Awwww this is so cute haha! Getting the "birdcage" as me and my mother call it (The ilizarov he has) in just 4 days. Biggest surgery yet, but hopefully I'll be all better for good after 6 years of fighting :D
Hello, I am teaching Orthopedics class in a university in Mexico and in our class everybody loved your boy. I am glad they took it off today, have a great life.
This gives me hope that my 2 1/2 year old will wear his just as well when he goes through his leg lengthening surgeries as he gets older. Way to go Shawn! Thank you!
I have perthes, and I feel like I am looking into the mirror watching this video. Never say can't or die young man. You can do anything you put your mind to, even physically. It was gift the Lord gave me, there is a beautiful side to ugliness, and I have only turned what some people call handicap into a tool that makes me work harder. You have perthes, but perthes does not have you young man.
@jenaberl Hi. I had a pretty bad accident 5 mothns ago, and since then I have these frames, but not as many as your kid. I can only imagine and feel so nice to see his spirit. For me it is to the date to give the first steps, but I feel now more motivation after seeing your kid dancing and having no fear of it. Thanks for posting that!
Hey guys! It's Miss Tara! I just wanted to stop by and see how your are doing, I really miss you, Shawn! I hope you are doing well, be good, I will talk to you soon! Bye Baby!
We had underwear adapted for him, with snaps and velcro on the side. His pants have extra wide legs and velcro up the side, especially made by a wonderful woman who volunteers for an organization known as "Children in the Crossfire"- who make adaptable clothing for children of servicemembers.
For those that are curious- Shawn was born with a rare syndrome called Popliteal Pterygium Syndrome. Part of the syndrome is a wing like web behind the back of his leg. right now, his doctors have placed the external fixator in an effort to straighten his sciatic nerve and be able to fully straighten his leg
...i had mine but i only had it on my knee up to my leg...it must have been hard...
coolgirlazumi14 1 month ago
My son has an external fixation on his leg this video as gave him so much encouragement all the best
amazon986 1 month ago
sa doit faire mal !
TheEdouard99 2 months ago
Awwww this is so cute haha! Getting the "birdcage" as me and my mother call it (The ilizarov he has) in just 4 days. Biggest surgery yet, but hopefully I'll be all better for good after 6 years of fighting :D
Erin10998 8 months ago
What have he done that he get this ?
91Marsi91 8 months ago
я поражена позитивности деток))
Midorikara 9 months ago
Hello, I am teaching Orthopedics class in a university in Mexico and in our class everybody loved your boy. I am glad they took it off today, have a great life.
pepesodas 11 months ago
What happened to his leg
maxwell029 11 months ago
what happened that caused him to get this?
franklast 1 year ago
poor boy, i hope u r a rockstar
612AMMAR612 1 year ago
lol thats big! i'm just wondering, dont get offensive. but how does he get his pants or underwear on?
mYcHeMiCaLCaThY 2 years ago
damn! I had one half that size. that's crazy big!
Calano777 2 years ago
This gives me hope that my 2 1/2 year old will wear his just as well when he goes through his leg lengthening surgeries as he gets older. Way to go Shawn! Thank you!
The2Jsmommy 2 years ago 3
hes a good boy
TheNarutoSeeker 2 years ago 2
god bless hem :)
tomspeed2005 2 years ago
I have perthes, and I feel like I am looking into the mirror watching this video. Never say can't or die young man. You can do anything you put your mind to, even physically. It was gift the Lord gave me, there is a beautiful side to ugliness, and I have only turned what some people call handicap into a tool that makes me work harder. You have perthes, but perthes does not have you young man.
God Bless
jb
antidoteco 3 years ago
Shawn you are wonderful, i have a kid of about 3 years old that him too have had an ilizarov for three months. Shawn a big kiss....
Manu and Giorgio from Italy
sciaccaelo 3 years ago
This boy is valiant!!!I think he wants to be a rockstar very much:)
MagdalenaINTJ 3 years ago
yeah that kid IS a rockstar! so good to see someone with an illizarov and such a good attitude....go Shawn!
pgband1 3 years ago
that kid is sweet
Props man :)
viper131st 3 years ago
wut happened to his leg?
34yf498bih 3 years ago
Sweet litle kid you are my heroe!!! and don't think about riding motorcycles, ok!!!Take care and drink a lot of milk!!!bye(mine is smaller)
arieloflight 3 years ago
aww what a cute lil boy!
and even with the fixator on he is having a blast dancing :)
respect to you :)
MelissaEightySix 3 years ago
I am happy to report that Shawn's fixator will be coming off on April 4th, after nearly 8 months. He is still happy, lively, and still dancing!
jenaberl 4 years ago 5
@jenaberl Hi. I had a pretty bad accident 5 mothns ago, and since then I have these frames, but not as many as your kid. I can only imagine and feel so nice to see his spirit. For me it is to the date to give the first steps, but I feel now more motivation after seeing your kid dancing and having no fear of it. Thanks for posting that!
legb2407 1 year ago
Hey guys! It's Miss Tara! I just wanted to stop by and see how your are doing, I really miss you, Shawn! I hope you are doing well, be good, I will talk to you soon! Bye Baby!
Miss Tara
amerikanangel 4 years ago
thatnks for getting abck to me and thats so good to hear, i hope he is doing well now.
lulu1201306 4 years ago
wow thats amazing, but one question how does he get pants on.
lulu1201306 4 years ago
We had underwear adapted for him, with snaps and velcro on the side. His pants have extra wide legs and velcro up the side, especially made by a wonderful woman who volunteers for an organization known as "Children in the Crossfire"- who make adaptable clothing for children of servicemembers.
jenaberl 4 years ago
Respect dude...
echostorm888 4 years ago
Aww!! I love this so much!! He's so handsome. I really miss him.
revolvingxheart 4 years ago
OMG did he pass?
kingtee94 4 years ago
Shawn is doing well- still has the external fixator on, but it should be coming off in a few weeks. He's five years old and still going strong!
jenaberl 4 years ago
Ok, Good to hear. Hope he does better.
kingtee94 4 years ago
mine wasnt that big i had it on for 4 months
got it in 4/25/07 13 days after my bday
BiggSliimm 4 years ago
Shawn has had his on for 6 months, with about another 2 months left.
jenaberl 4 years ago
Dude omg i don't think i would ever do that on my external fixator.
kingtee94 4 years ago
For those that are curious- Shawn was born with a rare syndrome called Popliteal Pterygium Syndrome. Part of the syndrome is a wing like web behind the back of his leg. right now, his doctors have placed the external fixator in an effort to straighten his sciatic nerve and be able to fully straighten his leg
jenaberl 4 years ago
what have he done ??
souldrums1 4 years ago
You are one of the coolest kids I know Shawn. And you have Great Taste in music :) keep on dancing man! Love ya, Ms. Amy
ajland3infinity 4 years ago
You ROCK Shawn!! You have some really cool moves! You'll have to teach me sometime! Keep rockin' out! I will see you next week!
Love Miss Tara
amerikanangel 4 years ago
What an awesome little man...Even while he is in pain, he finds the fun in life. May we all learn to be a little more like shawn!
wileyse 4 years ago