Your videos literally bring tears to my eyes... uve literally been to hell & back.
i was in a recent car accident where a fence post penetrated my tummy...ive
had two bowel resections and several other major op's due to breaking my back
& pelvis,ive had blood clots in my lungs & my right lung collapsed,i now have degenerative disc disease,scoliosis,minor kidney disease & an 8cm in diameter cyst on my ovary
Being chronically ill and pain 24/7 is beyond draining,both physically & mentally :((
I've tried to send you a message however this new Google / YouTube somehow won't let me. I just wanted to say that you do not know how brave you are doing this! I would be scared to kingdom come! You don't know how much you replicate what I feel mentally and physically everyday and to know that I am not alone means just sooomuch I cannot put it into words. You are so brave to put it out there, it just means sooo much! If I could be in contact with you somehow email whatever, it would mean alot!
hunny, there are people that understand. I was diagnosed when I was 20 with Crohns. I have had periods of remission and felt ok.....that is my hope for you! I know there is no cure but if you can feel well in remission for some weeks at a time - you can gain your strength back. We all go through times of being strong and then other times when 'its just not fair!'. You make me realise i am not suffering on my own!
Thank you so much for sharing. Sometimes it feels like I'm just too weak or not trying hard enough to stay positive; it's so nice to hear that someone else struggles with it too and it's not just me. I'm praying for you, for both of us. We can't give up!
"I don't want to be sick. I don't want to wake up in the morning and know that it's going to be a hard day."
I agree 100%. I was diagnosed with UC among other things about a year ago when I was 14. It's incredibly frustrating for doctors to simply not know what's wrong with you or to treat you like an interesting science experiment. Every day I wake up hoping that it will all just go away or turn out to be a nightmare. I'm so sick of being sick. :/
I love your smile and your eyes! But you say too much Ummms :) If i met you on the street id never know you will chronically ill. But i guess same with me!
HI I AM SO HOPING YOU ARE STILL DOING GOOD..after the other video i saw ,updated one..My mother is also stressing so bad and is ending up every 2 months or so in hosp.for the ngtube. had major surgery and they removed a piece of her intestines. i dont want her to die i am also soo damn scared. my question to u is. u eat high fiver diets ? have you used any cleaning colon natural meds? I wonder because , this is what i am trying to do with her.and also feed her cream soups .stopping most solids
Your videos really hit home for me. I was diagnosed with crohns in January this year. I'm currently going through every feeling you have expressed in your videos. I have been really persistent with my doctor and so tried so many types of drugs but none of them have worked. I'm going to see a specialist on Friday to get his opinion but I think I'm going to have surgery. Like you said, I just want my intestines gone! I hate this so much and your videos have given me strength. Thank you xxx
You have every right to be angry about what has been done to you. Yes, this is an acquired disease with no admitted origin. I do not understand why it afflicts some people and not others. But I hear your pain and anguish and I am deeply moved. I wish I could snap my fingers and *poof* you're healed, but I'm not Jesus. My prayers are with you and all those afflicted by disease not of their own fault. I wish you good luck with your treatment.
you're such a sweetheart<3 my best friend has crohns, will be praying for you, I hope you are doing ok, God bless!!!!! I have chronic illness and felt so sad in my heart wishing i could hug you
I'm very sad that you have to go through all this suffering and respect your honest way of explaining your situation and feelings.
You probably have seen this but I'll mention it just in case: search youtube for
"helminthic therapy Crohns", and the first video on the "jascallaw" -channel talks about a new experimental therapy for Crohn's disease. Don't no if works but its a shot I guess.
I'm not a doctor :)
(Hope this message was not posted multiple times, youtube is giving me an error.)
....get stronger. Don't ever lose that hope of getting better one day. Because you will. Maybe not in the physical way that we all hope for, but in a way that will give you peace with who you are becoming. Who knows...there may be a cure in the future. I bet many people who had diseases of the past that were considered uncurable at the time thought the same way we do now. Don't give up on that hope. Thank you for sharing this. You are very inspiring.
My name is Sarah. I can totally relate. I admire you for letting that out and sharing with us. Being chronically ill changes you drastically. I have been diagnosed with pots and ncs which are both chronic, dibillitating invisible illnesses. I have been sick for the past 6 years. I tend to go through stages of mourning the loss of the "old me". I will be sad one minute, angry the next, and sometimes I feel like I won't survive the depression. It gets better over time. Everyday you will
You have every right to be angry. You've been robbed of life because of this disease. Frist ulcerative colitis, then a ileostomy, then problems with your j-pouch, and finally a diagnosis of chrons disease. It has not gotten better. Would you consider trying the SCD diet again? I know you've tried in the past, but the SCD can really help with your Chrons. Trust me, after 12 years of suffering with UC, I'm tired too. I hope your health improves.
I suffer from a chronic illness too and relate so so much to your pain, frustration, anger, hope and sadness.. I admire and am inspired by your strength, your honesty, and the courage I know it took to share your heart and let others into your journey - the good and the bad...Thank you! Sending you warm healing wishes :)
Hi i have chrons and UC i was diagnosed when i was 7 i am18. I got sick when i was 13. And i understand very much how hard it is DAY BY DAY and allot of people don't understand (even family) what you go through and because of smile you put on. but it dosen't matter because you have been through something that makes you what my friends say is different and makes you a STRONGER,MORE DETERMINED,PROUD,MORE UNDERSTANDING. AND LOVE EACH DAY YOU HAVE because it could be worse. keep strong keep going
hi have tried aloe elitte? if no you have to try it you have to be patient it really works if you follow it by the letter go to aloe elitte website God bless you i also have UC and i have had that anger that you feel, God bless you.
One video, you shall not cry! I have Ulcerative Colitis. Had it for almost two years come this January, Almost the same as Chrons. I've been through it a lot. two things worked for me and none of the drugs I was given by the doctors. Probiotics is one and Miso which is a friendly bacteria bag of something. I'll message you.
hey kristie Im sorry to hear about whats happening with you right now , Im also affected my crohs and have been struggling for the last three years where doctors scrambled to get whats going on . until I got transfferred to a new doctor 3 months ago and he diagonsed me properly (he's the top G.I specialist in canada and he teaches in 5 universities over the world) I just wanna tell you that you need to be more active and limit your stress and ask your doctors to keep adjusting your meds at least
If you think that no one else in the world understands how you feel, especially about your body, just know that I absolutely understand. We've been dealt a crappy hand when it comes to having normal, happy bodies. I see you cry and I just can't help but cry with you. When I first learned that my colon had to go...I knew the world ended right then. I cried for two hours in the parking lot of my GI Dr's office. And again when I got home and told my parents. You are beautiful, Kristen! Hang on,hon.
Your videos literally bring tears to my eyes... uve literally been to hell & back.
i was in a recent car accident where a fence post penetrated my tummy...ive
had two bowel resections and several other major op's due to breaking my back
& pelvis,ive had blood clots in my lungs & my right lung collapsed,i now have degenerative disc disease,scoliosis,minor kidney disease & an 8cm in diameter cyst on my ovary
Being chronically ill and pain 24/7 is beyond draining,both physically & mentally :((
missdilligaff 1 month ago
I've tried to send you a message however this new Google / YouTube somehow won't let me. I just wanted to say that you do not know how brave you are doing this! I would be scared to kingdom come! You don't know how much you replicate what I feel mentally and physically everyday and to know that I am not alone means just sooomuch I cannot put it into words. You are so brave to put it out there, it just means sooo much! If I could be in contact with you somehow email whatever, it would mean alot!
stik100 2 months ago
chin up sweat heart. Hang in there and you will get through it. I admire your bravery in making this video and sharing with us how you feel.
ilovehat3rs 3 months ago
hunny, there are people that understand. I was diagnosed when I was 20 with Crohns. I have had periods of remission and felt ok.....that is my hope for you! I know there is no cure but if you can feel well in remission for some weeks at a time - you can gain your strength back. We all go through times of being strong and then other times when 'its just not fair!'. You make me realise i am not suffering on my own!
JaimeeLauren 3 months ago
Thank you so much for sharing. Sometimes it feels like I'm just too weak or not trying hard enough to stay positive; it's so nice to hear that someone else struggles with it too and it's not just me. I'm praying for you, for both of us. We can't give up!
LibreKoi 4 months ago
"I don't want to be sick. I don't want to wake up in the morning and know that it's going to be a hard day."
I agree 100%. I was diagnosed with UC among other things about a year ago when I was 14. It's incredibly frustrating for doctors to simply not know what's wrong with you or to treat you like an interesting science experiment. Every day I wake up hoping that it will all just go away or turn out to be a nightmare. I'm so sick of being sick. :/
LibreKoi 4 months ago
i hope you're doing well.
just remember you're not alone.
i hold ur hand in this journey.
pentium8542 5 months ago
I love your smile and your eyes! But you say too much Ummms :) If i met you on the street id never know you will chronically ill. But i guess same with me!
ChrisVitchev 6 months ago
HI I AM SO HOPING YOU ARE STILL DOING GOOD..after the other video i saw ,updated one..My mother is also stressing so bad and is ending up every 2 months or so in hosp.for the ngtube. had major surgery and they removed a piece of her intestines. i dont want her to die i am also soo damn scared. my question to u is. u eat high fiver diets ? have you used any cleaning colon natural meds? I wonder because , this is what i am trying to do with her.and also feed her cream soups .stopping most solids
launicayoly2 6 months ago
Your videos really hit home for me. I was diagnosed with crohns in January this year. I'm currently going through every feeling you have expressed in your videos. I have been really persistent with my doctor and so tried so many types of drugs but none of them have worked. I'm going to see a specialist on Friday to get his opinion but I think I'm going to have surgery. Like you said, I just want my intestines gone! I hate this so much and your videos have given me strength. Thank you xxx
natalierew1 7 months ago
You have every right to be angry about what has been done to you. Yes, this is an acquired disease with no admitted origin. I do not understand why it afflicts some people and not others. But I hear your pain and anguish and I am deeply moved. I wish I could snap my fingers and *poof* you're healed, but I'm not Jesus. My prayers are with you and all those afflicted by disease not of their own fault. I wish you good luck with your treatment.
giantswinws2010 9 months ago
you're such a sweetheart<3 my best friend has crohns, will be praying for you, I hope you are doing ok, God bless!!!!! I have chronic illness and felt so sad in my heart wishing i could hug you
FlyinHyy 10 months ago
I'm very sad that you have to go through all this suffering and respect your honest way of explaining your situation and feelings.
You probably have seen this but I'll mention it just in case: search youtube for
"helminthic therapy Crohns", and the first video on the "jascallaw" -channel talks about a new experimental therapy for Crohn's disease. Don't no if works but its a shot I guess.
I'm not a doctor :)
(Hope this message was not posted multiple times, youtube is giving me an error.)
SukupolviX 10 months ago
....get stronger. Don't ever lose that hope of getting better one day. Because you will. Maybe not in the physical way that we all hope for, but in a way that will give you peace with who you are becoming. Who knows...there may be a cure in the future. I bet many people who had diseases of the past that were considered uncurable at the time thought the same way we do now. Don't give up on that hope. Thank you for sharing this. You are very inspiring.
potsiemommy 11 months ago
My name is Sarah. I can totally relate. I admire you for letting that out and sharing with us. Being chronically ill changes you drastically. I have been diagnosed with pots and ncs which are both chronic, dibillitating invisible illnesses. I have been sick for the past 6 years. I tend to go through stages of mourning the loss of the "old me". I will be sad one minute, angry the next, and sometimes I feel like I won't survive the depression. It gets better over time. Everyday you will
potsiemommy 11 months ago
You have every right to be angry. You've been robbed of life because of this disease. Frist ulcerative colitis, then a ileostomy, then problems with your j-pouch, and finally a diagnosis of chrons disease. It has not gotten better. Would you consider trying the SCD diet again? I know you've tried in the past, but the SCD can really help with your Chrons. Trust me, after 12 years of suffering with UC, I'm tired too. I hope your health improves.
mibarra1978 1 year ago
This has been flagged as spam show
I suffer from a chronic illness too and relate so so much to your pain, frustration, anger, hope and sadness.. I admire and am inspired by your strength, your honesty, and the courage I know it took to share your heart and let others into your journey - the good and the bad...Thank you! Sending you warm healing wishes :)
Anna1280grace 1 year ago
Comment removed
Anna1280grace 1 year ago
Hi i have chrons and UC i was diagnosed when i was 7 i am18. I got sick when i was 13. And i understand very much how hard it is DAY BY DAY and allot of people don't understand (even family) what you go through and because of smile you put on. but it dosen't matter because you have been through something that makes you what my friends say is different and makes you a STRONGER,MORE DETERMINED,PROUD,MORE UNDERSTANDING. AND LOVE EACH DAY YOU HAVE because it could be worse. keep strong keep going
TheFilmbufferthanU 1 year ago
hi have tried aloe elitte? if no you have to try it you have to be patient it really works if you follow it by the letter go to aloe elitte website God bless you i also have UC and i have had that anger that you feel, God bless you.
eri9390 1 year ago
One video, you shall not cry! I have Ulcerative Colitis. Had it for almost two years come this January, Almost the same as Chrons. I've been through it a lot. two things worked for me and none of the drugs I was given by the doctors. Probiotics is one and Miso which is a friendly bacteria bag of something. I'll message you.
lavaboy23 1 year ago
don't let it get it to you F crohn's you'll get better Im sure... I will be posting a video response soon
ahmedlahham 1 year ago
hey kristie Im sorry to hear about whats happening with you right now , Im also affected my crohs and have been struggling for the last three years where doctors scrambled to get whats going on . until I got transfferred to a new doctor 3 months ago and he diagonsed me properly (he's the top G.I specialist in canada and he teaches in 5 universities over the world) I just wanna tell you that you need to be more active and limit your stress and ask your doctors to keep adjusting your meds at least
ahmedlahham 1 year ago
If you think that no one else in the world understands how you feel, especially about your body, just know that I absolutely understand. We've been dealt a crappy hand when it comes to having normal, happy bodies. I see you cry and I just can't help but cry with you. When I first learned that my colon had to go...I knew the world ended right then. I cried for two hours in the parking lot of my GI Dr's office. And again when I got home and told my parents. You are beautiful, Kristen! Hang on,hon.
guns4good 1 year ago