Ben (My Story So Far...)

[paiger11910]

i feel so bad :(

[bensmum2008]

hi everyone, just to let you know that Ben is still with us and doing very well. I will put another video on here soon I promise, it's just having the time!!! xx

[jjac31456287]

aww precious lil guy i hope he is well now.

[209esperanza]

i can only cry cry if i see this my son had 5 operations iam so lucky his still in my life glad ben made it too wish you alll the luck and happiness

[birds16ful]

I have a friend with the name is Ben Schlecht & I think he has Asperger Syndrome.

[Padrobus]

Thank you PriceDeity. How old are you?! Ben is doing well thanks x

[PrinceDeity]

I hope Ben get through the surgeries. And if it makes you feel any better, I got through all the surgeries just fine.

Oh, and a little thing you may want to know, his hands, feet, and lips may randomly turn purple at times, but it;s alright (this mostly happens when I get cold)

[MarleneSB]

Our little grandson Max was exactly the same and he has his third procedure this year. On Saturday he will be 4 years old - a miracle when we look back and what a joy he has been to all of us. Each day is so precious and have you noticed that when our special children smile, they light up a room?

[bensmum2008]

Thank you everyone and talhateen101, i am so sorry for your loss (((((hugs)))) xxxxxx

[somer360]

my daughter has HRHS and they told us she wouldn't make it to her second birthday but she is now four years old and staying strong. so, hang in there ben, miracles happen!

[bensmum2008]

Thanks for all the comments. Ben is still doing well. He has recently turned 1 (a huge milestone!)I will post some more video compilations on here soon, just struggle to find the time x

[wcroyston]

My son is HLHS and now 5 years old. He is so amazing -we are so blessed - you would never imagine his struggles early on when you look at him now. God took a very difficult situation and turned it into a huge blessing! The road will never be easy as the parent of an HLHS child, but remember that God chose you to be Ben's parents, and you are blessed!

[talhateen101]

my baby is five months old and he has the condition. good luck to you and your family.

[weestee82]

make that two people bens mum... keep her lit wee soldier.. hope hes came throught the glenn ok now xx

[mauimother23]

Inspiring thats all I can say

[josuelazo]

Thank you guys for posting such an inspiring story. We just found out that our baby boy(Benjamin) has HLHS. He is due on November.

[lynnbrum]

This is beautiful !!!!! Gorgeous Video

Ben your a true star

Lynn & Louis X

[kezzmiester]

wow what a beautiful video it moved me so much i had to comment and i just want to say thankyou to subscribing to our videos,i hope i can reach out to all with the awareness videos and congrats to your very beautiful and educational video on hlhs woohooooo "RAISING AWARENESS TOGETHER!!!"

[bensmum2008]

I'm so glad! That is what I wanted (to give hope to at least one person in the same situation). Hope all is ok.

We now have a camcorder so I will be uploading some videos we have recently made of Ben as to an update.

Ben's mum xx

[pikypan]

I have seen this video like 30 times, my baby has HLHS and the same thing happened to him (infection), and he is a month of age and we still in the hospital, we're going to be here for another month. This video give me hope every time i'm sad!!