God Bless you. I hope you are feeling well. Are you taking a bunch of Vitamin D3? It has been shown to down regulate the cells believed to attack the myelin sheath.
@harmagician1 Hi. I am feeling very well at the moment thanks. Yes I started taking Vit D3 about 18 months ago and now keep my levels between 130-140. I will be interesting to see what the current studies show as to whether this is helpful. In the meantime, I figure it can't hurt.
Wishing you love and light..You helped me today. A lot of the things you say are exactly how i feel. I am heading to the M.S clinic which is about a 2 hour drive. Going on Thursday the 10th. I will let you know how that goes. I have high hopes, just like you did before starting the Tysabri. I know how it feels. Thanks for brightening my day .
Thanks Ianthe, Wow 2 hours that's a long way to go! Incidentally I see my Neuro again same day. Hope we both have a good appointment. Looking forward to hearing how you go :-) Kerri
Your frankness is refreshing. You're facing a disease process that has up rooted your life. I understand the energy level. There is a really neat story about 'spoons' that I'll try to find and send to you this weekend to share with you... hopefully it will fit in the YouTube video email system. ✝ May GOD bless you this week.
Hey Writerdust - I actually have seen that article. Someone suggested it after a video I posted about how to manage you energy coins. It is oh so true! xo
Hi Kerri, I think our accent is just great, don't you? I'm off to see my neuro. this Wednesday. Have been on Tysabri for 7 mnths so far. Am feeling worse so am really interested in seeing what he says! You're looking great but I know sometimes that doesn't show how one is feeling. Hang in there Kerri. I love your videos, thank you. jessie.
Hi Jessie, hahaha yes - but doesn't everyone else know it's they who have an accent??? LOL! I would be interested to hear how you go after seeing the Neuro - send me a message. Thanks for saying I look great - I can handle being told that even if I do feel kinda ordinary. Kerri xo
I find your personality and your accent so fun to watch. I feel alot of comforting feelings watching your videos. I have a condition called CIDP: Chronic Inflammatory Demyelinating Polyneuropathy. Early on I had thought I had one of three diseases: MS, ALS, or Lupus. I have none of them. It's crazy to be grateful for only having a disease process that at one point killed me and had put me in a wheelchair for 11 months. Please keep making these videos and always be yourself. Cindy the US Soldier!
Crikey! (joke - only Steve Irwin ever said that!). Thanks for your kindness - I like to think that sharing the story and hearing other's stories are a comfort. I recently heard of someone with the exact same thing but for years believed she had MS. So glad you at least know for sure now - at least you know what you are dealing with. Keep well Cindy. Kerrixo
Hey gorgeous! Good news about your brain (not getting any bigger?) but sorry to hear about your "pain in the neck" (new lesion being a real pain) I know how you feel about the tysabri, was nice to think finally there might be something that could FIX us huh? Maybe just a bit more time like the gurus are saying... And you always look beautiful! Amanda
Hey Mark, yep - no 'faces' for me - I do my best just to be me (although I did slap on the make-up!) It is sobering to do a video and see myself, all my querks and things that make me cringe about myself and shrug and think well this is just me. I take the reminder fully to heart re the book. It is a continually dose of perspective and assurance. Thanks heaps buddy, Kerri xo
Hi Kerri We all love you lots and you given a lot of real will and strength so here is some back to you! X We all wish you the the best of heath in this Rollercoaster journey, it can be a real drag but when it is Remember that any one of us would give some strength back to you to see you smile back at us!
sending you the very best of good thoughts and love,
your not fighting this on your own X remember we are by you!
I feel extremely blessed to have such support. I remember we are all battling our own stuff at the same time and there is certainly strength in knowing we are not alone. Rollercoasters are up and down but we always get off and say they were fun! K xo
I just read my post again er so many typos! I will have to have a word with myself! lol thanks for the reply Kez guess what I'm having a very good day I just walked 5 miles! when I got back I made a cup of Tea before sitting down, I feel very chuffed! it was still hard though, but another victory! in my battle, :))
Ha ha Janet - can always count on a Dutchie to suggest red wine!! I am hoping the Tysabri will kick in still, if not, I too would like to know why... will play the waiting game now. Hope you are doing well. Kerri xo
Well, I like the Australian wine: Jacob's Creek, Shiraz Cabernet. A very good wine. ;-)
And I am doing well (for as far you can do well with ms...). Slowly getting worse... But I stay positive. And soon I will move to a new home, no stairs and a great house!
my God it's never easy is it? You'll get there though Kerri i just know it. I really do hope you feel better in the coming months. I'll be thinking of you too!!
I am sorry that you are going through all of this, but keeping it real is important. Maybe it just needs to be in your system a little longer to see benefits?
I hope that it is not antibodies and keeping my fingers crossed for you.
I drink a ton of water and don't think it does anything for my disposition either other than the need to pee a lot :-)
One a positive note YOU LOOK FABULOUS! and I mean that in a real way not the whole but you don't look sick thing!
G'day Andrea, I am hoping that is true - that I just need to give it a little longer (provided those antibodies don't show up). Thanks for your kindness - I have figured out how to make the lighting really work for me - makes your face look air-brushed which helps hide those dark bags and wrinkles!! lol Kerri
Thanks Tori, I've been thinking about you too. Noticed you haven't posted for a while so was wondering how you were doing. Hope to see you on YT soon. :) K
Sorry to hear you are not feeling better. You mentioned getting hives and I was nodding my head because I got hives one time DURING the infusion and they went away when the infusion stopped. I itch during the infusion but I just take Benadryl before and it's not too bad.
Hope you haven't developed antibodies. So far it has been clean for me and I go in for infusion #38 on Friday. Hang in there Kerri!
I am sorry that you are not feeling better with Tysabri and that you don't feel it has helped you yet. I had the same problem after taking it for a few months and I didn't feel too good at all so my doctor checked my blood for antibodies and I found out that I didn't have any. It's possible that it might take more time for it to work, maybe.
I do drink more than two liters of water a day and I love it but I am not sure that this is what keeps me in good mood! :)
Thanks Angela, I am keeping in mind that it may take a little longer to get working. At least the blood test will show if it is NOT working. I will remember your story and hope that is true for me. Kerri xo
God Bless you. I hope you are feeling well. Are you taking a bunch of Vitamin D3? It has been shown to down regulate the cells believed to attack the myelin sheath.
harmagician1 1 month ago
@harmagician1 Hi. I am feeling very well at the moment thanks. Yes I started taking Vit D3 about 18 months ago and now keep my levels between 130-140. I will be interesting to see what the current studies show as to whether this is helpful. In the meantime, I figure it can't hurt.
kezzcass 1 month ago
Hi Kerri
Wishing you love and light..You helped me today. A lot of the things you say are exactly how i feel. I am heading to the M.S clinic which is about a 2 hour drive. Going on Thursday the 10th. I will let you know how that goes. I have high hopes, just like you did before starting the Tysabri. I know how it feels. Thanks for brightening my day .
Ianthe
iamianthe 2 years ago
Thanks Ianthe, Wow 2 hours that's a long way to go! Incidentally I see my Neuro again same day. Hope we both have a good appointment. Looking forward to hearing how you go :-) Kerri
kezzcass 2 years ago
There are folk that don't appreciate MS reality, just want a happy face-no-matter-what.
There are always these folk who want to dye their hair to look weirder than they think they are.
Alexknobsob 2 years ago
True. I don't have the energy to try and keep everyone else feeling good about me!
kezzcass 2 years ago
Your frankness is refreshing. You're facing a disease process that has up rooted your life. I understand the energy level. There is a really neat story about 'spoons' that I'll try to find and send to you this weekend to share with you... hopefully it will fit in the YouTube video email system. ✝ May GOD bless you this week.
Writerdust 2 years ago
Hey Writerdust - I actually have seen that article. Someone suggested it after a video I posted about how to manage you energy coins. It is oh so true! xo
kezzcass 2 years ago
Hi Kerri, I think our accent is just great, don't you? I'm off to see my neuro. this Wednesday. Have been on Tysabri for 7 mnths so far. Am feeling worse so am really interested in seeing what he says! You're looking great but I know sometimes that doesn't show how one is feeling. Hang in there Kerri. I love your videos, thank you. jessie.
51jessica51 2 years ago
Hi Jessie, hahaha yes - but doesn't everyone else know it's they who have an accent??? LOL! I would be interested to hear how you go after seeing the Neuro - send me a message. Thanks for saying I look great - I can handle being told that even if I do feel kinda ordinary. Kerri xo
kezzcass 2 years ago
Thanks for being honest and real about your experience! I hope things work out! Not having lesions in the brain is VERY good! Stay strong!
xoxo
WithCourage2008 2 years ago
Thanks - I know you are right :)
Kerri xo
kezzcass 2 years ago
I find your personality and your accent so fun to watch. I feel alot of comforting feelings watching your videos. I have a condition called CIDP: Chronic Inflammatory Demyelinating Polyneuropathy. Early on I had thought I had one of three diseases: MS, ALS, or Lupus. I have none of them. It's crazy to be grateful for only having a disease process that at one point killed me and had put me in a wheelchair for 11 months. Please keep making these videos and always be yourself. Cindy the US Soldier!
Writerdust 2 years ago
Crikey! (joke - only Steve Irwin ever said that!). Thanks for your kindness - I like to think that sharing the story and hearing other's stories are a comfort. I recently heard of someone with the exact same thing but for years believed she had MS. So glad you at least know for sure now - at least you know what you are dealing with. Keep well Cindy. Kerrixo
kezzcass 2 years ago
Hey gorgeous! Good news about your brain (not getting any bigger?) but sorry to hear about your "pain in the neck" (new lesion being a real pain) I know how you feel about the tysabri, was nice to think finally there might be something that could FIX us huh? Maybe just a bit more time like the gurus are saying... And you always look beautiful! Amanda
missalgernon 2 years ago
Hey Amanda. Yay for my brain! Yes let's sit tight and see what happens eh? Nice to hear from you. Kerri xo
kezzcass 2 years ago
Kerri.
I am glad that you did not "put on a happy face" for the video.
You were just honest and direct and that is why WE LOVE YOU SO MUCH.
YOu are a genuine person!
I hate to get on a kick here, but all the reassurance that you need is contained in a book I know you have in your house.
If you want to get in the right frame of mind.
All you have to do is pray that the Holy Spirit will comfort you. Chances are....you may open your book to what you need at the time.
I am here
love
Mark
irishbear76 2 years ago
Hey Mark, yep - no 'faces' for me - I do my best just to be me (although I did slap on the make-up!) It is sobering to do a video and see myself, all my querks and things that make me cringe about myself and shrug and think well this is just me. I take the reminder fully to heart re the book. It is a continually dose of perspective and assurance. Thanks heaps buddy, Kerri xo
kezzcass 2 years ago
Hi Kerri We all love you lots and you given a lot of real will and strength so here is some back to you! X We all wish you the the best of heath in this Rollercoaster journey, it can be a real drag but when it is Remember that any one of us would give some strength back to you to see you smile back at us!
sending you the very best of good thoughts and love,
your not fighting this on your own X remember we are by you!
Trev
gekiryudojo 2 years ago
:-D thanks Trev, I am feeling the love! :-D
I feel extremely blessed to have such support. I remember we are all battling our own stuff at the same time and there is certainly strength in knowing we are not alone. Rollercoasters are up and down but we always get off and say they were fun! K xo
kezzcass 2 years ago
I just read my post again er so many typos! I will have to have a word with myself! lol thanks for the reply Kez guess what I'm having a very good day I just walked 5 miles! when I got back I made a cup of Tea before sitting down, I feel very chuffed! it was still hard though, but another victory! in my battle, :))
gekiryudojo 2 years ago
Hello Kerri,
I'm sorry to hear that Tysabri does not do what you hoped for... I hope they can find the reason why it doesn't work for you.
I am thinking of you.
And about the 'positive happy' water, maybe you should try red wine to feel better (okay, I am joking). ;-)
Bless you!
wachteropdemuur 2 years ago
Ha ha Janet - can always count on a Dutchie to suggest red wine!! I am hoping the Tysabri will kick in still, if not, I too would like to know why... will play the waiting game now. Hope you are doing well. Kerri xo
kezzcass 2 years ago
Well, I like the Australian wine: Jacob's Creek, Shiraz Cabernet. A very good wine. ;-)
And I am doing well (for as far you can do well with ms...). Slowly getting worse... But I stay positive. And soon I will move to a new home, no stairs and a great house!
wachteropdemuur 2 years ago
my God it's never easy is it? You'll get there though Kerri i just know it. I really do hope you feel better in the coming months. I'll be thinking of you too!!
nicv11ita 2 years ago
Hi Nicole, funny you think you are getting 'there' and then a little speed bump appears that slows you down! Thanks for your thoughts. Kerri
kezzcass 2 years ago
Hi Kerri,
I am sorry that you are going through all of this, but keeping it real is important. Maybe it just needs to be in your system a little longer to see benefits?
I hope that it is not antibodies and keeping my fingers crossed for you.
I drink a ton of water and don't think it does anything for my disposition either other than the need to pee a lot :-)
One a positive note YOU LOOK FABULOUS! and I mean that in a real way not the whole but you don't look sick thing!
Andrea
MSVlogSupport 2 years ago
G'day Andrea, I am hoping that is true - that I just need to give it a little longer (provided those antibodies don't show up). Thanks for your kindness - I have figured out how to make the lighting really work for me - makes your face look air-brushed which helps hide those dark bags and wrinkles!! lol Kerri
kezzcass 2 years ago
I need to learn those lightning tricks! If one more person tells me how tired I look I may go ballistic!
MSVlogSupport 2 years ago
Haha - yep - my web-cam update included some 'lighting' adjustment thingie - my new best friend!
kezzcass 2 years ago
Hey Kerry,
I wish you were feeling better. I am thinking about you!
Take care
Tori
ToriUTK 2 years ago
Thanks Tori, I've been thinking about you too. Noticed you haven't posted for a while so was wondering how you were doing. Hope to see you on YT soon. :) K
kezzcass 2 years ago
Nice one Kez - and always keep it real :-)
To be sceptical (if not 'positive'): maybe you would have felt a thousand times worse if you HADN'T drunk that bottle of water. Who knows?
lovingfatalist 2 years ago
Ah ha - good point. Although I have gone back to my regular filtered Melbourne water and can't say I feel a difference! Keeping it real... K xo
kezzcass 2 years ago
Hi Kerri;
Sorry to hear you are not feeling better. You mentioned getting hives and I was nodding my head because I got hives one time DURING the infusion and they went away when the infusion stopped. I itch during the infusion but I just take Benadryl before and it's not too bad.
Hope you haven't developed antibodies. So far it has been clean for me and I go in for infusion #38 on Friday. Hang in there Kerri!
vbeachy 2 years ago
Thanks so much for sharing that Vern. It is encouraging to hear you have had hives yet the Tysabri is working so well for you. Hanging on! Kerri
kezzcass 2 years ago
Hi Kerri!
I am sorry that you are not feeling better with Tysabri and that you don't feel it has helped you yet. I had the same problem after taking it for a few months and I didn't feel too good at all so my doctor checked my blood for antibodies and I found out that I didn't have any. It's possible that it might take more time for it to work, maybe.
I do drink more than two liters of water a day and I love it but I am not sure that this is what keeps me in good mood! :)
Take care,
Angela
angelusa73 2 years ago
Thanks Angela, I am keeping in mind that it may take a little longer to get working. At least the blood test will show if it is NOT working. I will remember your story and hope that is true for me. Kerri xo
kezzcass 2 years ago
I hope your blood results will be good. Please, let us know how things go. I will be thinking of you! :)
angelusa73 2 years ago