Very interesting program. Thanks for uploading it. It's pity more people haven't seen it. Just a suggestion. If you go "My Videos" then "Edit" you can put some "Tags" on the first part. Things like "CFS" "CFS/ME" "Chronic Fatique Syndrome" "Myalgic Encephalomyelitis" etc. AS it is now the youtube search engine is only picking up "me" and I think thats why your vids are not as well seen as they should be.
I don't have time to do this, although agree that these ideas are good. I'm not too good at uploading stuff to YT and I will try to learn how to do the things you suggest when I've got the time and energy. Thank you for your inspiring comment. Liz. :o)
Those (ytgkvx) who wrote this benefited from my efforts in applying for Disability Living Allowance on their behalf, that increased their income by over £30pw, supplied a free Internet connection for over a year and wrote numerous letters to assist their water bill. This is how they thank me! With (so called) friends like that, who needs enemies?!!! :o(
@ytgkvx Wrote: ytgkvx Block User "the woman who put this website is a liar and fraud who pretends to have m e what a bitch" they also wrote: "m e is bullshit. fraud" and: "slander thanks for the letter i shall forward it to our lawier along with testimony from other residents see you in court liz also heard youve moved out and not here till after christmas !"
Kelly Kinnaird and Daren Nesbit live at Flat 3, Baird House, 45-47 Chapel Park Road St. Leonards-On-Sea, East Sussex, TN37 6JB, UK
The man with a beard is a complete idiot, as is the woman with the big earrings. They have probably recovered from a mental disorder that made them a bit tired, and not the serious neurological illness ME.
Well over 80% of people with ME never recover. A quarter are housebound or bed bound . Some spend their lives in darkened rooms unable to talk, walk, or swallow.
I have been housebound with ME for 21 years. There is no effective treatment.
The man with the beard was Michael Van Straten - he was probably there to promote his books!
sophizzy 9 months ago
They get better by 'eating well'
Thank you for that elaborate, thoughtful, almost forensic like analysis.
Quilp
Pawson424 2 years ago 2
Very interesting program. Thanks for uploading it. It's pity more people haven't seen it. Just a suggestion. If you go "My Videos" then "Edit" you can put some "Tags" on the first part. Things like "CFS" "CFS/ME" "Chronic Fatique Syndrome" "Myalgic Encephalomyelitis" etc. AS it is now the youtube search engine is only picking up "me" and I think thats why your vids are not as well seen as they should be.
ShowalterdontlikeME 2 years ago
I don't have time to do this, although agree that these ideas are good. I'm not too good at uploading stuff to YT and I will try to learn how to do the things you suggest when I've got the time and energy. Thank you for your inspiring comment. Liz. :o)
hoofbags 2 years ago
the woman who put this website is a liar and fraud who pretends to have m e what a bitch
ytgkvx 2 years ago
Those (ytgkvx) who wrote this benefited from my efforts in applying for Disability Living Allowance on their behalf, that increased their income by over £30pw, supplied a free Internet connection for over a year and wrote numerous letters to assist their water bill. This is how they thank me! With (so called) friends like that, who needs enemies?!!! :o(
hoofbags 2 years ago
@ytgkvx Wrote: ytgkvx Block User "the woman who put this website is a liar and fraud who pretends to have m e what a bitch" they also wrote: "m e is bullshit. fraud" and: "slander thanks for the letter i shall forward it to our lawier along with testimony from other residents see you in court liz also heard youve moved out and not here till after christmas !"
Kelly Kinnaird and Daren Nesbit live at Flat 3, Baird House, 45-47 Chapel Park Road St. Leonards-On-Sea, East Sussex, TN37 6JB, UK
hoofbags 1 year ago
The man with a beard is a complete idiot, as is the woman with the big earrings. They have probably recovered from a mental disorder that made them a bit tired, and not the serious neurological illness ME.
Well over 80% of people with ME never recover. A quarter are housebound or bed bound . Some spend their lives in darkened rooms unable to talk, walk, or swallow.
I have been housebound with ME for 21 years. There is no effective treatment.
Bluebottle83 2 years ago 5
I love the way the man with the beard says 'most people with ME get better'.
Incredible lack of education into this illness. Even those in denial accept that 1 in 4 (25%) or there abouts are housebound or bedbound.
I wonder if in his mind 1 in 4 is not a significant proportion?
Being that statistically, 92-98% of ME don't return to previous levels of health, I think he may be lying somewhat, and on national tv to boot!
luminescentfeeling 2 years ago 5