Late Onset Autism or Childhood Disintegrative Disorder?

[Kyuuqsoft]

i have been diagnosed with PDD when i was 2, and now, i'm 16, i grew out of some of the symptoms of autism.

[crazyelephantofdoom]

He probably wasn't diagnosed with CDD for one of two reasons: The doctors had little knowledge on CDD or CDD will soon not exist as a catagory.

Research has shown CDD to be the same condition as late onset autistic disorder. Asperger's syndrome and PDD-NOS are also being assimilated into what shall be called autism spectrum disorder. Rett syndrome is being removed from the PDD classification, although many are opposed to this.

The treatment is the same so it doesn't really matter.

Good luck.

[emmypinkchocolate]

We suspect our has CDD. He was showed signs at birth of 'classic' autism. (Didnt like to be held facing inward, didnt like the flash from cameras, would not nurse, etc) His shots were delayed 3 years do to close family members having cancer treatments. At the age of 2 he was speaking about 20 words, then it slowly stopped. But for him its kind of odd. He will learn new things, then forget old things. Or vice versa...he will regress, then make leaps and bounds in no time in another area.

[Skymaker69]

@emmypinkchocolate Hello there- sorry to hear- you should investigate- epilepsy? Infection? Possibly both. Any regression and fluctuation has a cause- often this can be addressed- most drugs masks symptoms and do not address the cause unless of course this is with regard to an infection and the drug is an antibiotic or antiviral etc.

[Imogen1885]

PANDAS

[Skymaker69]

@Imogen1885 Likely Lyme- hehas recently been diagnosed and given that we are recovering fundamental skills, motor coordination, awarness, cognition, energy level and communication with AB treatment, it seems that we are on the right track and that infection may explain a lot our history. We still have a lot to achieve, but now we have a path to follow.

[Imogen1885]

@Skymaker69 I wish you the very best.

[mandy1000ful]

Hi, My daughter has childhood disintegrative disorder she regressed at 3 and a half upto that point she was fine..She also regressed in a short period of time 2 weeks. She has a brother whom has high fuctioning autism. She is now 10 doubley incontenient no speech. She has picca (everthing goes into mouth) I would say severly autistic licks bites..You obvousily did something right yr sons progress after regression is amazing well done you! could you tell me about bio-medical please

[Skymaker69]

@mandy1000ful My son after this developped epilepsy. Now at age 14, this issue is seriously affecting is health and function. He did improve greatly yes, but it collapsed again with both epilepsy and a normal school system that was not able to meet his needs fully. We are not back where we were at times of regression, but our challenges are major. None the less biomed can be of great help, if you have not explore this, please do,There is a lot of info outthere you can find. Good luck.

[mandy1000ful]

My daughter does not have epilepsy but after two years she regressed she got a virus which was what we all thought., In and out of hospital until on a drip ...It turned out she was severely constipated. I totally believe believe in the gut and brain. Just before my daughter regressed my partners other daughter had meningitis. The whole family had to have the anti-botitics that makes your wee go orange. Which my daughter had shortly after all her jabs. I wish you all the best and thank-you

[Skymaker69]

@mandy1000ful I see you live in the UK- some info can be found on our Autism Treatment Trust web site if you google it.

[Skymaker69]

@Elemarth

No real difference, it's only a semantic argument and it depends on who is making a diagnosis more than anything else.

[Skymaker69]

I have deleted a message unintentionally

Just curious: What's the difference between late-onset autism and CDD? Anything I can find makes them sound identical - very confusing. And how long does the withdrawal usually take, if you know? Two weeks sounds SO short!

[Elemarth]

@Skymaker69 It's so nice to know I'm not the only one who's done that!  Thanks for reposting and replying.

[bawbapgrc]

@Skymaker69 ....um.....IT'S THE FRIGGING VACCINATIONS MAN!!!!

WAKE UP!!

[nxer]

@bawbapgrc funny thing about that is the fact that there have been incidents of this sort of thing happening before the usage of vaccinations. CDD was previously known as Heller's Syndrome, named for Dr. Heller, who called this condition infantile dementia back in 1903.

[bawbapgrc]

@nxer Not familiar with that but I'll check it out.

[nxer]

@bawbapgrc i hope i don't open any sort of can of worms for you. your child is in my thoughts. i wish the best for you and your kid!!

[bawbapgrc]

@nxer Well....looks like it is some sort of rare disease that is mysterious to say the least....and it seems that alot of doctors are diagnosing it nowdays but the funny thing is that it has the same symptoms as autism...or vaccine damage....or brain damage due to the swelling caused by an infection of the brain. Is is a proven fact that vaccines can cause brain swelling and also febrile seizures.

It's the shots if there is no other explanation for the regression.

[Skymaker69]

@bawbapgrc My son was recently diagnosed with Lyme disease. There was no vaccination around the period of regression- I am not saying vaccination is not implicated in autism, but it cannot account for our specific story. Funny, is not a word I would have used in this context.

[bawbapgrc]

@Skymaker69 When you say "there was no vaccination around the period of regression"....what does that mean exactly...what kind of time frame are you talking about? Do you have any idea how your child acquired Lyme disease?

[Skymaker69]

@bawbapgrc Regression just before turning 6- Vaccinated in the US 95-98- Schedule of the time. Moved to the UK at age 2 /12. The only Vaccination received in the UK is DTP I think at age 4 1/2. No MMR booster. Lyme is common and does not necessarily lead to a rash in the EU- We walk a lot and also go camping, sometimes even in the wild, forest. We have had tics many times. The infection could have happened any time, because the onset of Lyme can be delayed.

[nxer]

@bawbapgrc i hope the answer is found soon, but there is so little research. it does have the same symptoms as autism in the way it presents, but the nature of the regression is (i don't know what you or your child went through and i'm not assuming :) ) like many other things. a strong amount of people with cdd experience epilepsy, much more than people with classic autism. my thinking is that it is a disorder with a unique etiology. i find the lack of research frustrating.

[nxer]

@bawbapgrc i mean, i've been focusing quite a bit on it. it is a project i am working on. i hope answers are found soon.

[skuby75]

my child is naw 5 at age of 3 we went on holiday in my country for few weeks but we stay 8 months because for fwe weeks hi regres dramaticly and naw behaive like a small dog bite his clothes leek the floor and windous and no one of the ecsaminations and test show anythink(metabolitik,blood,mri ,eeg)nothing.we are on GFCF diet almost 1y,karbohidrate diet from time to time supliments and homeopaty G-terapy is my hope naw have you ever try G-terapy

[Skymaker69]

Hi, I have never heard of G-therapy until I checked it out today, I don't believe in homeopathy so I will not be trying this as an approach. I think there are ways to assist children and understand the cause of their regression. Good luck in your son, surround yourself with the right people.

[stonerj0e]

he might have suffered a stroke

[Skymaker69]

Thanks for suggestions, but I think it would have showed up on a MRI scan. Though we did not get one done right away after and the scan was normal.

[ConstantC4]

I vividly remember though processes and pretty much everything when I was six years old(from 3 yrs onwards) I can't imagine loosing the ability to speak.

[killvenge]

Skymaker, I work with a child very similar to your son who has Childhood Disintegrative Disorder, he lives in a home with three other children who are all diagnosed with autism. Apparently Childhood Disintegrative Disorder is on the Autism spectrum. The boy I work with is a very lovely 12 year old, who at times, can be a handful. He was on target and verbal, until he was 18 months old. He had a seizure that caused him to lose his ability to speak. They are truly amazing children. I love them.

[killvenge]

Also, The boy I work with, I'll call him Nathan, he as well is obsessive, your son reminds me a lot of him when he was playing with the light switch. We've been told there is no hope for Nathan, that he will never speak again, and that he will always regress, which so far he has become a lot worse in the year I have worked with him. But I don't buy into that. Give your child love and attention and hope. That's all we can do. Good luck!

[Hierophant2]

It dose not sound like fun for you.

[Skymaker69]

I am assuming this is a spam- but I leave it just in case this is not. If this is not a spam, I take it you have not come across autism yet.

[Hierophant2]

I thought I was understandable. Just saying it is hard to imagine seeing your own child fall backwards. I believe it would be traumatic to think that you have a healthy child and then see them start to fall apart.

[Skymaker69]

Ok, yes, sorry- that was 7 years ago, so I have come to accept it in some ways. My son was on the spectrum before, but no where near where he is now. The epilepsy side is what is the hardest, this is hell and I cannot see how one could be comfortable with this. I know there are health issues not dealt with, I have tried very hard and still try, no one has helped me. I have been alone all that time. That too is hard.

[chromaxabc]

Misdiagnosis of autism, PDD, ADD and ADHD is reality everywhere, you can get different dianosis from different Dr.'s. I believe parent's know their children best.

[Skymaker69]

I have decided to remove all the comments on this video as I prefer to think about something else than to people incorrectly claiming a diagnosis of autism. I think it is sad and misleading to others and important to resolve eventually. But frankly, life is more interesting than this.