That is a very strategically placed toy lol It looks like she has pretty intact facial muscles seeing as how she's able to raise her eyebrows and smile
It is called Spinal Muscular Atrophy. It is a horrible disease that affect all the voluntary muscles including breathing and swallowing. Currently there is no cure :(
The trach does not have cuff and there the leakage between the tube and trachea allow air to escape into the vocal cords. She also learned how to use the ventilator to help her speak. (when disconnected she does not have enough power to make any sound). We thought that she would never speak after the tracheotomy and it was a nice surprise to hear her talk again.
That is a very strategically placed toy lol It looks like she has pretty intact facial muscles seeing as how she's able to raise her eyebrows and smile
lidyaFACE 1 month ago
She's beautiful! So nice to see her having fun in the water! BIG hugs from Canada Alesia!! XXXOOO
Domino3869 3 months ago
so pretty love her eyebrow motions!!
cyhalynne 4 months ago
que bueno ante la mejoria .
yaribelluna 9 months ago
oh how adorable!! made me smile to see her seem to be having so much fun!!
cyhalynne 11 months ago
Beautiful girl :)
KBranten 1 year ago
It is called Spinal Muscular Atrophy. It is a horrible disease that affect all the voluntary muscles including breathing and swallowing. Currently there is no cure :(
AnghelDaniel 1 year ago
what happened to her?
Emily123199316 1 year ago
what have this child?
Ricola28 1 year ago
She is really enjoying the water.God bless her.
ViveCristoMusic 1 year ago
thats so sad :[
miocame1 1 year ago
The trach does not have cuff and there the leakage between the tube and trachea allow air to escape into the vocal cords. She also learned how to use the ventilator to help her speak. (when disconnected she does not have enough power to make any sound). We thought that she would never speak after the tracheotomy and it was a nice surprise to hear her talk again.
AnghelDaniel 1 year ago
@AnghelDaniel
dasep30 1 year ago
How can she speak with a trachy in?
lolly16 1 year ago