Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
I've never heard of this disease, but always learning. I feel for any, everyone going through it. I don't have this, but live with constant pain...my <3 goes out to all!!!
I voted and got everyone I could to also vote. I am happy that even if we didn't win the money we still raised AWARENESS! This video made me cry. It is so moving. I have H-EDS...from all of us fighting EDS...thank you!
It should be the average lifespan of an EDS patient with vascular type is 48 years... others can lead a full life, although it will probably be a very painful existence... like mine (Classical EDS).
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Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
LauraPetrarca 1 year ago
This has been flagged as spam show
Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
LauraPetrarca 1 year ago
Hello,i am italian, i no speak english very well sorry. But I cannot believe that there are no cares! if someone has some news Writes me please. I don't want to die I don't resign me I am very afraid. PLEASE WRITE ME MAIL of news. Is no possibile . I have eds vascolare
LauraPetrarca 1 year ago
I've never heard of this disease, but always learning. I feel for any, everyone going through it. I don't have this, but live with constant pain...my <3 goes out to all!!!
SoulReaperEvilKeeper 2 years ago
I voted and got everyone I could to also vote. I am happy that even if we didn't win the money we still raised AWARENESS! This video made me cry. It is so moving. I have H-EDS...from all of us fighting EDS...thank you!
OzarksUSA 2 years ago
Thank you for voting. I am glad you liked the video, and even happier that you spread the word!
Together, we'll find a cure.
EDSucation 2 years ago
I have the Hypermobility Type. I will definately be voting for you.
acaciacara 2 years ago
Thank you. We definitely appreciate your vote.
EDSucation 2 years ago
It should be the average lifespan of an EDS patient with vascular type is 48 years... others can lead a full life, although it will probably be a very painful existence... like mine (Classical EDS).
cntrydncegrl 2 years ago
That was an awesome video!
BuddyBoy091994 2 years ago
Thanks for letting us use your picture, Chris. :)
EDSucation 2 years ago
your welcome
BuddyBoy091994 2 years ago