Added: 4 years ago
From: kwazykelli
Views: 15,582
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  • @Theopticneuritis My mouth tasted like aluminum too after receiving it in the hospital for a collapsed lung. They shot me up with 500mg in 24hours intravenously to get my breathing normal. I havent felt the same almost two years later Wouldnt doubt if its a preservative. Aluminum is known to cause mental disorders and headaches. Ask any aluminum manufacturer. Its not fun.

  • Be prpared for swelling. Especially your feet. Stretchy pants, jersies, sweats, and big house shoes are your friend. If allowed by your physician, you may wish to consider keeping busy. Laundry, trash, dishes...nothing too strenuous, but, it helps to have little goals or chores through out the day. For me...stay away from HSN, catalogues, e-bay, etc, and craig's list! OMG!

  • Prednasone or Taper pack pre infusion. 1, 2, 3, 4, 5 and then off to the infusion center for 3 days of Prednasol. Drink plenty of fluids' especially the day of your infusion to make your veins nice and large for your flebotomist. If you feel nausea eat a mint. Ask your physician for nexium or something similar. I needed Zanax and Zantacs. The taper pack for 5,4,3,2, and 1 extends the speeding. Really consider no caffiene. Consider a diet suppliment.

  • Hi

    To make a long story short , i'am 48 have ms since 3 years.

    I started of with getting tingling on the whole left side, from feet to ear, having a sensation as coming from the dentist..

    I went to doctor and he found nothing special (this was on a friday ) so he sent me home with some 'homeopathic junk"

    on Saturday it was still the same and even worse, i found i got trouble with my vision, my wife noticed that my right eyeball did not track my left one.

    hmm not enough spaces for my msg.

  • Thanks for the true story. I got my dx more than 20 years ago, & tomorrow is the 1st time I'm going on this stuff (although it's at least my 5th bout of Optic Neuritis)... and I'm really unhappy. I'd rather leave it as in the past, & let it work itself out... but both my ophthal and my neuro want me on this, so... At least, thanks to you, I have a clearer idea of what it's going to be like.

  • How many mg do they give you each day? I get infusions for migraines.

  • Thanks for posting this. I start today or tomorrow for five days ..

  • I get solu-medrol for lupus. I hate it but unfortunately is necessary for people. It makes me shaky, constant tremors, it's hard to sleep if if I can fall asleep I have the weirdest dreams. It also makes me angry, have horrible hot flashes, my nose gets so red, etc. I feel for anyone else that has to take it.

  • drugs, drugs and more drugs for the drugs!

  • Very useful.  They didn't tell me very much, so I learned a lot today, thanks

  • I was actually put on Solu-Medrol IV Infusions. It caused my immune system to drop extremely low, and I actually ended up with H1N1. But I made a video, you were talking about showing people first hand what it was about, if you want, you can show a clip of mine. I'm not just doing this for promotion either!!! I just wanted to help. I love how you're telling people what it's about, it's good to know that others are doing the same thing I'm attempting to do! I'm definitely subscribing to you! =)

  • I was diagnosed in 2000, and have been getting solu medrol every two months for 3 days since 2003.

    I just found out that you shouldn't drink grapefruit juice while on (solu) medrol.

    For sleep: take some benadryl and drink some herbal tea (lemon balm)

  • Thanks

  • You look great!! how do you stay so thin?

    I was only in ON steroids once whilse pregnant. I gained like 10 pounds. :(

  • I was diagnosed with MS 2 weeks ago. I

    took my first IV of Solumedrol yesterday for MS (drop foot/slight limp is my issue now)(1000 MG) 4 more days of IV.

    My effects:

    BITTER TASTE in my mouth (like bitting a grapefruit peel). It lasted about 5-8 hours and is now gone. Drinking juice took the bad taste away.

    HOT FLASH: I just put water on my face. This lasted 15 minutes only.

    STAYED AWAKE: 2 hrs longer than normal, and got up 2 hrs earlier.

    It was not as bad as I thought :)

  • Hi it's me Jamal!!! I'm a huge fan of your videos. And I'm glad there is someone like you willing to speak up about M.S..

  • I have also meen on solumedrol infusions as well as oral steroids since I was very young and this will happen, but you will make it through :)

  • Thank you for the information. ps- Love the top. I have one just like it. :o)

  • does it help to relieve the ms symptons?how long does it take to start working?

  • i was diagnised with ms yesterday, im on my way to go on solumedrol?can it kill?

  • Another side effect of Solumedrol for me was hot/cold flashes and sweats. I am 25 and figured out what menopause feels like. They lasted 4 out of 5 days of the treatment.

    Thanks for your videos Kelli, they are great!

  • Thanks for your video's, I was diagnosed with M.S about 3 months ago, I was put on two 5 day I.V courses of Methlpredisone and it really does give you the round face you talked about. Thanks again for your video's they have helped me alot and given me so much useable information!!!!!

  • I don't have MS but I came across this video and the others you've done by chance. You are helping so many people and educating a lot of us. I applaud you for that, god bless you.

  • I've heard some people getting high doses of apo-prednisone during a bad relapse. I am guessing this is the same stuff under a different company name.

  • I was on solumedrol for 5 days but only 500mg. I didn't have any of the side effects you mentioned. I got super tired, I didn't get the metalliac taste and it didn't make me feel better either.

  • thank you so much for your videos. i just got diagnosed with MS just a few days ago and i am researching like crazy. i found your films and i am so glad i did. i like your straightforward style and telling it like it is. please keep making these videos.

  • My belief is MS is a virus. It effects the killer t-cells which target myelin. But it also tagets the b-cells which make antibodies.

  • Thanks for the info kwazyeducator! Im diabetic too (hungry = bad) with high bp (bp+ = bad). Sounds like I don't wanna go there. Oh, and Im alergic to 'naners.

    I will definately give em the third degree if I find them juicing me with roids.

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