Added: 4 years ago
From: MGFI
Views: 3,731
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  • Please tell me how I can get this video. I have Lupus, another "unseen" and chronic auto-immune disease that is very prevalent and deadly. I'm doing my best to bring awareness to Lupus as well.

  • Greetings,

    Also have this. Was diagnosed about 8 weeks ago. First noticed Double Vision then slurring of my speech. Went to Dr. and he found or diagnosed it in a few luckydays. I did have a "Crisis" about two weeks ago and had to be air flighted to a much larger hosp. in NW PA. I was almost DOA due to respiratory failure.

    I'm now under controlled meds and seem to be getting well from this last attack but also know this is a controlled disease and no real cure for it. Good Luck. :)

    TheKaneGuy

  • 11,000,000 women...men have it too

  • Beauty does lie! So true, so true! I have had MG for 22 years. Because I usually look OK on the outside (I've never really has ptosis), most people do not understand that I am weak and exhausted on the inside. Thanks for sharing this information.

    Jen

  • Awesome videos on this channel. I just saw a link posted in response to a story about a myasthenic woman on quad-cities online paper (I'm not from there, but, I get google to send me notices anytime there is a story about MG).

    Way to keep educating people. :-)

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