Epidermolysis Bullosa (EB) Awareness Celebrities Chip In
7:32
Added: 3 years ago
From: PrincessSilvia
Views: 7,445
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  • I have EB, I hope anyone that can will give. There's great advancements being made and I know that soon there will be if not a cure at least some treatments available to enhance their lives!

    tbraasch 3 months ago

  • I know this disease because my niece has it. Its really sad. But we put our support in it.

    1boptop 4 months ago

  • New Online Community for people affected by EB. In 5 languages, developed by NORD, EURORDIS, and DebRA Int.

    Google Rare Disease Communities to find it, come share your story

    robpleticha 11 months ago

  • Great video Silvia 

    freddiem1 1 year ago

  • defenetely it creates awareness

    gnanesh013 2 years ago

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