Have you heard of Visalus? I don't have lupus but it breaks my heart to see people suffering from this condition. Visalus makes products that make this condition & fibromyalgia bearable. Do a search "Visalus lupus" on youtube to hear testimonies.There is a 30 day money back guarantee on the product so for all of those with this condition, for just $49/month, it's worth a try for 30 days to see if it helps! Check out my website GetANewLife.bodybyvi.com
My girlfriend have lupus and i cry for her because i wanna live my life with her she is beautiful and stronger cuz she fight everyday and i support her to go fight cuz i know god have the cure.
Thanks for the inspiration.I do feel alone.I dont have support groups.I know the stress dont make it no better.Im trying so hard not to give up.Lupus is a battle I pray god give me strength to win.Just cuz some look good on the outside,people don't understand how much and how painful we feel n the inside.
I was diagnosed with lupus when I was 11, my doctor had been testing me for two years and never told us the tests came back positive. I was sent to Children's hospital for arthritis, there I was told I didn't have arthritis I had Lupus. I'm 15 now. Every day is a war. Those 5 stages of grief seem to be my best friend, I go through them frequently. We are more than this disease. We have to keep fighting, We can make it through. Keep your head high, My prayers & love are heading your way! <3
Thanks for posting this. My mother dies from heart complications with Lupus May 5th 2000. I was 17, had two little brothers and honestly when you mentioned the part of AJ waiting on you...I remembered bringing her pills, lifting her from the toilet/chair/bed where ever. I know my mom gave up after 9 years of fighting and for a long time I was mad. Watching these vids help me to forgive her and remember the the pain she was in. DON'T GIVE UP. Fight, let AJ see and I'll pray for your strength.
I have just been dignosed for 3 weeks and I am just glad to know what has been causing my pains all these years..I have always been a very quiet person and kept to myself well this thing called lupus and some other things have changed me..I will not keep it to myself any more..I need people to know..See someone may be sick as I have been and not know what is wrong..they need to know and have some understanding .
I can't thank you enough for this sweet video! Your story is SO powerful! I am a fellow Lupie & am just left in tears because I can relate to every inch of this video you shared....wow....so....I'm NOT alone after all! What a blessing to know that! I hope you are having a good Lupus Day today. Thanks again for sharing your story with the world. It helped me :)
Wow this video was very powerful i shed some tears in the next days i hope there wll be a cure for this horrible disease. I do not have Lupus but i am praying for all of those out there who has Lupus and i HOPE the people who has Lupus will keep on fighting untill there is a cure.
I know exactly how you feel, fortunately I had 2 daughters. However the last pregnancy was so difficult for me and my baby. Now she is 10. I am still battling the disease and now have reached the stage of depression. I am 35 i was diagnosed at 25
i havent been diagnosed yet but i shed tears watching this video because its exactly how i feel. I wish they wouldnt have said its a possibility. ItS either that or carpal tunnel.. its kind of a stretch.. but ive already gone thru the 5 stages with out being diagnosed... sometimes i got thru them in the same day.. smh.. this video is beautiful mashallah
I can surely relate. At 1st, I was diagnosed w/a retinal eye disease that caused blindness w/limited light perception then came the diagnoses for Lupus (SLE) & Sjogren's Disease, which are further damaging my retinas along w/everything else. I was in remission b4 diagnosed tho I only remember severe joint pain, which must have been Lupus (SLE)/Sjogren's in earliest stages when I was much younger. I've been knowingly fighting Lupus/Sjogren's for 10+yrs now & it's the pits; it's tough on 2kids,&DH
Beautiful video.... apparently 2 people don't have a heart. I have a cousin that just died of lupus, and I'll never forgot what a fighter she was. To everyone who is fighting lupus, keep doing it.
@ksunshine217 im 46 and i have sle lupus i have my gooddays and mostly bad,im happy for the time god has given me to share with my family and kids.im fighting my dieases and hey,im alive and still here...amen.....lynn ricketts of stockton california.................
I too have LUPUS, and for 8 years my prescriptions have multiplied. I describe to my kids the way I feel everyday is like "THE TIN MAN" from the wizard of oz before he's oiled... I am 32 going on 82. No one around me truly understands why I take all of the pills and vitamins that I do, but I would hate to see how I felt if I didn't. You said you want to see your child graduate..I FEEL YOUR PAIN! Idon't want to miss the chance of being a grandma either. I've gone back to school and living again!
@luckycharm8869 it is a devastating disease but we can fight it...it is a battle...uphill all the way and down hill some days. I pray that you find remission soon!!
You absolutely are an inspiration to me... as a Mother as well being diagnosed with Lupus after having heart surgery at 29 I could not help but cry when I saw this video...I pray you have a healthy happy life ....
@apwilkes I know the depression. I know the pain and I won't let other people guilt me anymore....life is WAY too short...keep your chin up...fight...never let it get you down!
i am doing a projct fo my Honors Anatomy class in high school. When i searched this and read your story i strate cring.. i had no idea what lupus was my teaher recomended me this disease and i didnt want it cause no one had heard about it.. now that i am researching this disease its unbearable witheverything you guys have to fight for. Im going to do my best to infrom my class and to make the best presentation ever so they can remember what lupus is! As for you KEEP FIGHTING! i want to join LFA!
@FlorPadilla2011 Yeah it can be overwhelming....but I'm taking it one day at a time. I don't make plans...I live day to day. I keep fighting. It's a daily thing and I'd love it if you watched the others...the one with Tubthumpin is one of my favorites. I'm not concieted...I'm just happy that my video can help others..Big Hugs...Josie Kay
@sarandro Lupus can be fatal. I've been very close to dying...but you FIGHT...you FIGHT until you think you can't FIGHT and then you FIGHT that much more...God BLess
@ajsmommy Thanks hun turns out I have Behcet's which is kinda similar but very rare for an english woman which means I'm less likely to win the lottery, boohoo. Guess you gotta have a sense of humor about these things I am finding as otherwise it's so very worrying isn't it. Hope everything works out for you my darling and the best of health to you and others suffering along with you x
@sarandro Can I also say that I'm not very releived it is Behcets rather than Lupus because so much less is known about it. My Dr put me on Immune suppressants and then I learnt they were carsonogenic so stopped taking them. Are there any immune suppressants that don't increase the risk of cancers? I have called my rheumo but no reply as of yet
oh i love your video soooooooo much! i have lupus(11yrs. now) and i too went through and sometimes still go through the 5 stages that you mentioned. i have 2 children (10yrs. old and 7yrs. old) that does things for me! they are my blessings. what makes me sad is i feel that they have been robbed of their childhoods because i have lupus and cannot be active with them. and this hurts me. but i thank u for your vid and God Bless
I've been fighting lupus (SLE) and Sjogren's disease for 10+yrs now. I remember exactly how I felt when it was confirmed (after 5+mos of testing every week & 2-3x a week), exactly how I felt on the driver home, exactly how it felt when I hugged my kids, & exactly how I felt the day I gained the courage to tell my DH & how I felt when he couldn't cope & called me a liar. It hurt so much. It took him a few wks to a month to finally believe me. He called me an addict b/c of pain meds to stop pain.
@PaisleyPlace cont'd: It was his way of coping but it hurt me so deeply that I began to shut down. If it weren't for an online lupus group, I would have probably never held out for the meds regimen that gives me a semi-normal life today. I'm in the mod to severe stages & when diagnosed, I had come out of remission tho' I had no idea I had been IN REMISSION let alone had the diseases. It was the last thing on my mind. I was already fighting a retinal disease w/no cure. I didn't need this too.
my girlfriend is currently diagnosed with lupus, and now it is slowly destroying her kidneys,,she was lately diagnosed with CKD 4 and now started her hemodialysis.. it was really hard for me,,we have been in our relationship for 6 years now..and have been planning for our marriage..
i'm very touched with your video,,it's giving me hope.. i will support her in any way i can do..i realized people like her needs love and support the most..,now i know why God has given her to me. Tnx!
my girlfriend is currently diagnosed with lupus, and now it is slowly destroying her kidneys,,she was lately diagnosed with CKD 4 and now started her hemodialysis.. it was really hard for me,,we have been in our relationship for 6 years now..and have been planning for our marriage..
i'm very touched with your video,,it's giving me hope.. i will support her in any way i can do..i realized people like her needs love and support the most..,now i know why God has given her to me. Tnx..
Great video. I have had lupus since age 14, 35 now and ppl tell me that I am lucky. Your 5 stages are right on. I'm in the depressed stage now because the pain is constant and the meds are not working. Still I am hopeful and trying to make it. It is good to know that others understand what it is like and their fight gives me the strength to keep going.
@ajsmommy I'm still fighting the battle, but the bad days are outnumbering the good ones. I'm in the angry stage again because lupus is limiting my ability to work and go to school. I'm sad to read that ur sibling doesn't understand ur pain. I'm glad ur still fighting to see your child grow up. I don't have children but get my inspiration to fight from others. Keep going as long as you can. Not everyday will you be able to go at the same pace but at least you'll be going. Peace.
i am also a lupus patient and diagnosed last year, and now i am really facing this 5 stages of life. Now i cant hardly walk, all i can say is that i do want live longer for my daughter i am the only one that she can hold. please help me god..
Me too ! Today is ANGRY DAY. I want to see my kid graduate High school (barganing) Had 2 months of remission. It's over. Been through the 5! over and over. Hated my 8 yr old taking care of me. Now 14, I still hate it. You are not alone. You hit it on the head exactly how I feel.
I completely understand you. I've been through those 5 stages and back. There are days where I feel fine and think just happy thoughts, when there are other days, when the pain hits you like a freight train. Can't stand up. Nor walk. As a 20yo I think to myself 'Why did it have to to be me?" then other times I think "It is what it is, I just have to suck it up and live with it" Am I wrong for thinking this way?
i dont have lupus and i dont have physical pain, but i have disease that changed my life forever too, so i can in some way relate. was very touched by your vid thats for sure. think you are a very strong woman and mother :)
@varigated thank you so much. My son's life was changed...he now has Crohn's Disease. We are currently in in the hopital..where he is under close observation and getting IV steroids. As a mom...it's hard...as a Nurse..it's hard...I can't fix what he has...
I hope they find a cure. So many people suffer from this. i've seen a friend watch his sister fade. He wishes so much it was him. The same type of stages he lives for her. He says he lived a life of bad deeds and she was always the good one. And now he belives he deserves it not her. It breaks my heart that he has to be in such pain watching his sister suffer. I hope that one day we can cure Lupus for all those in pain. Keep up the fight!
@elixis28 right now this song applies..this video applies to my 11 year-old son who has severe Crohn's disease...we are in a crisis here at home prepping him for his colonoscopy and endoscope...I'm not dealing well with that but I know how your friend feels...I wish I could take the Crohn's from my baby boy!!
@BaileyTheSinger You know when you have a cold & your immune system kicks in & attacks the virus right? That is good. Well, people with LUPUS have a confused immune system. Instead of attacking any foreign item (like a virus/bacteria) their immune system attacks their own body. It attacks their organs, their blood, their cells on every level.
@BaileyTheSinger You basically "feel" (pain/ high temperature/exhaustion) like you have the worst flu of your life, every single minute of every single day. The Lupus attacks everyone differently.
@Cre8iveCrafter thank you for answering bailey's question we are in crisis mode here at the house at the moment....my baby..he's 11 years-old..he has Crohn's disease and he's going through all those stages right now all at once...he's very very sick...we are prepping for colonoscopy and endscopic scopes tomorrow so I am crying where he can't see me...and it's not helping my ulcers...I wish it was me...
@ajsmommy I am moved with deep mixed emotions. I hate it when babies and children are sick; Actually, I hate it when anybody's sick, but more especially when babies and children are sick. I will remember you and your house in my prayers. God bless you! Take good care of baby boy.
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Have you heard of Visalus? I don't have lupus but it breaks my heart to see people suffering from this condition. Visalus makes products that make this condition & fibromyalgia bearable. Do a search "Visalus lupus" on youtube to hear testimonies.There is a 30 day money back guarantee on the product so for all of those with this condition, for just $49/month, it's worth a try for 30 days to see if it helps! Check out my website GetANewLife.bodybyvi.com
HisLily7 2 days ago
My girlfriend have lupus and i cry for her because i wanna live my life with her she is beautiful and stronger cuz she fight everyday and i support her to go fight cuz i know god have the cure.
HM88125 3 days ago
thank you for posting this video. YOU are an inspiration.
ilovegeorgemichael22 1 week ago
Thanks for the inspiration.I do feel alone.I dont have support groups.I know the stress dont make it no better.Im trying so hard not to give up.Lupus is a battle I pray god give me strength to win.Just cuz some look good on the outside,people don't understand how much and how painful we feel n the inside.
Cottoncandyn313 3 weeks ago 2
I go through these stages all the time and many times all in the same day. Thank you for the video.
RCHRZ 3 weeks ago
I was diagnosed with lupus when I was 11, my doctor had been testing me for two years and never told us the tests came back positive. I was sent to Children's hospital for arthritis, there I was told I didn't have arthritis I had Lupus. I'm 15 now. Every day is a war. Those 5 stages of grief seem to be my best friend, I go through them frequently. We are more than this disease. We have to keep fighting, We can make it through. Keep your head high, My prayers & love are heading your way! <3
XXXmajiaXXX 2 months ago
Thanks for posting this. My mother dies from heart complications with Lupus May 5th 2000. I was 17, had two little brothers and honestly when you mentioned the part of AJ waiting on you...I remembered bringing her pills, lifting her from the toilet/chair/bed where ever. I know my mom gave up after 9 years of fighting and for a long time I was mad. Watching these vids help me to forgive her and remember the the pain she was in. DON'T GIVE UP. Fight, let AJ see and I'll pray for your strength.
gnmeadows01 2 months ago
i need to see this video because i may fear that i have lupus, i already have 2 other autoimmune disease
lovemyselfforever86 3 months ago
i need this because i already have 2 other autoimmune disease
lovemyselfforever86 3 months ago
I just try an make the best out of life and I want people to know I am still the same person I have been all my life
SHELLEY8211964 3 months ago
I have just been dignosed for 3 weeks and I am just glad to know what has been causing my pains all these years..I have always been a very quiet person and kept to myself well this thing called lupus and some other things have changed me..I will not keep it to myself any more..I need people to know..See someone may be sick as I have been and not know what is wrong..they need to know and have some understanding .
SHELLEY8211964 3 months ago
This would have been an ok vid without all the god and devil stuff.
From one lupus sufferer (and mother) to another though, cheers for the awareness. Hope you are doing ok.
Sugaraape 4 months ago
I can't thank you enough for this sweet video! Your story is SO powerful! I am a fellow Lupie & am just left in tears because I can relate to every inch of this video you shared....wow....so....I'm NOT alone after all! What a blessing to know that! I hope you are having a good Lupus Day today. Thanks again for sharing your story with the world. It helped me :)
ronda0412 5 months ago
I don't have Lupus so I don't know what you are going through, but I love your video. It is an inspiration to me. ;)
cntrymscfan08 5 months ago
still fighting but i won't give up!
mankindnature 5 months ago
Thanks for the powerful message
hben37 5 months ago
@hben37 you are very welcome. I have discovered that this applies to ANYONE...even my son who has Crohn's Disease.
ajsmommy 5 months ago
Thanks for making this video. I needed a lil boost of motivation to not let it bring me down.
miragey09 6 months ago
Wow this video was very powerful i shed some tears in the next days i hope there wll be a cure for this horrible disease. I do not have Lupus but i am praying for all of those out there who has Lupus and i HOPE the people who has Lupus will keep on fighting untill there is a cure.
MJisLove4life 6 months ago
I know exactly how you feel, fortunately I had 2 daughters. However the last pregnancy was so difficult for me and my baby. Now she is 10. I am still battling the disease and now have reached the stage of depression. I am 35 i was diagnosed at 25
jvox 7 months ago
i havent been diagnosed yet but i shed tears watching this video because its exactly how i feel. I wish they wouldnt have said its a possibility. ItS either that or carpal tunnel.. its kind of a stretch.. but ive already gone thru the 5 stages with out being diagnosed... sometimes i got thru them in the same day.. smh.. this video is beautiful mashallah
Imandriven 10 months ago
I can surely relate. At 1st, I was diagnosed w/a retinal eye disease that caused blindness w/limited light perception then came the diagnoses for Lupus (SLE) & Sjogren's Disease, which are further damaging my retinas along w/everything else. I was in remission b4 diagnosed tho I only remember severe joint pain, which must have been Lupus (SLE)/Sjogren's in earliest stages when I was much younger. I've been knowingly fighting Lupus/Sjogren's for 10+yrs now & it's the pits; it's tough on 2kids,&DH
PaisleyPlace 10 months ago
It's not lupus... ever...
GhostLink92 1 year ago
Beautiful video.... apparently 2 people don't have a heart. I have a cousin that just died of lupus, and I'll never forgot what a fighter she was. To everyone who is fighting lupus, keep doing it.
ksunshine217 1 year ago 5
@ksunshine217 one of those without a heart is one of my own siblings..sad,,,but true
ajsmommy 5 months ago
@ksunshine217 im 46 and i have sle lupus i have my gooddays and mostly bad,im happy for the time god has given me to share with my family and kids.im fighting my dieases and hey,im alive and still here...amen.....lynn ricketts of stockton california.................
lynnricketts2003 3 months ago
I may have lupus- don't know what I have yet- this is a beautiful video- sooooo true about our children!!
takinaluk 1 year ago
@takinaluk My son turned 12...well he is 12 now...he's my biggest inspiration!! Keep me informed...Much Love...
ajsmommy 1 year ago
I too have LUPUS, and for 8 years my prescriptions have multiplied. I describe to my kids the way I feel everyday is like "THE TIN MAN" from the wizard of oz before he's oiled... I am 32 going on 82. No one around me truly understands why I take all of the pills and vitamins that I do, but I would hate to see how I felt if I didn't. You said you want to see your child graduate..I FEEL YOUR PAIN! Idon't want to miss the chance of being a grandma either. I've gone back to school and living again!
luckycharm8869 1 year ago 2
@luckycharm8869 it is a devastating disease but we can fight it...it is a battle...uphill all the way and down hill some days. I pray that you find remission soon!!
ajsmommy 1 year ago
You absolutely are an inspiration to me... as a Mother as well being diagnosed with Lupus after having heart surgery at 29 I could not help but cry when I saw this video...I pray you have a healthy happy life ....
MsRgentry 1 year ago
@MsRgentry oh thank you...I pray the same for you. For all "Lupies" together we are strong...together we stand as ONE...united to FIGHT this disease.
ajsmommy 1 year ago
@apwilkes I know the depression. I know the pain and I won't let other people guilt me anymore....life is WAY too short...keep your chin up...fight...never let it get you down!
ajsmommy 1 year ago
i am doing a projct fo my Honors Anatomy class in high school. When i searched this and read your story i strate cring.. i had no idea what lupus was my teaher recomended me this disease and i didnt want it cause no one had heard about it.. now that i am researching this disease its unbearable witheverything you guys have to fight for. Im going to do my best to infrom my class and to make the best presentation ever so they can remember what lupus is! As for you KEEP FIGHTING! i want to join LFA!
FlorPadilla2011 1 year ago
@FlorPadilla2011 Yeah it can be overwhelming....but I'm taking it one day at a time. I don't make plans...I live day to day. I keep fighting. It's a daily thing and I'd love it if you watched the others...the one with Tubthumpin is one of my favorites. I'm not concieted...I'm just happy that my video can help others..Big Hugs...Josie Kay
ajsmommy 1 year ago
@ajsmommy do subscribeto ur channel? how do watch that video?
FlorPadilla2011 1 year ago
@FlorPadilla2011 subscibe to this channel...just watch the Lupus videos...
ajsmommy 1 year ago
Hold on I am being assessed for Lupus among other autoimune diseases which hey are ruling out and I wasn't aware Lupus was fatal. Is it?
sarandro 1 year ago
@sarandro Lupus can be fatal. I've been very close to dying...but you FIGHT...you FIGHT until you think you can't FIGHT and then you FIGHT that much more...God BLess
ajsmommy 1 year ago
@ajsmommy Thanks hun turns out I have Behcet's which is kinda similar but very rare for an english woman which means I'm less likely to win the lottery, boohoo. Guess you gotta have a sense of humor about these things I am finding as otherwise it's so very worrying isn't it. Hope everything works out for you my darling and the best of health to you and others suffering along with you x
sarandro 1 year ago
@sarandro Can I also say that I'm not very releived it is Behcets rather than Lupus because so much less is known about it. My Dr put me on Immune suppressants and then I learnt they were carsonogenic so stopped taking them. Are there any immune suppressants that don't increase the risk of cancers? I have called my rheumo but no reply as of yet
sarandro 1 year ago
I've had lupus since the 3rd grade. it only progresses :(
dancediva009 1 year ago
oh i love your video soooooooo much! i have lupus(11yrs. now) and i too went through and sometimes still go through the 5 stages that you mentioned. i have 2 children (10yrs. old and 7yrs. old) that does things for me! they are my blessings. what makes me sad is i feel that they have been robbed of their childhoods because i have lupus and cannot be active with them. and this hurts me. but i thank u for your vid and God Bless
MsDurtysouth 1 year ago
I've been fighting lupus (SLE) and Sjogren's disease for 10+yrs now. I remember exactly how I felt when it was confirmed (after 5+mos of testing every week & 2-3x a week), exactly how I felt on the driver home, exactly how it felt when I hugged my kids, & exactly how I felt the day I gained the courage to tell my DH & how I felt when he couldn't cope & called me a liar. It hurt so much. It took him a few wks to a month to finally believe me. He called me an addict b/c of pain meds to stop pain.
PaisleyPlace 1 year ago
@PaisleyPlace cont'd: It was his way of coping but it hurt me so deeply that I began to shut down. If it weren't for an online lupus group, I would have probably never held out for the meds regimen that gives me a semi-normal life today. I'm in the mod to severe stages & when diagnosed, I had come out of remission tho' I had no idea I had been IN REMISSION let alone had the diseases. It was the last thing on my mind. I was already fighting a retinal disease w/no cure. I didn't need this too.
PaisleyPlace 1 year ago
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my girlfriend is currently diagnosed with lupus, and now it is slowly destroying her kidneys,,she was lately diagnosed with CKD 4 and now started her hemodialysis.. it was really hard for me,,we have been in our relationship for 6 years now..and have been planning for our marriage..
i'm very touched with your video,,it's giving me hope.. i will support her in any way i can do..i realized people like her needs love and support the most..,now i know why God has given her to me. Tnx!
zidvahn17 1 year ago
my girlfriend is currently diagnosed with lupus, and now it is slowly destroying her kidneys,,she was lately diagnosed with CKD 4 and now started her hemodialysis.. it was really hard for me,,we have been in our relationship for 6 years now..and have been planning for our marriage..
i'm very touched with your video,,it's giving me hope.. i will support her in any way i can do..i realized people like her needs love and support the most..,now i know why God has given her to me. Tnx..
zidvahn17 1 year ago
@zidvahn17 u stick with her no matter what because a lot of lupus patients like myself has had mates to leave! stick with her! God Bless
MsDurtysouth 1 year ago
Great video. I have had lupus since age 14, 35 now and ppl tell me that I am lucky. Your 5 stages are right on. I'm in the depressed stage now because the pain is constant and the meds are not working. Still I am hopeful and trying to make it. It is good to know that others understand what it is like and their fight gives me the strength to keep going.
benevolent75 1 year ago 2
@benevolent75 how are you doing now?
ajsmommy 5 months ago
@ajsmommy I'm still fighting the battle, but the bad days are outnumbering the good ones. I'm in the angry stage again because lupus is limiting my ability to work and go to school. I'm sad to read that ur sibling doesn't understand ur pain. I'm glad ur still fighting to see your child grow up. I don't have children but get my inspiration to fight from others. Keep going as long as you can. Not everyday will you be able to go at the same pace but at least you'll be going. Peace.
benevolent75 5 months ago
i am also a lupus patient and diagnosed last year, and now i am really facing this 5 stages of life. Now i cant hardly walk, all i can say is that i do want live longer for my daughter i am the only one that she can hold. please help me god..
gracenic1819 1 year ago
I have Lupus... Im a fighter in Michigan as well...Stay strong we can beat this.
BLACDIAMONZ4U 1 year ago
Me too ! Today is ANGRY DAY. I want to see my kid graduate High school (barganing) Had 2 months of remission. It's over. Been through the 5! over and over. Hated my 8 yr old taking care of me. Now 14, I still hate it. You are not alone. You hit it on the head exactly how I feel.
MegaJosephine88 1 year ago
I completely understand you. I've been through those 5 stages and back. There are days where I feel fine and think just happy thoughts, when there are other days, when the pain hits you like a freight train. Can't stand up. Nor walk. As a 20yo I think to myself 'Why did it have to to be me?" then other times I think "It is what it is, I just have to suck it up and live with it" Am I wrong for thinking this way?
bbrenda17 1 year ago
i dont have lupus and i dont have physical pain, but i have disease that changed my life forever too, so i can in some way relate. was very touched by your vid thats for sure. think you are a very strong woman and mother :)
varigated 1 year ago 2
@varigated thank you so much. My son's life was changed...he now has Crohn's Disease. We are currently in in the hopital..where he is under close observation and getting IV steroids. As a mom...it's hard...as a Nurse..it's hard...I can't fix what he has...
ajsmommy 1 year ago 2
I hope they find a cure. So many people suffer from this. i've seen a friend watch his sister fade. He wishes so much it was him. The same type of stages he lives for her. He says he lived a life of bad deeds and she was always the good one. And now he belives he deserves it not her. It breaks my heart that he has to be in such pain watching his sister suffer. I hope that one day we can cure Lupus for all those in pain. Keep up the fight!
elixis28 1 year ago 4
@elixis28 right now this song applies..this video applies to my 11 year-old son who has severe Crohn's disease...we are in a crisis here at home prepping him for his colonoscopy and endoscope...I'm not dealing well with that but I know how your friend feels...I wish I could take the Crohn's from my baby boy!!
ajsmommy 1 year ago 2
All the 5 stages is sooo true. SOmetimes it happens 5 stages at one time. Whatever it is we still have to continue fight for it !!!!
farah3112 1 year ago 4
@farah3112 Yes we do we must NEVER give up....We have LUPUS....LUPUS DOES NOT have US! Remind yourself of that...hell look in the mirror and say it!!
ajsmommy 1 year ago
I have a question. What is Lupus? It sounds bad.God Bless! Praying for you!
BaileyTheSinger 1 year ago
@BaileyTheSinger You know when you have a cold & your immune system kicks in & attacks the virus right? That is good. Well, people with LUPUS have a confused immune system. Instead of attacking any foreign item (like a virus/bacteria) their immune system attacks their own body. It attacks their organs, their blood, their cells on every level.
Cre8iveCrafter 1 year ago 2
@BaileyTheSinger You basically "feel" (pain/ high temperature/exhaustion) like you have the worst flu of your life, every single minute of every single day. The Lupus attacks everyone differently.
Cre8iveCrafter 1 year ago
@Cre8iveCrafter thank you for answering bailey's question we are in crisis mode here at the house at the moment....my baby..he's 11 years-old..he has Crohn's disease and he's going through all those stages right now all at once...he's very very sick...we are prepping for colonoscopy and endscopic scopes tomorrow so I am crying where he can't see me...and it's not helping my ulcers...I wish it was me...
ajsmommy 1 year ago
@ajsmommy I am moved with deep mixed emotions. I hate it when babies and children are sick; Actually, I hate it when anybody's sick, but more especially when babies and children are sick. I will remember you and your house in my prayers. God bless you! Take good care of baby boy.
codecherry57 1 year ago
You are amazing.
taylorsacracker 1 year ago
@taylorsacracker Thank you. I'm not really. I'm just me.
ajsmommy 1 year ago
@ajsmommy Well, who you are is amazing. :) And you're welcome.
taylorsacracker 1 year ago
OMG!! Love this video...Thanks for sharing
I go through all of these at once sometimes LOL
It's a hard pill to swallow when you realize you've lost something you'll never get back. I was 26 when I was diagnosed.
I hope you are doing okay. I've just started my own awareness channel and I'm finding all of these wonderful videos. Nice to know 'm not alone.
Thanks again for sharing.
theleepchatchannel 3 years ago 8
@theleepchatchannel we are not alone...together we stand...tall and powerful!
ajsmommy 5 months ago
Thank you. <3
Kella86 3 years ago 4
I can relate. I'm diagnosed since 2005. Keep posting!
H2Ohexagon 3 years ago 3
Thank you for posting this. Hang in there!
WillowDove40 3 years ago 4
I totally agree, my wife has lupus and goes through all those stages in 1 hour.
bullykai 3 years ago 4
I believe you! It's hard when you never know how you're gonna feel one moment to the next. I was diagnosed in 2003. I pray she is doing okay.
theleepchatchannel 3 years ago 6