Living with Sickle Cell

[elroymcgert32]

hi my name is roshawn and i have had this scd since birth. im currently in the hospital in recovery stage from a bad crisis now my whole body is very sore and it get very upset to see people coming up with cures for many different things accept sickle cell which i think is on the same level as cancer. we desprately ineed of a cure for this, it need to heard and told about before its too late.

[missy37597]

hi my name is missy and i have sickle cell i be in so much pain thay have me in the waiting room for hours to be seen. But i have been doing good the last time i had a pain was back in september

[twucute4usweets]

Yes, I have sickle cell SC too, And i play a sport, but i recently quit because of the pain... Its hard dealing with the pain, medication ect. Life is hard with this disease..

[abcterrorsquad]

im 14 and im about to get a port for my sickle cell because of all the damage my lungs have from all the cases of pnemonia i have had. i have pain everyday having to go to the hospital every 2 weeks getting fetinel the strongest thing i can take without sleeping and not waking up

[chaellebellem31]

I have the worse form of SC & the worse form of Thallesemia. One one doesn't do the other does. I am in constant pain on a daily basis. My life is centered around the pain instead of the pain centered around my life. I thank God that although I deal with daily pain, I am still alive to feel the pain. 35 years and counting!

[Orch1dea]

Here in Germany nobody understands me except of a few people which know the disease :(

[MsRazzberri]

hi my name is razzi and im from irv,n.j iam a 27yr old womam with sickle cell its so hard dealing with the pain an all that we go threw in fact im haveing a crises now i hate that we have 2 go threw this and on top of that its like people take it as a joke they dont no the pain we feel or have 2 go threw the things we do i just want people 2 no its not a game an they need 2 put it out there more,we need 2 stick togather an get it out there as much as we can.i love you girl an stay strong

[MadeByKodak]

@MsRazzberri Hi, Stopped by ur page but it wasen't any activity..come by my page, I think u'll like it. Stay Strong! I'm a carrier Too.

[MyLifeMoon]

I understand how you feel. I have Sickle Cell Anemia (SS Genotype). I also agree with your call for help.

[wertyrulz]

adult stem cell IT WORKS!!!

[joaoaugusto]

I got sickle cell anemia and im 22 years old from Portugal, i understand your suffering and i hope every day for a cure, science and genetic is much more advanced now, that just let me believe in that. I understand the BLACK DISEASE but im the only i know that is a white guy. PEACE

[Orch1dea]

@joaoaugusto u are not the one white with sickle cell... its a big mistake, i am greek and i know that lots of greek, italian and turkish people have it to

[tata7130]

I understand. I have sickle cell disease. (ss) I am so glad for this video you did. Grace. Peace. Joy.

[4liferudy]

I could help you with your Problem

[chantelle2002]

l hear u and l feel for you.

[renasauncex]

The past 8 years I had to go to the hospital 2-3 times a year from S.C. pain. I recently moved from Metropolitan St. Louis (Illinois side) to Houston, because its warmer and better for my S.C. ALL OF THIS BECAUSE OF SICKLE CELL AND PEOPLE THE PAIN IS LIKE NO OTHER PAIN YOU'LL EVER FEEL!!! IT WILL MAKE THE STRONGEST GROWN MAN CRY LIKE A BABY CURLED UP SHAKING!! WAKE UP THIS IS A SERIOUS DISEASE!!!

[renasauncex]

I have sickle Cell SC age 29, I was diagnosed at the age of 5, I've had a blood transfusion at 6 years old and almost died. Five years ago I almost lost my vision in my left eye and had laser surgery...I can now see pretty good out of it but I will have to live with seeing "floaters" (transparent floating spots) in my left eye for the rest of my life.

[athomas1124]

I am sorry for your pain and suffering...I don't have the disease but I had a little cousin to die from it at 20yrs old and I have another cousin who is living with it as well...be blessed

[Kengikat]

I know full well what you are talking about. You are so right. We need to talk more about it. I too suffer from Sickle Cell

[Pantherific]

i just found out i have this and am 19 but i had it since i was born,i never was aware.

[MrGreenLeaf1]

doesn't marijuana help?

[MadeByKodak]

@MrGreenLeaf1 sometimes...come by my page. i have a video on just that subject.

[MadeByKodak]

@MrGreenLeaf1 yes it does...SOMETIMES. Come to my page. i have a video on just that question.

[EmpressNea]

i have ssi feel ur pain...stay strong and thank you for this video

[nookiex31]

i have SS. lived with it my whole life and it SUCKS! i totally agree. & i deal with pain everyday & i think nothing is done about it. theres so much awareness about cancer & aids but if you ask someone what Sickle cell is they wouldnt know. I promise you im only 15 yrs old. but im going to be a junior & everyday when i get older i will research & strive to get something done about this so no1 has to experience what we do. im dedicating my life to it right now. & i WILL find a cure. i HAVE to

[perplexx1]

you will have no idea what sickle cell feels like if you dont have it yourself... so all them docamentries which try to discribe what its all about ...STOP!! you need to hear it from the sufferes themselfs...  I havent been aloud to work also.. because empoyers class me as an unriliable worker.... somthing need to get done about this. emotinally draining.... : (

[yharneise]

I am so glad someone is speaking out about this. I have SC and I have pain everyday. I am in the hospital at least once a month in a crisis. Hopefully someone will hear our plea and extend a helping hand to fight this disease that so many of us are suffering with.

[msmama2005]

I have SS and Sat march 21 got out the hospital for Pneumonia. The docters thought i was faking !!! . I'm starting my own support group for those with/without sickle cell. I have ways to possibly limit pain or distract your self from it and exciting things to do like fundraising,book clubs, movie nights. Its a fun way to share ideas maybe we could raise enough money and Awareness for research so they can find a cure. People can donate right from the website as well.

[robg225]

i have SS to..

[lilquan14]

i have SS

[jta4jesus]

I TOTALLY agree...they have telethons, radioathons, races and stuff for all kinds of diseases, but when was the last time anyone ran for sickle cell??? To be prejudice against a disease is just crazy. I'm going to look in to how to start a move toward more research for it. I don't think people know how common and how devastating it is.

[Zendel963]

I agree, sickle cell is not a black disease. my three year old niece is suffering from it and we come from a hispanic family. I hear and feel you, we do need help and a lot more support.you can go to the mtv website and get information on being able to get truelife to listen to. all my blessings

[sfdmstore]

Shorty i want you 2 keep ya head up for as long as there is a SAVIOUR there is an cure. Check Out Dr. Sebi

[pallenjones]

I hear you loud and clear. I too have SC disease and I'm speaking out on my blog, check it out.

sicklecell-ourvoice.blogspot

[SQUADUP215]

I am so feeling you as far as feeling that there need to be more awareness about this disease. I was diagnosed withis disease since i was two and the story need to be told.

[sicklehome]

well i think we should be together to tell the world about this. can you contact me. we will reduce our paon if we come together. our pains will reduce so let;s get together

[gilamonster1e]

tnx for the vid.its like i´m standing for a mirror i´m half black-white i takes 25 years for they know i´ve got sc i live in the netherlands and here they know nothing about sc í hope there is a med.soon at the moment i only got morphine and that makes me more sick.

[shamainecharelle]

hey hinn its me and u already know i know where u r comming from....i completely understand and please know im ez to get in contact with all u have to do is write me