Added: 5 years ago
From: LupusNY
Views: 11,942
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  • I'm so sorry for your loss also for navet85 So sad to read this.

    I, as a European, am so grateful how hard you people work to raise awareness and work to find a cure. Its not the case here. After being diagnosed 10 years ago with a 'mild sclerodermia' while I thought, back then yet, it was lupus. Its now at last diagnoses last March 2008. My life has changed so much. Its very comforting to read and share this with others here. Thanks for all for everything.

  • Thank you for sharing,I am sorry for your loss of baby. I lost for fourth baby and have (three live children) I did not know i had lupus until my loss.

    Bless you

  • I have had Lupus SLE for 13 years. I also have Fibromyalgia, and RA. I do believe we need more awareness, may people think if you don't look sick, you aren't. I would love to have my life back. I pray for it and all of you. God Bless

  • im diagnosed last october im a positive lupus patients.

  • I have Lupus,psoriatic arthritis and gastroparesis. At first I was misdiagnosed with Multiple Sclerosis.I've just joined the lupus foundation and will be volunteering as well. The foundation has been wonderful!!!!

  • My wife has Lupus 7 years ago and I think it is great to know that there are people out there trying to find a cure for Lupus and for that I deeply thanks all of them for the effort. I wish that a cure will soon be find as I have experience the life changing experiences since my wife is diagnose with Lupus. Thanks Again

  • Thanks for informing us about Lupus! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it. You have a great foundation!

  • Thanks for informing us about Lupus! Sheila Shaw survived Lupus, which knocked out her kidney function. She teaches all about taking control of your life despite living with chronic illness. I have talked with so many Lupus patients who all said that their Lupus flared out at the most stressful point in their lives. This was Sheila's case as well. In my personal studies, it seems to be that keeping stress to a minimum would help with preventing it. Great Foundation! Thank you for saving lives!

  • i am lupus patient for 7 yrs ..suffered alot and i am male patient...

  • I think there is a cure for Lupus.

  • no your wrong there is no cure i have it and im very unwell

  • Does that mean... I should just give up? :'(

  • great video! thank you for sharing

  • It's NEVER Lupus.

  • It's never lupus.

  • thanks for uploading this,I have Lupus too,I am hoping that it could be cured one day.I hope this video will raise more awareness for SLE

  • Your Video was amazing. I have lupus and everything said here is so true and explains what i've been going through in the last two years. Great video thanks on behalf of lupus patients everywhere for raising awareness.

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