I love it when seasoned professionals are willing to share what they know allowing so many others to learn from it (just look at the # of views) - during my clinical rotations so many members of the healthcare team in various positions seemed to feel like we all need to struggle and stumble along as they did as rookies - I will make sure to always share with those who are coming in, needing some guidance and reassurance. After all, the more we all know the better off all our patients will be.
i have one, I almost died as an infant, had a subclavian graft (they don't even fix it that way anymore, they took my subclavian artery out of my left arm and grafted it onto the coarc- now they "splice" the vessel at a diagonal and completely remove the coarc)- and I had a stent put in at age 29 last year to repair it, which normalized my blood pressure. I still have to watch it and face potential complications with pregnancy.
@chickenetti Hi, can you tell me where you had your stent put in? I'm a bit older than you and I have been told by some doctors that as you get older your artery does not strech as much so they are reluctant to put in. As I read about what a surgery would be like, I can't bring myself to do that. Would appreciate the info.
YA okay good, i thought this was really rare for me to have and i was worried i would die or soemthing from it, its a really big releif to see more people have it like me, about 2 years ago i found out i have a slight rip in my patch, the doctors so it isnt a big deal, anyone else have a similar problem?
I had surgery to repair mine when i was 9 days old. At 12, i had a stent put in. I still have blockages and may have an aortic valve replacement in the future.
I had this problem when I was born, but had it reapired. Up until about 2 years ago by BP was fine, now's higher and I am on blood pressure medcine I am 20:(
what are the symptoms? have you learned alot about heart problems? i have a question im just going through anyhting heart related so i have no c lue but im 23 and since about 16 every single night when i fall asleep on my left side about 2 hours in i wake up and its sooo tight n like when i breathe in it liek shoots across its not my heart heart but like above it.but every night if i lay other way its fine but its pretty fucked ive had it cheked but they keep sayn they cant find nethin,ne1 help?
I love it when seasoned professionals are willing to share what they know allowing so many others to learn from it (just look at the # of views) - during my clinical rotations so many members of the healthcare team in various positions seemed to feel like we all need to struggle and stumble along as they did as rookies - I will make sure to always share with those who are coming in, needing some guidance and reassurance. After all, the more we all know the better off all our patients will be.
anamneses28 2 months ago
my blood prusser now 128 over 60
darwishish 1 year ago
i did it about 4 month ago ,very painful
darwishish 1 year ago
@darwishish Hi, the surgery or stent?
sandyfaym 1 year ago
@sandyfaym the surgery
darwishish 1 year ago
i have one, I almost died as an infant, had a subclavian graft (they don't even fix it that way anymore, they took my subclavian artery out of my left arm and grafted it onto the coarc- now they "splice" the vessel at a diagonal and completely remove the coarc)- and I had a stent put in at age 29 last year to repair it, which normalized my blood pressure. I still have to watch it and face potential complications with pregnancy.
chickenetti 1 year ago
@chickenetti Hi, can you tell me where you had your stent put in? I'm a bit older than you and I have been told by some doctors that as you get older your artery does not strech as much so they are reluctant to put in. As I read about what a surgery would be like, I can't bring myself to do that. Would appreciate the info.
Thanks, Sandy
sandyfaym 1 year ago
wow i might have it.
Just found out today
left arm blood pressure is 180/90
lazzyguy77 1 year ago
i have this pro. and my blood prusser 200/110 my age is 18 and i will do this surguery
darwishish 1 year ago
@darwishish
Hang in there man.. I've had the surgery 2 times... you'll be ok.... They've come a long way ...
funkyflights 1 year ago
thank u very much for support
darwishish 1 year ago
@darwishish
Your welcome! God bless
funkyflights 1 year ago
YA okay good, i thought this was really rare for me to have and i was worried i would die or soemthing from it, its a really big releif to see more people have it like me, about 2 years ago i found out i have a slight rip in my patch, the doctors so it isnt a big deal, anyone else have a similar problem?
EzekioMuhammed 2 years ago
I had surgery to repair mine when i was 9 days old. At 12, i had a stent put in. I still have blockages and may have an aortic valve replacement in the future.
sweetypie474 2 years ago
They found mine when I was 17. I had surgery to correct my problem. My blood pressure was 200/100. At 34 years old, I am 100% healthy.
1r9i7c4k 3 years ago
I had this problem when I was born, but had it reapired. Up until about 2 years ago by BP was fine, now's higher and I am on blood pressure medcine I am 20:(
brlaranjo 2 years ago
yeah me also. im taking an ace inhibitor. have been for several years. im 20 alsol.
founditnow54 2 years ago
they found mine by accident when i was four and a half. they have to go back an fix my aortic valve eventually as well.
akalaynee 3 years ago
I Had that,10 days old when i had my surgery
narniafan1995 3 years ago
I have the carctation of the aorta. It stinks. I have had 2 operations
kizeytheelf 4 years ago
what are the symptoms? have you learned alot about heart problems? i have a question im just going through anyhting heart related so i have no c lue but im 23 and since about 16 every single night when i fall asleep on my left side about 2 hours in i wake up and its sooo tight n like when i breathe in it liek shoots across its not my heart heart but like above it.but every night if i lay other way its fine but its pretty fucked ive had it cheked but they keep sayn they cant find nethin,ne1 help?
Billymarkz 2 years ago
very interesting and informative
win4570 4 years ago