The Voices of Lyme Disease- Breaking the Silence

[brotherreed1914]

Thanks for the wonderful video, my daughter is going through this right now. Chronic Lyme is real and can be very devistating!

[In19944]

wait i've had over 10 doctors tell me chronic lyme doesn't exist. they couldn't be lying

[seraVmiskiel]

Lyme is curable but only if the IDSA stops denying valid Lyme research evidence

being entered into their 'closed meetings'. The truth always prevails eventually.

Things will change soon, God Bless.

[lymeisdead]

I am not a teen but my heart goes out to each and everyone that has lyme. I personally have lyme and it does effect the life and the lives of our loved ones. I have been on samento for well over a year along with burbur and pinella, i bought a water ionizer, learned alot, i won't go into details but i am functioning daily and am back to work now, and doing things that was not able to do with my wife and kids.

[rajdaddu123]

I know How hard life will be with Lyme, Small kids are becoming like 80 years old, why this is becoming life threatening is no proper diagnosis and no quick treatment.

When a person bitten by tick, gets some fever or rash needs to get antibiotic inection not just doxy for 20 days. I feel just lyme is not making our lives miserable, its health care and politics around lyme making this disease to progress.

[Catherine8raw]

My love and best wishes goes out to all the lymes patients and those that do not even realise they have it. xxxxxxxxxxx

[ecftube]

Very good video.... I just finished my second go around with IV drugs but still on a boat load of orals. My prayers go out to all Lyme patients.

[atreewithnolife]

if I could take your place ....I would. God bless you all.

[INIFUZEID]

well, i must admit, im not a one for crying. This video brought a tear to me eye :(.

[atreewithnolife]

made me cry , you all so brave .

[Amos1010]

I hope that my blogs can be helpful to all of you. I am so sorry that you had to have this at such a young age.

[R3DSYST3M76]

Nice !

[MrGerthBrooks]

very good - how do people get it - ticks alone?

[HolisticPlantHealth]

@MrGerthBrooks

Lyme comes from ticks which get it from mice , lyme can also be passed from mothers to unborn babies and through breast feeding.

[HolisticPlantHealth]

@MrGerthBrooks

And just to add , an infected tick can be transported on any animal or even human and has at least 2 stages of life where it can infect.

[manualhispano]

AS A PATIENT I AM WRITING EVERYWHERE TO EVERY LYMIE TO PLEASE CONSIDER ADDING TO YOUR ANTIBIOTIC TREATMENT SOME FLAGYL 750 MG/DAY and try BACTRIM AND NOW THE DOC SAYS TINDAMAX IS THE BEST. THINK THAT PARASITES HAVE TO BE KILLED IN ORDER TO RECOVER OUR LIFE. I HAVE GAINED MUSCLE STRENGTH AND ENERGY AND IT IS NOT A SECRET WE HAVE TO PAY FOR TO GET. KILL THE BUGS AND CLEAN THE HOUSE! HOPE YOU CAN GET RECOVERED! HOPE EACH ONE COULD DO TOO! WE WOULD, TOGETHER HELPING ONE ANOTHER I KNOW

[dancersaramarie]

i have had lymes since i was 3 or 4 and i am 17 and we just found it a couple months ago.

[matte5299]

My heart truly goes out to you! I hate this disease. Im takin, ammox, mepron, zith, codwen protocol, mms, salt/c, and taking paragone, milk thistle, and probiotics . All at the same time. Lol. yeah i know. And it is working slowly, but effectively.

[Cammster101]

Thank you for making your video & Sharing your story. I am on a Picc line 4 lyme too....I pray U get better sweet one.

I invite U to Cammster101 for a puppet show about lyme.

[peace12583]

its scary how these stores are the same as mine...i thought turning 13 would be fun and exciting but instead i spend more time in the hospital than at home now a days due to Lyme disease...i never thought i would have a handicapped sticker on my car because i can't walk before i got out of the 8th grade.....

[poppymoone]

I have had Lymes since i was 13 years old. . I am now 36, I am in the UK and for proper treatment will need to fly across the world to America.

[manualhispano]

Good job, very real; but oldies also loose their lives, and what they have accomplished!

Imagine I WAS a journalist and then, not even able to clean my own house? or a translator and cannot remember words in one language nor the other?

We the older, with you teenagers, all in one same unity!

I pray for you all to have a good life and be able to do good for other people too!

God bless!!!

[tigr7170]

TY for the vid. I remember feeling like bits of broken glass in the brain, in the knees, and writing to Dr. Jeffery Sutherland to find out more about Lymes, as his research base grows. I use his methods, and 'The Hart Dietary Procedure Plan' (keeping high oxalic acid level in the blood). Sutherland's research suggests this is involving multiple pathogens, and is a great medical mimic. Don't give up - get well, have hope. I know it can bring you down - I got back up, it's a life challenge.

[ecftube]

Hey guys....PLEASE register at the Oprah Winfrey website and let her know how much you would like to see her do a show on Lyme disease. Dr. Oz thinks the "UNDER OUR SKIN" documentary is wonderful but a show about Lyme won't be done unless she sees lots of interest. Request that LLMDS and patients be the guests so that we can be heard. Also, Daryl Hall would make a great guest. OPRAH needs to hear about YOUR experience with Lyme disease. WE ARE ALL IN THIS TOGETHER !

God Bless,

Elaine

[Rapsodyinblue8]

I have had lyme for 8 yrs never knowing that I had it. I have been severely ill for the past 3 yrs and I felt each second of this video. I wish I could help others with lyme when I get well/or better. I wish a cure for Lyme can be found just as a cure for other diseases that make us suffer so much.

I have cried the entire movie, but I am smiling knowing that there are others like me somewhere wanting the same thing I want.

[gatorlyme]

Please see Lymeornot. on utube!

[xochelx33]

I have had lyme for 9 years. I got diagnosed with lyme when I was 5. I saw Dr. Charles Ray Jones and I went a year without being sick but still had headaches. then I got bit again. I went on ivs for 7months and hated it but it made me feel a little bit better. My doctor has lyme real bad to so he understands what im going through, which helps alot. I hope you feel better andd some day there will be a cure for lyme.

[sarcasmismylife]

Honestly, it made me cry.

[dalejr4ever88]

I've had Lyme disease for the past 15 years. Upon seeing this video I cried. I see myself in this video. I suppot everything and anything to do with lyme disease. I know what everybody is going though. I really wanted to kill my self when I was younger but I didn't. That all changed when I went to see Dr. Charles Ray Jones up in New Haven, Conn. Now I fell a little better. I fell better then when I was younger though.

[Greenhouse5656]

Does anyone know the name of the music playing in the background of the video? Thank u

[sarcasmismylife]

Forrest Gump

*Forest Gump?

[PrimaDooris]

i live in Finland. i was paralysed from Lyme Disease in 1989, i got the antibiotics 5months later.. it took about 6months, then i started to recover. i healed almost completly.

[PrimaDooris]

now i have had arthirites on my angles 2,5 years. doctors dont believe in Lyme.

i have to use wheelchair every day. i was okay for almost 19years, and now i think the Lyme has activated again. my blood dont show it.. maybe test from my jointfluid from ankels would, they dont take it. now i have to fight harder.

luckily in Finland the treatment and medicine are almost free. doctors think i have rheuma. i have take almost every rheuma medicin there are, nothing helps.

[PrimaDooris]

now my medicine is enbrel but it cave me unwanted symptons so it had to be but away. next is humira.. but i would like to try the antibiotics, but i have the chronic disease now.. sou, hope it works.

im now 30 years and i have 6 year old son.

[rpyouknowme505]

this made me cry a whole lot....:(

[ecftube]

Hi there,

I wrote a Lyme brochure with the help of 2 amazing Lyme specialists. Would email to anyone that would like a copy.

Elaine in Virginia.

[moezel12]

Hello! I would like to receive your brochure on Lyme disease--2 of my daughters have Lyme--and are still learning the ramifications. The school doesn't understand either. Thank you!

[ecftube]

Hello moezel12....just need an email address to send the brochure to..

Thanks,

Elaine

[bellaissuchacutie]

WOW, this is a great video. I made a couple myself about lyme disease. I am a teen with lyme disease. I have had this for about four years maybe more. I just want to say something to all the teens with lyme out there, THERE IS A LIGHT AT THE END OF THE TUNNEL!. I have seizures and everything Victoria said. It is a dreadful disease, and everything the doctors do to patients absolutly makes me sick to my stomach! At least there are SOME people who care about us lymies.Thanks to all with LD

[igspal]

VERY URGENT!!!: PLEASE ATTEND THEE MOST IMPORTANT LYME PROTEST EVER, on wed., May 7 in Long Branch, NJ (for more info, log onto the following website)...then PASS IT ON ASAP!!! w w w (dot)lymerights(dot)org

[eUberDude]

Bush has the SAME symptoms that ALOT of Lyme patients have. HOW CAN this SC#MBAG NOT DO SOMETHING ABOUT THE CORRUPTION BEHIND THIS DISEASE??? [It's OBVIOUS he's INTENTIONALLY not doing something about it, because he's kept secret, the fact that he STILL HAS Lyme (has it CHRONICALLY), but since he gets CONSTANT medical care (PAID FOR by US TAXPAYERS), why SHOULD he do something about the corruption behind this disease?! BTW, celebrities who have this should SPEAK PUBLICLY ABOUT THIS!!!!

[eUberDude]

Chronic Lyme is an EXTREMELY DEBILITATING DISEASE, THAT CAN AFFECT ANY &/OR ALL SYSTEMS IN THE BODY! Lyme patients aren't getting PROPERLY diagnosed ON TIME (if AT ALL), & THAT'S WHEN LYME BECOMES CHRONIC! CHRONICALLY ILL people make drug companies, hospitals, etc. VERY RICH (they're in cohoots w/the CDC, IDSA, etc...these government agencies print BOGUS guidelines regarding Lyme, allowing patients to become CHRONIC, then they DENY CHRONIC Lyme EXISTS)!!!

[signal2006]

Thank you for this video. My daughter Jessica has been in bed for two years due to Lyme. May God punish all those doctors who laugh at us.

[selderke]

use cat's claw folium free thats the only thing that helping i've haert

[selderke]

I myself property had also sickness or Lyme, ash from end 2003 up to beginning or 2008.

it... that knows you undoubtedly also the most or you has it had leg also experienced, I it had already 2 months before I got doctor WHO fights sickness or Lyme especially and those

[selderke]

I myself property had also sickness or Lyme, ash from end 2003 up to beginning or 2008.

it... that knows you undoubtedly also the most or you has it had leg also experienced, I it had already 2 months before I got antibiotics, but that did not help far will look up much therefore have i also or end a doctor WHO fights sickness or Lyme especially and those I property found which gave ozone therapy that me me, however, well

[JadyDavisTV]

I loved this video. I have have lyme disease probably the last 4 years, thank you especially for showing teens with lyme that we are not alone. <3 JD

[jackflash2009]

I went to a Lyme conference in Canada, met Willie Bergdorfer, Burascano and several other Lyme experts. I also spent several thousand dollars on an amplifier, and wrapped my own coils and treated her with different frequencies, this didn't help much at all, it just seemed to make the spirochetes mad. also bought a Sauna, and tried to cook em out of her, no good luck there either. Victoria, keep up the faith, you CAN get over this horrible disease. My daughter did.

[jackflash2009]

When she was on Zithromax, her symptoms would fall from 40 different things to about 4. When we would take her off it, all 40 symptoms would return within 6 weeks. It took 4 years on Zithro, plus the kicker was about one month of coloidal silver bought from a pharmacy in Canada. (the size and PPM is important)

[jackflash2009]

Thanks for making and posting this video. My daughter suffered with Lyme from 1991 to 1995, she was bitten while we were jet skiing, and had the bulls eye rash. I had to make about 10 trips to Mexico to smuggle out anti-biotics for her. The Doctor that was treating her and about 20 other patients had his license revoked for giving out too much anti-biotics. It was the worst time of my life. She is now 24 years old, and doing great, NO THANKS to the established medical community.

[nancyd1655]

This is really great. Without a spoken word it describes so dramactically how it feels to have this disease. Thank you! An "old Lymier"

[tigr7170]

For those who want to look up Col. Joe (Francis J. Hart's) U.S.

Patent on the "Hart Dietary Procedure Plan" you can go to the USPTO GOV site and

look up U.S. Patent number 6133317 for patents issued, as the application number is

08629538. I've had far better results and observations in health improvements on a high oxalic acid diet, than using Rife techniques and equipment for 4 years - I still use frequency work/devices p.r.n. Hart's book - ISBN#0-9726457-0-5

[hazelwhite]

I'm really proud of u!!! U r such a strong person!!! I may not have contracted lyme but im sure that many others out there can sense that they are not alone, they will know that having lyme isn't being a freak! So on behalf of those out there, a big thank you to u!

[mzcaffinated]

Such a wonderful video Victoria! Your strength of spirit is so apparent in how you've dealt with this awful disease, which I am also battling. There are so many of us of various ages, genders, geographic locations...yet all those differences blend together as one from fighting this fight. Your voice continues to be strong, bravo. Keep up the good fight and let others who see this video keep up their courage with their own lyme battle as well.

[Markith15]

jlkjlkj

[Markith15]

Great Video, my daughter has been suffering from lyme disease for 8 years and struggles everyday. I am very proud of you for making this video, more needs to be done to help find better treatments for lyme and help educate others.

[lymebrain]

Hi Vic(toria?), I've watched youtube before, but had to sign up just so I could tell you what an excellent job you have done! I am sharing your video with as many as I can.

I am trying to get the word out, too. I am 51yrs. old and have only been deeply effected about 16 yrs. It is believed that I have had it most of my life, though, do to tolerable symptoms or those types of symptoms you believe everybody has.

Good job!

[baumsy18]

So many doctors and "prestigious" medical centers remain willfully ignorant. I have chronic Lyme and work in a school in a Lyme endemic area. There are some kids who I KNOW have Lyme but are being treated to death for everything but Lyme! This video is a wonderful, well done teaching tool- thank you!

[hansonforever83]

this is a great video !!Thanks for helping spread the word. I, too, have lyme, a daily IV and disability benefits - not the way I thought my life would be.

[ReneRothstein]

Wiping away the tears from your wonderful video, I must tell you that I MADE ITTHROUGH. A gramma, suffering in my 50's, much different than a teen but yet the same unexpected lifestyle. I knew hundreds of your stories. So have faith - you will return to the "other" world.

[lymemom]

I have a daughter(Nicole)who has been battling Lyme for 8 years. As I sit here crying, watching your video over and over again it brings back a lot of memories. Nicole has been through everything you mentioned. She has not been in school since 7th grade. She is a Sr this year. With the help of family and friends she has survived and is doing well. She will graduate with her class in June. This is something as her mom that I thought I would never see her do. NEVER give up. God Bless Jennifer

[tvcee15]

Great work. I may not be a 'teen' anymore, but i was when I got Lyme, and I'm finally getting well! Awesome video. Way to go.

[kalidoscopeyes]

Victoria,

This is spot on.You are awesome,this is awesome I'm so happy to have been a part of it ^^

<3

Lucy

[MidLanticlyme]

Great job on telling the truth about a devastating disease. I've struggled to reclaim my life after 12 years of battling Lyme. Like you, I refuse to give up the fight. You have helped all of us. Dave

[Fool4ej]

Well done! Maybe this will open some eyes about this "little" disease. My daughter has been dealing with this for about 10 years. Her symptoms are not severe, but her teen years have been full of everything you mentioned. Bless you, and thank you for making this video! Maybe I'll see you at the Lyme Walk.

{{{hugs}}} to you.

Denise

[SRUNDERWATER]

Vic-

Great job on the video! Looking forward to the Lyme Walk you are planning for June. SP

[anniesullivan12]

Thank you for giving all of us lyme victims a voice. I know it is not easy... we have to have hope.... God Bless you, Joan Sullivan

[disturbedme5]

Vic - good video. I love the music used.

It's also very sad. :-( But I know what you're going through and how you feel.

Your friend,

disturbedme

[MrsMozart]

5 stars and favorited. This was beautifully done and as a Lyme patient myself, I thank you. xoxoxox MrsMozart

[figuresk8inrocks]

Aww This si soooooooo sad!!!!!! What causes Lyme Diese maybe someoen could explain?

[jackflash2009]

figuresk8er, Lyme is caused by being bitten by a tick that has bacteria in its gut. The bacteria gets in your body, and settles into a place it likes and starts multiplying. Depending on your body chemistry, and where they camp out determines what symptoms you have. And, to top it off, the medical community is totally clueless about this disease.

[figuresk8inrocks]

OMG THAT IS HORRIBLE!! =( that stinks soo bad =(

[LucyFigureSkates]

that is heartbreaking.

[Emma7639]

I am so sorry. I have had lyme since 2005 as well, but I guess I am very fortunate that my symptoms aren't horrible. I have head pain, joint pain, insomnia, dizziness, you name it. Right now for instance I can't walk, this usually lasts 3 days. OMG yes I was an honor student and now I get Cs. yes yes yes. I completely understand and I am so sorry that you have to suffer so much.