Ankylosing Spondylitis - Living with pain...

[CitizenIstre]

Thanks for the video, I'm 41 and the docs are just starting to figure out that I have AS. I been fighting the pain since my late teens. I can relate to the pain and personality relationship and the sleeping. I have been to 3 different sets of physical therapy and have to cancel the last set because I was in so much pain, I couldn't get up and go to them. But your video has help me realize I not alone and I need to go forward. Thanks!

[daybates]

Yeah weights are great I go crossfit and it does wonders for me no pain at all , But I think it's a lot to do with the low starch diet :-)

[uniqueStephen]

Try soem weights in the gym rather than treadmill - i'm finding that it really helps.

[daybates]

Over 95% of AS patients possess the HLA-B27 antigen whilst it is present only in 8% of the general population. The Klebsiella microbe has molecules which resemble HLA-B27 and this is the reason why AS patients generally belong to the HLA-B27 group.

[daybates]

The London AS Diet

Ankylosing Spondylitis Research Clinic (Professor Alan Ebringer), Department of Rheumatology, The Middlesex Hospital UCH School of Medicine and Infection & Immunity Group, Division of Life Sciences, Kings College, London, UK

THE LONDON "AS" DIET

Low starch/high protein diet for ankylosing spondylitis patients.

It is thought that in some cases a diet low in starches found in flour products and potatoes, and high in proteins and vegetables is of benefit for AS patients.

[daybates]

Email me its my you tube name at yahoo then co uk speak soon

[daybates]

Hi I love your videos I have been up since 5 am with back pain .

I have been on a low starch diet for some time now ( it's great , very tasty , with excellent side affects :-) ) . But I have been doing a experiment three days ago I had white bread for breakfast , fish and chips for lunch and pizza with pasta for my evening meal and guess what pain is back BINGO

Give it a go you have nothing to loose but a lot a hell of a lot to gain look at my vid

You must be about the same age as me 36

[daybates]

Just stop eating pasta and go on the low starch diet .

You have to decide what is more important living a pain free life with a healthy low starch diet ( no complex carbs ) .

This diet is great when you get your head around it and very healthy great for working out and going to the gym ( I do crossfit )

Or the alternative is living with pain and taking drugs , complex carbs cause many problems in are body as we are not designed to eat these foods . Have a look at this book I bought it fro

[GustaMapache]

I like your superman t-shirt!

[GoodShipDenton]

@GustaMapache

Thanks...



[Cranelane76]

I have been dealing with this cruel mess for several years now. I got tickled when you mentioned turning your head. What I would give to be able to turn my head and look behind myself. I have been on Enbrel for a year or so now. Humira was starting to be weaker and not work so well. Unless you have AS there is no way to know how painful it is. Good luck my friend I want you to know you are not alone in this battle...

[urusol]

I am with "low dose naltrexona " do you know it ?

[trebor8nat]

i know and feel what u r saying .i have a s too.and we have the same symptoms .im just 46 y.o.

[mirrar01]

I know exactly what you mean about being constantly in pain and not realizing it isn't normal. If you complain to "normal people" they peg you for a hypochondriac, so you just assume they are simply stronger than you are....and you fight it. I probly had AS since about 17 or even earlier, but its hard to tell for sure. I'm 29 now. It took several nasty cases of iritis and back spasms to the point that I lost my job to be d'xed last year. I'm currently fighting heart involvment too. Take care!

[CatrionaBain]

hi iv watched several of ur posts and uv helped me alot. im currently going through tests cos iv been in

[gerpz456]

think yourselfs lucky i have 'Ankylosing Spondylitis,chrohns,colitis and ibs and im 20. GREAT.

[GoodShipDenton]

@gerpz456

Shit! Had to look that shit up on Google to fully understand

what your going through...

nothing I can say can really give you comfort.

I would not like to have what you got.

I hope your you've kept your sense of humour.

take it easy.

[wilko2603]

Ps thanks for the vids let's me know I'm not the only one. Bets wishes mate

[wilko2603]

I have been putting up with pain for 10years now and have also thought that I was just weak but since I have been diagnosed with AS it has made me realise that we are stronger than most people. I am now on methotrexate and it does seem to help but I am waiting for new hips and a new shoulder which I can't wait for, sooner it's done the sooner I can get back too normal. The pain does get to me but once I am at work or with friends I just get on with it they all understand my condition and I make

[CarpinKev]

I have AS & can relate to everything you say. I took diclofenec for 8+ years, but it really made me feel ill & didn't really ease the pain. I have been on Humira (Anti-TNF) for the past year & it makes a massive difference to the continual pain. I still have ups & downs though, currently just had a 6 week break from the meds as I had an unexplained (curse of the GP!) swollen foot, shit! I had forgotten how bad it was!! But when its good, it's almost not there! Hope your appointment went well!

[FrodeFalch]

haha i had the same thing when i was biking last year. :) i would only listen for cars. I could not turn around.

[baconsoda]

AS is a whole body experience. I've been breathing with my diaphragm for years but didn't realise I was changing the way I breathed. Be careful with the sneezing and try to evacuate your lungs by staying as straight as possible because I have broken almost all my ribs and sneezing was one possible cause my rheumy mentioned. Ask about Transtec 35 patches for pain relief. It's going down the morphine route but good pain relief makes other management easier.

Best Wishes, Brendan.