Ulcerative Colitis Conquering WITHOUT SURGERY : Part 1 - In a Glass House

[burgmail]

On average? Twice a day, maybe less.

[arkashhhh]

how many times 3 or more  ?

[arkashhhh]

how many times do u go to toilet ?

[arkashhhh]

does it look  like hemmorroids ?

[burgmail]

I passed blood, but no, it did not look like hemorroids (bumps).

[arkashhhh]

do u have a " heat " in z butt ?

[arkashhhh]

it feels like hem ?

[rockybudgeboa]

Very informative and well said. All the best to you, Sir

[burgmail]

Sorry I missed this comment beforehand! :(

[rockybudgeboa]

Thats okay, Sir.

I thought you were in Toronto :)

I didnt know New Brunswick is French

[mikeplayboy]

yes throughout, sigmoid and left side most inflamed although the disease extends to the cecum. the most recent flare up is still going for 8 weeks now. figure how many days ive been in remission equals (in parts) maybe 6 months in last 5 years?

[burgmail]

I understand your frustration better now. Do your remission periods coincide with use of certain medications? Are there any days when it seems to be worse? (In my case: sensitivities to a food/additive irritant, for example, can show up 10 minutes after eating, or about 24.5 hours after eating.)

BTW, I like your pic of a toilet at your computer. During my flare-up (and a flu bout this year), I longed for a toilet with a seat angling backwards and a reclining, cushioned back ideal for sleeping.

[burgmail]

I just realized the last few words are missing in my video!

Basically, the words amiss are: "...not for long."

[UCVlog]

I think the early days of ulcerative colitis are the worst, since you have no idea what your body is doing, you have no idea what it should be doing, and you have no idea how bad it can get and how fast your health can deteriorate. You seem to have gone through all of this. I'm looking forward to more videos of your story.

[burgmail]

Thanks for your interest! :) The weird thing is that how 1 can take symptoms as "normal" just because they've been there as long as we can remember, and are reversible by simple steps (ex: me catching up on sleep).

1 thing I will not mention in video is how I stumbled onto a UC message board and saw 2 people say how they'd had a flare-up 1 month after eating sushi. I ate sushi for the 1st time... 1 month before my 1st flare-up. 2nd time: close to a flare-up. Right then, I said: never again.

[burgmail]

Oh, yes, and one more comment: That "hmv" t-shirt is on me because I have yet to change clothes from my part-time shift at HMV in the local mall. Unintentional (and slightly regretful) brand placement: my apologies.

I must say that the opinions and ideas espoused here are not representative of those of HMV, or even the local campus radio station.

[rockybudgeboa]

Very good video once again Sir. What HMV do you work at>?

[burgmail]

Thanks RBB! :) I work at the HMV in Moncton, New Brunswick (store 907).

[rockybudgeboa]

My Husband has Ulcerative Proctitis. Are you familiar with that? He uses Salofalk but does it to his regimen and not what the Dr prescribed, I am not happy

[burgmail]

Hmmm... not familiar with Salofalk... When you say "does it to his regimen", you mean he doesn't follow doctor's orders? Though overprescribing is dangerous, I lowered my Asacol dose without my allotropic ("family") doctor's knowledge, although my naturopathic doctor approved my choice. In the end, Asacol did very little to ever help me, it was just because I was force-weaned off Apo-Prednizone ("Apo" = "generic") and my symptoms were returning that I stayed on it... until I found much better.

[rockybudgeboa]

It means he does it when he wants too, once every two weeks instead of twice a week. It is a enema :(

[burgmail]

Hmmm... I consider myself lucky I've never had to give myself an enema in relation to my UC. If he's comfortable for most of the two-week period, maybe that's not a bad thing. If he complains after three days... well, maybe that's a clue there. But if he doesn't complain for most of two weeks, I'd say he _could_ be listening to his body. The bottom line: I can't say for sure, as he's the one who knows.

[rockybudgeboa]

I still think he should go and see his Upper GI Dr

Its Dr Gordon Greenberg at Mt Sinai in Toronto

[arkashhhh]

what  is it ????

[burgmail]

Despite being numbered "Part 1", this is a follow-up video to my "Prologue" of the same name. I suggest you view that one as well, in order to get a feeling as to how I'm now living symptom-free, WITHOUT surgery and NO LONGER using drugs (for at least 4 years now).

I was going to wait until Friday to post a follow-up video, but I thank fellow YouTube user mikeplayboy for sharing his concern that I did not understand the suffering of people with UC. Here, I share how I suffered before drugs.

[mikeplayboy]

good vid, keep them coming...maybe you can convice me to postpone my surgery. I have pancolitis btw.

[burgmail]

Ouch, throughout the large intestine? I don't recall how deep my colitis went during my first flare-up, though I was told the associated _bacteria_ was found throughout... How long have you been experiencing your most recent flare-up (i.e. have you ever been in remission)? I admit the weaker/the more affected the large intestine is, the more foods it has difficulty with. As soon as mine got healthier, I could eat 90% of the things I couldn't eat before almost immediately. Best of luck to you.