Hunter Syndrome

[livingwithmps2]

my son has MPS2 and my heart goes out to you he is on elaprase and it has helped him dramatically

[401thecat]

That is inexcusable that he can't get the care he needs and deserves!

[DreamPharaoh]

@401thecat I agree with you. When you know what actually controls are society then you will understand that it has nothing to do with the progression of science but the control of it. The tears that fall because of this bluring my keyboard mean nothing. The big picture is always there—the money to be made from the population—his aliment means nothing to the ones that actually have control over this, unless their children were infected by it.

[FishingtheSkyxd]

honestly, i think he looks pretty cool haha. i hope he gets better though :T he's so young!

[HDVLAD]

this is just so sad!!!!

[montanerfan10]

If that had been my kid, we would have moved in a nanosecond. Hunter Syndrome is a very, very serious condition. And don't even get me started on Hurler Syndrome.

[Ratacon2004]

Insurance companies and the Government are garbage. They preffer to let a human die before they pay for the treatment. Im guessing if you cant be a productive citizen for the government and make them some money then you shouldnt live.

[O8SERVER]

We need to stop spending billions of dollars on wars and fund medical research.

Goddamnit mankind, you're letting me down.

[ClothCanopy]

MPS2, also known as Ernest Borgnine syndrome.

[mistressmandy4589]

UMM, if my child were that sick, and there was a drug that would help just a couple zip codes away, I would move YESTERDAY. Relationships can be built back up, but once he is gone, he is gone.

[flamegrilledpigeon]

lol HUGE freak

[DylanHilldog]

He looks cool.

[WastedTimeTV]

I hope he gets through it

[AGWDanimations]

Move to the UK, we help anyone ...

[Rayesi]

@AGWDanimations No we don't! I was born in Dorset. Live here, trained here, 34 years a nurse and have been medically refused treatment for Lipoedema Disease. I'm on high dissability and mobility and pain killers, and told to basically treat myself! They have no funding. Help anyone?

[KittyRokher]

man on the outside he seems so normal but things are not always as they seem. but those assholes wont even give it to them. they dont even care

[Wivanunu]

Canada's socialistic medical system is criminal....just wait america.

This poor little boy :(

[berner]

Get treated in BC, not Alberta. If they find out you have ethnic roots from outside the country and that you don't drive a pick up truck, you'll get lynched before you ever get the treatment.

[paters07]

Wow, wake up Canada. This boy needs Eleprase to help him.  My son has Hunter's Syndrom is currently taking this drug in the USA. I sure hope he will be able to get it soon!!!!

[TransparentXOpacity]

Polish family ):

hits me hard.

[DarkSilverYoshi]

I was fine until...

"he has lost his hearing"

And he's just looks so innocent smiling happily, not knowing that every part of his body is pretty much draining away slowly...

=( If I could I'd try to help some of these people.

[arthurnp]

Friendships? Community? Fuck, just move, it's your kid! !

[partygirl937]

how old is he?

[1wildwind2]

If you had a link to send money I would give you some. Poor kid :(

[superiorest]

it's disgusting how much red tape there is with life saving medical procedures, it makes me sick.This people who DECIDE are the ones who get to go back to their comfy little beds at night and not think twice about what the person who is ill is dealing with the person and people in their lives who have to deal and suffer with it 24/7.

I truly hope this little boy is ok and gets to live a long life he surely will be a much better person then most, and his mother is a angel.

[c0d7y]

i know ehh

[therealdeal989]

This is sad. The people who deserve life saving procedures are dissallowed treatment, yet we give treatment to illegals. I hope the kid gets his treatment

[UrInterweb]

so you're saying it's not all right to give everyone treatment? are "illegals" not people?

[cookiespick63]

thats true

[Philldapill85]

This sort of story makes me sick... Canada's Healthcare system is so FUCKED UP that the GOVERNMENT decided that this little guy isn't worth the cost of the treatment. I feel so bad for this kid, but if the US moves forward for "universal healthcare", many more little kids like this won't be able to get the treatment they need.

THAT is why I'm against the government healthcare. If I need care for my kids, damned if I'm going to be refused by the government...

[berryblitz07]

I hope this little fella got the help he needed. His mother really loves him :)

[habskickmofoass]

I know this guy.

[sunri87]

If there is the chance for treatment, he should so get it. I've been told about 2 cases some 10 to 20 years ago where it was not available, yet.

Those children died before turning 15. So it's not fair if a therapy is to be had and the little boy doesn't receive it.

[help2caregivers]

Thank you for sharing your story.

[JJNNFFRR]

What an delightful boy,

I've met Szymon and he really is an amazing kid.

He's so kind, intelligent and very witty.

God bless him.

[victoriadiary]

i pray for u soo much!!

[LaBellaa1984]

He looks so wise..I hope he will spread a good word in the world!

[sumaat]

.... i'm crying...... opefully he will live a happy life!

[rymon101]

My son suffers from Hunters Syndrome as well. Fortunately we have been receiving Elaprase for just over 2 years. I wish the family the best of luck.

[peaceandparty]

looks like he does have a happy life...its obvious that this mother is very loving and caring....i wish them all the best!

[Venelatin23]

If you have to move to save your kid's life... just MOVE!

[nativehoney1707]

he's sooo cute

[kandy9386]

Its very hard to deal with! My son has the same thing and not yet start his treatment!

[Siveler]

go kid go!

[cmac2191]

god bless szymom and his family.

[exist09]

that looks like a verry cool kid. i hope he gets well. Good luck

[tjhayward]

Stay Strong Szymom! You are such a great kid and you have our full support!

I am signing the petition for Myself and Tyler!

The Haywards

[sebmed]

hope he gets the treatment soon

[killerdude003]

poor kid, i feel sad 4 dat kid

[witekww]

Be optimistic Szymon,

Witek Waryszak

Windsor, ONT

[witekww]

Szymon you are smart boy,

is really enjoy talk with you.

We will fight for medication.

We paid a lot of tax, healthy kids

is number one for future of our country.

It is something wrong with Canadian Parlament

if the kids can't get this kind of medicine

for free.

Witek Wayszak

Windsor, ONT

[xaveryptak]

It is not that easy to move, especially with a sick child to unknown part of a country. You are loosing all your emotional and care support from friends and relatives, you are moving away from the established network of health providers, you have to quit your job. You can't just pack up and move.

God Bless Szymon! You are in our prayers.

[TheShinyDemon]

@pokemon1059

Did you not think to at least look it up on Google before you said something like that... it takes about 5 seconds

The syndrome is named after Canadian physician Charles Hunter.

Now you know. =)

[LaMouleQuiCoule]

sad enough, but about the thousands that die from starvation worldwide

[jimmyphack]

Yeah ontario has higher taxes aswell due to alot of unemployment rates.

[Asianboi2694]

this boy goes to my school. he's really a nice kid and very kind. good luck kiddo !

God bless you

[KickMeAndCancel]

Very sad, hope their search goes well

[takeoutme]

americans r loud

[afpass]

e otimo amei

[matt22mccarthy]

this kid lives in the same city I do.

[nhobbi]

OH MY GOD!!!! Are you sure you are his real mother???? I would do anything for my son... You worry about silly things comparing to your son's life or death threatening situation...

[rgaulin10]

hope that they find a cure, my heart goes out to you

[Bluejayberry]

He will make it, stay strong and God is with U.

[LOVEgerbils]

your frends from america wish you the best!

[RVCz]

thats sad

[mamacal123]

I will pray for your son and your family that he recieves this treatment!!!

It inspires me to see him smiling!

[futurerapstar101]

go get the kid treatment, u can plant new roots elsewhere, Amen

[NightTimeCoffee]

Hmmm... A disorder that makes degrading of the human body faster.. Life is short enough as it is and yet...this happens but maybe the saying could hold truth "where theres a hope theres a way".

[kize127]

get better!

[claridanVIDEOS]

o my gosh i feel so sad for that little kid. i will tell my family to pray for him.....<3

[Wackawacka2929]

Time to move. Time to move. Time to move.

[LupusBelli0]

your friends from germany wish you the best!

[SCARBAND]

poor kid. my heart goes out to ya.

[JaniakM]

I personally know this family and it is a dissapointment to everyone . The canadian government wants just under $500 000 annually to treat this sickness. In my opinion they should have the expensis all paid for without any question

Let our prayers stay with this family

[TANGJIE007]

sooory,feel lots of compassion

[rafaguzman84]

OMG!! its your baby's life.... I wouldnt care about any relationships I made. I would move to the other side of the world if it meant that I could save my boy's life. I feel for them but they should pack and move.

[Deskjob555]

Is it not selfish to say "must i sacrifice a part of my life, that I spent time to establish for myself, for my son to have life?"

Sure, it is ok to ask this to the insurance companies, but i should not cross her mind to wait for a minute for an option to save a life.

[ArtyyMAC7]

oh god, poor kid. Did they say if he got that treatment or are they still waiting?

[RnBSoulStarJKP]

why is it called hunter syndrome?

[saifayouby]

The guy who found the disease was named Hunter so he called it after him

[RnBSoulStarJKP]

why is it called hunter syndrome?

[waldoloco200]

pobre pibe

[stupidmonkeyoverlord]

I am moved by the story, and feel compassion for the family and child. However, I can't help but note the assumption that it is the government's responsibility to "save" this child, and the family's hesitation to take the steps they can take, ie. moving from Ontario. Just another result of socialized health care.

[DrWebflaxFLOO]

Very good point. But you can't help but feel for these poor people. Such a shame.

[gbail9566]

Yes a sad story, but also inspirational...gr8 stamina and persistence.

[KevinRomero]

so sorry. wish for the best <3

[Bucksgreatestfan]

aww i feel soo sry

[Emia11]

In so sorry :(