@teddysful That is true sir. I've had it for over a year and it will destroy your life. I used to be in MMA wrestling and all that good stuff. Used to do 200 push ups a day before bed. Now i cant even do 1 pushup without paying for it for several days if not weeks. You're not alone.. would you mind sharing some remedies you have to reduce pain?
You are an insult to people who are suffering from life threatening and real medical illnesses. Big deal that u r on iron tablets!! Most women are low in iron due to their mensural cycles!! U r a hypochondriac, what u need is to go outside & enjoy life! Be grateful for what you have. Don't complain about not having any shoes when there are people out there who have no feet!!
@Amy03s Dysautonomia=real illness. Fibro-real illness. Chostochonritis- real condition. Until you've experienced the pain someone is in maybe you shouldn't say hurtful things. Please dont underestimate "invisible" illness. I am close to so many people who suffer but people don't understand that you can look ok but be suffering on the inside.
@Amy03s No you're the insult here. You have no idea what it's like to live with costochondritis. I'll give you a little taste. Do you have kids? Well how would you feel if you could no longer pick them up? Or do playful activities with them? I don't have kids but i have costochondritis and it hurts to even open a door. And normally to people like you i would say i hope you get this so you know. But this is so horrible i dont want you to get it. i want you to stop being ignorant
Well I won't judge you I will offer some things I think everyone should know. First off I don't think we should judge people unless we have some good medical knowledge. Everytime I see someone call a chronic pain patient a drug addict it is really bothersome because most of the time they the medicine as prescribed and directed. Second pain medications are meant to restore your ability to function by REDUCING your pain not bitch about needing more pain meds because your body's pain response isn'
Sweetheart you have my full support!! It is so too bad that you have to sift through all this bullshit to find supporters like me. You should see my you tube board. I no longer read it. I did a pain eppy on intervention. learning people are just afraid that they may someday end up like us!!! BTW did you see my Intervention Episode? I did it for people like you :) Your story made me cry!!
Sweetheart you have my full support!! It is so too bad that you have to sift through all this bullshit to find supporters like me. You should see my you tube board. I no longer read it. I did a pain eppy on intervention. learning people are just afraid that they may someday end up like us!!!
I'm sorry but there is no such thing as fibromyalgia. You know who gets diagnosed with fibro? Fat, white, lonely women. Never an elderly black man. Never a young Japanese woman. No. ALWAYS fat, white, lonely women. You know what you need instead of drugs? You need a social life, a friend, some therapy to figure out why you need to be "altered" chemically to function. All those drugs from the pain clinics....all are habit forming. If you aren't a dug addict yet, you will be.
My pain is unbearble. I can't step down curbs after being on my feet for 15 min. I can't sleep. Then I come here and see how ignorant people can be. Until you spend one day in our shoes YOU need to shut up and go to somehwere else Like a site for Control Freaks!
I used to run, exercise, shop the antique malls, mow grass, raised my kids, and I loved every minute of it! I love to clean house and I love my Job with Hospice! I first was diagnosed at 27 when I started with stabbing pains in my legs, feet and Face. I am now 43 and just recently in the last 5 yrs started on the decline. I never thought it could get this bad! My legs go numb. I have been losing my balance! I can't balance a checkbook, I lose and forget things. This is a dent in Dignity
You never hear a Pharmacist scold someone for picking up their insulin for their Diabetes. I pray that the ones complaining never get this. I would not wish it on my worst enemy.
What are you people in here complaining for? You say we are complaining? Listen to you complaining. You are no better. You should be in another site called Bullying. WE do not ever ever have to explain ourselves to you. Do you ever hear people tell you that you are faking a headache when you have a migraine? There is no proof a person has a migraine. Oh and by the way some pharmacies think they are Dr.s and scold real loud when you pick up your medicine which is a violation of the hippa Law
if fibromyalgia is anything, it's laziness. just get out and do something active and you will feel better. but i guess that's the whole problem. too lazy to get off your ass, and all you do is complain.
I have had costochondritis before due to stress, and believe me its not fun. I went to the ER because I had no clue what was going on. I couldn't breathe without pain as my ribs burned as if on fire... after the docs suggested I had costochondritis, they just suggested a simple NSAID (I believe some simple ibuprofen) and it cleared it right up.
Whats the matter with some people on here?? I dont have fibro. But i have just been diagnosed with Costochondritis and it bloody hurts! Im 22 very active and healthy. But this girl is just sharing her thoughts on her pain. How the hell do you feel her pain? So to people who have not had this and dont know how it feels, shut your stupid uneducated mouths.
Fibromyalgia is a made up disease, thats what they diagnose when they dont know whats wrong. From watching this video I just think you're a hypochondriac.
Your doctor has to ask all of those questions, and is right to do so. Pain levels change; he wants to make sure the current dose and quantity is still appropriate. The problem with fibromyalgia is that it is a painful condition with no discernible cause. So doctors can't tell whether you are truly in pain or just faking it. And lots of people fake it to get pain pills, as you well know.
PAIN PATIENTS LISTEN UP!!! If you go to the pharmacy dont be dicks to us we fucking hate that and then we treat you like you want us to. If you want your pain meds dont ask for them early just wait till the date that it can be refilled. It is pointless to argue with us you will not get your oxycontin or vicodin out of us.
I can't agree with you more. I have been on both sides of the counter and I never treated ANYONE the way some pain patients have treated me. The world doesn't revolve around you and your pain. I found that when I weaned off the pain pills and quit them, I was completely OUT OF PAIN. I was diagnosed with fibromyalgia (the mystery disease) 2 crushed discs, and a torn bicep (last to get fixed). Once I got the surgeries and fixed the problems the pain went away. Try it. Seriously...
I have dysautonomia and you don't have fibromyalgia you have most likely a condition called small fiber peripheral neuropathy, I got that same diagnosis and as an RN knew it didn't fit so I found a neuromuscular neurologist who did a punch nerve biopsy and grew my nerves in a lab for a few weeks, came back they are degenerating. He also said most people with the condition are lumped in with fibro patients because it's the easy answer with a quick treatment, pain meds ur on ur way.
I am very aware of people who try to sound like the poor victims of their pain, and talk in a sweet, sad voice. The MD should have been asking you all of those questions- he is doing a good job. No one said you're a drug addict. You called yourself a drug addict. You need a good psychiatrist- the pain's all in your head.
Fake-o-myalgia! And a few other fake conditions that you mention. You must be a fucking joy @ the pharmacy counter. I bet your pharmacist gets "scumbag-junkie-itis" when you show up to pick up your Rx twenty days early.
you dont look like you are in pain because you, like a lot of chronic pain suffers, are oscar winning actresses!!! If we wanted sympathy, we would make a fuss, but we just want the medical assistance we are entitled to, and we shouldnt need to be crying or rolling around on the floor to get some codeine or buprenorphine occassionally or regularly! You have my heart felt support; but not sympathy because we dont need it: we need empathy and understanding!
I went to the ER once with a horrible migraine, they didn't believe me, they thought I was just another seeker looking to score some narcs. They gave me benedryl and regulan didn't work, told me I needed a spinal tap. At that point I didn't care. They still hadn't given me pain meds that worked. Tap comes back positive for meningitis. Immediatly they came in with morphine. The nurse told me a lot of narc seekers use migraines as an excuse to get vicoden. its sad I have the need to prove myself.
@TheMessymommy doctors r dumb,also if ur young too,i had back surgery,dumb bitch doctor thinks im going to abuse it,and she had a big fat smile to when she said that,damn doctors dont know anything about patients,i hurt to,the doctor dnt know how i feel,fucking makes me soo mad
am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going.
See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
One caveat with a contract however, no one other than my GP can give me pain meds now. So, no matter what happens I can't get additional pain meds from the ER or inpatient w/o my GP signing off on it. So far this hasn't been a problem and I ran into this even prior to having my contract.
I'd sprained both my ankles but there was a script for Midrin in my file so the ER Doc could only give me tylenol.
I get costo too. It's awful. I really hope yours gets better soon. Fwiw, mine can feel better if I find just the right angle to sit at. Heating pads or ice packs can sometimes help plus nsaids. But gosh, the last time I was dx'd in the er w/ costo they gave me vicodin no ?s asked.
I couldn't get pain meds from a regular doc until I got a pain contract. That makes things *so* much easier. I recommend it to anyone. Basically I think it is a CYA thing for my doc but
@WackyLisa I have been to the doctor 3 times for costocondritis and have had no problem getting pain meds. just mention that you have a very hard time sleeping if at all and i bet they will be throwing the pills at you. i went last week to the doctor and straight up jsut said i am here to get pain pills for my costocondritis. Most doctors know that it can be terribly painful. I feel for anyone plagued with this annoyance of a body pain. hope you get better!
@PupleHaz420 i told the doctor that,she said oh u need to exersize more,ieven had back surgery,the doctor didnt belive me,she told me ur just guunna get high off of them,
dont worry about the dr. they do make us feel like crap, but most pain meds are extremely addictive, and with all the patients they have, it's hard to remember how often everyone gets them. but they are kind of blunt about it.
Thanks! I hope I feel better too and soon! The fibro flare isn't as bad as some of the other flare-ups that I've had in the past. The costochondritis is what is bothering me the most!
What? Why would the er doctor say that?
MsSummer99 3 months ago
My doctor told me not to worry about costochondritis because it wasn't a big deal. But it hurts. It is a big deal. Sometimes I can't breath.
MsSummer99 3 months ago
@teddysful That is true sir. I've had it for over a year and it will destroy your life. I used to be in MMA wrestling and all that good stuff. Used to do 200 push ups a day before bed. Now i cant even do 1 pushup without paying for it for several days if not weeks. You're not alone.. would you mind sharing some remedies you have to reduce pain?
lilnicky47 5 months ago
You are an insult to people who are suffering from life threatening and real medical illnesses. Big deal that u r on iron tablets!! Most women are low in iron due to their mensural cycles!! U r a hypochondriac, what u need is to go outside & enjoy life! Be grateful for what you have. Don't complain about not having any shoes when there are people out there who have no feet!!
Amy03s 7 months ago
@Amy03s Dysautonomia=real illness. Fibro-real illness. Chostochonritis- real condition. Until you've experienced the pain someone is in maybe you shouldn't say hurtful things. Please dont underestimate "invisible" illness. I am close to so many people who suffer but people don't understand that you can look ok but be suffering on the inside.
GallopingCloud 7 months ago
@Amy03s No you're the insult here. You have no idea what it's like to live with costochondritis. I'll give you a little taste. Do you have kids? Well how would you feel if you could no longer pick them up? Or do playful activities with them? I don't have kids but i have costochondritis and it hurts to even open a door. And normally to people like you i would say i hope you get this so you know. But this is so horrible i dont want you to get it. i want you to stop being ignorant
lilnicky47 5 months ago
@Amy03s amen.
hinder57 3 weeks ago
Well I won't judge you I will offer some things I think everyone should know. First off I don't think we should judge people unless we have some good medical knowledge. Everytime I see someone call a chronic pain patient a drug addict it is really bothersome because most of the time they the medicine as prescribed and directed. Second pain medications are meant to restore your ability to function by REDUCING your pain not bitch about needing more pain meds because your body's pain response isn'
nateo200 8 months ago
Sweetheart you have my full support!! It is so too bad that you have to sift through all this bullshit to find supporters like me. You should see my you tube board. I no longer read it. I did a pain eppy on intervention. learning people are just afraid that they may someday end up like us!!! BTW did you see my Intervention Episode? I did it for people like you :) Your story made me cry!!
linkizzy77 9 months ago
Sweetheart you have my full support!! It is so too bad that you have to sift through all this bullshit to find supporters like me. You should see my you tube board. I no longer read it. I did a pain eppy on intervention. learning people are just afraid that they may someday end up like us!!!
linkizzy77 9 months ago
I'm sorry but there is no such thing as fibromyalgia. You know who gets diagnosed with fibro? Fat, white, lonely women. Never an elderly black man. Never a young Japanese woman. No. ALWAYS fat, white, lonely women. You know what you need instead of drugs? You need a social life, a friend, some therapy to figure out why you need to be "altered" chemically to function. All those drugs from the pain clinics....all are habit forming. If you aren't a dug addict yet, you will be.
lily125 9 months ago
@lily125 you know nothing!!!
linkizzy77 9 months ago
@lily125 i hope you get fucked by a rhino.
Callie0x0x0x 8 months ago
My pain is unbearble. I can't step down curbs after being on my feet for 15 min. I can't sleep. Then I come here and see how ignorant people can be. Until you spend one day in our shoes YOU need to shut up and go to somehwere else Like a site for Control Freaks!
teddysful 10 months ago
I used to run, exercise, shop the antique malls, mow grass, raised my kids, and I loved every minute of it! I love to clean house and I love my Job with Hospice! I first was diagnosed at 27 when I started with stabbing pains in my legs, feet and Face. I am now 43 and just recently in the last 5 yrs started on the decline. I never thought it could get this bad! My legs go numb. I have been losing my balance! I can't balance a checkbook, I lose and forget things. This is a dent in Dignity
teddysful 10 months ago
@teddysful Thank you so much for your comments!! My Intervention board looks very similar!! LOL
linkizzy77 9 months ago
@teddysful Thank you so much for your comments!! My Intervention board looks very similar!! LOL Please find me on Facebook..
linkizzy77 9 months ago
You never hear a Pharmacist scold someone for picking up their insulin for their Diabetes. I pray that the ones complaining never get this. I would not wish it on my worst enemy.
teddysful 10 months ago
What are you people in here complaining for? You say we are complaining? Listen to you complaining. You are no better. You should be in another site called Bullying. WE do not ever ever have to explain ourselves to you. Do you ever hear people tell you that you are faking a headache when you have a migraine? There is no proof a person has a migraine. Oh and by the way some pharmacies think they are Dr.s and scold real loud when you pick up your medicine which is a violation of the hippa Law
teddysful 10 months ago
if fibromyalgia is anything, it's laziness. just get out and do something active and you will feel better. but i guess that's the whole problem. too lazy to get off your ass, and all you do is complain.
swilt85 11 months ago
@swilt85 Fuck you!
linkizzy77 9 months ago
I have had costochondritis before due to stress, and believe me its not fun. I went to the ER because I had no clue what was going on. I couldn't breathe without pain as my ribs burned as if on fire... after the docs suggested I had costochondritis, they just suggested a simple NSAID (I believe some simple ibuprofen) and it cleared it right up.
madhall45 11 months ago
Whats the matter with some people on here?? I dont have fibro. But i have just been diagnosed with Costochondritis and it bloody hurts! Im 22 very active and healthy. But this girl is just sharing her thoughts on her pain. How the hell do you feel her pain? So to people who have not had this and dont know how it feels, shut your stupid uneducated mouths.
princessjodii 1 year ago
Fibromyalgia is a made up disease, thats what they diagnose when they dont know whats wrong. From watching this video I just think you're a hypochondriac.
aabron4123 1 year ago
Im gonna make your blood count zero bitch
tehslavetrade 1 year ago
Your doctor has to ask all of those questions, and is right to do so. Pain levels change; he wants to make sure the current dose and quantity is still appropriate. The problem with fibromyalgia is that it is a painful condition with no discernible cause. So doctors can't tell whether you are truly in pain or just faking it. And lots of people fake it to get pain pills, as you well know.
themessiha 1 year ago 2
PAIN PATIENTS LISTEN UP!!! If you go to the pharmacy dont be dicks to us we fucking hate that and then we treat you like you want us to. If you want your pain meds dont ask for them early just wait till the date that it can be refilled. It is pointless to argue with us you will not get your oxycontin or vicodin out of us.
laetrille 1 year ago 14
@laetrille
I can't agree with you more. I have been on both sides of the counter and I never treated ANYONE the way some pain patients have treated me. The world doesn't revolve around you and your pain. I found that when I weaned off the pain pills and quit them, I was completely OUT OF PAIN. I was diagnosed with fibromyalgia (the mystery disease) 2 crushed discs, and a torn bicep (last to get fixed). Once I got the surgeries and fixed the problems the pain went away. Try it. Seriously...
FormerPhasers1984 1 year ago
@FormerPhasers1984 not everyone is as lucky as you
linkizzy77 9 months ago
I have dysautonomia and you don't have fibromyalgia you have most likely a condition called small fiber peripheral neuropathy, I got that same diagnosis and as an RN knew it didn't fit so I found a neuromuscular neurologist who did a punch nerve biopsy and grew my nerves in a lab for a few weeks, came back they are degenerating. He also said most people with the condition are lumped in with fibro patients because it's the easy answer with a quick treatment, pain meds ur on ur way.
Zurie53225 1 year ago
Hypo-con-man.
Shattersmith 1 year ago
I am very aware of people who try to sound like the poor victims of their pain, and talk in a sweet, sad voice. The MD should have been asking you all of those questions- he is doing a good job. No one said you're a drug addict. You called yourself a drug addict. You need a good psychiatrist- the pain's all in your head.
cgoverland69 1 year ago 9
@cgoverland69 You know nothing too!!!!
linkizzy77 9 months ago
Fake-o-myalgia! And a few other fake conditions that you mention. You must be a fucking joy @ the pharmacy counter. I bet your pharmacist gets "scumbag-junkie-itis" when you show up to pick up your Rx twenty days early.
dufortrph 1 year ago
you dont look like you are in pain because you, like a lot of chronic pain suffers, are oscar winning actresses!!! If we wanted sympathy, we would make a fuss, but we just want the medical assistance we are entitled to, and we shouldnt need to be crying or rolling around on the floor to get some codeine or buprenorphine occassionally or regularly! You have my heart felt support; but not sympathy because we dont need it: we need empathy and understanding!
sarahwithstars 1 year ago
Fibromyalgia is a bs disease. Doesnt exist. Druggies.
soldotnaman 1 year ago
I went to the ER once with a horrible migraine, they didn't believe me, they thought I was just another seeker looking to score some narcs. They gave me benedryl and regulan didn't work, told me I needed a spinal tap. At that point I didn't care. They still hadn't given me pain meds that worked. Tap comes back positive for meningitis. Immediatly they came in with morphine. The nurse told me a lot of narc seekers use migraines as an excuse to get vicoden. its sad I have the need to prove myself.
TheMessymommy 1 year ago 3
@TheMessymommy doctors r dumb,also if ur young too,i had back surgery,dumb bitch doctor thinks im going to abuse it,and she had a big fat smile to when she said that,damn doctors dont know anything about patients,i hurt to,the doctor dnt know how i feel,fucking makes me soo mad
smokestorm88 1 year ago
please do not procreate. i beg of you.
pikapcl 1 year ago
Psychosomatic is the word for you my dear...
jhaughey24 1 year ago
This has been flagged as spam show
am a recovered fibromyalgic who left the care of the medical profession to discover the cause and cure for this horrific disease after 15 years of failed treatments. I understand this illness completely from the inside and back out again. Symptoms are often mistaken as a cause and what can help does not cure. Please, do not give up and keep going.
See my You Tube video "Curing Chronic Fibromyalgia - Choosing What Works" and my best wishes to you all!!!
ValerieLumley 1 year ago
Thank-you for your video. I have Fibromyalgia and also am in constant pain. Hope you feel better soon. Take care
artbydevon7273 1 year ago
One caveat with a contract however, no one other than my GP can give me pain meds now. So, no matter what happens I can't get additional pain meds from the ER or inpatient w/o my GP signing off on it. So far this hasn't been a problem and I ran into this even prior to having my contract.
I'd sprained both my ankles but there was a script for Midrin in my file so the ER Doc could only give me tylenol.
This is what has worked for me and my 2cents.
WackyLisa 1 year ago
I get costo too. It's awful. I really hope yours gets better soon. Fwiw, mine can feel better if I find just the right angle to sit at. Heating pads or ice packs can sometimes help plus nsaids. But gosh, the last time I was dx'd in the er w/ costo they gave me vicodin no ?s asked.
I couldn't get pain meds from a regular doc until I got a pain contract. That makes things *so* much easier. I recommend it to anyone. Basically I think it is a CYA thing for my doc but
it is worth it for me.
WackyLisa 1 year ago
@WackyLisa I have been to the doctor 3 times for costocondritis and have had no problem getting pain meds. just mention that you have a very hard time sleeping if at all and i bet they will be throwing the pills at you. i went last week to the doctor and straight up jsut said i am here to get pain pills for my costocondritis. Most doctors know that it can be terribly painful. I feel for anyone plagued with this annoyance of a body pain. hope you get better!
PupleHaz420 1 year ago
@PupleHaz420 i told the doctor that,she said oh u need to exersize more,ieven had back surgery,the doctor didnt belive me,she told me ur just guunna get high off of them,
smokestorm88 1 year ago
@PupleHaz420 Hahahahahahahahahahahahahahahahaha. I'm so sure.
Steph11love 1 year ago
dont worry about the dr. they do make us feel like crap, but most pain meds are extremely addictive, and with all the patients they have, it's hard to remember how often everyone gets them. but they are kind of blunt about it.
ashpauls 2 years ago
Thanks! I hope I feel better too and soon! The fibro flare isn't as bad as some of the other flare-ups that I've had in the past. The costochondritis is what is bothering me the most!
TheDysautonomiaGirl 2 years ago
congrats on your blood count :) that's great news! I hate fibro. I hope you get some relief from the pain bc it's such a pain! xo!
ashpauls 2 years ago
Stupid Doctor! Hope your pain is reduced soon xx
dancingsunbeams 2 years ago