I have nf but actually live a normal life..sure i have the tumors all over my body and people stare and ask questions. I hope Jordan feels better. And i love this song. :-)
this video is so touching nawrrhhh love uu jordan get better sooon and sarah hope all is well you will have to come round some time havnt seen uu and jordan in a while but i understand why if you cant love you both loads and loads <3 xxxxxxxxxxxxxxxxxxxx
Hi there, I have obvious cafe au lait patches and recently diagnosed with scoliosis, I dont know if nf1 caused it. I hope your little boy lives life to the fullest I wish you all the best - Charlie :)
I have nf but actually live a normal life..sure i have the tumors all over my body and people stare and ask questions. I hope Jordan feels better. And i love this song. :-)
shieeta 8 months ago
this video is so touching nawrrhhh love uu jordan get better sooon and sarah hope all is well you will have to come round some time havnt seen uu and jordan in a while but i understand why if you cant love you both loads and loads <3 xxxxxxxxxxxxxxxxxxxx
xXxtruexXxdreamsxXx 1 year ago
I also have NF1. Hang in there Jordan :D
litttlegirl4u 1 year ago
Hiya charlie i have over 100 on two arms and loads over my body an i have scoliosis had surgery aged 7 if you need to message me :) x
xxscoliosisgirlxx 1 year ago
hi, i have nf1, im from Argentina......
ger36 1 year ago
Hi there, I have obvious cafe au lait patches and recently diagnosed with scoliosis, I dont know if nf1 caused it. I hope your little boy lives life to the fullest I wish you all the best - Charlie :)
ShimmerySparklyLuvv 2 years ago
get better jordan we love you i know ur goin tho i hard time at the mo but plz get betta for ur mums sake and ur dads
and all your friends and family
lv rach xxxxx big hug from me
princessrach666 2 years ago
i have NF1...
How can i support?
Wish u all the best!
bobabdallah123 2 years ago