It is important that you look at your work history and determine if you had even one day exposure to Beryllium. Sarcoidosis is ruled out and Chronic Beryllium Disease is the diagnosis if you have ANY exposure to Beryllium. Of course Brush Wellman would not want you to know this.
I have sacrcoidosis and have found drinking rooibos tea with fresh ginger, cayenne pepper and manuka honey helps enormously. Also I found drinking iron rich water helped as well.
Just went to my first prenatal visit and found out i have this sarcoidosis, so I am a high risk pregnancy. Im kinda afraid.. I hope my baby is healthy..never heard of this disease before
@chj201 I also was diagnosed in 2005 after suffering what I thought to be a chest infection for three months my kidney function dropped to below 16%..I too took prednisolone...thankfully at the moment its kind of under control although my kidneys are at 57% and I get breathless easily.
I was diagnosed with Sarcoidosis in 05. Mine were huge skin lesions on my nose, mouth which disfigured my face, arms, legs and back of the neck which were sensitive to the touch. Thank God my breathing was never really affected. After being on Prednisone its presumed to be in remission. My wife and children were a huge part of my recovery always encouraging and willing to look past what was obvious which was a husband and dad with a disfigured face. God bless those who endure this disease.
Ok i got diagnosed with (neuro) sarcoidosis n 06. they caught mine early.. neuro because it caused me to go blind n my left eye.. prednisone is so not da drug to be on. i alrdy had panic attackz frm goin thru this and that drug INDUCED them even worse. itz listed as a side effect. I then went to methotrexate which got on my liver too much.. nw im on mychophenolate or cellept da original name for it.. bn on it since 07 and doin great. docz say sarcoidosis can go away without reason..just dependz.
I worked at the Hanford site In Richland Wa. back in the late 70's now I am suffering with many health issues May of 2006 what I was diagnosed with sarcoidosis & at the same time I was diagnosed with sarcoidosis I was also diagnosed with Sjogren's syndrome. Is there anyone else out there like me? JPTL2
Typical fear mongering press not mentioning the fact that in the vast majority of cases reported go in to remission, and the disorder never presents itself again.
I was diagnosed in 2005, I didn't realize this was such a terrible deadly disease. Well if it kills me better it then cancer. After my diagnosis I quit going to the doctors. I figured what insurance didn't cover was costing me to much. I have shortness of breath, a constant cough and SEVERE arthritis. I have never treated my body like a temple, more like an amusement park. I may have brought this on my self. Knowing this I refuse to feel sorry for my self or admit defeat. I work thru the pain a
Fascinating information and I hope that more exposure and resources are gathered to effectively fight this terrible disease. Some one that I love lost her mother to this and it help open my eyes to this little knowned disease. My best wishes to all who are affected.
I found out 2 years ago that I have it. This is a very tough disease. I am 38 now. It is a daily struggle but I will not let it get me down. For those who are having coughing problems I started on Symbicort and it helps a lot. If anyone out there has any good advise please share. Most Dr'S I have seen have been of no help. Good Luck ! ! !
Fight for yourself! Make sure to find a doctor that will give you the imaging (especially chest ct) and other tests necessary and that you are treated seriously.
I was given the run around by many doctors and now I have an EF of 30 and can't even walk to the bathroom without almost passing out. My lungs and heart are a mess. My docs finally started looking for an autoimmune problem, and takine me seriously, when I had chronic uvetis and chronic pneumonia.
I work in a hospital in the UK and the hand soap that is used to combat MRSA was giving me health issues. I would feel dizzy and disorientated as well as get short of breath. 1 year later I have developed Sarcoidosis on my lungs. I am 30
I have this and sometimes I wake up because I cannot breathe and sometimes I cannot even move I am in to much pain for anyone who has this I say get checked ALOT... mine was found by accident and too late ;(
Thankyou very much for this info, Ive just been diagnosed with this myself.
I had a lump appear on my forehead, had it removed and the biopsy came back positive for sarcoidosis, funny thing is I wouldnt have known otherwise...I dont feel sick or anything, made me wonder how common this condition might really be...but people mabey dont know they have it.
Itroonster1 your in the UK Too arent you ,This is just a thought but do you think the Chemtrails could be causing it ? I got Astma last year after spending lots of time filming outdoors ,I was all right one day then the next I was gasping for breathe ,I think chemtrails are too blame for many getting Astma in the last few years its increased in the UK With haarp nano technology and sulphur dioxide in the enviroment its possible. Hope you get rid of it soon x
Ive been looking it up quite abit recently, there is apperently evidence its somthing in the environment not sure if by that they mean personal environment eg: workplace
or everywhere....I have read a few reports linking it to chemtrails in a kind of morgellens type of way, thanks for the good wishes mate.
no, it can just disappear. your doctor will tell u this. for me at 25 i felt like crap once in a while, i couldnt breath and at night id wake up gasping, it forget to breath and stuff. but im 29 now and the specialist told me i can be discharged.
im doing good but it can come back, though he said i had a touch of it back then. i quit smoking i tell ya back then and its done wonders for me and its still getting better.
Cell wall deficient bacteria, cause sarcoidosis. They are also known as mycoplasma , L forms, mollucites, or nanobacteria, I even heard them refered to as somnatids.
They are so tiny and they have no cell wall so they find a cell,... YOUR CELLS. Now they have a perfect hiding place. Your doctor wont even know this. However, Trevor Marshall have devised "The Marshal Protocol" and treats patients with an antibiotic called minocycline to kill the bacteria.Others are using Bob Beck protocol.
Good vid, thanks 4 posting. Have had sarcoidosis since 1999. Its in my broncial tube and area lymph nodes. It lowers you immune system and so does the medication. Ive survived 4-5 lung infections but now an x-ray showed something called pulmonary fibrosis, waiting 4 more testing. Get a good pulmonoligist , mines at MN Lung Center Abbott Hospital Minneapolis Minnesota.
It is important that you look at your work history and determine if you had even one day exposure to Beryllium. Sarcoidosis is ruled out and Chronic Beryllium Disease is the diagnosis if you have ANY exposure to Beryllium. Of course Brush Wellman would not want you to know this.
93advocate 2 months ago
I have sacrcoidosis and have found drinking rooibos tea with fresh ginger, cayenne pepper and manuka honey helps enormously. Also I found drinking iron rich water helped as well.
fiveredpears 5 months ago
Just went to my first prenatal visit and found out i have this sarcoidosis, so I am a high risk pregnancy. Im kinda afraid.. I hope my baby is healthy..never heard of this disease before
JodiSherwood 6 months ago
@uktruthseeker2009 I used to always be working on cars...they say there's a link with diesel fuel...I'm in the UK too if that's a help
colinclarke1000 10 months ago
@chj201 I also was diagnosed in 2005 after suffering what I thought to be a chest infection for three months my kidney function dropped to below 16%..I too took prednisolone...thankfully at the moment its kind of under control although my kidneys are at 57% and I get breathless easily.
colinclarke1000 10 months ago
I was diagnosed with Sarcoidosis in 05. Mine were huge skin lesions on my nose, mouth which disfigured my face, arms, legs and back of the neck which were sensitive to the touch. Thank God my breathing was never really affected. After being on Prednisone its presumed to be in remission. My wife and children were a huge part of my recovery always encouraging and willing to look past what was obvious which was a husband and dad with a disfigured face. God bless those who endure this disease.
chj201 1 year ago
Ok i got diagnosed with (neuro) sarcoidosis n 06. they caught mine early.. neuro because it caused me to go blind n my left eye.. prednisone is so not da drug to be on. i alrdy had panic attackz frm goin thru this and that drug INDUCED them even worse. itz listed as a side effect. I then went to methotrexate which got on my liver too much.. nw im on mychophenolate or cellept da original name for it.. bn on it since 07 and doin great. docz say sarcoidosis can go away without reason..just dependz.
40mbooh 1 year ago
outcomes are worse for black women then any other group. For us there is NO REMISSION
jemmyd1 1 year ago
This has been flagged as spam show
15 minutes ago
I worked at the Hanford site In Richland Wa. back in the late 70's now I am suffering with many health issues May of 2006 what I was diagnosed with sarcoidosis & at the same time I was diagnosed with sarcoidosis I was also diagnosed with Sjogren's syndrome. Is there anyone else out there like me? JPTL2
jptl2 1 year ago
Typical fear mongering press not mentioning the fact that in the vast majority of cases reported go in to remission, and the disorder never presents itself again.
Motherfella 1 year ago
I was diagnosed in 2005, I didn't realize this was such a terrible deadly disease. Well if it kills me better it then cancer. After my diagnosis I quit going to the doctors. I figured what insurance didn't cover was costing me to much. I have shortness of breath, a constant cough and SEVERE arthritis. I have never treated my body like a temple, more like an amusement park. I may have brought this on my self. Knowing this I refuse to feel sorry for my self or admit defeat. I work thru the pain a
vf12497439 1 year ago
Fascinating information and I hope that more exposure and resources are gathered to effectively fight this terrible disease. Some one that I love lost her mother to this and it help open my eyes to this little knowned disease. My best wishes to all who are affected.
saalakhanREBORN 1 year ago
I found out 2 years ago that I have it. This is a very tough disease. I am 38 now. It is a daily struggle but I will not let it get me down. For those who are having coughing problems I started on Symbicort and it helps a lot. If anyone out there has any good advise please share. Most Dr'S I have seen have been of no help. Good Luck ! ! !
twocreekfarms 2 years ago
Fight for yourself! Make sure to find a doctor that will give you the imaging (especially chest ct) and other tests necessary and that you are treated seriously.
I was given the run around by many doctors and now I have an EF of 30 and can't even walk to the bathroom without almost passing out. My lungs and heart are a mess. My docs finally started looking for an autoimmune problem, and takine me seriously, when I had chronic uvetis and chronic pneumonia.
Don't give up!
keltobin 2 years ago
This has been flagged as spam show
Sarcoidosis, fibromyalgia, CFS, etc. can be beat...
two words: MARSHALL PROTOCOL
read about it on
bacteriality . com
fetymann 1 year ago
Sarcoidosis, fibromyalgia, CFS, etc. can be beat...
two words: MARSHALL PROTOCOL
read about it on
bacteriality . com
fetymann 1 year ago
I work in a hospital in the UK and the hand soap that is used to combat MRSA was giving me health issues. I would feel dizzy and disorientated as well as get short of breath. 1 year later I have developed Sarcoidosis on my lungs. I am 30
tyron26musikman 2 years ago
@tyron26musikman Do you honestly believe that soap gave you sarcoidosis?
Motherfella 1 year ago
@Motherfella
No I don't.
tyron26musikman 1 year ago
Bernie Mac died of it =(
ShadowGirliee 2 years ago
I have this and sometimes I wake up because I cannot breathe and sometimes I cannot even move I am in to much pain for anyone who has this I say get checked ALOT... mine was found by accident and too late ;(
ROFLSoldiers 2 years ago
I just was told I have this!! :(
djianbooth 2 years ago
Medicines never do, treat the symptoms and create something else.
RadioTrunews 2 years ago
Does anyone know a doctor that specializes in sarcoidosis around the heart..?
telly2482 2 years ago
Thankyou very much for this info, Ive just been diagnosed with this myself.
I had a lump appear on my forehead, had it removed and the biopsy came back positive for sarcoidosis, funny thing is I wouldnt have known otherwise...I dont feel sick or anything, made me wonder how common this condition might really be...but people mabey dont know they have it.
ltroonster1 2 years ago
Itroonster1 your in the UK Too arent you ,This is just a thought but do you think the Chemtrails could be causing it ? I got Astma last year after spending lots of time filming outdoors ,I was all right one day then the next I was gasping for breathe ,I think chemtrails are too blame for many getting Astma in the last few years its increased in the UK With haarp nano technology and sulphur dioxide in the enviroment its possible. Hope you get rid of it soon x
UkTruthSeeker2009 2 years ago
Ive been looking it up quite abit recently, there is apperently evidence its somthing in the environment not sure if by that they mean personal environment eg: workplace
or everywhere....I have read a few reports linking it to chemtrails in a kind of morgellens type of way, thanks for the good wishes mate.
ltroonster1 2 years ago
This has been flagged as spam show
Sarcoidosis, fibromyalgia, CFS, etc. can be beat...
two words: MARSHALL PROTOCOL
read about it on
bacteriality . com
fetymann 1 year ago
i have this....in my lungs...im in good health though
Sm00thCriminaal 2 years ago
so if you have one out break does that mean it will come back over and over again
MCCRIDLEY 2 years ago
no, it can just disappear. your doctor will tell u this. for me at 25 i felt like crap once in a while, i couldnt breath and at night id wake up gasping, it forget to breath and stuff. but im 29 now and the specialist told me i can be discharged.
im doing good but it can come back, though he said i had a touch of it back then. i quit smoking i tell ya back then and its done wonders for me and its still getting better.
Sm00thCriminaal 2 years ago
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mdboyholla 2 years ago
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mdboyholla 2 years ago
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mdboyholla 2 years ago
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mdboyholla 2 years ago
Cell wall deficient bacteria, cause sarcoidosis. They are also known as mycoplasma , L forms, mollucites, or nanobacteria, I even heard them refered to as somnatids.
They are so tiny and they have no cell wall so they find a cell,... YOUR CELLS. Now they have a perfect hiding place. Your doctor wont even know this. However, Trevor Marshall have devised "The Marshal Protocol" and treats patients with an antibiotic called minocycline to kill the bacteria.Others are using Bob Beck protocol.
christolz 2 years ago
Good vid, thanks 4 posting. Have had sarcoidosis since 1999. Its in my broncial tube and area lymph nodes. It lowers you immune system and so does the medication. Ive survived 4-5 lung infections but now an x-ray showed something called pulmonary fibrosis, waiting 4 more testing. Get a good pulmonoligist , mines at MN Lung Center Abbott Hospital Minneapolis Minnesota.
LYAL650 2 years ago
I hope everything works out for you
MCCRIDLEY 2 years ago
my mom recently dx, i know nothing about this.. she seems to have same issues i do having MS. (mother and son fatigued together LOL)
skullroses 3 years ago
my mom has sarcoid mostly on her heart and lungs she also has conjestive heart failier
i am only 13 years old im worried about her
lefty4694 3 years ago
i was told that was a possibility and it scared the hell out of me to be honest...i wish your mom all the best for the future.
Sm00thCriminaal 2 years ago
Diagnosed with it 2
jptl2 3 years ago
me too, since 2000
euniqua74 3 years ago
Really well done and in-depth reports on sarcoidosis. The reporter is out of Watertown, NY.
Herb92999 3 years ago