Added: 4 years ago
From: MsVirgo24
Views: 2,525
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  • My name is Natalia I am 24 I have leaved nearly my entire life without seeing another child with NKH. My little sister was born with it the doctors said we'd be lucky if she made it through the night she lived 11 years.

  • Thank you. We have a seven month-old granddaughter with NKH. Making good progress by the grace of God. But of course, al ong way to go.

  • Amazing video, thank you so much for posting it.

    Our own some Alex had the neonatal form and only survived a few days.

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