. You really are inspiring.

[OzarksUSA]

I wanted to thank you for your videos. Your videos are what gave me the courage to go to my doctor and ask to see a geneticist. I'm diagnosed with Hypermobility Ehlers-Danlos Syndrome as of December 2009. I am still learning about EDS and my doctors really don't know much or care to learn much. So right now I feel I have to keep myself informed and be my own advocate for my health. Thanks to your videos and the emails we exchanged I had the courage to ask about EDS.

[jacknlori]

I think that its great that u do the videos when my doc first told me about eds your videos helped me in my coming to terms with what is going on and I have to keep telling my self I can still be normal I suffer greatly with out energy do u know any thing that may help with that besides coffee

[metallicafannc]

hey ur very beautiful sissy

[stilesmarsha]

you are beautiful! My son actually said, "I don't know why God made me this way, but I am sure that he had a reason....maybe I can help other people who have a disability realize that God made us and we are special because of our disabilities" You like my son are an inspiration!

[rockerchik76]

Your son is amazingly strong and so very right! this comment made me smile along with some tears:) God has many special plans for your son and please tell him that I think he is the bravest and strongest person I know, plus a hug from me lol!! God does use certain people with disabilities to help others going through a very difficult time and use us as an inspiration! What is so amazing is that he realizes this at such a young age and he has one amazing mother as well!

[danthehempsmog]

@stilesmarsha rockerchik76 died. RIP

[stilesmarsha]

@danthehempsmog WHAT?????!!!!

[danthehempsmog]

@stilesmarsha I know, it's horrid news. RIP tracie

[Zorlac0666]

@danthehempsmog When was this, and what proof do you have of it? Also if it's true who are you even to be saying some of the horrible things you've said on some of her other videos?

[danthehempsmog]

@Zorlac0666 I need not proof, I lived it with her...I heard her sad, vivid details. I sat with her crying in dismay and wondering why,,,WHY. I suffered too you know.

[Zorlac0666]

@danthehempsmog I'd say you do. You seem to be the only one that knows anything about it, yet you've said some might nasty things recently on her videos. You seem to be making things up for attention.

[danthehempsmog]

@stilesmarsha RIP rockerchik76

[DarkAngelGirl7]

This beautiful young lady here is my best friend in the world and also my youtube sister i perfer to say real sister and she is so will powered and never gives up on life and im so proud of her for sharing her stories and herself on youtube she has a huge heart and is willing to help anyone god bless you sister and i love you very much :) big hugz

[surferbuddhist]

Hey good to see you again!

[BuddyBoy091994]

thank you for making another great video Tracie.

you are an inspiration to us all. keep making your wonderful videos!

Chris <3

[boddyxpolitic]

absolutely gorgeous

[karenwiz259]

What is your website? I have an appt with my neurologist at U-M in March and I am going to ask them to check me for EDS because I never felt MS was correct. Excellent video. Keep up the good work.

[orangewoman671]

Traci, this is a very important video because you look beautiful, positive, so peaceful and full of hope...You're so strong, kind and good hearted. Send you a big hug. Much love, Pati

[jtcomicm1]

sis. i just want to give you a big hug, im so happy for you!!! It awesome to see the awareness is rising and to know that you have changed peoples life. You are a symbol of strength, love, and hope. To all us. To know that people who didn't know what was wrong with finally do and now can get some treatment for it. You have such a big heart, alot of courage , and determination to get by anything. Awareness is going up and that something that im am glad is happening. love you sis. Stay strong

[BaconMan8910]

Love you sis, stay strong. Semper-Fi, Always Faithful.

[SmokeyAlaska]

ur nice and awesome

[engodo2525]

It is such a great feeling to know you have impacted someone through your own struggles!

As for the "my life is over" with each video we all do people see life goes on, we are still members of society we just do things differently here and there.

If you need any help with new EDSers your welcome to send them my way as well cause my mom and i do it quite often.

So glad to see how far you have come yourself since the videos started!

Zebras Rock!

[Zorlac0666]

As usual you are showing me, and the world that you're strong, you're beautiful, and that you're a simply amazing person. You make me happy, you make me smile. There's not many people in the world like you, and well, the world would be a lesser place without you. It's not every day a person finds someone as amazing as you, and the day I found your videos, was a day my life got brighter. As per usual i added your newest video to my playlist, and i hope it helps more people see it.

[UnhappyTestTubeBaby]

I just wanted to say you're an inspiration, even to those of us who are perfectly healthy. We could use more strong and helpful people like yourself. I wouldn't be surprised if you continue to get more and more attention.

I think you're beautiful. Rock on, rockerchik!

[MistaBone11]

Love the way you reach out to others.

[TexasBandit9]

Love your video. Keep up the good work. Your such a strong person.