Natalie for CFS/ME Awareness

[hi771lrt]

Oh, soz, you have made updates, I didn't realise!!!

[hi771lrt]

Hey Natalie, What do you think helped cause you to no longer have symptoms? I have had it 18 years, and am very interested to know if there is anything you think you did that helped your body to recover. Glad to read the good news.;-)

[obscenely]

@ChronicFatigueSyn Hello - no I did not.

[obscenely]

@ChronicFatigueSyn 

[alexsantoro]

Does any1 here believe that our bodies have the ability to heal themselves? I do. I have had ME/CFS for 5 years now and have used these 5 years 2 study presonal development, health & nutrition. I have learnt a lot from books such as The China Study (the most comprehensive study of nutrition ever conducted), Dangerous Grains, Sick & Tired & many more. The work that Dr R Young is doing on the cause of ANY disease is amazing. I am on day 12 of a 200 day challenge to heal my ME. And I will do it :-)

[leannebell1]

Hello Natalie, Do you still have ME symptoms? I am currently feeling your described symptoms but yet to be diagnosed. I just want some hope x

[obscenely]

@leannebell1 Hllo - I no longer have symptoms. I hope you are well

[pinkroxysouthmead]

i also just wanted 2 say i agree with you about the depression part im on anti depressants cos of my m.e it drives me mad so i cnt say i imagine how u must feel i have it mild and thats enuf

[pinkroxysouthmead]

i also have m.e its mild i find ur story so shocking as i dnt get like that and worried now i just get very very tierd and ache all over i fight it all the way as i refuse 2 accept i am unwell keep ur chin held high

[obscenely]

Pinkroxy - Don't worry, I know people that have had it 10 times the amount of time I have and always stayed at a mild level. Besides, I am about 90% improved now - so there's no need to worry! Especially as stress can make you feel worse x

[justinreilly1]

Thank you Natalie for representing!

[luminescentfeeling]

Nice to see someone with ME speaking out about real and important facts. I watched this video again, and it's quality.

[kristynita]

hey, natalie! i'm kristy, im 20 years old, from new york and have had the same illness as you for 3 1/2 years now. would you care to chat sometime?

[obscenely]

Hi Kristy, if you still want to chat send me a pm.

[GoddessofRainbows]

I supported M.E. Awarness Day yesterday. I have M.E.

[livingfaith17]

GOD bless u so much!! You are not alone in your battle!! God carries you in his arms <3

[Andyc18]

Hi :) Do you still have CFS? I live in the UK and for about 2-3 years I have been very rundown nearly every day and have to sleep 10-12 hours just to feel average. If I sleep 8 hours or less I wake up and feel like I am drunk! lol. I have had blood tests down the doctors and they came back as fine, it really confused me, I don't know for sure that I have CFS but some days I get joint aches and blurry eyesite coupled with the tiredness and i'm a 21 year old male :(

[tcherry70]

Hi Andy, i am a fibromyalgia /cfs/m.e sufferer, i am 39 now but have had this since my early 20s, i am pretty mch house bound as Natalie is, n suffer frm the physical n neurological symptoms chronically, if u feel like a chat sumtime pls msg me, or catch me on myspace i hve jst strted an awreness site wiv a daily blog, fb/myspce.. Trudy Dillaway

[obscenely]

Hi Andy,

Sorry for the very late response - I don't now how I didn't notice it. My CFS is about 90% improved. I'll definitely make a new video in May :) I definitely understand feeling liek you're drunk. How are you going?

[mrskaykins]

What makes you think that the LP treats it as a mental disorder? That's an untrue internet myth! They teach you how to stop adrenaline and cortisol drowning your body and how to correct the neurological pathway in your brain which got knocked out by the virus and stress. In ME sufferers, adrenaline is x30 what it should be in healthy people. I don't have ME anymore and I cured myself in 3 days! woop woop!!! DO IT!!!

[tcherry70]

Hi, what is LP? i wud like to no more about this, i am a fibromyalgia /cfs/m.e sufferer, and would luv to no how this wrks and how i go about starting it, i am in the uk.. wud appreciate a reply.. pls search me on myspace- suffering with fibromyalgia.. or Trudy Dillaway and leave a comment there for me so i can get hold of u if i need to, thts if its ok wiv u.. thankyou for wot hopefuly is good info and well done for beating it

[obscenely]

Definitely thank gosh for the internet.. I can't imagine being as sick as I am and was without it.

[emodudes4life]

theres a thing called the lightning process which is said to get rid of ME. i have ME too and in about a week im down to complete the 3 day lightning process course to hopefully *fingers crossed* get well again. ive had ME since i was 3 and im now coming up 18 :( cant remember what it was like to be normal so if this thing works, it'll be amazing :D

[obscenely]

I'm not a fan of the lightening process because, from what I understand, it does not treat ME as a physical illness - and it IS a physical illness.

[mrskaykins]

good luck!!! I did it last month after 19 years of suffering and I don't have ME anymore!!! It's so exciting and you can do it too :D

[tcherry70]

hi, i nwould like to no how the lp went for you and how you are now? i no nothing of this and honestly nver heard of it before, but wud love to no if it helped u and a little more on it... if u dont mind? i hope that u are wellx

[ThreesecondHero]

@emodudes4life The 'lighning process' has no scientific basis and its effects on ME patients (or anyone else) have never been studied. It bears all the marks of a snake oil treatment. It is potentially dangerous for true ME patients, as are any programs that train such patients to ignore their body's warning signs and exert beyond their limits. I urge patients to read the warnings about the lightning process on ME/CFS patient boards before considering going through it.

[Kanelblomsten]

@ThreesecondHero I tryed LP and I regret it so much! They basicly get into your head that you yourself made yourself sick. They make you sign a "dont tell anyone any of the content- agreement". I advice people to think long before doing this. I know alot of people who struggels emotionally with a great sense of shame and being to blame for their disease. There is a BIG differense between taking responsebilty when deling with a disease and being to blame for!!!

[MaverickMiracle]

Thank you for posting this video Natalie. My sister Sophia Mirza died of ME. Its staggering that M.E. is still treated as a mental illness in the UK. Good on you for raising awareness and good luck to you.

[obscenely]

I could not be more sorry about your sister - I read about her from the day I was diagnosed and I've watched your Mum talk about Sophia's journey weeping. I was a friend of Lynn Gilderdale's (online friend)... this SHOULD NOT happen.

[tcherry70]

omg!! i am so so sorry to hear you lost your sister to this dreaded monster of an illness.. i am a fibromyalgia/cfs/me sufferer... i dont no mch about people dying frm it as i was told by my gp tht you cant die frm it, but as u say.. i am in the uk.. i hope that you r well and tht u are managing to cope.. wud love to hear ur reply thankyou

[justinreilly1]

tcherry-

yes people die from this- they get overwhelmed with infections like AIDS, go into a coma, rational suicide and normally very rare b cell lymphomas. it's too bad most doctors don't know what they're talking about, esp in UK bc the crazy psychiatrists like Wesseley have taken over.

[antares4141]

Mold and CFS symptoms are directly related to each other. You can prove this to yourself by going to walmart buying a $37 dome shaped 9x7 tent,(no stakes needed, nylon very low on VOC'S) setting it up in your bedroom and putting a medium to large size hepa filter in it. Don't come out without a respirator designed for asbestos and mold abatement EVER,For about a week anyways. I know I am not the only one with this condition. PLEASE TRY IT AND CONFIRM IT FOR YOURSELF WHAT YOU ARE UP AGAINST!

[obscenely]

In my opinion, mold may irritate ME symptoms, jsut as anything can (sound, sight, smell, touch, taste) but it is not the cause.

[antares4141]

Agreed it's an immune disorder of some type. Maybe virus, fungal, bacterial, maybe neurological or no known cause like lupus, MS, or ALS. I would be bed ridden and contemplating suicide if I still lived in the moldy home where I took ill. Not saying it's the CAUSE, most people live in homes like this without consequence. Maybe you and others don't have this particular condition at all but I would certainly want to rule it out with my tent concept or moving onto a porch or camping in back yard.

[SAMMYBABYLOVE]

hello!! I have m.e! ive had it since i was 13 im now 23! i was house bound for a year! i know what this lady has been through! i am now at uni!and next year im gunna be fighting for m.e/c.f.s rights and awareness!!! look out for me! Keep going ppl with m.e and togather we can beat it! M.E IS NOT IN YOUR MIND!!!! byeeeeeee x

[obscenely]

Fantastic to hear! :)

[BretagneShrew]

I decided to put this in my blog on myspace :) I think its a really good blog, very informative and explains what this illness is like without being offputting or whingey.

look forward to another vid when you're up to it :D hope you are a.w.a.p Nat! xx

[Helweb]

i also have cfs / me

people who haven't got it just don't have a clue how hard it is, and how exhausting doing anything is. dont realise that you cant watch the telly etcetc, diet wise i am now trying a hypoallergenic diet. i agree with everything you say,my mum says she had in the past, im 30 had it for 5 years now. my mum is really nasty to me, saying shes had it. knows what its like, tells me to grow up and get a life,if i was able id move out.well done for posting thislook after yourselfx

[obscenely]

I'm so sorry about your Mum. She obviously doens't understand or doesn;t understand that her experience with it doesn't sound like it was a severe experience. I hope this resolves.

[BretagneShrew]

I have the same story pretty much, had glandular at 19, turning 22 on tuesday and I'm still sick :(

[Alexsk1]

Thanks for posting the video to raise awareness. You seem like a very nice person!

Alex (fellow sufferer for 10 years - now 28 years old.)

[deadgirldreaming]

Hi Natalie,

Thanks you for doing that!

It's so hard to explain it to those who don't have it.

[wwebbisthenewblack]

Hello, well done and thankyou for making this video. :] & it wasn't too scattered at all. I'm 16 and have had CFS since I was about 12. Thankfully I'm getting a lot better now but I know how hard it is, especially with such a lack of awareness of the illness in the world. I came across your video when I made a vlog about CFS for ME awareness week and just wanted to check out what else was on here about it. :] I hope you continue to get better. x

[cferret27]

Well done Natalie for making this video! It's always good to hear other people's experiences of living with ME (i've had it for 13 years). Thanks.x

[kaazoom]

Thank you Natalie for making this video. It is so important that ME is made visible. Telling your story will help others to understand and encourage other sufferers. I am so gald that you have found a doctor who understands ME and that you have improved.

best Wishes,

Paul

[yogamoda]

Thank you so much Natalie for the huge effort you have gone to in making this film. From a fellow ME sufferer (10years)

[fatlion12]

Great work Natalie! Well done. It must have been very difficult to muster the energy to do that (not to mention the courage)!

[Myung1983]

I wish you the best in coping with your CFS/ME. Awesome that you used your precious little energy to make this video! I have CFS/ME(9 yrs now, I'm 24) and Aspergers Syndrome(a form of autism)= bad combination. I really wish there was more CFS awareness in the world!

[Myung1983]

Ever since I'm on anti depressants, I actually have a little hope that someday they'll find out what this is and how to treat it. People don't know how awful it can get. Everybody thinks it's just being tired. When in many cases people have a long list of symptoms from severe pain to extreme exhaustion. I hope for everyone who is suffering that a cure will be found in the near future! (I was over the character limit)

[Myung1983]

PS. thanks so much for the inspiration!

I think I will make a CFS/ME awareness video for May 12th as well =)

[obscenely]

You're welcome, I agree with everything you said, & thank you for the well wishes.. I'll keep an eye out for yours!

[nunnone]

Thanks for making the attempt! I know how difficult it is to summarise something that affects people in so many different ways. I'll be linking to you (and maybe some others if I can find them) on May 12th. Thanks for checking out my site too - although the particular post is two years old now. I pretty much missed last May 12th so I'll have to make a bigger attempt this year.

[giorgioosmani]

Love u Natty. Get well soon xx

[obscenely]

Love you too, trying my best! xx

[maxy0987]

Interesting!

[obscenely]

If I ever get the energy to talk that much again I will record a clearer, more concise video that makes more sense. If you are a sufferer, you will know why it's so muddled & why I forgot 1000 things. May 12 is also FMS Awareness Day.