And watching this reminds me how good I have it. I can't imagine a kid going through all of this. So heartbreaking. So MUCH research needs to be done on this condition, for those who don't get better from meds, don't get better from surgeries, there are no answers. She's such a strong girl.
i have just watched this and it made me cry for your wee girl........i also have IIH, and like your daughter i have had multiple ops and i know how hard it is for me to cope with, your daughter is an inspiration to me and i hope for everyone that watches this.......my thoughts and prayers are with you xxx
Does she still have an LP shunt?
I have this conditions as well, with a VP shunt.
And watching this reminds me how good I have it. I can't imagine a kid going through all of this. So heartbreaking. So MUCH research needs to be done on this condition, for those who don't get better from meds, don't get better from surgeries, there are no answers. She's such a strong girl.
halfacanadian 3 weeks ago
@halfacanadian Lana had her LP shunt removed after they inserted her VP shunt. She is doing really well at the moment. Thank you.
natgarrett 3 weeks ago
i have just watched this and it made me cry for your wee girl........i also have IIH, and like your daughter i have had multiple ops and i know how hard it is for me to cope with, your daughter is an inspiration to me and i hope for everyone that watches this.......my thoughts and prayers are with you xxx
Lambooox 4 months ago
Lana you are inspiration, you keep smiling. You're beautiful Lana<3 xxx
LanaMae1D 4 months ago
Love you Lana-Mae. xx <3
sunnybird 4 months ago
:'( Sad for such a little girl to have to go through so much. Thanks for this awareness video and for sharing Lana-Mae's story.
Ross Mannell (SqueakyFloors)
SqueakyFloors 4 months ago
Beautiful video Nat.......hope you guys get some relief soon:-))
PPichoff 4 months ago
heart breaking.. kisses to you all xxxxxx
dronny5 4 months ago
Beautiful. Lana, you are amazing. I have the same disease as you and understand your pain. Keep smiling and hopefully, one day, you will be fixed xx
PaulaMichelleGarratt 4 months ago
Lana is an inspiration to us all she smiles her way through it xxxxxx
Keeperofgiggly 4 months ago