Added: 4 years ago
From: shootingstar2day
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  • you have done so phenomenally well, it really warms my heart to hear of your recovery. I hope life treats you well from now on.

  • My daughter has also been misusing insulin to stay thin. She had to withdraw from college. In the 2 months she was in school, she was hospitalized twice for DKA. She is now in an eating disorder clinic and I'm happy to say that I think she is going to make it! Thank you so very much for sharing your story in such a powerful way. I'll be thinking of you and sharing in your continued success!!

  • I have diabulimia and my moms really abusive about it and shit, and i have to go into treatment for it how bad is the treatment? please answer

  • @SuperBleeBloo8497 I think treatment is a good idea. This causes long term complications and can kill you. Also, being inpatient somewhere will get you out of your house, and will also be able to help your mom understand the disorder. Do you know where you are going for treatment? Hugs and best wishes to you.

  • i got out of hospital 3 days ago for dka..for the 5th time in 3 years. i almost died i stopped breathing and my heart went crazy. Seeing the look on my mums face when she walked into emergency and saw me with 4 iv drips , heart monitors and oxygen mask was the worst thing in the world. i wanna get better and its so hard..it hurts knowwhat im dong to myself but I cant stop!! i didnt actually know it was a disorder till now the doctors have never said anything about it to me.

  • @astabbyful Hugs. Hang in there. Once you start taking insulin again, it does get better, though it might take over a year for your weight to stabilize. Have you looked into eating disorder treatment? I know life is hell with this disorder. Reach out for help, and let those around you know what is going on. It will be difficult, but your life is worth so much more than being ill, weak, tired, thirsty, hungry, and on the verge of death all the time.

  • @shootingstar2day Thankyou.. i havent really looked into treatments.. but i have now got an insulin pump.. and it is helping alot. my weight has gone up alot.. but im getting there.. i slip up every now and then but.. hey progress is progress .. thanx for caring x x

  • i was diagnosed with type one diabetes when i was 1 year old, just about ready to go into a diabetic coma. i have anorexia but im fighting against it. this video really wowed me and made my willpower to get better even stonger. thank you! and good luck to every other person dealing with this out there!

  • My biggest empathies to all of us who struggle with this every day. I've had diabulimia since 1991 when I was first diagnosed with type 1 diabetes. I also have neuropathy and mild retinopathy, but I'm still alive! I'm now 2 and a half months insulin-purge free! Hang in there dear ones, I promise I will too! HUGE HUGZ!

  • I'm so intrigued by this medical topic. So is it the higher your blood sugar is, the more fat and muscle breaks down? How do you guys do it (espscially for 16 years)? I'm 18 and a pretty slack diabetic but i know if i dont take my insulin i feel absolutly horrible and even the day after. Also just wondering does anyone feel more hungry when their blood sugar is sky high?

  • @GeorgiaReevo Hi, yes, I would eat and eat until I was sick, but soon after I would be starving again... It caused the worst hunger I had ever felt in my life. I would wake up in the middle of the night to find myself in the kitchen eating. It really isn't worth it. I always felt very ill, and, years later, I have some complications.

  • This is sad but very true and it is time for people to accept the fact that this is really happening, whether they want to believe it or not. My name is Wanda and I was on the Dr Phil show about this very topic. I've been a diabulimic for 16 years now and have been shamed more than understood. Please watch part1 and part2 of the show I was on. This is the YouTube title of the episode........... DRPH - January 3rd, 2008 PART 1

  • I was diagnosed near the end of my freshman year, May 9, 2007. For awhile, I did everything I was supposed to, took a shot for everything, always checked my blood, etc.

    Now, I don't even know what I'm doing.. Instead of the 4+ shots I'm supposed to take, I'm lucky to get 2.

    It's not that I don't WANT to take it, I just... don't.

    I started looking up diabulimia, and according to Wikipedia, I have all the "short term" symptoms :|

  • Thank you so much for this. I went through the same thing just to a much less extreme level. The doctor told me if I dont start taking care of myself if I wanted to have a child now there'd be a 40 % chance it'd be deformed. I dont want to do that to my kids. but y'know it really sucks. We just have to keep trying. good luck. xxx

  • i was 8 when i got diabetes and the pressure you feel from parents and doctors about food and weight is enourmous.

    i developed a hatrid of food and of my body for being so broken and fat...

    i was hospitalised for diabullimia, but the doctors and i were not aware of it.. they labelled me as depressed . i think diabullimia is completly underestimated and not talked about enough.. i didnt even know it existed as a medical condition untill very recently

  • great video.. I also have diabulimia since i'm 15, (now 19).. when I was 13 we found out about my diabetic, I was always so athletic an thin, played volleyball and went to a sportscool, but i really dont know how that could chance that fast..

  • my mum always told me not to eat sweets, so I began to hide it when I ate something sweet, so I put on weight, and I dint like that at all, so I started with thausend diets, then I realised that without insulin I can lost much pounds quickly, so I also did, I've lost so much weight, but then in times when I took again the insulin I became "fat" again.

  • So this all began, more and more I "forgot" the insulin (I told my parents).. but ones time I totaly exaggerated, I haven't take my insulin for almost 2 months, so I fell in a coma and died almost... that was 2006.. since then hospitals are my second home, I was so often there, but nobody realised that I may could have a eating disorder, not even the doctors and not even me, I thougt this was not such a big problem... in summer 2007 I first time went to a psycholge, she analysed my diabulimia..

  • I was shoked, after this I spent alot of time in hospitals and such an art hostel for girls with eating disorders.. I came out now at 1st december 2008, it dont progress much well, but I'm still fighting.. the biggest problem are my paretns, they never accept my diabetes and the diabulimia, they dont even know what that is, because they never listen to me, so I have no support from my family and this is such a hard time for me, but I'm still fighting, and I will win, I know it

  • ... and you can do it to.... I wish you sooo much strength.. all the love and strength in the world you can have.. i feel so with you... we'll get it all!!

  • wow.

    you are so strong to get through this :( xx

  • it's scary isn't it? knowing how bad it is for you and wanting to stop but you just cant, and you dont know why and you start to beat yourself up about not being able to stop. it shouldnt be so difficult...but it is. i feel so stupid and helpless. Hope everyone is doing ok! xoxo

  • i skipped insulin to lose weight. and now my kidneys arent working good & my eyesight is going. all my parents do is yell at me about it, saying i dont care that im killing myself.=/ thats not why.i just wanted to lose some weight=// my a1c is 15. trust me, its not worth it.

  • i never thought anyone could feel my pain as a diabetic and as a bulimic/anorexic

  • I know... it can be terrible. :( I hope that you are getting help. I am here if you want to talk. ((hugs))

  • I wish that I could. I have been to two treatment centers and I can't seem to get any better. I am trying so hard, but I just can't stop. I don't want to die, mainly for my parents. But I can't lose my desire for weight loss.

  • i was 8 years old when i found out about my diabetes

  • Great video. And I wish you the best in live.

    Only some things I couldn't read, because it's to dark. Sorry, for my poor english.

  • great video..but as what people told me.

    they said that diamulimics... can eat whatever they want and lose weight if they

    dont take their insulation[[sp??-_-"]]

    sorry if i'm wrong.. :'(

  • Water weight and muscle... mainly water weight. So much so that the person, once admitted to the hospital for DKA, will gain about 10-20 pounds... A type one will quickly die without insulin.

  • Oh..so they'll lose water weight..!!i dont get it but thanks x)

  • Without insulin, the cells in your body can't take in energy from your blood. Your body reacts by breaking down fats and muscle but that doesn't help because energy still can't get into the cells. All it does is make you waste away and poison you, making you really ill short term.

    Long term is even worse with things like kidney disease (nephropathy), serious eye problems (retinopathy), degeneration of the nerves (neuropathy) and other v bad things. It's really not good for you to miss insulin.

  • Hey :). I am not doing too bad. Good diabetes wise but not doing so great with the b/p'ing to be honest. Got a tough year coming up as it is my final year at uni. What is going on with your family? Where are you living now? Facebook or e-mail me if you like, would love to hear from you. xxxx

  • Hey Gwen, it is Claire here. Was searching to see if there were any videos on diabulimia here and yours was the first that came up. It made me cry. You are amazing, i hope you are doing okay at the moment. xxxxx

  • im sorry you went thru that. I have type 1 too and have diabulimia and regular bulimia...i gotta tell you tho. it was your choice to "recover" and that worked for you but not for everyone. some ppl are meant to stay that way forever....

  • hey thanks for sharing your story!

    weightofillusion(dot)com has a diabulimia support board on their forum! :D

  • my day is ruined. :'(.

    powerful vid tho

  • i just found out about this condition, and totally see how it draws parallels to me. I'm both bulimic and diabulimic, and weigh 86lbs, and i didn't realize that i had two conditions....this video helped me, so thank u!

  • Ive got type 1 and at times ive felt like becoming a diabulimic, but u gota ask yourself: do u wana be thin (and blind and have kidney, heart disease, and die) or be a normal size and be healthy? Be strong u can fight it, remember inner strength is the most powerful thing in ur body, use it and good luck x

  • just so you know you cant all of the sudden become it. i ahve diabulima and i have to tell you its like any other ed you cant give it to yourself you ahve to be destined to get it

  • this made me cry :( im 19 years old and im diabulimic your story is so much like mine :( there have been time when i thought i was dying and ive been hospitalised its just soo hard, hope your are doing better

  • I saw something about this on the news last night. It's oficially an eating disorder now. I'm sorry about your struggle but I'm glad awareness is being raised.

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