Movement Disorders in RSD / CRPS

[loveallzebra1]

i have this too

[skiracer110]

Your dog is freaking. Hope your daughter feels better

[tjknit]

I want to thank you for posting your leg spasming on to you tube; My 9 year old daughter developed a spasm in her left leg after being put in a half cast the whole length of her leg when her patella slipped out. We were told her spasming was a behavioural problem etc etc but after watching your clip on searching child leg spasm on google I went to the consultant with your link...thank you , we still have a way to go but she is finally improving thanks to early diagnosis!!!

[isthisthecure4rsds]

I think I can help others get rid of their RSDS pain. Search for my username and find my blog and you can make up your mind. I'm not making a penny (yet, but maybe if others agree I'm right I can) on this, but I think I can help others....

[TheMarianneRose]

My daughter has CRPS as well and was diagnosed very early. Thanks to the doctor who told us that medicine really had nothing to offer, we started doing many different complementary therapies. We did Reiki, EFT, Kinesiology, Aromatherapy oils, Homeopathy medicines, took her for Acupuncture and have seen amazing results. She is almost better and is claiming her life back. Find someone to do these things if you cannot do them yourselves. It is so worth while. God Bless you all.

[Alface3654]

god im going to hell for laughing at this. Sorry

[jbecks94]

hi im 15 and just got diagnosed with rnd ( reflex neurovascular dystrophy). This happens to me every time i try to move my legs. It just recently started in my shoulders and hands too. It takes so much energy and i understand what you are going through.

[eyedea81]

a difficult disorder to understand. most neurologist will dismiss this disease as a pseudoneuropathy of psychogenic orgin. too many studies with no clear evidence of medical understanding. same can be said of posttraumatic dystonia.

[samgerke]

Check out my wifes rsd story and the products she found thay helprd her

go to askmara Sam

[truckinbaby]

My husband has severe RSD in his right ankle and foot for the last 2 yrs now. He's gearing up to have a TENS unit trial, having already had blocks and different drugs now morphine seems to be the only thing keeping his head above water. But he had tremors for about a year almost constantly. Now they seem to be less often, maybe once or twice a month. But he has lost 2 inches of muscle mass in his calf so Iwonder if thats why the decrease in tremors. Has anyone had the TENS implant that has RSD?

[kamrynblanchard1]

I have the TENS unit but its not implanted and i have RSD in both of my legs from the knees down and in my arm from my shoulder to my fingers. The TENS unit works really well.

[itstatisinging]

IVE had rsd since i was 5 months check out my vids about it.

[alieninja2007]

I am so sorry! I also have Rsd/Crps severely oft the left extremities. I hope you feel well and are not in much pain. Don't loose hope. God bless you!

[Horseflies12]

i feel so sorry for people that have that because someone i know has it and there leg shook and it got hit off a wall really hard and their leg broke

[Rellacafa]

I have RSD also...my limbs don't tend to shake on their own, but I do shake if someone touches a tense muscle...it feel like electricity shooting through my body and I can really get hurt from the jolts if I'm not careful...I didn't realise the shaking was actually even related to my RSD, thought I was just super sensitive to energy or something...The need for research is SO HUGE!

Thanks for sharing :)

[fourweeldrive]

It hurt my heart to see some one so young suffering from this condition. My prayers are with you and your family. I know it is hard but stay strong in your resolve to beat this thing. I too suffer from RSD/CRPS. Too many of us do. And way to many don't understand.

[Horseflies12]

i understand because one of my friends have it and i feel sorry.

i want to help everyone with RSD/CRPS.

[REYBABILLA]

oh yeah cummy feet, for a great footjob. cuuum

[iamdifferent2010]

Hmmm... I've woken up before and my leg was acctually doing something similar to that. IDK... doubt I have that, hope I don't is more like it. I feel great sympathy for those who suffer from CRPS/RSD

[VancouverBoii08]

does it hurt? :( Im sorry you have that, My step mother is going through this big episode with spasms in her leg, back, and she can't do ANYTHING For liek 6 weeks.. she's in bed right now.. its really sad and depressing

[Luovahullu]

Hi.

I had this same thing, CRPS, diagnosed last spring... That put me in hospital for more than a month and my foot was twitching just like this 24/7 too... I hope your daughter gets better!

[demi103]

Hi!

Nice video!

I'm so sorry :(

and nice sheets!

LOL!! :P

[Eloen136]

It must not be easy living like that I wish the best for your daugter ^^

[ajkay159]

Hi Acheese9,

Thank you so much for the comments and the well wishes - I really appreciate you taking the time to write to me!

I am unable to go to school at the momet although I do have a tutor that comes to my house 3 times a week. I miss not being able to see my mates that much.

Yes, my leg is very painful - especially when it shakes!

Alison

xxx

[acheese9]

are yuo able to go ro school? is it very painful? i hope you get better, im 13 too!

[ajkay159]

Hi

Thanks for all of the comments.

Amy - I am so sorry that you are dealing with RSD and I hope you start feeling better soon

Thanx

Alison

[CRIPPLECRACKWHORE]

Hey.

I Have CRPS/RSD Too and have had it for nearly two years now.

It's In My Left Leg, but instead of turning outwards, mine turns dramatically inwards, is twisted and looks terribly disgusting.

The Same thing happens to my leg, all the spasms and stuff.

This Is a great video you've posted.

Cheers!

Amy x

[cstrcstamyst]

hi! 'i'll be supporting it whenever i get the chance. good video too. i use video to show docs different problems with my husband's disability. it's a great tool. thanks for posting this!