Elizabeth Weiss & RSD - PART 1

[mackiebro717]

Im mackenzi, i have rsd full body but it originally started in my right ankle. I know exactly how you feel girl!

[bfproduction1]

Hello Elizabeth, my name is Sherri and I also have rsd and I watched your blog and feel your pain I also noticed your leg wedge pillow and was wondering where you got it and e measurements, if you could please respond I would totally appreciate all your help.take care of your self and hope all is well. Thank you again for you blogs. My email address is as followed - chicanavaldez@yahoo.com.

[Blankname101]

Poor girl.Really hope you are okay now.

[211starman]

so if you to do anything like to touch the leg it would hurt a lot?

[jemcay]

Poor girl, can't even walk to the kitchen without her legs changing color like THAT?? That is incredible, WHY isn't there more known about this illness, and why don't we have a cure for it? That's just terrible. And she's such a pretty girl!! One thing is for sure.... the camera man (husband?) is an absolute angel, he's so good to her, and you can see how much he really cares.... what a great guy. Oh, that poor girl!! I hope one day there will be help for her.

[Pinkynose499]

5:43 happens to me too

[Timmyzgirl08]

I just want to say that I thank you from the bottom of my heart for making this video. I was recently diagnosed with RSD and watching this video let me know that I am suffering the same symptoms as you and that I am not alone. I hope the best for you and again I thank you for all the information you have provided to all of us and the fact that you suffered to make this video to inform people deserves a lot of recognition.

[wheelieblind]

It's good that you use your legs but I would get a wheelchair if I was you, so you can travel when you need to.

[mychallauren]

Elizabeth, thank you for putting yourself thru the pain to make this, you are stronger than me! Thank you for bringing our disease to the world's eyes!

God Bless!

[wizardman42]

after 5 years I have actualy gotten better. The incraments of progress are only evadent to any one but me but yes , it dose get better, keep moving as much as possable, lots of vitamins, especialy d-3. If you get the chance for specialized PT go!!!! give it your all. I was 49 when injured , and was lucky for an early diagnosis. Also look up EFT, looks crazy at first but realy helps with the pain!!!

[hollyzone]

my prayers go out to you, Elizabeth and all RSD sufferers.

[whynot2662]

i`m very very sorry for anyone who has this props to you , you guy`s are AMAZING .

[MichRL34]

I think I have RSD. Sprained big toe 6 years ago. Swollen, painful for awhile. Toes were spasmic. Skin turned purple/red, dry, and then shiny. Toenails became thick/ridgy. My big toe went stiff. Last year, felt deep burning sensation across my upper body. Hurt to wear clothes and use a seatbelt. Turned out I had gastritis. Went away eventually. 2 months ago, I mildly sprained my ankle. It's still swollen, red/purple in color, painful. Foot is spasmic if I move it. I walk w/ crutches.

[TaliaBeltR]

that is exactly what happens to my right hand and now left hand is doing it.

[banjobabe6]

Thank you Sooo much for sharing this living horror-of-a-disease which I share w/you, Elizabeth. Kudos to your partner for being w/you & helping...not all stay but mine did (25yrs together!). The color changes being filmed were amazing to watch, I only see mine from lookin' down!

xoxo

Lori

[rebafanatic16]

it's hard being a teenager and having RSD. 7+ years. I know that it's hard for anyone, but I just want to be normal again. It's so hard to enjoy life, and go to school, and wear clothes and not feel like an outcast. My friends and I actually joke about my purple legs. But they also say I'm a trooper so I guess it's okay. If I could get more treatment, I could probably improve, but insurance wont cover me so currently I'm suffering with very little treatment.

[rebafanatic16]

Hey I do that to. When the pain is there...my legs just shake back and forth, I don't know why. I don't even always notice it either. My friends will tell me I'm twitching and I'll look down and sure enough I am. I guess it's just the only thing I can do to tolerate it.

[marilynmansonfreak93]

sometimes with rsd u can get a movement disorder.

[marilynmansonfreak93]

ya im a teen ager too!!!!

[isthisthecure4rsds]

@rebafanatic16 I think I found a cure. I'm not making a dime of telling you the natural way I'm treating my CPRS/RSD and it seems healing it. w w w . isthisthecure4rsds. wordpress. com. Don't believe the doctors. Too many people think there's no cure. I am not in any pain because my symptoms are gone when I do this natural plan...find out more by reading my blog.

[Pinkynose499]

@rebafanatic16 Please go to the channel RNDRSD for help. I made it with my friend, and we both have RSD

[The009]

I have RSD myself I can't take 99% of the meds that the docs have tried to put me on for I am highly alergic. So I know you pain. My right leg is in constant pain and I am stuck to a wheelchair to go anything over 20 or so feet.

I hope that you can get rid of your pain for I know what you are going though. My prayers go out to you in your healing.

[DayzyBlue]

I just had to add a second comment...

Trust me I know your pain..I would rather give birth every other day than have that pain back. I just wanted to tell you not to believe everything people online tell you..some people had me believing I woud never get better. My rsd is in my right foot and up to my knee...I thought I would never walk again! Guess what I can run!! Do what the docs tell you and have hope.

[melgus99]

Yes remission is possible when treated early on. 50% of people do go into remission from the correct treatment and a small few develop intractable pain that may spread throughout the whole body. Some people remain like this permanently, no matter what treatment.

[DayzyBlue]

My heart goes out to you...I am in remission but went through a solid year of unbelievable pain.{ Before diagnosis} Blocks and tons of meds...Physical therapy..Dont give up, I still have pain but nothing like it was..I have been free of that horrible pain for at least 7 years now..but I will never forget. I just wanted to say"DONT GIVE UP!" It really can get better.

[ReineDeLaSeine14]

Hugs Elizabeth... <3

[xxLauraxLuvxx]

Elizabeth shouldn't be on all that medicine. My brother has RSD and he simply uses a machine that redirects the flow of oxygen and he is really doing great.

[Twinchy]

Agreed. I have RSD and it's absolutely horrid...however, as hard as it sounds, it IS best to not depend on medicine like that. I don't take any medication for my RSD. Prayer, mental power, and walking aids get me from day to day :)

[profderien]

hang tough, elizabeth. i have had crps type 2, that spread and became type 1 in other limbs -- until i had it in all 4, and now my lower right face. what a hoot, eh?! try to keep laughing -- that and PT (when you can tolerate it) can be your saving graces. be well.

[jodom1979]

28 yr male.. I suffer from this horrible disease in my left knee and leg. Horribly painful. Im a new being I have only had it a little over a year. My hat is off to you. This is a great video.

[redcatpaws]

I saw this video, and I am a 20 plus yr RSD sufferer in my leg and arm. What Elizabeth is going through is real, debilitating, and horrific. She is a source of strength and courage for many of us and I hope and pray she finds help and treatment. RSD is the most painful disease and it steals your life...if you let it. Let's spread awareness, hope and support for Elizabeth. Take care of yourself Elizabeth and know that people who don't know you, care.

[insanidi13]

My mom has had RSD for 15 years and I am sure she would be more than happy to answer any questions you may have. If you would like me to get your two together please let me know.

[samgerke]

Go to askmara to get my wifes story you can call her to

[beefree1]

Prayers for Elizabeth from Northern California Coast.