the tape is the worst part!! I get remicade every six weeks and i have a spot on my wrist where hair won't grow anymore cause the tape is always there XD it sucks. Im getting an endoscopy (i think thats how you spell it) soon. Like in 6 days. I hate the preperation for it ugh =| this will be my third one. fun times *rolls eyes* anyways yeah I love your videos!!(:
LetsTalkIBD thanks for posting this. i dont have to hae surgery for my crohns at the present time but may in the near future and i feel more relaxed now, knowing that ts not as bad as it seems. thanks:)
Hey, My name is Sally and i Also have Crohns Disease, I just recently made a blog/vlog about crohns, youu can check out my channel its the only vid i have so far, or u can go to, /watch?v=8Vvsm9yt_Sw , Add that after youtube . com it wont let me put a link, it is got people who have crohns and want help they ask me questiios and i will do a Q and A vid, Im here to help <3 check out my vid and ask me question! <3
omgg i had crohnes around the time you had it... lol i found out about me having the illness around mid-september to october.... around my birthdayy.. which sucked but it was ok....
Not sure if you've gotten word of this but cannabis oil is said to cure Crohn's disease. Watch a video here on youtube called "Shona Banda - Live Free or Die".
Luckily the only surgery (not really) was putting a feeding tube in my stomach...I kinda like the sleepy stuff they give u, made me keep lifting my head cause it felt like it was 50 pounds
@wafflesrule03 Not gonna lie I like it too. Makes you very happy hahahaha. Thats probably not a good thing but us Crohnies got to enjoy our little bit of drugged up time right? :)
Yo Yo yo.. I didn't think you went to the same hospital. Wow. I had dr. mattei do one of my surgeries. Wow. Man. i didn't think i would see him on camera. and wow. and i didn't think you went to CHOP either. Wow. Just Wow.
Hi this is his daughter Abby using his account. My brother went to the same hospital as you did!He has a colostomy. His nurses and surgen were very nice and they were taking very good care of him. 2 years ago my brother and my family spend all the holiday season and went went home on New years Day. But this has happened so many times though his medical disablity. He is now healthey with his ostomy and Im gald we had that surgery for him too.
keep your head up, Im 19 and ive had 3 intestinal surgeries so far and still have really bad pain, alot of ppl are saying marijuana works really good for inflimation and pain.
@supersmiles4miles Thats so funny! i asked a bunch of people from chop if they had him and they said no so I thought I was his only patient haha, but he's awesome:)
@LetsTalkIBD He is the best!!! i actually had an appointment with him today! but now i think my surgery was maybe not the one you went through because it seems like you stayed there for a couple hours; I had to stay there for 5 days after my surgery. But I had to do all the same things before the surgery (like not eating after 11) like you.
@supersmiles4miles He really is the best:) and this surgery/procedure was an "anal dilitation" just basically stretching out the end of my colon, no incisions were made so I didnt need to stay over night:)
@LetsTalkIBD ohhh... Yeah! My parents were really happy we chose Dr. Mattei after the surgery. I went through a illeumcecumostomy (big word!). they took out about more than 1 and a half feet of my large intestine which was inflamed and sewed the two ends together. =)
@UCVlog Hahaha I know :) this was a really simple one so I had no reason to be worried, plus I was excited to send my friends texts while I was still loopy
the tape is the worst part!! I get remicade every six weeks and i have a spot on my wrist where hair won't grow anymore cause the tape is always there XD it sucks. Im getting an endoscopy (i think thats how you spell it) soon. Like in 6 days. I hate the preperation for it ugh =| this will be my third one. fun times *rolls eyes* anyways yeah I love your videos!!(:
lcampbell0408 29 minutes ago
I'm 10 and have something similar, IBS, I had 2 operations done, and you gave me an idea to make a video at my next operation :)
HannahLeanne100 2 weeks ago
LetsTalkIBD thanks for posting this. i dont have to hae surgery for my crohns at the present time but may in the near future and i feel more relaxed now, knowing that ts not as bad as it seems. thanks:)
grinchy29 1 month ago
This has been flagged as spam show
Hey, My name is Sally and i Also have Crohns Disease, I just recently made a blog/vlog about crohns, youu can check out my channel its the only vid i have so far, or u can go to, /watch?v=8Vvsm9yt_Sw , Add that after youtube . com it wont let me put a link, it is got people who have crohns and want help they ask me questiios and i will do a Q and A vid, Im here to help <3 check out my vid and ask me question! <3
Crohnstalk101 1 month ago
You go Girl! I am late in viewing this, but you rock! Hope life is treating you well!
TheGaryleebecker 1 month ago
@TheGaryleebecker It is! thank you!!
LetsTalkIBD 1 month ago
omgg i had crohnes around the time you had it... lol i found out about me having the illness around mid-september to october.... around my birthdayy.. which sucked but it was ok....
Jenyarg97 1 month ago
@Jenyarg97 Aww thats really annoying ): Hope you're doing good now though!
LetsTalkIBD 1 month ago
you are much braver than me am 45 had a op for the first time last year to have my gall bladder out.
well done and good luck in the future
freshie2006 2 months ago
so brave posting this vid my mum died of it at 71 had never heard of it before thank you for posting
freshie2006 2 months ago
1 person "rooms", cool... in Poland 10ppl per room...
adamziaja 2 months ago
@adamziaja Hahaha wow I'm lucky then!
LetsTalkIBD 2 months ago
This has been flagged as spam show
Not sure if you've gotten word of this but cannabis oil is said to cure Crohn's disease. Watch a video here on youtube called "Shona Banda - Live Free or Die".
likeOMGitsUNLTD 3 months ago
Luckily the only surgery (not really) was putting a feeding tube in my stomach...I kinda like the sleepy stuff they give u, made me keep lifting my head cause it felt like it was 50 pounds
wafflesrule03 3 months ago
@wafflesrule03 Not gonna lie I like it too. Makes you very happy hahahaha. Thats probably not a good thing but us Crohnies got to enjoy our little bit of drugged up time right? :)
LetsTalkIBD 3 months ago
had this test 7 times i hate it fucking crohns sucks
rpopemetallicafan95 3 months ago
@rpopemetallicafan95 yes it does ):
LetsTalkIBD 3 months ago
you are so cute, i just had sury inbox me and add me on facebook ;)
gators4orever 4 months ago
Yo Yo yo.. I didn't think you went to the same hospital. Wow. I had dr. mattei do one of my surgeries. Wow. Man. i didn't think i would see him on camera. and wow. and i didn't think you went to CHOP either. Wow. Just Wow.
ShifuniandYou 4 months ago in playlist More videos from LetsTalkIBD
Oh, you're at CHOP! Awesome! I saw Dr. Baldassano there, for years.. He has Crohn's too, so it made it a little easier to deal with.
caitob32207 5 months ago
Sister......I Really Like your Face.....
MrBlack6wolff 5 months ago
Hi this is his daughter Abby using his account. My brother went to the same hospital as you did!He has a colostomy. His nurses and surgen were very nice and they were taking very good care of him. 2 years ago my brother and my family spend all the holiday season and went went home on New years Day. But this has happened so many times though his medical disablity. He is now healthey with his ostomy and Im gald we had that surgery for him too.
Best of luck to you! Abby(:
lordandrrew 5 months ago
keep your head up, Im 19 and ive had 3 intestinal surgeries so far and still have really bad pain, alot of ppl are saying marijuana works really good for inflimation and pain.
Sunabe2k10 6 months ago
omg!!! i recently went through the same surgery you did in the same hospital as you and dr. mattei was also my surgeon!!!! how weird!!!
supersmiles4miles 7 months ago
@supersmiles4miles Thats so funny! i asked a bunch of people from chop if they had him and they said no so I thought I was his only patient haha, but he's awesome:)
LetsTalkIBD 7 months ago
@LetsTalkIBD He is the best!!! i actually had an appointment with him today! but now i think my surgery was maybe not the one you went through because it seems like you stayed there for a couple hours; I had to stay there for 5 days after my surgery. But I had to do all the same things before the surgery (like not eating after 11) like you.
supersmiles4miles 6 months ago
@supersmiles4miles He really is the best:) and this surgery/procedure was an "anal dilitation" just basically stretching out the end of my colon, no incisions were made so I didnt need to stay over night:)
LetsTalkIBD 6 months ago
@LetsTalkIBD ohhh... Yeah! My parents were really happy we chose Dr. Mattei after the surgery. I went through a illeumcecumostomy (big word!). they took out about more than 1 and a half feet of my large intestine which was inflamed and sewed the two ends together. =)
supersmiles4miles 6 months ago
@supersmiles4miles Yup dr. mattei didma similar surgery on me, an ileosecectomy and a partial colectomy then later he gave me an ostomy.
LetsTalkIBD 6 months ago
I HATE IVs. For my surgery I was in hospital for 4 weeks. I had about 17+ IVs before they decided to give me a PICC Line.
MsAshleyls1 8 months ago
I hope your doing well. Give us an update :)
flute1234 1 year ago
You're so excited to go into your procedure! My hospital rooms looked exactly the same: the same ugly curtains and everything.
UCVlog 1 year ago
@UCVlog Hahaha I know :) this was a really simple one so I had no reason to be worried, plus I was excited to send my friends texts while I was still loopy
LetsTalkIBD 1 year ago