Added: 3 years ago
From: SuzieW27
Views: 27,440
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  • I have spina bifida, and unfortunately, your son's ability to walk is not in the doctor's hands. However, dont give up hope. I've never been able to move my legs, but I've accomplished quite a lot. I ski, SCUBA dive, play wheelchair basketball, and Im a very high ranking officer in my JROTC unit in high school. just tell your son to work hard, encourage him, give him opportunities, and tell him not to let any thing stop him, and nothing will. I'm serious. let me know if you have any questions.

  • How is your son doing these days?

  • My son was born with spina bifida and hydrocephalus. He is 17 months and recently acquired his first wheelchair. When I was pregnant, I was filled with dread he would never walk. I have since learned to embrace all that he has and not dwell on what he doesn't have or might not have. The fact he is alive blessing me each day with his gorgeous smile is more than any mother could ask for.

  • my aunt has two kids with spinabifoda and that is rare but her second one is way worse with everything

  • What happened to ur little guy?

  • @TheMrSkaterboy14 - He was born with spina bifida, which is an opening in the spinal column when it doesn't close fully inutero. The nerves are then exposed which can cause damage to the lower limbs, etc.

  • my son is a week old, and they say he will never walk.. please tell me there is a surgeon somewhere that can make him feel his legs..

  • Congratulations on your baby! Don't worry about what doctors say. It is not in their hands whether your son will walk or not. Have faith, do everything possible to help him lead a normal life and the rest will fall together. I know it is hard and at your stage I didn't know how we were going to make it, but we have and life is great. Your son will amaze you and help you see life from a different perspective. Comment back if you'd like my contact info.

  • @HottCrimsonAngel they cannot grow nerves. so, they cannot. I have SB and I walk. mine is @ L4

  • spina bifida people kick butt

    

  • I was born with spina bifida. I just celebrated (and I do mean CELEBRATED) my 40th birthday. Life is beautiful.

    If anyone here would like to email me, you can reach me at lorireece1@Comcast.net.

  • exiting isn't it? my 8 mo old son is starting to kick his legs out from his thighs! these kids are amazing.

  • Hello i am 31 and i was born with spina bifida but god has given me the chance to walk and even dance and I have a hansome son who is 11 and my husband is been a blessing to me. So please do not stop finding help for you little angel and have faith miracles happend every day

  • oh my gosh this is such a miracle... i was born with spina bifida... im not 20 almost 21... hows he going???

  • i have spina bifida im 12 and i started walking when i was one, broke my femur and had to relearn to walk. i finally achieved that goal when i was 2

  • im iridian im 13 i have spina bifida i didnt start walking til i was 3 never give up my parents never did

  • Im at your age!

    Good that you never stopped giving up.

    All wishes

    Gudi

  • hi im markie christian and i have spina bifida and im 18 years old and i can walk dont give up hope!

  • children are amazing! my daughter has spina bifida and has done 100x what ws expected of her

  • I wish the best for your baby, my mom and I got the news yesterday that my baby sister has spina bifida and it hurts me so much knowing my baby sister might not walk, but there's always hope :)

  • Awesome! I hope he is still doing well. God bless!

  • god bless that child i was born with spina bifida i guess you can say i am one of the fortunate ones to be out of a wheelchair. i wish nothing but the best for the child.

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