@sweetgirl94949 i am going my very best to keep on fighting and while at times, things get really pretty bad because it's not worth living this way, I am too stubborn to give up and the desire to go back to my homeland is very strong and it makes me stronger and not wiulling to give up...i am going to a natural doctor too near my town, he is a nutritionist and he has MS too so he knows really well what I am going through Ihave to be patient and wait for things to start working,
@sweetgirl94949 yes, it would be really wonderful and amazing to do it again and go back to the places I love and that mean so much to me...Thank you fr the prayers, your thoughts and your kind words...i have made a bew video, but in that video, I am pretty upset, angry and sarcastic and I am not very proud of t, but that is my reality at this point, a year of living with MS and the PML that was caused by the medicone that I was taking for the MS...thank you for everything,warm hugs
@sweetgirl94949 thanks to what Tysabri did to me and to my life, I had to stop taking care of my website because my cognition is highy impacted now and I forget lots o0f things, so while I do things over and over again trying to get used to doing them and helping my memory remember the, at the moment nothing works so I am trying to be patient and look forward to a better time... I thank you deeply for understanding my anger...my life was better without PML and without stupid doctors! thank you!
@angelusa73 thank you for the comments on the site that I love so very much and miss working on...I have so many thing I have worked on before the PML hit me and music is going to have section on my site because it was and IS very importantt for my recovery...If my husband would keep the promise and help me with the site before I die again :), maybe I will be able to have my new important sections added to it. I am proud of them and can explain why music can help us go through anything.GRAZIE!
Hello again Angela. I am revisiting your videos because I see my neurologist today, who will want me to go back on Tysabri after my latest relapse of ms. I will DEFINITELY say NO. I hope to try my 3rd veinous angioplasty soon. Got to keep hoping. Best wishes and good health to you.
@MrPauljd thank you so much for writing to me and for telling me that you are not going to take thay poison. You will not worry me so much, then :)
but I do wish you good luck with your journey and I hope that the angioplasty or your next step, in general, will do you good and will help you. The angioplasty is a good idea and I thank God that we have this option today thanks to our amazing doctor Zamboni that was able to look outside the box and be innovative and courageous :)best luck to you
@Shugga89Wugga thank you, I do feel better, and I survived the worse of this aweful PML, but I still have a long way to go...I don't enjoe living any more, I can't understand things very well, I have a limp and the left side if my body is still very weak, but I beat PML and that is all the matter, I have a long journey to do and, hopefully, I will be able to find myself again someday...it's hard not to recognize who we are and I have changed a lot, I am nt the person I was. Thanks for caring )
please, tell me that I wrote you before and I answered your kind message before...I am so sorry for such late response...as you can imagine, my life is more and more difficult now...PML gave me lots of problems and now I have to live dealing with seizures...and that is not much fun...anyway, I found your comment only now and I wanted to tell you that I am truly sorry for not writing sooner and I would like to wish you good luck with the procedure, I hope it ok. Happy holidays
@MrPauljd Thank you so much, my friend. I was looking how to become your friend on facebook, but Tysabri made me too stupi and now I don't underastannd much any more. I thiank you so very much for writing to me and I don't think I can tell you any good things about this drug because it reallt ruined my life, more emotionally, than phycally, Please pay attention to all of the dsimplest changes in your body if you will take Tysabri again Iwill make a video when I will explain how I found i had PML
@angelusa73 I made two videos that I didn't post yet because I lok like a pork chop:) and because, at least in the italian one, I am quite upset an angry for what happened to me and I am not ready to show that to the world yet, but I know it's important to do it because people have to learn about the danger of this drug and not hearing only the good stories. PLEASE, take good care my friend and I wish you tp find better ways to help your body without the use of bad drugs I wish you the best
Thank u I been on avonex7 yrs it isn't working I I was going to switch. To copaxone but scared of the injections scare so I thought of this buy u helped me ill take the copaxone and keep u n my prayers. Thanks for your story god bless u for helping people like me with truth what do u think of gelena the pill my fam says no but im scared I of copaxone
@22bellas I started ion Copaxone, then took Avonex, then Rebif, then the aweful Tysabri which almost killed me by gving me PML... SO i am really not a fan of the MS drugs, actually, I hate them with all my might... I took too many and most of them didn;'t do nothing and then one caused me more harm than good... I think it's good that Copaxone has worked for so long for you. It's pretty good, believe me and I am happy for you,
Hello Everyone. I'm here to report with joy that none of you have PML! :)
All you have to do to change your life is visit a wellness centre and have them do a test for ALL HEAVY METALS in your body. You will be shocked at the test results.
They say EVERY human has metals in their body. You can't avoid them.
Once the mercury, aluminum, and tin are out of you along with all other heavy metals you will feel like a new person and be cured of PML within days. I swear this on my own life!
@vancouverislandbass PML is a disease that was caused, in my case,, by an American drug that lower my immune system when ot was supposed to fight a virus that the drug itself had wokrn up... also, PML is very known in people that have immune system problems like AIDS, so the heavy metals are not involved here, but thank you for reminding me about chelation therapy which cleans the body from the metals that cause diseases in our bodies. PML is not one of them. IT IS CAUSED BY a DRUG
thanyou so much for your story . wish i could send you more than this but all these kisses are for you xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
oh, thank you anyway.I believe that positive energy coming from all over the world did very good to me. In fact, I believe that all of the hundreds of messages I received while PML was trying to take my life, what was saved me, not the stupid, aweful drugs that got me feeling worse and worse. I believe that the miracle that happened to me was thanks to the people that took the time to think of me, to write me, to pray and to CARE. The power of love, faith, matter a lot so thank you for the kiss
Hello Angela, I haven't seen any of your videos until today. Just looking up various different terms - I have Crohn's disease and am taking a lovely drug: Adalimumab - I want to thank you from the bottom of my heart, you are a true inspiration.
I have had thoughts for a while and now I have decided, this drug, with the similar risks, is not what I want to be putting into my body.
Dear Angela, you are my HERO!!! I am so very happy that you are ALIVE and keep fighting - you are an inspiration to us all with MS!! I am proud of you and I respect you and pray for you everyday. My Italian boyfriend, Anthony and I love you and pray for you and wish you a complete recovery from PML. We are so very sorry for all you went through with Tysabri and showing us the truth about this horrible medicine and disease. WE LOVE YOU AND PRAY FOR YOU TO BE STRONG. Susie & Anthony
@zsuzska92160 Thsnk you so much, Susie and Anthony. I really appreciate your kind comment and your wishes. It's a long road and it'challenging to live like this but if I made it for a year and when things were a lot harder, I know I can do it now and I can fight this all the way! I need your prayers and thank you SO MUCH for thinking of me and for writing, hugs to both and take good care, lots of best wishes,
Hi, Ang....my MS peep - I'm sending you prayers and hugs from Maine, USA. Thank you for your continued courage and inspiration. I can have the saddest day w/ my ms and when I watch your videos you make me stronger. xo kimmy
@handipeep thank you so very much for the kind words and your thoughts. I truly appreciate it and yur words mean a lot to me. I love Maine, by the way and I love your wonderful lighthouses :) Take good care and thank you for writiung to me. I am glad that my videos help you somehow. This makes me happy.
@gekiryudojo thank you so much, Trevor. It's 4 o' clock in the morning and, as usual, I am up and ready to start another long, hard PML day... I wish I coul beat up PML the way you do with your martial arts... It looks so good and so stress realicing!I thank you so much for coming to say hi, for remembering me and for writing.
Say hi to your son for me. He has a very cool dad! :)
@angelusa73 Dear Angela You are never far from my thoughts! Last year I got married to Teni in Toronto Canada, she has had MS since 1986 and is in a power chair this did not and does not stop me loving her, she friended you on facebook and like me we both pray for you, you a a wonderful person! and we hope and thoughts give you strength to fight this pml remember you are in our thoughts lots of Love from T and T!
@gekiryudojo i would love to have new, great friends on Facebook... are you sure, I got an invitation? Maybe, not knowing who it was from, I didn't accept it and this wouldn't be very nice so I promise that I will accept it if you or her send iit to me again...and about the fact that she doesn't give up, she could be and probably is, an example of inspiration, strengh and determination. Please, give her a big hug from me. You are an amazing couple :)
I did miss you and I am glad you are back to write me. How are you doing? I am still dealing withe many "presents"that Tysabri gave me with PML.I hate this drug with all my ,might...it shouldn't be on the market any more because it's why too dangerous... I don't know if I will ever get better No one knows... hugs to all,
Angela, you obviously have the courage and determination to keep getting better and better. Our bodies have the most amazing capacity to heal if we give them the right food and mindset to do it with. Have you looked into diet at all? I'd recommend to google George Jelinek. He has looked at all the evidence behind non- drug interventions for MS. That's why I'm so well again :-) Love to you. Amanda (and pepper) xox
@missalgernon Thank you for the tip! I found the man on the internet and I saved his information, but I need to read and learn more. Thank you for thinking of me and for sharing this information. I really appreciate it. Thank you so very much and I am happy you are doing much better. I hate drugs so I find that a natural way to help control my MS would be the best way to go... :)
@angelusa73 George's book is excellent: "overcoming multiple sclerosis". He thoroughly describes all his recommendations and the evidence behind them. I really believe it is the only logical way to fight MS. You're a sweetheart, I really wish you all the best in finding a healthier life. I know you can do it! Amanda x
@missalgernon you are very sweet and I hope that I would have a way to do the simplest things like I used to, but I am not able to because of what happened to me. I am working at getting better but things are moving very slow...I am alone in dealing with this and I am overwhealmed, so I will continue to take a day at the time, hoping tha things will improve ... I want to and need to do many things (simple ones too) but I just can't at the moment.
@WithCourage2008Good to hear from you, sweet girl! I am still recovering and it's hard work but I can do it and so can everyone affected by PML. Tysabri taught me that I am strong and that no drug can get me down... I still hate drugs though and I am working on being drug free. No more Tysabri for me!! AndThis makes me happy because I was tired of suffering that much. It wasn't a good drug for me and it almost killed me.
Dearest Angela, you're an inspiration. Brave to take the initial risk of taking Ty & still as courageous as ever to be coping so well with such horrible health problems from taking it. Love the family addition:)
@rickileeway I am happy when I hear that Tysabri helped other people. I just don't know them or I never met any of them and so, what I know, is the horrible experience I had that I wouldn't wish it to my worst enemy. I ask God that no more people be touched by the bad effects of this drug. I am paying the price of such decision every day and I won't be able to say anything good about it for a very long time... I just wanr ro make sure that patients are aware the danger of the drug.
@angelusa73 I understand completely Angela. You are totally justified in hating this drug after what it has done to you & are doing the right thing by telling your story so people can also see this horrible side of it & I'm sure those who are doing well on Ty understand your reasons too. It's only coz your care so much. And we all care about you & just want you to get better soon:)
You are a real fighter to deal with the unfortunate outcome of a drug treatment that has done so much good for many other people. It would have been great if it had worked well for you. All drugs come with risks and we are sometimes made to make choices we really don't want to make to try and battle our ailments. I can't even imagine the toll this has put on your body and the stress it has put on you as well as Keith. Stay strong my friend. Bill :o)
Thank you for your honesty and sharing the truth of how you are doing. This is the reality we need to see, we need to know what can happen with the drugs we take even if it is a low chance. Then we can make a real informed decision. Think of you all the time. I had my puppy with me when watching and she starting talking back to Victoria - true! :o) Sending love, Kerri xo
Hi, Kerri! So nice to hear from you again! I missed you a ton. While I followed your great achievements with CCSVI in the wonderful country of Austrailia, I haven't been able to watch videos and write much. Sorry :)
I am still writing with one finger so I am not that fast in answering to the many messages that I receive and that make me happy like yours message. Thank you for taking the time to watch the video and to write to me. I am happy that Tysabri is out of our lives!
Thank you for your honesty and sharing the truth of how you are doing. This is the reality we need to see, we need to know what can happen with the drugs we take even if it is a low chance. Then we can make a real informed decision. Think of you all the time. Sending love, Kerri xo
{{{{{{{{{{{{Angela}}}}}}}}}}}}}} we love you and MSers all over the world are supporting you and sending you healing vibes all the time. Continue to heal my friend and remember that you are never alone; someone somewhere is thinking about you and wishing you well. Big hugs always Jay x
@jaydee1508 Thank you, thank you and thank you some more! I continue to feel the love and the support coming from all over the world just like I did when I was dying because of the aweful Tysabri. I feel and see the healing and, one step at the time, I see the improvements from the way I was and the way I am now. It's a long way to go, I know and I am prepared for the work and the patience that this will require. The drugs that I have to take for the seizures are pretty bas, but I will make it
Angela, It is wonderful to wake up to your video this morning. Your beautiful shining spirit is a beacon to all fighting such horrible struggles. I know I speak for many many many people when I say our prayers and healing thoughts are with you always.
Dear friend, you have been on my side for the longest time and I will never forget it. Not even PML can erase what you did for meit from my counfused thoughts. You were at my side all the way and I felt your support, love and friendship. THANK YOU with all my heart. It was good to meet someone like you
I LOVE YOU ANGELA! All you videos are true and inspirational. You have become my VIDEO ANGEL. I look forward to seeing and reading your words. I THANK YOU FOR GIVING US STRENGTH TO BELIEVE IN OURSELVES. YOU HAVE ALSO HAVE SAVED US. THANK YOU AND GOD BLESS YOU. XOXO
Angela, yes, you beat PML! Your spirit is strong and you have thousands of people cheering you and sending you love. My flowers bloom in my garden and I think of you every day when I see them.
Sandra
~admin for CCSVI at UBC MS Clinic Facebook group and founding Board member for the National CCSVI Society
nice to see you. you look and sound better despite your struggles. thank you for your inspiration. we love to hear your encouragements. thank god for pets!
@christinedavi You are right: thank God for pets/ animals and flowers! They all make me smile even when there is nothing else that can get me to do it. Victoria is way funny and she rapresents a lot in my life. And I make sure to tell her that a lot :) She eve likes to take little bites off my flowers! It's so funny and I am tryng to figure out if she is a vegetarian!!!! :)
@ThePennygirl I wonder if scientists can find a way to make steroids even better, without the bad side effects that we all kno so very well. I am learning a lot about the side effects of the drugs that I am taking and the one for my seizures (another Tysabri gift! is pretty bad because it's making me feel like I am going crazy... while I am thankful for some drugs, I also wish they could hurt me less and allow me to be myself again.
Angela.......You sweet sweet lady...You are a woman with so much strength...All that you did and are still going through and you are here thanking other people...I draw so much strength from you to get through things...You dont deserve to go through any of that...You are such a strong positive person...i want you to know that we all LOVE YOU and are always here with you and victoria is a cutie...You are in my prayers and heart always.....GOD bless to you, you sweet lady:):):)
Thank you so much for taking the time to share these experience with me. It's important to find something good in something so aweful and so hard...and reading your kind words like yours do help.. so thank you. I really appreciate it :)
I am so glsd that Victoria made you smile..She is super cute and I am smiling more and more because of her...She is so fyunny, even and especially when she gets into trouble! :)
@unmarediemozioni01 Grazie delle gentili parole...Sei stata una delle prime a vedere il mio video! Grazie ! :) A te come vanno le cose? Va tutto bene? Spero di sentirti presto. Grazie di avrermi scritto.
@unmarediemozioni01 Cara Patrizia, ci vorra` tempo, tanto lavoro e tanta pazienza ma credo che migliorero` perche` l'ho fatto varie volte in passato e perche` vorrei tanto camminare meglio per tornare in IItalia... I sogni e i progetti non mi mancano mai... Guardero` avanti e cerchero` di realizzare i mie goals e cerchero` di non permettere a questa esperienza di oscurare il mio futuro...Capisco perche` cio` e` successo a me e credo che parlarne e` importante. Auguri a tua figlia
@unmarediemozioni01 Com'e` dolce il tuo commento! Thank you so very much! I will be thinking of you tooand Iwill make sure that we can support each other this way too. Grazie ancora,
Thank you Angela for your insperation and strength. You look and sound just fine. I have thought long and hard on Tysabri and weigh the benefits against the risks. It is a very hard decision to make and it is a personal one. I love you new puppy, she is beautiful!!
Hello hello that is a cute dog! You are one of the most inspirational people I have ever seen! Keep fighting!
And to everyone who thinks there is no cure to ms, you are wrong!
There is a cure. Stop with all the steroids, chemo.. Doctors who give u these are killing you.
Go to the search box on youtube and type in robertmorsemd.
He will change your life. He is a natural doctor. No more chemo, steroids ok!
sweetgirl94949 1 month ago
@sweetgirl94949 i am going my very best to keep on fighting and while at times, things get really pretty bad because it's not worth living this way, I am too stubborn to give up and the desire to go back to my homeland is very strong and it makes me stronger and not wiulling to give up...i am going to a natural doctor too near my town, he is a nutritionist and he has MS too so he knows really well what I am going through Ihave to be patient and wait for things to start working,
thanksAngela
angelusa73 1 month ago 2
@angelusa73 good that is what i want to hear. it would be amazing to go back to your home country wouldnt it? i will pray for that to happen for you!
hope that natural doctor is really getting you on the right path. no meat nd dairy!
Also thank you for replying to me. I know it isnt easy for you.
sweetgirl94949 1 month ago
@sweetgirl94949 yes, it would be really wonderful and amazing to do it again and go back to the places I love and that mean so much to me...Thank you fr the prayers, your thoughts and your kind words...i have made a bew video, but in that video, I am pretty upset, angry and sarcastic and I am not very proud of t, but that is my reality at this point, a year of living with MS and the PML that was caused by the medicone that I was taking for the MS...thank you for everything,warm hugs
Angela
angelusa73 1 month ago
@angelusa73 its sad Angela..its really sad what the doctors did to you. who knows how many people these doctors have killed.
The anger is understandable.
i saw in your other videos that you tried to stay natural and off the medicines for as long as you could. i think that really saved you.
stay strong!!! you have overcome so much.
and did you set up that flowers4ms website? its amazing!
sweetgirl94949 1 month ago
@sweetgirl94949 thanks to what Tysabri did to me and to my life, I had to stop taking care of my website because my cognition is highy impacted now and I forget lots o0f things, so while I do things over and over again trying to get used to doing them and helping my memory remember the, at the moment nothing works so I am trying to be patient and look forward to a better time... I thank you deeply for understanding my anger...my life was better without PML and without stupid doctors! thank you!
angelusa73 1 month ago
@angelusa73 thank you for the comments on the site that I love so very much and miss working on...I have so many thing I have worked on before the PML hit me and music is going to have section on my site because it was and IS very importantt for my recovery...If my husband would keep the promise and help me with the site before I die again :), maybe I will be able to have my new important sections added to it. I am proud of them and can explain why music can help us go through anything.GRAZIE!
angelusa73 1 month ago
Hello again Angela. I am revisiting your videos because I see my neurologist today, who will want me to go back on Tysabri after my latest relapse of ms. I will DEFINITELY say NO. I hope to try my 3rd veinous angioplasty soon. Got to keep hoping. Best wishes and good health to you.
Paul x
MrPauljd 2 months ago 4
@MrPauljd thank you so much for writing to me and for telling me that you are not going to take thay poison. You will not worry me so much, then :)
but I do wish you good luck with your journey and I hope that the angioplasty or your next step, in general, will do you good and will help you. The angioplasty is a good idea and I thank God that we have this option today thanks to our amazing doctor Zamboni that was able to look outside the box and be innovative and courageous :)best luck to you
angelusa73 2 months ago
@angelusa73 How are you doing now? Do you feel a little better? Please inbox me, PLEASE!!!!!!
Shugga89Wugga 1 month ago
@Shugga89Wugga thank you, I do feel better, and I survived the worse of this aweful PML, but I still have a long way to go...I don't enjoe living any more, I can't understand things very well, I have a limp and the left side if my body is still very weak, but I beat PML and that is all the matter, I have a long journey to do and, hopefully, I will be able to find myself again someday...it's hard not to recognize who we are and I have changed a lot, I am nt the person I was. Thanks for caring )
angelusa73 1 month ago
@MrPauljd Oh, my!
please, tell me that I wrote you before and I answered your kind message before...I am so sorry for such late response...as you can imagine, my life is more and more difficult now...PML gave me lots of problems and now I have to live dealing with seizures...and that is not much fun...anyway, I found your comment only now and I wanted to tell you that I am truly sorry for not writing sooner and I would like to wish you good luck with the procedure, I hope it ok. Happy holidays
angelusa73 2 months ago
@MrPauljd Thank you so much, my friend. I was looking how to become your friend on facebook, but Tysabri made me too stupi and now I don't underastannd much any more. I thiank you so very much for writing to me and I don't think I can tell you any good things about this drug because it reallt ruined my life, more emotionally, than phycally, Please pay attention to all of the dsimplest changes in your body if you will take Tysabri again Iwill make a video when I will explain how I found i had PML
angelusa73 1 month ago
@angelusa73 I made two videos that I didn't post yet because I lok like a pork chop:) and because, at least in the italian one, I am quite upset an angry for what happened to me and I am not ready to show that to the world yet, but I know it's important to do it because people have to learn about the danger of this drug and not hearing only the good stories. PLEASE, take good care my friend and I wish you tp find better ways to help your body without the use of bad drugs I wish you the best
angelusa73 1 month ago
Thank u I been on avonex7 yrs it isn't working I I was going to switch. To copaxone but scared of the injections scare so I thought of this buy u helped me ill take the copaxone and keep u n my prayers. Thanks for your story god bless u for helping people like me with truth what do u think of gelena the pill my fam says no but im scared I of copaxone
22bellas 3 months ago
@22bellas I started ion Copaxone, then took Avonex, then Rebif, then the aweful Tysabri which almost killed me by gving me PML... SO i am really not a fan of the MS drugs, actually, I hate them with all my might... I took too many and most of them didn;'t do nothing and then one caused me more harm than good... I think it's good that Copaxone has worked for so long for you. It's pretty good, believe me and I am happy for you,
I wish you the very best,
happy thanksgiving,
hugs
Angela
angelusa73 3 months ago
Hello Everyone. I'm here to report with joy that none of you have PML! :)
All you have to do to change your life is visit a wellness centre and have them do a test for ALL HEAVY METALS in your body. You will be shocked at the test results.
They say EVERY human has metals in their body. You can't avoid them.
Once the mercury, aluminum, and tin are out of you along with all other heavy metals you will feel like a new person and be cured of PML within days. I swear this on my own life!
vancouverislandbass 3 months ago
@vancouverislandbass PML is a disease that was caused, in my case,, by an American drug that lower my immune system when ot was supposed to fight a virus that the drug itself had wokrn up... also, PML is very known in people that have immune system problems like AIDS, so the heavy metals are not involved here, but thank you for reminding me about chelation therapy which cleans the body from the metals that cause diseases in our bodies. PML is not one of them. IT IS CAUSED BY a DRUG
angelusa73 3 months ago
thanyou so much for your story . wish i could send you more than this but all these kisses are for you xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
fluflufox 3 months ago
oh, thank you anyway.I believe that positive energy coming from all over the world did very good to me. In fact, I believe that all of the hundreds of messages I received while PML was trying to take my life, what was saved me, not the stupid, aweful drugs that got me feeling worse and worse. I believe that the miracle that happened to me was thanks to the people that took the time to think of me, to write me, to pray and to CARE. The power of love, faith, matter a lot so thank you for the kiss
angelusa73 3 months ago
Hello Angela, I haven't seen any of your videos until today. Just looking up various different terms - I have Crohn's disease and am taking a lovely drug: Adalimumab - I want to thank you from the bottom of my heart, you are a true inspiration.
I have had thoughts for a while and now I have decided, this drug, with the similar risks, is not what I want to be putting into my body.
You just helped me to decide for sure.
Thank you, I wish you well, less suffering.
HitMeWithIt 4 months ago
Dear Angela, you are my HERO!!! I am so very happy that you are ALIVE and keep fighting - you are an inspiration to us all with MS!! I am proud of you and I respect you and pray for you everyday. My Italian boyfriend, Anthony and I love you and pray for you and wish you a complete recovery from PML. We are so very sorry for all you went through with Tysabri and showing us the truth about this horrible medicine and disease. WE LOVE YOU AND PRAY FOR YOU TO BE STRONG. Susie & Anthony
zsuzska92160 6 months ago
@zsuzska92160 Thsnk you so much, Susie and Anthony. I really appreciate your kind comment and your wishes. It's a long road and it'challenging to live like this but if I made it for a year and when things were a lot harder, I know I can do it now and I can fight this all the way! I need your prayers and thank you SO MUCH for thinking of me and for writing, hugs to both and take good care, lots of best wishes,
Angela
angelusa73 6 months ago
Hi, Ang....my MS peep - I'm sending you prayers and hugs from Maine, USA. Thank you for your continued courage and inspiration. I can have the saddest day w/ my ms and when I watch your videos you make me stronger. xo kimmy
handipeep 7 months ago
@handipeep CONGRATS, mommy, on your furry baby Victoria ;) She's adorable. Nothing like puppy love xo
handipeep 7 months ago
@handipeep thank you so very much for the kind words and your thoughts. I truly appreciate it and yur words mean a lot to me. I love Maine, by the way and I love your wonderful lighthouses :) Take good care and thank you for writiung to me. I am glad that my videos help you somehow. This makes me happy.
thank you again,
hugs,
Angela
angelusa73 7 months ago
Hi Angela, Don't worry about how you sound or how you talk. I am happy to still have you here to talk to. You are the best! Bill
tazscott14 7 months ago
I am Sending you a Hug army! to give you 1000 Hugs from Trevor and Teni both with MS and Liberated and my son Dominic. God Bless you Angela! XXX
gekiryudojo 7 months ago 2
@gekiryudojo thank you so much, Trevor. It's 4 o' clock in the morning and, as usual, I am up and ready to start another long, hard PML day... I wish I coul beat up PML the way you do with your martial arts... It looks so good and so stress realicing!I thank you so much for coming to say hi, for remembering me and for writing.
Say hi to your son for me. He has a very cool dad! :)
Thanks again for the wishes and thouths,
hugs,
Angela
angelusa73 7 months ago
@angelusa73 Dear Angela You are never far from my thoughts! Last year I got married to Teni in Toronto Canada, she has had MS since 1986 and is in a power chair this did not and does not stop me loving her, she friended you on facebook and like me we both pray for you, you a a wonderful person! and we hope and thoughts give you strength to fight this pml remember you are in our thoughts lots of Love from T and T!
gekiryudojo 7 months ago
@gekiryudojo i would love to have new, great friends on Facebook... are you sure, I got an invitation? Maybe, not knowing who it was from, I didn't accept it and this wouldn't be very nice so I promise that I will accept it if you or her send iit to me again...and about the fact that she doesn't give up, she could be and probably is, an example of inspiration, strengh and determination. Please, give her a big hug from me. You are an amazing couple :)
hugs,
Angela
angelusa73 7 months ago
@sandyCanada56 thank you, Sandy.
I did miss you and I am glad you are back to write me. How are you doing? I am still dealing withe many "presents"that Tysabri gave me with PML.I hate this drug with all my ,might...it shouldn't be on the market any more because it's why too dangerous... I don't know if I will ever get better No one knows... hugs to all,
Angela
angelusa73 7 months ago
Angela, you obviously have the courage and determination to keep getting better and better. Our bodies have the most amazing capacity to heal if we give them the right food and mindset to do it with. Have you looked into diet at all? I'd recommend to google George Jelinek. He has looked at all the evidence behind non- drug interventions for MS. That's why I'm so well again :-) Love to you. Amanda (and pepper) xox
missalgernon 7 months ago 2
@missalgernon Thank you for the tip! I found the man on the internet and I saved his information, but I need to read and learn more. Thank you for thinking of me and for sharing this information. I really appreciate it. Thank you so very much and I am happy you are doing much better. I hate drugs so I find that a natural way to help control my MS would be the best way to go... :)
Thank youfor helping and for caring,
huge hugs,
Angela
angelusa73 7 months ago
@angelusa73 George's book is excellent: "overcoming multiple sclerosis". He thoroughly describes all his recommendations and the evidence behind them. I really believe it is the only logical way to fight MS. You're a sweetheart, I really wish you all the best in finding a healthier life. I know you can do it! Amanda x
missalgernon 7 months ago
@missalgernon you are very sweet and I hope that I would have a way to do the simplest things like I used to, but I am not able to because of what happened to me. I am working at getting better but things are moving very slow...I am alone in dealing with this and I am overwhealmed, so I will continue to take a day at the time, hoping tha things will improve ... I want to and need to do many things (simple ones too) but I just can't at the moment.
angelusa73 7 months ago
Angela! So good to see you again! I love your puppy! It is so cute :-) Stay strong for us, my friend!
xoxoxoxoxoxo!
WithCourage2008 7 months ago
@WithCourage2008Good to hear from you, sweet girl! I am still recovering and it's hard work but I can do it and so can everyone affected by PML. Tysabri taught me that I am strong and that no drug can get me down... I still hate drugs though and I am working on being drug free. No more Tysabri for me!! AndThis makes me happy because I was tired of suffering that much. It wasn't a good drug for me and it almost killed me.
lots of hugs and goo luck to you :)
angelusa73 7 months ago
@angelusa73 So happy to hear from you, Angela! You made my day! I am so glad you are back! We missed you so much!!
WithCourage2008 7 months ago
Comment removed
rickileeway 7 months ago
GOD BLESS YOU!
presouz 7 months ago
Dearest Angela, you're an inspiration. Brave to take the initial risk of taking Ty & still as courageous as ever to be coping so well with such horrible health problems from taking it. Love the family addition:)
rickileeway 7 months ago 2
@rickileeway I am happy when I hear that Tysabri helped other people. I just don't know them or I never met any of them and so, what I know, is the horrible experience I had that I wouldn't wish it to my worst enemy. I ask God that no more people be touched by the bad effects of this drug. I am paying the price of such decision every day and I won't be able to say anything good about it for a very long time... I just wanr ro make sure that patients are aware the danger of the drug.
angelusa73 7 months ago
This has been flagged as spam show
@angelusa73 I understand completely Angela. You are totally justified in hating this drug after what it has done to you & are doing the right thing by telling your story so people can also see this horrible side of it & I'm sure those who are doing well on Ty understand your reasons too. It's only coz your care so much. And we all care about you & just want you to get better soon:)
rickileeway 7 months ago
You are a real fighter to deal with the unfortunate outcome of a drug treatment that has done so much good for many other people. It would have been great if it had worked well for you. All drugs come with risks and we are sometimes made to make choices we really don't want to make to try and battle our ailments. I can't even imagine the toll this has put on your body and the stress it has put on you as well as Keith. Stay strong my friend. Bill :o)
OneScruffyOne 7 months ago
Thank you for your honesty and sharing the truth of how you are doing. This is the reality we need to see, we need to know what can happen with the drugs we take even if it is a low chance. Then we can make a real informed decision. Think of you all the time. I had my puppy with me when watching and she starting talking back to Victoria - true! :o) Sending love, Kerri xo
kezzcass 7 months ago
@kezzcass
Hi, Kerri! So nice to hear from you again! I missed you a ton. While I followed your great achievements with CCSVI in the wonderful country of Austrailia, I haven't been able to watch videos and write much. Sorry :)
I am still writing with one finger so I am not that fast in answering to the many messages that I receive and that make me happy like yours message. Thank you for taking the time to watch the video and to write to me. I am happy that Tysabri is out of our lives!
angelusa73 7 months ago
Thank you for your honesty and sharing the truth of how you are doing. This is the reality we need to see, we need to know what can happen with the drugs we take even if it is a low chance. Then we can make a real informed decision. Think of you all the time. Sending love, Kerri xo
kezzcass 7 months ago
{{{{{{{{{{{{Angela}}}}}}}}}}}}}} we love you and MSers all over the world are supporting you and sending you healing vibes all the time. Continue to heal my friend and remember that you are never alone; someone somewhere is thinking about you and wishing you well. Big hugs always Jay x
jaydee1508 7 months ago
@jaydee1508 Thank you, thank you and thank you some more! I continue to feel the love and the support coming from all over the world just like I did when I was dying because of the aweful Tysabri. I feel and see the healing and, one step at the time, I see the improvements from the way I was and the way I am now. It's a long way to go, I know and I am prepared for the work and the patience that this will require. The drugs that I have to take for the seizures are pretty bas, but I will make it
angelusa73 7 months ago
Angela, It is wonderful to wake up to your video this morning. Your beautiful shining spirit is a beacon to all fighting such horrible struggles. I know I speak for many many many people when I say our prayers and healing thoughts are with you always.
BrendaRaven1 7 months ago
@BrendaRaven1
Dear friend, you have been on my side for the longest time and I will never forget it. Not even PML can erase what you did for meit from my counfused thoughts. You were at my side all the way and I felt your support, love and friendship. THANK YOU with all my heart. It was good to meet someone like you
lots of thankful hugs,
Angela
angelusa73 7 months ago
I LOVE YOU ANGELA! All you videos are true and inspirational. You have become my VIDEO ANGEL. I look forward to seeing and reading your words. I THANK YOU FOR GIVING US STRENGTH TO BELIEVE IN OURSELVES. YOU HAVE ALSO HAVE SAVED US. THANK YOU AND GOD BLESS YOU. XOXO
SHIRLEYRENSHAW 7 months ago
Angela, yes, you beat PML! Your spirit is strong and you have thousands of people cheering you and sending you love. My flowers bloom in my garden and I think of you every day when I see them.
Sandra
~admin for CCSVI at UBC MS Clinic Facebook group and founding Board member for the National CCSVI Society
vislandgirl 8 months ago
nice to see you. you look and sound better despite your struggles. thank you for your inspiration. we love to hear your encouragements. thank god for pets!
christinedavi 8 months ago
@christinedavi You are right: thank God for pets/ animals and flowers! They all make me smile even when there is nothing else that can get me to do it. Victoria is way funny and she rapresents a lot in my life. And I make sure to tell her that a lot :) She eve likes to take little bites off my flowers! It's so funny and I am tryng to figure out if she is a vegetarian!!!! :)
Take good care and keep on smiling too,
hugs
Angela
angelusa73 8 months ago
I am so HAPPY today! Because your here! xoxo susan I share your place regarding these drugs! Am lucky to be here myself.
ThePennygirl 8 months ago
@ThePennygirl I wonder if scientists can find a way to make steroids even better, without the bad side effects that we all kno so very well. I am learning a lot about the side effects of the drugs that I am taking and the one for my seizures (another Tysabri gift! is pretty bad because it's making me feel like I am going crazy... while I am thankful for some drugs, I also wish they could hurt me less and allow me to be myself again.
I wish you the very best,
hugs
Angela
angelusa73 8 months ago
Angela.......You sweet sweet lady...You are a woman with so much strength...All that you did and are still going through and you are here thanking other people...I draw so much strength from you to get through things...You dont deserve to go through any of that...You are such a strong positive person...i want you to know that we all LOVE YOU and are always here with you and victoria is a cutie...You are in my prayers and heart always.....GOD bless to you, you sweet lady:):):)
auntoni51 8 months ago
@auntoni51
Thank you so much for taking the time to share these experience with me. It's important to find something good in something so aweful and so hard...and reading your kind words like yours do help.. so thank you. I really appreciate it :)
Take good care,
Angela
angelusa73 8 months ago
@auntoni51
I am so glsd that Victoria made you smile..She is super cute and I am smiling more and more because of her...She is so fyunny, even and especially when she gets into trouble! :)
thank you for the prayers and for the support,
Angela
angelusa73 8 months ago
I love you Angela :-)
ToriUTK 8 months ago
Yes .....Angela ....your dreams will come true.....
Tu che stai male.......ringrazi a noi .... e regali il pregio dell tua guarizione ...a noi ..
Una carezza per Vittoria ....e viva tua vittoria com PML....
Love You .... Angel♥
unmarediemozioni01 8 months ago 2
@unmarediemozioni01 Grazie delle gentili parole...Sei stata una delle prime a vedere il mio video! Grazie ! :) A te come vanno le cose? Va tutto bene? Spero di sentirti presto. Grazie di avrermi scritto.
Un abbraccio,
Angela
angelusa73 8 months ago
@angelusa73 ....si pikkola.... qualche angelo ha voluto cosi' stasera ....di solito a quest' ora manco ci sono al pc.. ma eccoci .
mi sono emozionata a vederti ....a sentirti ...a sentire la Donna forte che sei .... Sei meravigliosa.....nn dimenticare mai ....mai .....capito?
Io sto bene tesoro ..se' sposata mia figlia ...ed e' felice ....ed io sono felice...
Quando hai la forza farne ancora ......noi ci saremo sempre per te ..
bacio al tuo ♥ dal mio vicino ...Angel♥
unmarediemozioni01 8 months ago 2
@unmarediemozioni01 Cara Patrizia, ci vorra` tempo, tanto lavoro e tanta pazienza ma credo che migliorero` perche` l'ho fatto varie volte in passato e perche` vorrei tanto camminare meglio per tornare in IItalia... I sogni e i progetti non mi mancano mai... Guardero` avanti e cerchero` di realizzare i mie goals e cerchero` di non permettere a questa esperienza di oscurare il mio futuro...Capisco perche` cio` e` successo a me e credo che parlarne e` importante. Auguri a tua figlia
grazie
angelusa73 8 months ago
......anche se' ogni cosa per te ora e' duro .....camminare ...bere , mangiare ...
E dici che la vita nn e' vita piu' per te .....
ma devi ..e vuoi credere ... che migliorerai ......
per favore tesoro nn chiedere scusa .......mai .....
Sei GRANDE...... e....ti penso sempre ,,e stringo tua mano .. forte ..
ciao tesoro ...a presto ....
Grazie Angela.....♥ per la speranza .. x questa vita ..
Patrizia
unmarediemozioni01 8 months ago
@unmarediemozioni01 Com'e` dolce il tuo commento! Thank you so very much! I will be thinking of you tooand Iwill make sure that we can support each other this way too. Grazie ancora,
big hugs,
Angela
angelusa73 8 months ago
....... Angela... sei un ispirazione.... sei un angelo ....
fai questi video ..x aiutare il prossimo ... x chi ha problemi come il tuo ..
x cio .... sei meravigliosa.......e..un giorno vorrei essere .....solo un pocchino .....come sei tu ...
Manchi tanto in questo mondo di musica.... ma sono felice ... che ti ho conosciuta ....e abbiamo scambiate bellissime cose....
ti abbraccio forte .........e .....so' che TU... ne' andrai sempre oltre .. con un sorriso ....x noi specialmente...
unmarediemozioni01 8 months ago
Thank you Angela for your insperation and strength. You look and sound just fine. I have thought long and hard on Tysabri and weigh the benefits against the risks. It is a very hard decision to make and it is a personal one. I love you new puppy, she is beautiful!!
Love you,
Andrea
MSVlogSupport 8 months ago