Im 27 and have Spina Bifida. I have zero health problems due to it. I rarely give it any thought at all. I do have the hole at the lowest part of my spine. Ive only just today started doing some research about it. I feel kinda bad about that, I should know more about this. Its been very interesting watching videos and educating myself.. Im feeling very grateful that i have no symptoms at all.
I'm 15 and have spina bifida and it is great for someone to speak out and show people even though it's almost invisible for people to see it's not invisible to the people living it like me I look like a short 15 year old but only my closest friends and family know the truth
You are a real inspiration for other people. This video is excellent. You are a beautiful and strong young woman. Keep doing this and your music: what a great combo. God Bless you. Don't stop what you are doing.
My name is Hope and I am 18, and I was born with spina bifida. I am currently attending New Mexico State University. My condition is not really severe as you said "it could be a lot worse" the only problem that i have is with walking, but actually when i go see a doctor and they hear of everything that I am able to do in life they are amazed. I also have the support of my friends and family which really keeps me going.
I am a 33 year old male with Spina Bifida. No one can really tell that I have it physically. Until you get me doing physical work. Cause it does effect my back and leg. And my memory really sucks as well. Anyway , anyone around my age that wants to ad me as a friend then go ahead. Including you Emily. Very nice blog you have here.
My daughter was just born with Spina Bifida. It was good to see a vibrant, intellegent young woman with this condition. I will love her regardless of her problems. But it is helpful to see a person like yourself. Thank you for giving me a glimmer of hope.
@squitmaa welcome to the wonderful world of spina bifida :p thanks so much for the nice comments; if you have any questions or concerns regarding stuff your daughter will be dealing with throughout her life, please don't hesitate to drop a line in my inbox. i'm a pro when it comes to SB. good luck!
Hello, I am a 32 year old male with Spina Bifida. I look pretty normal. I do have a limp to my walk. And a bad back & memory. I know you said alot in this video. But tell me more about yourself. Do you get around all by yourself ?
Hi Emily. I also have SB! I have level L4-L5 and wear leg braces to my knees and use a wheelchair for long distance walking. I also have other things going on...lol...fun fun...
My name is Paul, I was born with spina bifida this lesion on my lower back. I start working at 16 now I'm 30 even if my back hurts and hip hurts still going strong but had to give up work do to foot sore..
Bravo to the people with spina bifida and Emily keep on the videos about spina bifida
i wanted to say that i watched this video about six months ago and until then i had never seen another person with spina bifida but myself and i just wanted to say that i think that you to me are even more beautifiul knowing that. I think u have really pretty eyes.
Hello Emily. Nice to see you posting your thoughts about Spina Bifida on Youtube and I hope we see you posting a lot more. Please don't be disheartened by the rude and idiotic comments of immature louts like lilanswer131.
the least you could do is insult me creatively. proper grammar would be nice, too, but i think that might be a bit advanced for someone of your level of intelligence.
do everyone a favor and go back into the wormhole you crawled out of.
Im 27 and have Spina Bifida. I have zero health problems due to it. I rarely give it any thought at all. I do have the hole at the lowest part of my spine. Ive only just today started doing some research about it. I feel kinda bad about that, I should know more about this. Its been very interesting watching videos and educating myself.. Im feeling very grateful that i have no symptoms at all.
natzca84 1 month ago
I'm 15 and have spina bifida and it is great for someone to speak out and show people even though it's almost invisible for people to see it's not invisible to the people living it like me I look like a short 15 year old but only my closest friends and family know the truth
tinkrfan246 2 months ago
You are a real inspiration for other people. This video is excellent. You are a beautiful and strong young woman. Keep doing this and your music: what a great combo. God Bless you. Don't stop what you are doing.
TheMissouripicker 2 months ago
My name is Hope and I am 18, and I was born with spina bifida. I am currently attending New Mexico State University. My condition is not really severe as you said "it could be a lot worse" the only problem that i have is with walking, but actually when i go see a doctor and they hear of everything that I am able to do in life they are amazed. I also have the support of my friends and family which really keeps me going.
jolantis 1 year ago
Man ... You have really really pretty eye and thank you for posting vlogs like these .
JAD2121A 1 year ago
I am a 33 year old male with Spina Bifida. No one can really tell that I have it physically. Until you get me doing physical work. Cause it does effect my back and leg. And my memory really sucks as well. Anyway , anyone around my age that wants to ad me as a friend then go ahead. Including you Emily. Very nice blog you have here.
AnimalLover1977 1 year ago
My daughter was just born with Spina Bifida. It was good to see a vibrant, intellegent young woman with this condition. I will love her regardless of her problems. But it is helpful to see a person like yourself. Thank you for giving me a glimmer of hope.
squitmaa 1 year ago
@squitmaa welcome to the wonderful world of spina bifida :p thanks so much for the nice comments; if you have any questions or concerns regarding stuff your daughter will be dealing with throughout her life, please don't hesitate to drop a line in my inbox. i'm a pro when it comes to SB. good luck!
blahblahblahEMILY 1 year ago
This has been flagged as spam show
Hello, I am a 32 year old male with Spina Bifida. I look pretty normal. I do have a limp to my walk. And a bad back & memory. I know you said alot in this video. But tell me more about yourself. Do you get around all by yourself ?
MrPerfect77 2 years ago
Hi Emily. I also have SB! I have level L4-L5 and wear leg braces to my knees and use a wheelchair for long distance walking. I also have other things going on...lol...fun fun...
Eshrimpski 2 years ago
My name is Paul, I was born with spina bifida this lesion on my lower back. I start working at 16 now I'm 30 even if my back hurts and hip hurts still going strong but had to give up work do to foot sore..
Bravo to the people with spina bifida and Emily keep on the videos about spina bifida
grumpy19791 2 years ago
i wanted to say that i watched this video about six months ago and until then i had never seen another person with spina bifida but myself and i just wanted to say that i think that you to me are even more beautifiul knowing that. I think u have really pretty eyes.
theeyeball83 2 years ago
This has been flagged as spam show
nice way to stand up for your self
jeffroxmysox 2 years ago
Hello Emily. Nice to see you posting your thoughts about Spina Bifida on Youtube and I hope we see you posting a lot more. Please don't be disheartened by the rude and idiotic comments of immature louts like lilanswer131.
Cheers from England,
FIBBS xx
Fibbing01 2 years ago
My girlfriend has spina bifida, and let me tell you, she is the stongest person I have ever met.
She dose not let her disabilty stop her!
I wish you the best of Luck Emily!
My girlfreind's lesion was near her tailbone. So she is paralized from the waist down, but I don't care, I still love her!
Great video Emily!
PS: i know my spelling sucks..
Paigehope 2 years ago 2
my spina bifida is bad real bad but i a freak i have not sptrum bone and high up is no fuss i can do any thing i m a professeail life giver
MrDeanmpaschall 2 years ago
oh wow, dont you just love that people dont have a life.
because i sure do.
brings me lots and lots of entertainment.
go buy one on ebay.
linaaaaa08 3 years ago
is this your girl friend?...thats cute
lilanswer131 3 years ago
do me a favor and remove your ugly face from youtube...im sure no one else wants to see it...i'm suprised this video hasn't been flagged for ugliness
lilanswer131 3 years ago
i swear if you don't shut the fuck up there will be consequences .
jeffroxmysox 2 years ago
me? what? okay.
blahblahblahEMILY 2 years ago
no not u emily i was talking to lilanswer that keeps insulting u
jeffroxmysox 2 years ago
Comment removed
MrPerfect77 2 years ago
This has been flagged as spam show
wow i feel really bad for you not only are you ugly but your also a bitch...thats a bad combination
lilanswer131 3 years ago
the least you could do is insult me creatively. proper grammar would be nice, too, but i think that might be a bit advanced for someone of your level of intelligence.
do everyone a favor and go back into the wormhole you crawled out of.
blahblahblahEMILY 3 years ago
i love you my dear.
Even though i know pretty much all about you and SB, i still like this.
<3
linaaaaa08 3 years ago
Well it is nice to meet you ! I also have spina bifida. If you would like to chat more let me know - i have yahoo messenger and just got skype.
nolimit88 3 years ago
i have skype, too. i don't use it so often, but i suppose i could send you my username in a message ;)
blahblahblahEMILY 3 years ago