Living with Multiple Sclerosis - 1 week after Tysabri

[perryhtc]

Chronic Mercury poisoning.

Make sure no Amalgam in your teeth, eliminate Mercury from your body and get well.

[tclemente2010]

She has numbness in her legs and arms. The only reason she was tested was because she was at a friends house and she started shaking uncontrollably and couldent talk very well. They thought it was a stroke but through MRI they found out it is MS.

[laurenvparrott]

@tclemente2010 I see - please write any time if you have questions!

[ppp967tt]

@tclemente2010 Hi. I was diagnised 12 years ago and I just wantes to say, whenever I am feeling depressed I watch your videos and I feel better and am ready to jump on the, merry -go - round again...

[chickashachicks]

Your video has helped me so much. I needed to hear this. I will be starting Tysabri soon. My voice is already shaky at times. I wonder how it will sound after the injection. This is my daughters acct. I am 33, lol. I was diagnosed 2 yrs ago, with symptoms started bout 10 yrs ago.~~~~~Debi

[laurenvparrott]

@chickashachicks Hi Debi!! I'm so glad this video was helpful! I really hope Tysabri can help you as much as it has helped me! I wish you the best, and please write any time!

[chickashachicks]

I will be starting Tysabri soon. Your video has been very helpful. My voice is already shaky, so I wonder what it will sound like after my first infusion? People that are not looking at me when I am talking, ask me if I am crying...I just say no and go on. I was diagnosed with MS 2 yrs ago. Symptoms for last 12 yrs. I will continue to watch your video's, I appreciate them. You are helping me, I needed someone like you.~~~Debi

[rus369]

PLEASE CHEK OUT AMPYRA I FOUND IT THE BEST MS PROVEN MEDICATION IT WORKS REALLY  IT WORKS

[bellasXbutterfly]

Your story has helped me so much. My friend has MS and its been really hard on the both of us. I worry so much about her, but your story gives me so much hope that she'll be okay. Like you, she is a very positive person. I cannot imagine what people with MS must go through daily. Thank you for sharing your story. You are so inspirational! God Bless you Always!

[laurenvparrott]

@bellasXbutterfly Oh that's wonderful! You are so sweet to your friend! And thank you very much for your kind words! I'm so glad she is a positive person...that's crucial. You are so sweet! God bless you too!

[Lobos222]

You are kinda pretty. I know this video is old and youre probably not shaking anymore, but il tell you what my impression of your shaking was.

At first I though you where just nervous and happy, because of the smiling, and it really just brought out the protective feelings in me as a male. Kinda strange how we humans work, but if the shaking returns you can at least feel confident in the fact that you will have male friends in a "protective mode" around you. Continued good luck Lauren. :)

[laurenvparrott]

Thank you for writing! It is strange how we humans work! Luckily I'm not shaking like this anymore, but you're right...if it happens again I will have male friends in a "protictive mode" around me!

Wishing you the best!

Lauren :)

[avenusbabe]

Lauren, you remind me of my first symptoms. I was diagnosed in '94 with remitting remission. Tears were in my eyes from watching and remembering those types of symptoms on the nervous system. I started on Beta Serran then was placed on Avonex- weekly muscular injection and have had very few exacerbations since... I wish you the best of Luck with the Tysabri though!!!! Each case is different!!! I admire your strength!!! Your boyfriend is awesome!!! God Bless!!! Christina

[laurenvparrott]

Hi Christina! Thank you so much for writing! I am so glad that Avonex is working for you! Please keep in touch - God Bless!

[amandamht]

You are such an inspirations to many, We thank God for you. I also watched video the one you and your loving boyfriend. What a couple!!

I am so blessed to run into your video while I was looking for a real life case study on MS. I am a new graduate occupational therapy, I am studying for board exam now, can't wait to be certified and licensed, become an occupational therapist practitioner, wishing that I can be any help to many lives. You are on my prayer list. Keep that beautiful smiles.

[laurenvparrott]

Thank you so much for your message! That means so much to me! I wish you lots of luck on your board exam, and becoming an occupational therapist. I really appreciate what you are doing!

[amandamht]

You are such a beautiful girl, in and out, a beautiful smile and attitude. God bless you and I will be thinking of you and pray for you with all my heart. A cure is on its way.

[laurenvparrott]

Wow, that is so kind - thank you so very much!

[isa2222]

Thanks fir responding It is inspiring and I will enquire a bit more to my neureologist

[isa2222]

How long have you been on tysabri now ? how many jifusions have you had and when did you start ?

[laurenvparrott]

I started Tysabri in October of 2007 and I've had 14 infusions. I really do feel great!

[bobboberan]

joy is what I see here watching and listening to your joy was great my father passed away from MS in 1999 I guess that was probably before Tysabri .

[laurenvparrott]

Oh thank you. I'm so sorry that your father passed away - I'm assuming that his medication wasn't working for him and his body couldn't fight off his MS. I hope you're doing well!!

[bobboberan]

hi laurenvparrott

thanks but it was for the best , the doctor cut dad off from everything because it was getting too rough and hard on him but like you he was very positive and very happy always joking around ... it was fast, I saw him on the way out to my honeymoon came back 3 weeks later and he couldn't even talk .He lived for 11 years from diagnosis but he had MS for a very long time .I'm glad there are better treatments nowadays . I see good results in your videos

[villagodzilla]

There have been two new cases of PML (a usually fatal brain disease) amonst those on Tysabri. This was reported on August 1st. This is a worry because those affected were not on any other therapy , as in the three 2005 cases.

[laurenvparrott]

Yes, I know about what happened. However, they didn't report their new symptoms for weeks and didn't get treated right away. I've talked to me neurologist and I feel confident in taking Tysabri. Thank you for telling me!

[laurenvparrott]

Hello! Gosh, it's hard to answer that because medication works differently for everyone. I've never been on Rebif but I know people who are taking it and are doing well. I've been on Tysabri for 9 months now and I'm feeling amazing.

I know doctors have their favorites, but I'm sure your neurologist will recommend the best medication for you.

I love Tysabri, so I'm a little biased!! Good luck and keep me posted!

[laurenvparrott]

Thank you - you are sweet :) Good luck with everything!

[omexmc80]

I got diagnosed with MS on the 25th march 2008. I am very scared, but I have to say your videos are really helpful.

Thank you very much..

Omar

[laurenvparrott]

Hi Omar!

I'm so glad that you found my videos helpful. I wish you the best and please write anytime!

Lauren

[omexmc80]

thanx lauren.

its good to know somebody is here for me to talk to who will know what im going through.

thanx again

omar

[ohiomike5150]

You are a ray of sunshine... beautiful inside & out. My wife has MS and I'm a firm believer in positive attitudes work... that and a good support system. Keep up the good work and always keep your chin up... things will work out. It's nice to watch your videos. I think they will certainly help many others that are going through the same type of thing. Take care & God bless you and your family.

Sincerely,

MikeC

[laurenvparrott]

Hello Mike!

Thank you very much for writing. I wish you and your wife the very best! God Bless!

Lauren :)

[intrepidstar]

Hi Lauren,

Many, many thanks for posting these videos of both your MS experiences and also of Tysabri.

I've been frantically researching Tysabri over the last few weeks - I've got an MRI in two days, then in two weeks I get my first Tysabri infusion after two years of Avonex.

Keep up the posts and all the very best for the future.

[laurenvparrott]

Hello! Thanks for writing! I'm so glad you've watched the videos! I've had 4 Tysabri infusions so far and I feel amazing!! My tremors have gone down a lot and I'm doing really well!

Good luck with everything!!

Lauren :)

[TechnoDevices]

Hi Lauren,

I found out in september 12th 2007 that i have MS, after 5 year of going to the dr and being told it was all in my head i was glad but upset that it was finally shown not to be in 'my head'. Anywho, i had my 1st Tysabri infusion yesterday (Jan 21st 2008) and i hope i do as well as you have.

Message me if u wanna chat, i can add u to my MSN

Good Luck & All the Best From Scotland!!!

[laurenvparrott]

Hello! Thank you for writing! I'm so glad that you finally got a diagnosis. I know how hard it is to KNOW you have something but you don't get any answers. I really hope Tysabri works for you! I don't really know how to use MSN - what do I do?

[TechnoDevices]

Hi there,Just search on MSN Messanger, download it and install. U can then add members (friends) as you choose and we can have 1 to 1 real time chats and/or invite others in for a group chat. You will need my contact deets or you give me yours and i add you to my contacts list.

[genogeno1234]

Hi Lauren. I was recently diagnosed with MS, and it is good to see someone with such a good attitude. Please keep up the good work because you help others by giving them hope.

[laurenvparrott]

Thank you so much! I wish the best of luck with everything!

[mmmazzara]

Lauren, spoke with your mom today. She told me about what you are doing. I watched all your videos. They are great and so are you. I look forward to tracking your progress. Love always, Maggie

[laurenvparrott]

Hey Maggie!! Thank you so much for writing! I'm trying to show people what a relapse is like so I can help them. I hope we can get together around Christmas time! Love, Lauren

[Fixer13605]

Lauren:

Your exuberance is incredible and only outweighed by your enthusiasm and positive attitude, there are so many success stories emerging regarding Tysabri, I hope your reaction to it is fast and positive. Keep us posted on how you're doing, I hope you get an early Christmas present from TY and get off to a great start in the New Year.

Best of Luck!!!

[aguacaliente9]

Go girl! What a wonderful attitude you have. As the other poster notes, it takes some time for the full tysabri effect to occur but keep the faith and keep us posted.

Wishing you all the best.

[kcsportsfan]

You have a great attitude. Remember Tysabri takes a little while to kick in and work. Not everyone sees an immediate impact. I am looking forward to hearing your improvements over the next few months.

Wishing you well.