Well I thoght that my jorney was finished but it's not! On my 1 year check i found out that some bran liquid made a clot that is pushing on my facial nerve and i have all the sinthoms again :( ill get operated this dicember, im pretty scared. Not because of the operation difficulties is just im very tired and not very strong physically...my work is very tirying not sleeping much i definittly should do more! How are you doing now?
@miccimu I am so sorry to hear about this update as I am sure that the idea of another surgery is frightening and frusterating! You are in my prayers and heart and know that you are thought of. Sleep is the MOST important element to healing as well as diet and water intake. Have you tried meditation CD's for sleeping? Your healing path is SO crucial and I do hope that you are able to rest. I am doing FANTASTIC and still sooo Grateful for my life! Love to you! Carol
I had removed an acustic neuroma of 5.5cm in size. I still have big down times, it is hard to be positive. I just turned 30 and my face looks almost normal but i get very very tired all the time. My surgery was november 17th 2011. I cannot see well with the effected eye and i cannot taste much in the same side :( how are you doing?
@miccimu I am so happy to hear from you! 5.5cm is huge!!! I am so Grateful that they found the tumor and were able to get it all. It takes a while to heal but trust in your bodies amazing healing abilities. It took me at least four months to start to feel like myself and nine months later, I am getting stronger everyday! Trust that you are healing, SLEEP a lot, remain Grateful. That is what worked for me. Please search my name Carol Christensen for my other video updates. Much Love to you! Carol
Thank you so much... i just recieved the news that I have a vestibular neuroma on Monday.... I have other health issues and am actually thrilled to have something that may be fixable....I see the surgeon for the first time tomorrow to discuss my options. Mine is small... just 1 x .05 cm......everything on youtube is horribly frightening, but I suppose those who do well, get on with life and do not make videos. And ... and ear for a good and longer life, I think is a good trade :)
@cathykrohne I love your positive attitude! Keep up with it and yes, the trade-off for a longer and what I have found to be, a brighter more amazing life, is worth it! I am now 8 months post-surgery and am just adjusting to the hearing loss...it takes a while but Gratitude is a healer. Much Love, Carol
Hi I've been diagnosed with a 3cm AN and am scheduled for translab surgery on September 21,2011. was this the same surgery your daughter had? I am nervous, and the waiting is the hardest part so far. I am having mepry loss, balance issues, some hearing loss, headaches and nausea. My email is eternallyme@yahoo.com if you would like to talk -I can't figure out email through here on my phone :) thanks!
@kuksoolamy I am just checking in and seeing your message! So sorry for the wait...I know that days can feel like months during this time! I will send you an email and know that I am sending you so much love and light right now. All of your symptoms are very normal...we all go through it and it does get better. For now, remember~what you focus on expands. Try to rest and be as still and peaceful as you can. Nurture your body with organic and "clean" healthy foods. Think Healing Thoughts. :)
I have just seen your video and I am pleased that you put it on you tube... My daughter Debbie who is 34 was told on Feb 18th that she too had an acoustic neuroma, she had her surgery on 28th June 2011 in Leeds General Infirmary UK (more to follow below)
The surgeon Mr Philip Van Hille carried out Debbie's operation and I can't sing his praises enough, he's been fantastic throughout. Debbie had already gone virtually deaf on the left side, was having blackouts, dizziness, nausea, sleepiness, depression, walking to the left sometimes etc, I know you will understand what I mean... (more to follow below)
Deb's operation lasted 8 hours, she spent 4 days in HDU and a couple of weeks in hospital and is now home. The left side of her face looks lovely & is virtually back to normal, her speech was not good at first but is nearly back to normal too, she has some problems with her left eye as there is still some swelling behind it after haemorrhages occured there (more to follow below)
...Deb is also having physio to help learn to walk again, she is getting better all the time, at first she had to be supported fully and now she is at the stage where she can walk if she is holding on to her partners hands, at the moment it seems like Debbie walks as though she is wearing lead boots, but all the time she is getting better and better. It is early days yet and Deb's on the mend (and we're all so happy and relieved to have her here with us) (more to follow below)
I am so pleased that Deb has such a supportive partner (Dave) who gave up work to look after her and who has not left her side, he's been fantastic, I think it is so important to have lots of support from family and friends... So Carol once again thankyou for sharing your experience and allowing me to share Debbie's here too... I am so pleased you had the op and that you too are on the mend, you look great, with all my best wishes to you and your family, Sheree Whittaker x
@soho2014 Hi there! The Acoustic Neuroma was considered medium sized and was just touching 2cm. I am so grateful that it is gone! I will be uploading a 5 month update very soon so be on the lookout! I saw that you subscribed to me...thank you so much and thank you for your kind words of encouragement. It truly means a lot.
Thanks for making this. I am getting ready to have an MRI because I may have an Acoustic Neuromo according to my doctor. After watching the videos in the last 20 minutes has scared me to death. Thanks for the upside view.
I feel the same as you. I found out about my AN on September 1, 2010. And I initially went to youtube and found all the depressing accounts. So I decided to be positive - as positive as can be.
My translab surgery is scheduled for 5/4/11. I am ready to get it out.
@saijoey Stay positive! If you want any support-I am here for you! You can send me an email and I am happy to share my experience, strength and hope and answer any questions. Be well!
Congratulations to you on your successful AN surgery! And ...thank you for posting your video. Like you, I did my internet search before my AN surgery in Aug of 2009....and It was all very depressing and scary. I posted a positive post AN surgery video as well (search YouTube on "chatterson"). I'm now preparing to post a 2nd video about my recent BAHA hearing aid (amazing hearing assistance to my deaf side). Best wishes to you!
This has been flagged as spam show
hello,
I jdiagnosed with AN couple of weeks ago. Is there any way i can contact you . My emaiil n is aevazy@gmail.com
Thank you so much.
farahsara2 1 week ago
Well I thoght that my jorney was finished but it's not! On my 1 year check i found out that some bran liquid made a clot that is pushing on my facial nerve and i have all the sinthoms again :( ill get operated this dicember, im pretty scared. Not because of the operation difficulties is just im very tired and not very strong physically...my work is very tirying not sleeping much i definittly should do more! How are you doing now?
miccimu 3 months ago
@miccimu I am so sorry to hear about this update as I am sure that the idea of another surgery is frightening and frusterating! You are in my prayers and heart and know that you are thought of. Sleep is the MOST important element to healing as well as diet and water intake. Have you tried meditation CD's for sleeping? Your healing path is SO crucial and I do hope that you are able to rest. I am doing FANTASTIC and still sooo Grateful for my life! Love to you! Carol
carolchristensen7 2 months ago
I had removed an acustic neuroma of 5.5cm in size. I still have big down times, it is hard to be positive. I just turned 30 and my face looks almost normal but i get very very tired all the time. My surgery was november 17th 2011. I cannot see well with the effected eye and i cannot taste much in the same side :( how are you doing?
miccimu 4 months ago
@miccimu I am so happy to hear from you! 5.5cm is huge!!! I am so Grateful that they found the tumor and were able to get it all. It takes a while to heal but trust in your bodies amazing healing abilities. It took me at least four months to start to feel like myself and nine months later, I am getting stronger everyday! Trust that you are healing, SLEEP a lot, remain Grateful. That is what worked for me. Please search my name Carol Christensen for my other video updates. Much Love to you! Carol
carolchristensen7 3 months ago
Thank you so much... i just recieved the news that I have a vestibular neuroma on Monday.... I have other health issues and am actually thrilled to have something that may be fixable....I see the surgeon for the first time tomorrow to discuss my options. Mine is small... just 1 x .05 cm......everything on youtube is horribly frightening, but I suppose those who do well, get on with life and do not make videos. And ... and ear for a good and longer life, I think is a good trade :)
cathykrohne 5 months ago
@cathykrohne I love your positive attitude! Keep up with it and yes, the trade-off for a longer and what I have found to be, a brighter more amazing life, is worth it! I am now 8 months post-surgery and am just adjusting to the hearing loss...it takes a while but Gratitude is a healer. Much Love, Carol
carolchristensen7 4 months ago
Hi I've been diagnosed with a 3cm AN and am scheduled for translab surgery on September 21,2011. was this the same surgery your daughter had? I am nervous, and the waiting is the hardest part so far. I am having mepry loss, balance issues, some hearing loss, headaches and nausea. My email is eternallyme@yahoo.com if you would like to talk -I can't figure out email through here on my phone :) thanks!
kuksoolamy 7 months ago
@kuksoolamy I am just checking in and seeing your message! So sorry for the wait...I know that days can feel like months during this time! I will send you an email and know that I am sending you so much love and light right now. All of your symptoms are very normal...we all go through it and it does get better. For now, remember~what you focus on expands. Try to rest and be as still and peaceful as you can. Nurture your body with organic and "clean" healthy foods. Think Healing Thoughts. :)
carolchristensen7 7 months ago
Hi Carol,
I have just seen your video and I am pleased that you put it on you tube... My daughter Debbie who is 34 was told on Feb 18th that she too had an acoustic neuroma, she had her surgery on 28th June 2011 in Leeds General Infirmary UK (more to follow below)
shereebrian 7 months ago
The surgeon Mr Philip Van Hille carried out Debbie's operation and I can't sing his praises enough, he's been fantastic throughout. Debbie had already gone virtually deaf on the left side, was having blackouts, dizziness, nausea, sleepiness, depression, walking to the left sometimes etc, I know you will understand what I mean... (more to follow below)
shereebrian 7 months ago
Deb's operation lasted 8 hours, she spent 4 days in HDU and a couple of weeks in hospital and is now home. The left side of her face looks lovely & is virtually back to normal, her speech was not good at first but is nearly back to normal too, she has some problems with her left eye as there is still some swelling behind it after haemorrhages occured there (more to follow below)
shereebrian 7 months ago
...Deb is also having physio to help learn to walk again, she is getting better all the time, at first she had to be supported fully and now she is at the stage where she can walk if she is holding on to her partners hands, at the moment it seems like Debbie walks as though she is wearing lead boots, but all the time she is getting better and better. It is early days yet and Deb's on the mend (and we're all so happy and relieved to have her here with us) (more to follow below)
shereebrian 7 months ago
I am so pleased that Deb has such a supportive partner (Dave) who gave up work to look after her and who has not left her side, he's been fantastic, I think it is so important to have lots of support from family and friends... So Carol once again thankyou for sharing your experience and allowing me to share Debbie's here too... I am so pleased you had the op and that you too are on the mend, you look great, with all my best wishes to you and your family, Sheree Whittaker x
shereebrian 7 months ago
How big was your acoustic neuroma?
soho2014 8 months ago
@soho2014 Hi there! The Acoustic Neuroma was considered medium sized and was just touching 2cm. I am so grateful that it is gone! I will be uploading a 5 month update very soon so be on the lookout! I saw that you subscribed to me...thank you so much and thank you for your kind words of encouragement. It truly means a lot.
carolchristensen7 8 months ago
Thanks for making this. I am getting ready to have an MRI because I may have an Acoustic Neuromo according to my doctor. After watching the videos in the last 20 minutes has scared me to death. Thanks for the upside view.
ss109guy 10 months ago
Thank you everyone for the positive feedback! I will be uploading more videos tonight so be on the lookout! Much love!
carolchristensen7 11 months ago
I'm so glad I found your video, Carol!
I feel the same as you. I found out about my AN on September 1, 2010. And I initially went to youtube and found all the depressing accounts. So I decided to be positive - as positive as can be.
My translab surgery is scheduled for 5/4/11. I am ready to get it out.
I am glad you are doing well.
saijoey 11 months ago
@saijoey Stay positive! If you want any support-I am here for you! You can send me an email and I am happy to share my experience, strength and hope and answer any questions. Be well!
carolchristensen7 10 months ago
This is a beautiful video from a beautiful woman. You have such a pure heart.
Love, Tammy
tami312 1 year ago
This has been flagged as spam show
Hi Carol,
Congratulations to you on your successful AN surgery! And ...thank you for posting your video. Like you, I did my internet search before my AN surgery in Aug of 2009....and It was all very depressing and scary. I posted a positive post AN surgery video as well (search YouTube on "chatterson"). I'm now preparing to post a 2nd video about my recent BAHA hearing aid (amazing hearing assistance to my deaf side). Best wishes to you!
Bob Chatterson (bobchatt1@gmail.com)
bobchatt1 1 year ago