The background music you have for your story cant be found. Do you know where I can find it and the name of it? With your permission, I'd love to use this music as a background in my story and presentation to other doctors to educate people on my GP conditions. Thank you hun and I feel for you. I hope and pray every night there WILL be a cure for all of US very soon! ;)
Aww hun, I am so sorry. I too have GP. Although, mine isn't as bad as your, I think GP is the WORSE thing that has cam into my body. My stomach can ONLY tolerate mashed potatoes, water and chocolate. I am terrified of FOOD, and yet I am just like you.; I LOVE FOOD!! I absolutely HATE this disease and at times, I beg my GI Specialist just to open me up and yank my stomach out. I am taking Zofran ODT 8 Mg, Misoprostol 100 MCG and Promethazine suppositories. I watched ur video and I started crying!
Thank you so much for sharing! I was recently diagnosed with Gastroparesis and feel very alone with it. Your story and mine are almost identical. I had my gaullbladder removed almost 6 years ago, when I was 15 and everything in my story is very similiar to yours. I live in Wyoming and finding a dr that actually knows what they're doing can be challenging. So far I have not been put on any treatment, my Dr. is afraid of side effects, I am not. I hope things for you get easier though!!
I have recently been diagnosed with GP. I have been suffering from gp for about two years and was also caused from an abdominal surgery. I was put on reglan but was so scared of the side effects that I have been trying to just manage by diet. I eat a lot of processed foods such as cottage cheese, tuna and pudding etc, Which helps some days and not others. Thank you for sharing your story and getting the awareness out.
Thank you for sharing your story! I've been chronically sick since Nov 2011 with Lupus. I have been suffering serious stomach issues. GP "fits"-except by the time they get around to doing the tests I'm always on medication and my flare up is finally under control! I have been admitted several times in the last few years due to nausea/vomiting/pain/etc which usually lasts several months+ unless I'm admitted quickly. So far no real answs :( as you know, it's Hell waiting! TYVM 4 sharing!
What a great video you made. I too, have gastroparesis. I was anorexic for many years. I overcame the eating disorder and was able to eat normally for about a year until my stomach shut down. That was over four years ago. I have seen every doctor, had every test done, and had most of my colon removed. I'm 30 and I still can't hold down a job, or live a normal life. I should mention that in addition to GP, I also have intestinal psuedo-obstruction. Have you found any treatment that helps?
@jtcarleton I'm sorry you've had to go through all of this, I wouldn't wish it on my worst enemy. Currently I'm on Dexilant--it works okay, but compounds my nausea by a million. I take phenergan to balance it out, but it rarely balances perfectly. i know a lot of people in my support group have used domperidone with dynamite results. with a scrip you can get it from canada or from a pharmacy that compounds.
Are you taking antidepressants, which, with gastroparesis is a foregone conclusion? Norpramin and Pamelor are two antidepressants I was put on in the late 1980s that caused my food already not moving to putrefy and rot, leaving me belching rotten eggs for THREE days! In fact, antidepressants are the worst things that can be given a gastroparesis sufferer whose food already is not moving! Last time I took a Geritol vitamin, it turned into BACON in my stomach! Haven't taken one since!
@LainOutOnTheFloor I don't take antidepressants, but I do take hydrocodone on a regular basis, which also slows the rate of digestion. :( However, my doctors have decided that it's worth it, because with my back injury, I can't function without the pain medication, and hydrocodone has had the least amount of side effects for me.
@LainOutOnTheFloor OMG! I have had gp for about 4-5 years now and I have been on antidepressants for 2 yrs.I get really bad cramps.(i know i don't need to describe them bcuz all of u suffer them too :/) but they are the kind of cramps that make you bend over and cry out... I don't go to restaurants anymore! I have gained and lost massive amts of weight. It is so weird bcuz I will lose weight for a while and then gain 2xs more. Thank you for the info on the antidepressants.going to look into it!
@bailamulata37, you are very welcome! Antidepressants are MURDER on gastroparesis sufferers! I haven't been in a restaurant since 1972, by the way! Awful death-dealing disease people don't believe!
wow i have abought the same story im 25 and i have had my galbladder out in 2002 and i have bean still suffering and finaly found out what it is and its gastroparesis and now im just wandering what i need to do i am heaver and constlany have bloting and up set stomic bad pain and i just doent know what to do any more. thanks for the video it was way good.
i get the rotten egg burps and its so nasty i wish it would just quit i get it ate least one or twice a month and its so inbarising and it makes me fill way bloted when it starts to happen i doent know what is best to take for gastroparesis i take reglan and i doent think its working like it us to i doent know what else to do.
@sadihymas i was on reglan for awhile--it "helped" as far as keeping the throwing up to a minimum, but unfortunately worked a little "too well" on the other end of the digestive tract. it's also got a black box warning, and a lot of people have had problems from it. ask your doctor about dexilant or domperidone. i hope you're doing well. <3
@sadihymas just another question... really need to ask..bcuz i have read some info about it but they don't explain how bad.. here it goes.. "do any of you have bowel movements like 4 or more days apart?" I asked my dr but he probably thought i was exaggerating and didn't really say anything about it.
@Slikhedgehog I don't, actually. Thank goodness, that's one symptom I don't currently experience. I do have some pretty epic burps, but they're just regular flavored. ;)
@prophecygirl84 Well I'm glad to hear it's not affecting you. Battle on! Gastroparesis sucks but it's inspirational seeing other people out there with this hard-to-diagnose condition fighting through it.
almost my exact story! but im not italian! lol... totally sucks... ive had feeding tubes and now a pacer. people just dont understand. take care... be well
The background music you have for your story cant be found. Do you know where I can find it and the name of it? With your permission, I'd love to use this music as a background in my story and presentation to other doctors to educate people on my GP conditions. Thank you hun and I feel for you. I hope and pray every night there WILL be a cure for all of US very soon! ;)
TowerClimber81 6 days ago
Aww hun, I am so sorry. I too have GP. Although, mine isn't as bad as your, I think GP is the WORSE thing that has cam into my body. My stomach can ONLY tolerate mashed potatoes, water and chocolate. I am terrified of FOOD, and yet I am just like you.; I LOVE FOOD!! I absolutely HATE this disease and at times, I beg my GI Specialist just to open me up and yank my stomach out. I am taking Zofran ODT 8 Mg, Misoprostol 100 MCG and Promethazine suppositories. I watched ur video and I started crying!
TowerClimber81 1 week ago
Love your video! I was diagnosed with gp in 2010 and cip in 2011.
You're not alone girl. This disease sucks, but we can make It through!
briidery 2 weeks ago
You're not alone!!!
bizzle420 2 weeks ago
Thank you so much for sharing! I was recently diagnosed with Gastroparesis and feel very alone with it. Your story and mine are almost identical. I had my gaullbladder removed almost 6 years ago, when I was 15 and everything in my story is very similiar to yours. I live in Wyoming and finding a dr that actually knows what they're doing can be challenging. So far I have not been put on any treatment, my Dr. is afraid of side effects, I am not. I hope things for you get easier though!!
elizaburger 3 weeks ago
I have recently been diagnosed with GP. I have been suffering from gp for about two years and was also caused from an abdominal surgery. I was put on reglan but was so scared of the side effects that I have been trying to just manage by diet. I eat a lot of processed foods such as cottage cheese, tuna and pudding etc, Which helps some days and not others. Thank you for sharing your story and getting the awareness out.
kellieleesmith 1 month ago
Thank you for sharing your story! I've been chronically sick since Nov 2011 with Lupus. I have been suffering serious stomach issues. GP "fits"-except by the time they get around to doing the tests I'm always on medication and my flare up is finally under control! I have been admitted several times in the last few years due to nausea/vomiting/pain/etc which usually lasts several months+ unless I'm admitted quickly. So far no real answs :( as you know, it's Hell waiting! TYVM 4 sharing!
CNDbutterflybabe 2 months ago
What a great video you made. I too, have gastroparesis. I was anorexic for many years. I overcame the eating disorder and was able to eat normally for about a year until my stomach shut down. That was over four years ago. I have seen every doctor, had every test done, and had most of my colon removed. I'm 30 and I still can't hold down a job, or live a normal life. I should mention that in addition to GP, I also have intestinal psuedo-obstruction. Have you found any treatment that helps?
jtcarleton 2 months ago
@jtcarleton I'm sorry you've had to go through all of this, I wouldn't wish it on my worst enemy. Currently I'm on Dexilant--it works okay, but compounds my nausea by a million. I take phenergan to balance it out, but it rarely balances perfectly. i know a lot of people in my support group have used domperidone with dynamite results. with a scrip you can get it from canada or from a pharmacy that compounds.
prophecygirl84 2 months ago
Comment removed
Rosiemaiflower 2 months ago
Are you taking antidepressants, which, with gastroparesis is a foregone conclusion? Norpramin and Pamelor are two antidepressants I was put on in the late 1980s that caused my food already not moving to putrefy and rot, leaving me belching rotten eggs for THREE days! In fact, antidepressants are the worst things that can be given a gastroparesis sufferer whose food already is not moving! Last time I took a Geritol vitamin, it turned into BACON in my stomach! Haven't taken one since!
LainOutOnTheFloor 3 months ago
@LainOutOnTheFloor I don't take antidepressants, but I do take hydrocodone on a regular basis, which also slows the rate of digestion. :( However, my doctors have decided that it's worth it, because with my back injury, I can't function without the pain medication, and hydrocodone has had the least amount of side effects for me.
prophecygirl84 3 months ago
@LainOutOnTheFloor OMG! I have had gp for about 4-5 years now and I have been on antidepressants for 2 yrs.I get really bad cramps.(i know i don't need to describe them bcuz all of u suffer them too :/) but they are the kind of cramps that make you bend over and cry out... I don't go to restaurants anymore! I have gained and lost massive amts of weight. It is so weird bcuz I will lose weight for a while and then gain 2xs more. Thank you for the info on the antidepressants.going to look into it!
bailamulata37 1 month ago
@bailamulata37, you are very welcome! Antidepressants are MURDER on gastroparesis sufferers! I haven't been in a restaurant since 1972, by the way! Awful death-dealing disease people don't believe!
LainOutOnTheFloor 1 month ago
wow i have abought the same story im 25 and i have had my galbladder out in 2002 and i have bean still suffering and finaly found out what it is and its gastroparesis and now im just wandering what i need to do i am heaver and constlany have bloting and up set stomic bad pain and i just doent know what to do any more. thanks for the video it was way good.
sadihymas 3 months ago
i get the rotten egg burps and its so nasty i wish it would just quit i get it ate least one or twice a month and its so inbarising and it makes me fill way bloted when it starts to happen i doent know what is best to take for gastroparesis i take reglan and i doent think its working like it us to i doent know what else to do.
sadihymas 3 months ago
@sadihymas i was on reglan for awhile--it "helped" as far as keeping the throwing up to a minimum, but unfortunately worked a little "too well" on the other end of the digestive tract. it's also got a black box warning, and a lot of people have had problems from it. ask your doctor about dexilant or domperidone. i hope you're doing well. <3
prophecygirl84 2 months ago
@sadihymas just another question... really need to ask..bcuz i have read some info about it but they don't explain how bad.. here it goes.. "do any of you have bowel movements like 4 or more days apart?" I asked my dr but he probably thought i was exaggerating and didn't really say anything about it.
bailamulata37 1 month ago
Out of curiosity, does your gastroparesis give you rotten egg tasting burps when you get affected by it? My doctor suggested it was causing mine.
Slikhedgehog 5 months ago
@Slikhedgehog I don't, actually. Thank goodness, that's one symptom I don't currently experience. I do have some pretty epic burps, but they're just regular flavored. ;)
prophecygirl84 3 months ago
@prophecygirl84 Well I'm glad to hear it's not affecting you. Battle on! Gastroparesis sucks but it's inspirational seeing other people out there with this hard-to-diagnose condition fighting through it.
Slikhedgehog 3 months ago
almost my exact story! but im not italian! lol... totally sucks... ive had feeding tubes and now a pacer. people just dont understand. take care... be well
ren1254 8 months ago