thnx a lot for ur video thank God i found someone like u its been a year now im free from any medication, after a long journey with MG....i had been diagnose with MG when i was only 14 and now im 20 years old,its been a hard life being a MG patient here in my country cuz its rarely happen here and its so hard to find any information or any support organization for MG here,as for me i have been paralyzed whole of my body,but thnk God after i do the tymectemy i can now do what people do.
Thank you for posting this. I too have MG, and my symptoms have been similar in some ways to yours, though differing in others. I have not (yet) had some of the more difficult things happen, but I have gone through episodes of swallowing difficulties and that partial paralysis of the tongue and jaw while speaking. I can thankfully drive quite well, but walking can be like balancing on a high-wire. MG has been challenging, but I choose to be optimistic. Once again, thanks you!
thnx a lot for ur video thank God i found someone like u its been a year now im free from any medication, after a long journey with MG....i had been diagnose with MG when i was only 14 and now im 20 years old,its been a hard life being a MG patient here in my country cuz its rarely happen here and its so hard to find any information or any support organization for MG here,as for me i have been paralyzed whole of my body,but thnk God after i do the tymectemy i can now do what people do.
TheBeeps101 1 year ago
Thanks for watching, I am glad to hear your symptoms are milder. I am getting a little better with my IVIG
pajejoci 1 year ago
Thank you for posting this. I too have MG, and my symptoms have been similar in some ways to yours, though differing in others. I have not (yet) had some of the more difficult things happen, but I have gone through episodes of swallowing difficulties and that partial paralysis of the tongue and jaw while speaking. I can thankfully drive quite well, but walking can be like balancing on a high-wire. MG has been challenging, but I choose to be optimistic. Once again, thanks you!
benedictineacc 1 year ago
lol we got to have a spa weekend together
heatherboo74 1 year ago
Thanks Heather, but I don't want to make anyone cry, that will wear your eyes out faster:)
pajejoci 1 year ago
im so proud of you im sitting here crying
heatherboo74 1 year ago