EPILEPSY - Taking a stand (YOU CAN HELP)

[foraminit]

I really look up to you for taking a stand on this!! And I thank you! I have a 9 yr old great-niece that has epilepsy & I would hate for her to search for something on seizures & run accross one of the ignorant, life-threatening videos. People who think it's funny are uneducated, have a sick sense of humor, have no respect for others & to keep from calling someone stupid, I'll just say they act out of stupidity! Keep up the good work & God bless you!

[TheKenzter]

@ ChelleAmy I am heading off to do some much needed flagging. Thanks for posting this video

[TheKenzter]

@ HeavenlyArmed I understand you mean no offense and that you are just asking why come to this video if your going to have a seizure. Truth is that there is no guarantee that this or any video will cause a seizure. It is a myth that flashing lights and etc will cause a seizure. I have fought having seizures over twenty years now and positive that no lights or videos ever caused a seizure. I am now seizure free for three months.

[hackalles3]

now i can understand u cant hurt anybody people are dieing

[DailyVoice]

Thank you-- I am 40 was just diagnosed in March and I did search and I did see flashing lights and it did bother me. I wish people understood. We are not freaks, we are not strange we are people with misfiring neuurons in our brains. Thanks Chelle.

Sammi

[soniczubat]

awesome vid.i never got a seizure but the people who do it are IDIOTS! its not ok to hurt people!what would be if it happen to them???? its so mean that people do it .

[Cailingreanmhar]

Great video, I have epilepsy too, and although I'm not photosensitive, I'm sick and tired of seeing these "funny" videos of "seizures" where you see someone, an idiot teen, fall in slow motion to the ground and start flopping about. These stereotypes are cruel and harmful.

I've lost count of the number of times that people I know have said they understand seizures and the different types, sometimes its just ignorance, other times they have seen a "seizure" video and assume theyr all the same

[052931ea]

i have just flagged a video then came across this, and didnt realise there were more horrible ones out there i will help in getting these videos off this site

emma

xx

[notanignoramus]

I'm doing my part here - I've flagged about 50 videos in the last month.

Some of the videos I flagged last month now include a "seizure warning" in the description, or have it incorporated into their title. Ideally, none of them would exist, but YouTube likely feels some responsibility to allow freedom of speech and creativity when the video isn't explicitly intended to entrap those with seizure disorders.

Your video is on my favorites list to remind me to donate some time with every visit.

[mcdreamysfan]

Hi there-

Fantastic video, thank you for making it and putting the awareness out there about this horrific offense, I think you should write a petition to youtube (include some of those offenders screen names), send it to their Investor Relations Head (look on their corp. site) ... it is likely they will not tolerate this if they are tipped off.

Best of luck to you and I sincerely hope you are feeling better now!

[kennisings]

Thanks for sharing. This is horrible. My teenage son has Epilepsy and he's also photosensitive. This is so serious and heartless. The thing is that people reap what they sow and they forget about that. I've actually never seen these videos. How do I know when there is one?

[Kanizzle92]

Thank you so much for making that video, i have epilepsy and it is very hurtful to see the FAKE seizure videos that ppl make and then laugh at it, the stereo types and the comments are hurtful as well, i applaude you for what your doing :), when i see the FAKE seizure videos of ppl making fun i cry tears of sadness and hurt, but when i seen your videos i cried tears of happiness, the ignorance and stupidity affect a lot of ppl some who suffer with epilepsy like you and I and others as well :)

[PhoenixAngel429]

It makes me so mad how epilepitcs are treated to this day. I did some reserch and they have been treated horribly for a long time. O_O I know things haven't changed but I was appauled and still appaled at how epilepsy is a closeted illness. I found the names of famous people with it and I was shocked. It's this stigma that doesn't let people come out and say "I have epilepsy and need treatment" Hell saying I have AIDS is more accepted. This needs to stop. I made a vid like this too.

[trhpeanut13]

good video, hun.

and, my prayers are with you.

here's hoping you don't cross another video like that.

But, i must say, i've seen people Flag vids with flashing in them, when in the title, or description, it says "seizure warning: lots of flashes"

as screwed up as it is, i don't feel sorry for those that don't read descriptions.

but, i do feel anger towards those that don't warn People.

(Most of these are AMVS i'm talking about, not Mislabeled random, stupid videos that have no point.)

[trhpeanut13]

But, maybe you can Help me with something. PM me, if needed.

I Have a friend with Epilepsy, but, he doesn't like to talk about it.

So, maybe you can?

To help with the warnings i give to others, or the descriptions in my own vids.

This may be a stupid question, but, i've gotta ask it.

How much of a flash is too much?

Is it constant flashing images for a long period of time, or just 1 flash that hurts.

I don't know much about epilepsy, but i would like to help.

Thanks for reading.

[xpancakexx]

nice video

[heinilicious]

fantastic video..i don't have epilepsy myself but i do work in the disability field, I love what you are doing, keep up the great work, I will do everything i can...peace xoxo

[iamback4good2k4]

you have just got another helping hand in your movement against hurtful videos. Take care. Chris

[TiuAndria]

Very well Chelle: any offensive video will be at once exposed.

Andrea.

[HeavenlyArmed]

I know that epilepsy is serious and I mean no offense but why go to these videos in the first place if there's a garuntee that you will get a seizure? Just asking I don't mean to be insensitive or anything but self precaution can help prevent these things.

I know now to stay away from the Jonas brothers music because I'm allergic to stupidity.

[ChelleAmy]

Thanks for commenting. You have made a somewhat valid point, However, if someone recently diagnosed with Epilepsy or someone who is really struggling with it's effects and the condition itself, they are likely to search for videos that can help them. The results aren't always so, and are triggering seizures left, right and centre. It's very cruel to name a mockery, or photosensitive provoking seizure "Epilepsy help" etc, and that's what we are trying to stop.

Chelle x

[HeavenlyArmed]

I can see the problem with intentionally mislabeled videos.

[suerigs]

once again chelle,you are doing a great job in what you are doing,keep up the great work,we are all behind you on this.hope you are keeping well.luv sue xx

[ukburger]

Good video.

[gonecrazybdksoon]

hi i will also help,i hate the fake videos,and the taking the mick out of people with epilepsy,my 5 year old son as server epilepsy,he had a seizure last night and split his head open,he has drop fits,tonic clonic

[hippiechik333]

Very noble cause. When I first started having seizures, I watched some videos that caused me to have seizures on YouTube. Since, I am very careful what I open. I hope that you are able to get some of these insensitive videos taken down.

[deadpool5321]

hi

chelle

this video amazing if you need any help just tell me an I will do what I can.

[ChelleAmy]

Guys,

Keep flagging, search under:

"Fake Seizure" "Epileptic Funny Seizure" "epilepsy test" "Self help for epilepsy" etc etc... we've now gone over 200, and I've realised a lot of these videos HAVE been removed! You are doing so much. Thank you all very much

Chelle xo

[Pindaddy]

I'll do what I can, Sunshine. How do you find these videos? I'm sure these bastards don't just put on their titles, "Videos to do harm to Epilepics." on them. How shall we find them?

[andrewtom3d]

Don't worry Chelle, I do everything in my power to flag these videos:)

I promise XD

[paulsey555]

Hi chelle,

You know you have my full respect and undivided attention to this mater, your one in a million mate x. P's text me soon x

[rainbwlzbn]

Chelle,

I AM SO VERY PROUD OF YOU FOR TAKING THIS ON AND TAKING THE CHANCE OF HAVING SEIZURES YOURSELF WHILE WATCHING THESE VIDEOS IN ORDER TO HELP OTHERS....YOU ARE ONE OF A KIND! I WILL HELP YOU WITH WHATEVER YOU NEED HELP WITH...JUST LET ME KNOW!

[j0nny84]

You are one in a billion Chelle!

This video is amazing, and I know it will make a difference! Well done.

xxxxxxx

[MTSProductions]

Im sorry for what happened to you today, I hope you feel better soon! As for the people who make those kind of videos, I agree with you, the do have to be stopped! MTS Productions will do what they can to help! You have my WORD!