I feel your loss in evey way. I lost my son when he was 2 months old of an unknown disease. I got pregnant again and my daughter was born with SMA 1. She lived to be 9 months then joined her brother in heaven. I would love to think that they are happy, running, and free from all pain as well. Lily is beautiful! God Bless you, you are a remarkable mother.
I didn't know Lily, but I do. My son has type 1 and is now 8 months old. I battle every day to help find a cure. Lily is so beautiful. She and many other will truly be missed keep up the fight- God Bless you guys
I have noticed through this and many other things I've found over the past day, that Princess Lily was so loved and cared for. She will be truly missed. I only wish I would have gotten to know her more...she truly is an angel. =)
Brad that was and is just beautiful... Such an amazing little girl, Lily will be missed so much. And Amy is and always will be such a wonderful mom and SMA advocate. Thanks Friend Sheila
I'm sorry deeply sorry please god help us
GoogooEyedChihuahua 4 months ago
My best wishes for Lily in the heaven. Good bless you.
mrrleo 1 year ago
my daughter has sma1 she is 20 months right now her nam is julianna amilli
amilli200812 1 year ago
I feel your loss in evey way. I lost my son when he was 2 months old of an unknown disease. I got pregnant again and my daughter was born with SMA 1. She lived to be 9 months then joined her brother in heaven. I would love to think that they are happy, running, and free from all pain as well. Lily is beautiful! God Bless you, you are a remarkable mother.
bbarberena 2 years ago
I love the sunglasses pictures! I am sure Lily is smiling down on you from heaven! God bless!
SpintoSopranoSexyYea 2 years ago
I'm so sorry for your loss. Lily was a very beautiful girl!
pix4434 3 years ago 2
I didn't know Lily, but I do. My son has type 1 and is now 8 months old. I battle every day to help find a cure. Lily is so beautiful. She and many other will truly be missed keep up the fight- God Bless you guys
ShaylovesCarter 3 years ago
I have noticed through this and many other things I've found over the past day, that Princess Lily was so loved and cared for. She will be truly missed. I only wish I would have gotten to know her more...she truly is an angel. =)
---Neighbor, Kasey
GoonieGal85 3 years ago 2
It's not fair. It's simply not fair.
lmgrisez 3 years ago
Brad that was and is just beautiful... Such an amazing little girl, Lily will be missed so much. And Amy is and always will be such a wonderful mom and SMA advocate. Thanks Friend Sheila
shylae13 3 years ago