Man, I wish i or anyone could help you and all those suffering from this terrible bitch of a disease. Please feel better man, you only got one life, make the most of it you know?
You put into words what I can not even do any more. (put into words) bcause my mind doesn't connct to what I need to say, Thank you so much for expressing what I can no longer articulate.
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As I lay here taking an hour just to type this short note, I pray for you. It doesn't help me to hear I'm not alone but at least I take the time out of my day to stop thinking of myself and pray for others.
This is how I have been and felt for 3 years except I took the meds and fought for them and when they wont give them to me and say you just had some last month I lay in the bed in living hell and misery. My brain seems to be getting worse and it truly scares me. When I do anything I keep it short....but so fogged and dizzy alot and in so much pain. Effecting my bladder & females now 2. Just turned 39. My daughter also has it & has now for 3 years, is now 19 &lays in bed. Breaks my heart !!!!
im at the end point thinking about suicide im numb all the time dizzy confused im only 15 and this shit has changed my life and the doctor want shut up about its anxiety wene i dont have it i told him i was bit by like 12 ticks in the woods a couple months later and im in the worse shape ive ever been in my life....I dont know what to do...
@wigimanXx Caleb this isn't the end point. There's definitely hope, despite all the garbage that comes from this ignorant arrogant doctors. See if you can find a "Lyme Literate Medical Doctor" in your area. Seek out any Lyme support groups. Get connected with others and find out who they're seeing for a doc. You can do this. You dont have to do it all in one day. But before giving up give it your best shot to find someone who can help. Because they're out there. This aint over.
@wigimanXx sht bro im goin thru the EXACT thing as u r iv ben to doctors tellin me its fkn depression n anxiety n shtt i debated suicide too bro dnt do it tho add me on fb so wecn tlk defjamskaggs@aol.com
Please keep trying - Im cured it is the most horrible thing that happened to me - please keep going to a doctor that will help you - Keep reading antibiotics and heavy metal products helped me
Miners use to have the canary in the mines during the 1930's.. Now we have the bees in the fields... Vanishingbees. com this is much deeper than lyme.
thank you Thane ! yes, you i can relate. i told my doctor a few months ago....... i don't care if this takes my body.....but please don't let it take my mind.
my physical pain has been one in which words cannot explain. and im honestly alright with it.
i just miss me. my mind. and trying to hold on to my spirit.
thank you for being you Thane. i really appreciate it. and thank you for being here. you are a great man.
Thane! You are articulate and amazing through Lyme Hell. I wish you the best and ask for your most positive thoughts to go out to my husband, a long time sufferer. Kind and Warm Regards.
Thane! You are articulate and amazing through through Lyme Hell. I wish you the best and ask for your thoughts to go out to my husband, a long time sufferer. Kind and Warm Regards.
Help for lyme: I don´t know if every damage made can be "repaired", nevertheless, Dr. Klinghardt ("HemoPyrrol-Lactam-uria (HPU), Lyme disease and autism presented by Dietritch Klinghardt, MD") and others have tremendous resulsts. Do also look into Dr. Chris Shade (youtube & his mercuryscientific, good lecture is "Dr. Chris Shade Lecture on New Methods of Mercury Testing and Detox IAOMT 2009 Las Vegas") & Dr. Boyd Haley (biochemist, ctiscience, OSR product, youtube).
My symptoms all started with a rash that moved around my body and a really bad fever. The doctors seem baffled. Then a month later I got severe joint pain and inflammation in my knees. A few months later I got numbness and burning sensations. Then my right side of my face went numb. I occasionally get a rash and swelling in my knees. Now I have issues with feeling that things are unreal and I sometimes can't remember where I am. I tested negative for lymes 3 times. I don't know what to do :/
@guitarobsessed85 did you do an Igenix Western Blot test of the standard ELISA test? Your symptoms fit Lyme to a T. Have you tried treating it yourself?
@thane17 I don't know what type of test I had done. I got it done through nordex labs. How would I get antibiotics to treat myself? I also have a lot of muscle twitching all over and light sensitivity issues that come and go. This is the most miserable thing I have been through in my entire life.
@guitarobsessed85 i suggest doing some reading on the Cowden Protocol and Dr. Klinghardt. Those are two of the leading lyme docs in the world and they've found the most success treating lyme with things you can buy over the counter.
@guitarobsessed85 If I can't get treated with this new doctor I have I'm going to Mexico and getting the antibiotics myself. I'm not waiting 'till this gets any worse.
@guitarobsessed85 Please SEE a NEUROLOGIST and tell him you need a SPINAL TAP to test for LYME! My mother walked around for 15 years, several hospitalizations and saw at least 4 neurologists before another Neuro told me that if you have "long term" untreated Lyme it will live in your SPINAL FLUID - and blood tests will NOT show it! Please also go to Hulu movies and search: "Under Our Skin" - a GREAT documentary that shows that people CAN be helped with LONG TERM IV Antibiotic
@guitarobsessed85 The hospitalizations were always for "panic attacks." Of course, all she was ever treated for was "anxiety" - with antidepressants! When her real problem was a raging BACTERIAL INFECTION! (Lyme)
Please go to Hulu.com /movies/Under Our Skin and watch this breakthrough film. Misdiagnosis is RAMPANT and wastes precious time!
Seeing you speak about how you feel which is how I feel too (no diagnosis yet for me) makes me so angry and sad, but mostly angry for every single person who has been criminally neglected by physicians. This is such a simple thing to identify by just running the right test!! There is no excuse for the lack of attention to it. People without medical degrees seem to know more about what to look for than doctors anymore. It's sickening!!!
@paizley11 Thank you for your comments. I'm still quite sick but i'm feeling better now than I was when I filmed this two years ago. I hope you find your path to wellness. Thanks again. -Thane
Lyme is curable!!! See also Dr. Klinghardt and his treatment protocoll!!!!!!! (German Doctor practising in the States! Expert! KLINGHARDT!!! see also Dr. Beck´s Protocoll!!!! The knowledge is there! And what about the Russians who under snake or tick bites gave a first aid shot of PROCAIN??? And then you wouldn´t get sick? Why is that knowledge not transfered on??? Every physician that cannot treat lyme fast should get kicked out of his/her job!!!!
... yes, and especially with todays high electromagnetic exposures. Use the Dr. Klinghardt Protocoll for your desease and stopp suffering! It is a crime that physicians who are not up to date on lyme are still allowed to practice and let patients suffer in vain. Dr. Klinghardt, German Doctor practicing in the States. Google him. He also has great clips on youtube. You can also go to a physician that uses the Klinghardt-Protocoll for healing you from lyme´s!
Hi Thane...how are you doing now? I was ask sick as you were when you seen this video, I'm a little better, but still really struggling. I hope your'e well.
I too am going through the same issues. I was diagnosed bipolar 15 years ago and defeated itl Now I'm in a constant battle with myself physically and mentally. I abuse myself mentally. I've always prided myself on my wit and education. I love to learn, I watch the history channel. I find that I have to watch the same program again b/c I forgot what I saw. URNot alone. If you and I can remind each other of that we can survive this long painful struggle together,
brain dammage, yes.. another symptom.. loss of fluent speech. when stressed or tired i am thinking the right words but listening to my speech i must recognize that i did not spell them right. thank you for this contribution.
Hiya, your video really moved me. I've had really terrible symptoms for 2 and half years. Extreme fatigue, pain all over the body, dizziness, digestive problems, brain fog, fevers, night sweats, the list is quite long. Recently had problems with my eyes as well. I've had various blood tests even one for lymes but it came back negative. I've also had numerous brain scans which haven't showed anything. Do you think its possible that I have lymes disease? I live in the UK so there not many doctors.
@neil1758 After 10 years 3 neurologists and several hospitalizations I finally found a Neurologist for my Mom and asked the right questions. She said the ONLY way to diagnose a "long term" Lyme infection was to look for the spirochete in the SPINAL FLUID. Mom had a spinal tap - and BINGO - there it was!
Former to this, she was given antidepressants and a recommendation for "counseling!" IDIOTS!!!
Long term Lyme is treated with IV ANTIBIOTICS - see also the movie:
@neil1758 If you got negative test you might have it, were any antibodies detected? You could try going private to Breakspear Hospital (search for it on google). If you don't mind me asking what are your problems with your eyes? do you see visual snow?
Wow, I'm going to use your video to describe to a friend how I feel. Ya know, when you're feeling good enough to leave the house and talk to people, or have people over, they think your doing pretty good. They don't know that they've just caught you on a "good" day, or the "begining" of the day. Or that I've become good at allowing them to carry the conversations while I only throw in an opinion here and there with a laugh and a smile! Thanks for the vid, hope you're now enjoying life!
Cont: from sweden. Mars this year I got a rash on my right thigh, I neglected it, a month or so, until it was the size of 38cm x 35cm. Dr. gave me fungal creme, it didn´t work.. After that he did the bloodwork: Borrelia. Penicillin for 10 days. I´m getting a little bit better but still a lot, lot of problem. Hope the best for u thane and all of us who´s down there... / This was long, but I hope u guys don´t mind.
Cont. from Sweden. Got hurt in a work reladet injury, took 14month before they found out what was wrong. During that time the Lyme really took hold of me and I related all problems to the sickleaf. I got back to work last July, feeling "shitty" but intended to do my work. Haven't been able to sleep properly for almost 3 years, my manager got my Dr. to finally give me presb. for Imovane. The aches, hearing prob, sweatting, forgetfulness,sleep prob and all the rest . continued.. To be cont..
Cont. from Sweden.. Well, "all" was well, apart from me who was falling apart, began to loose my friends becouse all of a sudden I didn´t want to see them, not to call them, if they invited me to a party I was fine with that until the last minute, when I always called and say Ohh, I´m sorry.. I did wonder was was wrong, I couldn´t understand, been a Vip in a lot rest, and discos and bars. And now all I wantet was to be alone. Workes a few more years as a waitress until the day.. To be cont..
From Sweden: Got bitten in -97. 2003 I got my right knee swollen like a football, went to Dr. who sent me to both magnetic and skelleton x-ray, found out nothing but artrotis.. Sometime later I also asked Dr. why I had so much ache in my joints, test for rehmautism-nothing. Later I asked how come I had so many fever tops during daytime. Dr. took many bloodtests, found out nothing. A few (?) years went by, me accepting things getting worse, there was nothing wrong..only in my mind.. To be Cont..
From Sweden: Got bitten in -97. 2003 I got my right knee swollen like a football, went to Dr. who sent me to both magnetic and skelleton x-ray, found out nothing but artrotis.. Sometime later I also asked Dr. why I had so much ache in my joints, test for rehmautism-nothing. Later I asked how come I had so many fever tops during daytime. Dr. took many bloodtests, found out nothing. A few (?) years went by, me accepting things getting worse, there was nothing wrong..only in my mind.. To be Cont..
yes i know how you feel, i also find it challenging to handle it mentally, my forgetfulness, word memory etc. you are worth something even though its not what u planned. its what god planned for you / us i don't know why. we can not let this disease get us, we can not let a little bug win. pray for ur stregnth through god al things are possible.
I KNOW how you feel...and wrote songs about it! I hope they give you a little comfort...I'm not only on your side, I share what's under your skin. Namaste!
Please check out my channel and spread the "SubLyme Ascent" songs/videos. I need to get enough exposure to sell this album through the Lyme associations cross-country...and hopefully around the world. The reason? Because I plan on giving ALL proceeds, other than production costs and 10% for my band's medical expenses (I'm the songwriter for BolaFeld and have confirmed Lyme, Mycoplasma and Morgellon's), to the researching LLMD's trying to cure us all. Feel free to use our stuff for info-videos.
I meant blood vessels not blood pressure, but bp is very high now too. And all this after me bugging the doctors for over 5 years to find out what was wrong with me. Yeah I'm mad, I'm furious, but if you let the mental shit get at you it takes more away. So try and find a project, even if you're fucked and think it's a waste of time, think you might die soon etc, just do it anyway....
Hang in there brother. I've had schizophrenia ever-since i was a teenager, diagnosed when i was a teenager but probs earlier. I just found out (at 27) after not being able to have a career, girlfriend, social or sex life that it was all due to this infection. Mine is so advanced that i can't even get treatment because the amount of inflammation in my body has damaged my blood pressure so bad and the only anti-biotic that they can use to counteract it will cause severe bleeding. Be strong
Thane17 hope you are doing better, this video was really saddening to see. I've just been searching for information on Lymes disease recently because for a few years now I've been suffering from a few problems, mainly anxiety, brain fog and something called Visual Snow. I just wondered if Visual Snow has anything to do with Lymes disease at all, did you experience this? (Visual Snow is when you see static on everything and it gets worse at night time.) Hope you are doing well.
@damnitphil What you describe sounds a lot like Lyme. I dont have the snow or floaters but many others with Lyme do. Keep pursuing it. I think you're on the right track. All the best. Thanks for the support.
so what are the symptoms besides brain fog and memory problems? I think I have this but I never remember getting a rash or flu symptoms, I also don't live in a area where it is very common, but I was bitten by a tick and I am having brain fog and memory problems, lately I've been dealing with slight migraines and my working memory is terrible to the point I can't interact with people well << are these symptoms?
@Miikaika25 yes unfortunately that sounds a lot like lyme. It's different for everyone, but it tends to include cognitive, emotional, and fatigue symptoms. If you have Netflix I HIGHLY recommend watching the instantly available documentary Under Our Skin. It' will open your eyes. Also connect with some lyme groups in your local area and find out which doctors treat lyme. Most say that will but really they have no clue. Good luck!
@thane17 ok thank you, but I'm having problems finding a place to get diagnosed, I live in the south. We have lyme here.. however I think I may have SCT (Sluggish Cognitive Tempo) which is on the ADHD spectrum. I don't have much joint pain except when I am walking up a ton of stairs. What does brain fog feel like? is it when you stare off into space or day dream? my other issue is that many of my memory problems started when I tried to become a vegetarian but was not eating right
@thane17 It seems the biggest problem with lyme disease is trying to rule out any other causes, and that it affects people differently. I've dealt with a few of the issues before I remember any tick bites. Plus people live with lyme for 15-20+ years and never know it. Lyme is so confusing, I study psychology that's why I'm interested in figuring out if I have lyme disease or just regular depression which I suffer from >.< also what's the difference of can't get out of bed and not wanting to
Yes, I agree. This is such a misdiagnosed illness and affects so many people. And, as you can see, it affects the mental state of people as well. Do a search on youtube under Biological Medicine and check out Dr Rau's video about Lyme Disease. There is hope and he has a product that's helped a lot of people.
Thank you for making this video. I am so sorry that you have been affected so much. I too have the brain problems. Yeah, I know about the good days and the bad days. No one can know unless they've walked this road.
I sympathize W/UI have all the symptoms of Lyme Diseas & understand your frustration and pain. I am in the process of having further testing & have been ill with all these symptoms for over a year now. CranioSacral Institute of Michigan LLC has have developed a process called Craniosacral Therapy to help bring back damage that has occured to the brain. Chk into this maybe it can help you!
@suckbar69: I have a suggestion for you..... Shut the fuck up. You have no idea what Lyme disease is like and I can tell you from experience, you don't want to. This is not a pissing contest to see whose disease is worse or who is more deserving of attention. What makes you think everybody should conform to your one-sided standard of behavior? Get over yourself.
I really feel for you man, I have had CFS/ME for 7 years and can relate to a lot what you are going through, I really hope you get better no matter what, you are a very strong person, when times are really tough that inner strength shines through
Have you ever tried meditation? I find it very relaxing, it calms the mind and body
Thanks so much for your posting this. I just realized this weekend that I have Lyme- 63 out of the 100 symptoms. So, yeah... my brain is going downhill just like other organs and systems. Since I am a writer and musician/ composer, organizational ability and clarity are necessary. When having flare-ups I can't think at all. Now my face is numb all the time, I get confused and emotional, misjudge spatially. It sux. My doctor put me on a one month supply of antibiotics yesterday. After that I do
Thank you for your courage to share your experience with effects of Lyme brain damage. My toughest challenge of Lyme is brain damage both cognitively & behavior changes. Examples: Anxiety attacks, ADD, changes in sleep patterns & seclusion from life. Cognitively, the affects on concentration, reasoning, logic & expression, despite what a person was Before Lyme, are devastating. I still have hope of recovery w/Support and Treatment. We have to hang in one day at a time! I'm grateful. <3 <3 <3
Quit crying. I have schizophrenia and lived with my mind in chaos nearly all my life.
I live now in a room barely getting outside because I am paranoid that people are after me. I used to be somewhat better and have a college education and had a job making about 70k per year. I lost the job because i became so paranoid and delusional. Now im seriously messed up. But I still go on. That's life and you only get 1 life.
You tell him to quit crying??!! Here's a recommendation, go post on a channel for people with schizophrenia. We all as humans handle are trials differently and for you to tell him to quit cry is rude, cold and you lack sympathy for his pain. I am sorry for your schizophrenia but there is no way I would make fun of you for expressing your emotional pain of feelings. I have Lyme and I suffer mentally along with this man and all you do with your post is show your level of immaturity.
@jonnyboy65ables no one shows me any sympathy. they only show me hatred and disgust and ive seen many with mental or neorological disorders treated the same. might as well toughen up and that is the point im trying to make not to look down on him.
@suckbar69 Complications involved with Lyme Disease include: nerve damage, pain, blindness, paralysis, memory problems, heart failure, death etc.
Lyme Disease mimics complications seen in mental disorders such as: depression, Bi-Polar, and SCHIZOPHRENIA.
Yes, we know your life is SOO much tougher than everyone elses and we all feel SOOOOOO sorry for you. You deserve a fucking national holiday and the Nobel peace prize for your UNRIVALED hardships. -___-
@R0b0mammal It is a lot tougher than others and you honestly have no fucking idea. I resent a video that tries to get attention for 'brain fog', shit that is a mere side effect of the medications I have to take. I don't like fucking grown man crying about it on a video, I have never fucking cried over the seizures and other shit that happened to me. So come live my life fucker, enter my hell then you can comment on it. Until then stfu.
@suckbar69 your a fucking asshole. GET OFF YOUR MEDICATION THEN. My boyfriend has lyme and his "brain fog" is also PAINFUL. Its like you have chronic meningitis!! Why ARE YOU COMING ON SOMEONE ELSES VIDEO BITCHING ABOUT YOUR CONDITION??? You selfish prick. the pain this man is feeling is real. im so sorry thane17.
Thanks for posting this video. I am hope you are doing well these days and found what worked for you to get better and stay that way in the long run. Thanks for being so vulnerable and open about your battle with Lyme Disease. LymeAngele
Thank you. Thank you for being so brave and giving people like me a voice. You are so strong to express yourself like this and make it public. I know what you are going through and it isn't easy. stay stong. people like us cant give up, just stay positive and know that it will all be better one day.
I found a tick on my ... I thought it was a spider, and they freak me out....so I tried to brush it off , but it wouldn't budge...I even pulled on it and it took a times before I could finally get rid of it. It looked like the head was still on it, so everyone told me to not worry....is this true??
Thanks so much. Have you been cured yet? I haven't started treatment yet, but maybe soon. I've had it for possibly up to 39 years, having got it at birth from my mother. My whole life has been one giant torturous hell.
My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
very brave you made the video! you will get through! I know the combination of antibiotics and immunemodulating threatments that take away the so called "cronic low grade brain inflamation", on long term get you back to health, it just takes a lot of time...so keep strong!
very brave you made the video! you will get through! I know the combination of antibiotics and imunemodukling threatments on long term get you back, it just takes a lot of time...so keep strong!
Mate I feel ya pain. have had CFS for 18months i don't know if they are the same conditions. But I have had brain fog now for 18 months. Sleep probs, fatigue etc.
Best thing I can offer, treat the sleep and your brain fog will improve. 1 zopiclone and half an avanza gets me a good solid 8 hours sleep. You need sleep to help your body recover. Hang in there mate. Life has dealt us a shit hand but we will pull through. The mind and brain can repair itself.
Thanks Thane...brave man...this illness has taught us lots.....faith and hope gives rise to an almost super human courage, that no one will ever see or appreciate, but draws us to a solution to this crippling disease, in nature, there's a cure for everything, natural n'sweet, we just need to re-discover it or find someone who has. With Natural cures its down to individuals personal resolve, which is sapped,but we can do it, hope u have found a way that works.dont give up.
@ninaanne3 This World needs more people like you. I echo "missjj31" sentiments, faith and prayer for Thane and everyone else suffering from this thing.
I know the pain. One can not read, can not remember any thing, its fog ness in mind. One can not control his mind. Its just un discribable. Can not rely on mind. Its like some thing in mind is eroding. I live in Pakistan and here there are no doctors available for its diagnose and treatment. Horible horible feeling. I seems you are traped in some cell that no one else can see except he who is suffering. If some one out there has found its solution please share.
Thankyou so much for this vid.I saw it for the first time today and it made me cry.It made me cry for myself.I have lymedisease now for 6 years and I know accectly what you are talking about.I think I am losing my mind.Trying to be brave for my kids,but losing not only my mind but also myself.Thankyou
I am in the same boat. I am trying to strong for my daughter and grand kids, but it is very hard. I used to do every thing and now I stay at home don't do too much. I loved talking on the phone now I hate it mostly because I can not think clear and don't remember what someone would say 1 min. later. I wish these Dr.'s would stop trying to hide the problem and try to cure the problem. I guess if they got LYME maybe they would solve the problem!!
I am in the same boat. I am trying to stay strong for my daughter and grand kids, but it is very hard. I used to do every thing and now I stay at home don't do too much. I loved talking on the phone now I hate it mostly because I can not think clear and don't remember what someone would say 1 min. later. I wish these Dr.'s would stop trying to hide the problem and try to cure the problem. I guess if they got LYME maybe they would solve the problem!!
I'm so glad this is an old vid and that you are doing much better now. I feel just like you here, my disease, a type of MS, is taking my brain and my body too not to say my soul :(
to thane17- beautifully said. I'm there, too. I have lost most everything to this evil thing, my poor children were born with it and cannot get diagnosed, and have been denied a referral to the Infectious Disease Doc who dxd me and saved my life. There most definitely a conspiracy among the corporate docs. I get to watch my precious children suffer daily, as a direct result of their arrogance, ignorance and cruelty. We are doing without in Florida. I've had this so long, I have brain lesions.
I feel just like you. I hope you are better. I don't like being around people, because they have no idea what it is like. I miss me too...God bless you.
Hang in there man!! I'm being treated now for lyme after 5 years undiagnosed. It's hell dude. I understand what your going through. It will get better remember that.
Man my heart goes out to you. This is a terrible disease. How are you holding up nowadays after the CCSVI procedure? Any new developments or breakthroughs in your health? I see this vid was from 2009 so I hope your doing better. Hang in there bro.
I know how you feel man I'm so scared for the future because I can't work a normal job feeling like this but no one understands because there's not enough awareness of the disease due to propaganda.
I'm right there with you man. Neurologically things were improving for me... til I lost my insurance last month. I'm done - what can i do? I've lost everything. My house, my wife, and basically my job. Some point you just have to fold. I hope you are doing well since this video was made. This shit is straight up evil.
Aladdin Gee love this it's off the chain your going places in life take this from the Gee thumbs up i rate this video yeh i had to take some time out to show some love to this video
lyme definitely kicks your brain in the ass. makes you feel and act like a totally different person. i used to be very social... now i try to avoid everyone cuz its actually really hard to pretend like ur fine in public.
i had lyme for 2 years undiagnosed. it has now been 8 months since my treatment. and everything seems better EXCEPT my brain function.
did you get any better since making this video? would love some tips...
Thane-I totally understand what you are going through and "get it" when you say that lyme has changed the person you once were and who you could have been. That's the hardest part of lyme I think--getting over the anger of knowing that you could have been so much more if not for some tiny little bug. I also don't have family support-they thought I was making up all my symptoms since the dr's couldn't find anything wrong-until recently. I saw a LL naturopath and she has been a life saver!
I feel for you . I have it too . I am under a naturopaths care and also using the salt/apple poly protocol . My mind is slowly coming back . I agree that is the most frightening symptom . Good luck to you , friend .
I don't know what to say... Obviously even among all of us our experiences are different, but the best I can, I know what you're going through, and I watch you and feel like I see parts of "me" in "you", and during the part where you're not talking, I feel like I know exactly what's going on in your head and I don't know, thanks though. Best wishes.
hey, i have been where you are at in this video for about a year and it has gotten much worse for me. I was wondering if youve been feeling any relief from this problem at all
I read somewhere that you will need 14 days of iv antibiotic and that should get rid of it. For those with lyme, have you tried the solution. I believe it was doxy 2 mg / iv ...and for those with nurological problem they added peniciline. I am just letting you know what i have read. Good Luck.
Thank you for sharing. This has been one of the hardest parts for me. It's frustrating, embarrassing and just plain sucks. I hate the migraines, the confusion, all of it. Can't remember shit. I'm like a total space cadet, and was always on my A game. Have been suffering since 1992. I know I'm not crazy, and think the meds for depression make it worse. Don't have any Drs in our area. I know what you are going through. Just know u r not alone! Peace.
thank you for sharing this. i was diagnosed when i was 4 and i still suffer today from symptoms that just never go away. it means a lot to me to see that i'm not crazy and other people go through it too. it effect my brain and my nervous system really bad< i have the worst anxiety and depression. if i didnt have God and people like you i wouldn't still be here today <3 we are stronger than we think and we will all make it through to brighter days.
The only issue I have is that these symptoms and this disease is actually caused by a spirochete bacterium. It seems this was the assumption but I dont think the tests really prove that. From what I see, there are a number of pathogens that cause this range of symptoms.
AMEN!! Brain fog, that does not even come close. I am so tired of every hair on my head hurting, fevers, not being able to help my daughter with homework. I feel like I am slowly dieing!! And now I can't get health insurance and Social security says nothing is wrong with me. I walk and all of a sudden my get dizzy and It looks like i am drunk but I can't walk in a straight line. I forget where i am going what I am doing, how i got somewhere. please CDC help us get the research, a cure.
Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
I'd not wish this for anyone and feel your pain,I'm glad you were brave enough to post this! I hear so many people with physical malfunction,but I never heard people about how much it can mess up your brain,so I always felt very alone.Especially bc people can't see from the outside how sick you are from the inside.I have days where I just wish that I wouldn't wake-up anymore.No feelings,no future aspects,just plain apathy,tiredness,anxiety,depression,though I know I'm not like that.
Hang in there bro. I can relate, having brain damage from an accident and also having chronic Lyme which made everything worse and worse. Just know there are MANY MANY others out here who share your hardship and this video will help them tough it out. Some think we are weak, but we are stronger than anyone could know. We HAVE 2 fight on every day, and 'non-sufferers' have no idea what it takes to live with chronic disease. they get a cold or sprain and act like a baby.
Thank you. I "don't know what's going on" right now, but you made me feel like I wasn't alone in this confusion and horror. I hope that you are feeling a bit better since this video was made. My heart goes out to you because my brain just keeps deteriorating and I know how scary that is.
Thank you. I have watched your video several times as it reminds me that I am not alone. It's hard for others to understand the complexity of lyme disease. Thank you for being real about it.....Susan
U have really made me feel like some one out there understands me. sometimes I want to die cause the pain is so bad....I cant think, I cant remember, I cant speak in words, I get so angry at times its not me. My chest kills me, spinal pain, head pain all the time, arm & leg pains, joint and numbness. It just doesnt stop. thanks so much for sharing. BH from Maine
Thank You! People need to know what this disease does. The doctors aren't going to tell them. Many suffer the same effects. I use to beat myself up when I couldn't think straight. I still have issues.........but I did get meds that help me think much closer to the level I was at before. I couldn't count to 20 at one point. Real fun when you run your business alone. DON'T GIVE UP!!! GOD BLESS YOU AND KEEP YOU SAFE!
I am a single mother of two small children and I have had lyme disease for 11 years and only now got diagnosed. I have suffered from extreme depression and rage (plus all the physical symptoms) and have become a mother that I don't want my children to have to grow up with. I used to be so patient, loving, attentive and dedicated to my children, but now I don't even want to get out of bed. Thank you so much for taking away my guilt by knowing I'm not a bad person and it (lyme) is in my head.
Thank you for this.. I cried watching it . I have had Lyme 25 years.. the brain stuff is the absolute worst.. I am now healing thanks to going to the Klinghardt Clinic..Both my children have Lyme also. I used to stutter , go temorarily blind, have severe hallucinations and rage, confusion, heart attacks and seizures.. Now I am healing, my symtoms are halved and each day gets better. I hope you find healing too. <3
I say treat the parasites, not just the bacteria. Flagyl and bactrim and antihelmintics could save our lives! Hugs, lots of strength and sharing the suffering with you!
Thank you so much for your video, I didn't think there was anyone else out there who felt exactly like I did about my lyme disease...apparently I was wrong and it's a great relief to know there are more people out there. I appreciate it very much.
well sir, i see in youre eyes you are a broken man ...... since im a warchild i saw things in my childhood that you guys even can not imagine ..... and i know how broken humans look like .....
i realy feel sorry for you !
the first step for a good live is too let love in your mind, heart and soul ....
for my next words i apologize even before but....
you listen to pat condell and his hatred message and on the other hand .....
anyway the healing starts in youre soul my friend ......
hello i have had lyme disease for 14yrs. i have alot symptoms . we h6ave a great lyme doctor. insurance will not cover, so i see him every few months. just to save the 325.00 to pay for the visit. im very lucky to be able to have someone to believe and understand that this shit sucks. to see the video i can understand and most of all the memory. it is like a fog and alot of time cant remember anything. im very lucky to have my husband, he has become a doctor with everything. i understand ..
Thank you for sharing this! Not enough people understand that without your brain, we are nothing. Derealization, no memory, insomnia, anxiety, confusion. Brain Fog does not do justice here. It is a state on consciousness that I never thought was possible. I have said so many times that I would rather have the pain than not having my brain. I look in the mirror and don't recognize myself. BUT, I too have not lost hope. All we can do is ride the waves. We WILL GET THERE!
have you considered the possibility that the presence of the bacteria might be related to the presence of auto immune conditions? Auto immune conditions are the major scourge of our society today and whether mild or severe all tend to operate in a similar fashion indicating that there is a similar cause. My theory on Lyme disease is that it is a bacteria that is normally disposed of by a healthy body but is allowed to fester in a body that is attacking itself--autoimmune. We will find cures
Dr. Zhang in NY.. please look into his herbs. It has kept me well. I had all the symptoms.. 14 doctors later I finally found a lyme doctor to get me the correct tests.
It can be cured at best controlled.. I have had it for 5 years now and the herbs keep me stable so I can function.
I had the brain stuff very severe.. felt like lightening bolts going thru my head.. and my heart..and I was paralyzed..
I sat here and sobbed watching you because I have been there. I make no $ from this.
God bless you. so many people think lyme disease isnt a big deal..only if they knew the mental pain and struggles we go through. one day your fine and then the next your destroyed forever. we wil get through this. ive had lyimes for 3 years..the first time they tried to treat me they gave me the wrong medicine wich made me worse then they tried to treat me again and it was just too late. they told me that i cant be cured that ill never get better..it is a awful diseas. God bless you.
I'm so sorry -- I agree that the brain fog is the worst. When I was in high school, I was offered academic scholarships to many colleges. Now I can hardly read. It physically hurts to concentrate and focus. I think I've overcome most physical symptoms but the memory loss, depression and brain fog are still there. This disease doesn't kill you - just sucks the life out of you. I watch my friends have full lives - where did mine go? I'm so tired, yet I have to try so hard at everything.
Your honesty is right on the mark. I've had lyme for 12 years and dealt with incompetent doctors, pain, suffering and similar feelings you've expressed. Don't give up. at the least people with lyme have to go on to help other people with lyme as your video has done. You're right, the mental part is the hardest, being forced to leave behind an old life of health and face the day to day torture the disease inflicts is a mental battle.. Lyme also affects the brain physically as well.
Lyme Disease. Good God. I can barely carry a conversation anymore. I wish I could hang out with all of you fellow sufferers. It seems like only you would understand. My friends tell me it's all in my head and that my brain just makes it up. I've had people lash out at me because they don't get it, nor believe me. Maybe I need better friends. I've acted terribly lately, doing things I never would've done before. I feel cursed, maybe I am. A plague for Babylon?
Our brains are powerful. its like you said. so so powerful. What you have is toxins and microorganisms. Hormonal and acidic imbalances in your body. Very complicated but infinitely simple to cure if you look at it the right way. If you do the right things, in my comment below i think that could help you a lot my friend.
Please look into the beck protocol mate. there is so much information out there that can help you be free again. Look into oxygen healing and living foods. It can give you back to you again, i know from experience.
I agree , its what it does to your brain that is the worst. I can relate to everything you said <:*( . I've pretty much given up on the future tho. Ive been too ill too have a job to pay for any treatments, so i'm just waiting for it to kill me, trying to enjoy what life I have left. almost had a heart attack a few weeks ago, and just hope it happens quick like that. good luck sweety
Wow...someone had posted this link on my facebook and it just hit me..I started crying. Not only for you but for myself and many others. You described this disease PERFECTLY to a tee! My husband watched this as well and as amazing and understanding as he is I think he has a hard time understanding mentally how its broken me down and why I feel the guilt and why I also question at times who I am anymore. I know this video took a lot of courage, and I thank you for that:) Hang in there!!! *hugs*
Listen mate, you cannot see yourself as other see you and clearly you have Lyme as you describe my own experiences. As regards your mind being damaged I say don’t worry as from the outside your one hell of a clear talking intelligent and composed guy, it’s the depressive side of Lyme making your worry that your mind is permanently damaged.
Keep up some good Lyme antibiotic treatment my friend; your good and bright mind is still in there waiting to take control again.
Man, I wish i or anyone could help you and all those suffering from this terrible bitch of a disease. Please feel better man, you only got one life, make the most of it you know?
mantooth126 1 week ago in playlist More videos from thane17
You put into words what I can not even do any more. (put into words) bcause my mind doesn't connct to what I need to say, Thank you so much for expressing what I can no longer articulate.
swpringinmeadow 3 weeks ago
love you thane <3
KaterinaEllas 3 weeks ago
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chicababe0626 1 month ago
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You can attain a reliable micro-current treatment device that also serves as a Colloidal Silver generator through the Unleash Health site. Offering quality, affordable and effective microcurrent technology following the Beck Protocol. Learn more today and bring your health and immunity to the next level.
unleashhealth 1 month ago
Bro, please look into black seed amazing herb that cures all deseases if you believe. Stay strong.
Dandibay 1 month ago
you will beat it or God will reward you for your patience. My prayers are with you.
Dandibay 1 month ago
As I lay here taking an hour just to type this short note, I pray for you. It doesn't help me to hear I'm not alone but at least I take the time out of my day to stop thinking of myself and pray for others.
amabile070 1 month ago
LYME DISEASE WAS A BIOLOGICAL WARFARE INVENTION CREATED ON PLUM ISLAND. ITS A VERY EFFECTIVE WEAPON BECAUSE OF ITS ABILITY TO MIMIC
SO MANY DIFFERENT THINGS LEAVING YOU AND YOUR DOCTOR TOTALLY SCATTERED AND WONDERING WHAT THE HELL IS GOING ON HERE.
sihansen932835 1 month ago
my email is michele.pace@gmail.com please stay in touch and let me know how you are. I've been fighting so long and so tired...
Michele7P 2 months ago
This is how I have been and felt for 3 years except I took the meds and fought for them and when they wont give them to me and say you just had some last month I lay in the bed in living hell and misery. My brain seems to be getting worse and it truly scares me. When I do anything I keep it short....but so fogged and dizzy alot and in so much pain. Effecting my bladder & females now 2. Just turned 39. My daughter also has it & has now for 3 years, is now 19 &lays in bed. Breaks my heart !!!!
Michele7P 2 months ago
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BuggedbyMPD 2 months ago
@BuggedbyMPD Lyme Disease and melanin have no connection. I know multiple black and hispanic patients in my lyme support group.
In19944 2 months ago
im at the end point thinking about suicide im numb all the time dizzy confused im only 15 and this shit has changed my life and the doctor want shut up about its anxiety wene i dont have it i told him i was bit by like 12 ticks in the woods a couple months later and im in the worse shape ive ever been in my life....I dont know what to do...
wigimanXx 2 months ago
@wigimanXx Caleb this isn't the end point. There's definitely hope, despite all the garbage that comes from this ignorant arrogant doctors. See if you can find a "Lyme Literate Medical Doctor" in your area. Seek out any Lyme support groups. Get connected with others and find out who they're seeing for a doc. You can do this. You dont have to do it all in one day. But before giving up give it your best shot to find someone who can help. Because they're out there. This aint over.
thane17 2 months ago
@thane17 Thank you for your message shows people have hearts now adays...I hope you find the treatment you need..ill pray for you.
wigimanXx 1 month ago
@thane17 How long have you had it?
guitarobsessed85 1 month ago
@wigimanXx sht bro im goin thru the EXACT thing as u r iv ben to doctors tellin me its fkn depression n anxiety n shtt i debated suicide too bro dnt do it tho add me on fb so wecn tlk defjamskaggs@aol.com
fatassassin12312 2 months ago
@wigimanXx
Please keep trying - Im cured it is the most horrible thing that happened to me - please keep going to a doctor that will help you - Keep reading antibiotics and heavy metal products helped me
Karen : karen.healey@hotmail.com
Karen
karenandlucky 16 hours ago
best of luck. i'm in same boat. drs don't give a shit about this disease.period
In19944 2 months ago
Miners use to have the canary in the mines during the 1930's.. Now we have the bees in the fields... Vanishingbees. com this is much deeper than lyme.
Thanks..... Keep on, Keepin on soldier.
PS
krsnabook. com keeps me going.
PPS
biologicdentists. com
charukrsnadasa 2 months ago
love....
obliviainc 2 months ago
thank you Thane ! yes, you i can relate. i told my doctor a few months ago....... i don't care if this takes my body.....but please don't let it take my mind.
my physical pain has been one in which words cannot explain. and im honestly alright with it.
i just miss me. my mind. and trying to hold on to my spirit.
thank you for being you Thane. i really appreciate it. and thank you for being here. you are a great man.
i will be thinking of you along this journey.
ozaday 3 months ago
Thane! You are articulate and amazing through Lyme Hell. I wish you the best and ask for your most positive thoughts to go out to my husband, a long time sufferer. Kind and Warm Regards.
1960SSS 3 months ago
Thane! You are articulate and amazing through through Lyme Hell. I wish you the best and ask for your thoughts to go out to my husband, a long time sufferer. Kind and Warm Regards.
1960SSS 3 months ago
Help for lyme: I don´t know if every damage made can be "repaired", nevertheless, Dr. Klinghardt ("HemoPyrrol-Lactam-uria (HPU), Lyme disease and autism presented by Dietritch Klinghardt, MD") and others have tremendous resulsts. Do also look into Dr. Chris Shade (youtube & his mercuryscientific, good lecture is "Dr. Chris Shade Lecture on New Methods of Mercury Testing and Detox IAOMT 2009 Las Vegas") & Dr. Boyd Haley (biochemist, ctiscience, OSR product, youtube).
KarinOll 3 months ago in playlist Weitere Videos von thane17
Thank you for being so brave to tell my own story. I'm unable to do it. You are very brave, and know that you are not alone.
missclaireee1 3 months ago 2
@missclaireee1 Thank you, missclaire. Your comments mean a lot to me. Sorry to hear how much you're suffering :( Healing blessings
thane17 3 months ago 2
My symptoms all started with a rash that moved around my body and a really bad fever. The doctors seem baffled. Then a month later I got severe joint pain and inflammation in my knees. A few months later I got numbness and burning sensations. Then my right side of my face went numb. I occasionally get a rash and swelling in my knees. Now I have issues with feeling that things are unreal and I sometimes can't remember where I am. I tested negative for lymes 3 times. I don't know what to do :/
guitarobsessed85 3 months ago
@guitarobsessed85 did you do an Igenix Western Blot test of the standard ELISA test? Your symptoms fit Lyme to a T. Have you tried treating it yourself?
thane17 3 months ago
@thane17 I don't know what type of test I had done. I got it done through nordex labs. How would I get antibiotics to treat myself? I also have a lot of muscle twitching all over and light sensitivity issues that come and go. This is the most miserable thing I have been through in my entire life.
guitarobsessed85 3 months ago
@guitarobsessed85 i suggest doing some reading on the Cowden Protocol and Dr. Klinghardt. Those are two of the leading lyme docs in the world and they've found the most success treating lyme with things you can buy over the counter.
thane17 3 months ago
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guitarobsessed85 3 months ago
@guitarobsessed85 If I can't get treated with this new doctor I have I'm going to Mexico and getting the antibiotics myself. I'm not waiting 'till this gets any worse.
guitarobsessed85 3 months ago
@guitarobsessed85 Please SEE a NEUROLOGIST and tell him you need a SPINAL TAP to test for LYME! My mother walked around for 15 years, several hospitalizations and saw at least 4 neurologists before another Neuro told me that if you have "long term" untreated Lyme it will live in your SPINAL FLUID - and blood tests will NOT show it! Please also go to Hulu movies and search: "Under Our Skin" - a GREAT documentary that shows that people CAN be helped with LONG TERM IV Antibiotic
MzProgressive 1 month ago
@MzProgressive What symptoms were his hospitalizations for exactly?
guitarobsessed85 1 month ago
@guitarobsessed85 The hospitalizations were always for "panic attacks." Of course, all she was ever treated for was "anxiety" - with antidepressants! When her real problem was a raging BACTERIAL INFECTION! (Lyme)
Please go to Hulu.com /movies/Under Our Skin and watch this breakthrough film. Misdiagnosis is RAMPANT and wastes precious time!
MzProgressive 1 month ago
Hello Dear,
Seeing you speak about how you feel which is how I feel too (no diagnosis yet for me) makes me so angry and sad, but mostly angry for every single person who has been criminally neglected by physicians. This is such a simple thing to identify by just running the right test!! There is no excuse for the lack of attention to it. People without medical degrees seem to know more about what to look for than doctors anymore. It's sickening!!!
Godspeed to you in getting well Thane.
paizley11 3 months ago
@paizley11 Thank you for your comments. I'm still quite sick but i'm feeling better now than I was when I filmed this two years ago. I hope you find your path to wellness. Thanks again. -Thane
thane17 3 months ago
Google: Klinghardt, Klinghardt HPU / KPU, Beck Protocoll!
KarinOll 3 months ago
Lyme is curable!!! See also Dr. Klinghardt and his treatment protocoll!!!!!!! (German Doctor practising in the States! Expert! KLINGHARDT!!! see also Dr. Beck´s Protocoll!!!! The knowledge is there! And what about the Russians who under snake or tick bites gave a first aid shot of PROCAIN??? And then you wouldn´t get sick? Why is that knowledge not transfered on??? Every physician that cannot treat lyme fast should get kicked out of his/her job!!!!
KarinOll 3 months ago
... yes, and especially with todays high electromagnetic exposures. Use the Dr. Klinghardt Protocoll for your desease and stopp suffering! It is a crime that physicians who are not up to date on lyme are still allowed to practice and let patients suffer in vain. Dr. Klinghardt, German Doctor practicing in the States. Google him. He also has great clips on youtube. You can also go to a physician that uses the Klinghardt-Protocoll for healing you from lyme´s!
KarinOll 3 months ago
Hi Thane...how are you doing now? I was ask sick as you were when you seen this video, I'm a little better, but still really struggling. I hope your'e well.
amandhillon80 3 months ago
I too am going through the same issues. I was diagnosed bipolar 15 years ago and defeated itl Now I'm in a constant battle with myself physically and mentally. I abuse myself mentally. I've always prided myself on my wit and education. I love to learn, I watch the history channel. I find that I have to watch the same program again b/c I forgot what I saw. URNot alone. If you and I can remind each other of that we can survive this long painful struggle together,
BigCarrieD 3 months ago
: (
daniproteau 3 months ago
brain dammage, yes.. another symptom.. loss of fluent speech. when stressed or tired i am thinking the right words but listening to my speech i must recognize that i did not spell them right. thank you for this contribution.
ulliliu 4 months ago
Hiya, your video really moved me. I've had really terrible symptoms for 2 and half years. Extreme fatigue, pain all over the body, dizziness, digestive problems, brain fog, fevers, night sweats, the list is quite long. Recently had problems with my eyes as well. I've had various blood tests even one for lymes but it came back negative. I've also had numerous brain scans which haven't showed anything. Do you think its possible that I have lymes disease? I live in the UK so there not many doctors.
neil1758 4 months ago
@neil1758 After 10 years 3 neurologists and several hospitalizations I finally found a Neurologist for my Mom and asked the right questions. She said the ONLY way to diagnose a "long term" Lyme infection was to look for the spirochete in the SPINAL FLUID. Mom had a spinal tap - and BINGO - there it was!
Former to this, she was given antidepressants and a recommendation for "counseling!" IDIOTS!!!
Long term Lyme is treated with IV ANTIBIOTICS - see also the movie:
"Under Our Skin" on Zulu
MzProgressive 4 months ago
@neil1758 If you got negative test you might have it, were any antibodies detected? You could try going private to Breakspear Hospital (search for it on google). If you don't mind me asking what are your problems with your eyes? do you see visual snow?
damnitphil 3 months ago
same shit different pile... oh how i can relate
musicjunkie1121 4 months ago in playlist More videos from thane17
Wow, I'm going to use your video to describe to a friend how I feel. Ya know, when you're feeling good enough to leave the house and talk to people, or have people over, they think your doing pretty good. They don't know that they've just caught you on a "good" day, or the "begining" of the day. Or that I've become good at allowing them to carry the conversations while I only throw in an opinion here and there with a laugh and a smile! Thanks for the vid, hope you're now enjoying life!
monticae 4 months ago
Cont: from sweden. Mars this year I got a rash on my right thigh, I neglected it, a month or so, until it was the size of 38cm x 35cm. Dr. gave me fungal creme, it didn´t work.. After that he did the bloodwork: Borrelia. Penicillin for 10 days. I´m getting a little bit better but still a lot, lot of problem. Hope the best for u thane and all of us who´s down there... / This was long, but I hope u guys don´t mind.
WhatsUpWithUs 4 months ago
Cont. from Sweden. Got hurt in a work reladet injury, took 14month before they found out what was wrong. During that time the Lyme really took hold of me and I related all problems to the sickleaf. I got back to work last July, feeling "shitty" but intended to do my work. Haven't been able to sleep properly for almost 3 years, my manager got my Dr. to finally give me presb. for Imovane. The aches, hearing prob, sweatting, forgetfulness,sleep prob and all the rest . continued.. To be cont..
WhatsUpWithUs 4 months ago
Cont. from Sweden.. Well, "all" was well, apart from me who was falling apart, began to loose my friends becouse all of a sudden I didn´t want to see them, not to call them, if they invited me to a party I was fine with that until the last minute, when I always called and say Ohh, I´m sorry.. I did wonder was was wrong, I couldn´t understand, been a Vip in a lot rest, and discos and bars. And now all I wantet was to be alone. Workes a few more years as a waitress until the day.. To be cont..
WhatsUpWithUs 4 months ago
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From Sweden: Got bitten in -97. 2003 I got my right knee swollen like a football, went to Dr. who sent me to both magnetic and skelleton x-ray, found out nothing but artrotis.. Sometime later I also asked Dr. why I had so much ache in my joints, test for rehmautism-nothing. Later I asked how come I had so many fever tops during daytime. Dr. took many bloodtests, found out nothing. A few (?) years went by, me accepting things getting worse, there was nothing wrong..only in my mind.. To be Cont..
WhatsUpWithUs 4 months ago
From Sweden: Got bitten in -97. 2003 I got my right knee swollen like a football, went to Dr. who sent me to both magnetic and skelleton x-ray, found out nothing but artrotis.. Sometime later I also asked Dr. why I had so much ache in my joints, test for rehmautism-nothing. Later I asked how come I had so many fever tops during daytime. Dr. took many bloodtests, found out nothing. A few (?) years went by, me accepting things getting worse, there was nothing wrong..only in my mind.. To be Cont..
WhatsUpWithUs 4 months ago
See YT - MMS Cure For Lyme Disease
holobody 4 months ago
yes i know how you feel, i also find it challenging to handle it mentally, my forgetfulness, word memory etc. you are worth something even though its not what u planned. its what god planned for you / us i don't know why. we can not let this disease get us, we can not let a little bug win. pray for ur stregnth through god al things are possible.
daughterwithasong 5 months ago
I KNOW how you feel...and wrote songs about it! I hope they give you a little comfort...I'm not only on your side, I share what's under your skin. Namaste!
LymieVoid 5 months ago
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Please check out my channel and spread the "SubLyme Ascent" songs/videos. I need to get enough exposure to sell this album through the Lyme associations cross-country...and hopefully around the world. The reason? Because I plan on giving ALL proceeds, other than production costs and 10% for my band's medical expenses (I'm the songwriter for BolaFeld and have confirmed Lyme, Mycoplasma and Morgellon's), to the researching LLMD's trying to cure us all. Feel free to use our stuff for info-videos.
LymieVoid 5 months ago
I meant blood vessels not blood pressure, but bp is very high now too. And all this after me bugging the doctors for over 5 years to find out what was wrong with me. Yeah I'm mad, I'm furious, but if you let the mental shit get at you it takes more away. So try and find a project, even if you're fucked and think it's a waste of time, think you might die soon etc, just do it anyway....
MrDeadsea000 5 months ago
Hang in there brother. I've had schizophrenia ever-since i was a teenager, diagnosed when i was a teenager but probs earlier. I just found out (at 27) after not being able to have a career, girlfriend, social or sex life that it was all due to this infection. Mine is so advanced that i can't even get treatment because the amount of inflammation in my body has damaged my blood pressure so bad and the only anti-biotic that they can use to counteract it will cause severe bleeding. Be strong
MrDeadsea000 5 months ago
Thane17 hope you are doing better, this video was really saddening to see. I've just been searching for information on Lymes disease recently because for a few years now I've been suffering from a few problems, mainly anxiety, brain fog and something called Visual Snow. I just wondered if Visual Snow has anything to do with Lymes disease at all, did you experience this? (Visual Snow is when you see static on everything and it gets worse at night time.) Hope you are doing well.
damnitphil 5 months ago
@damnitphil What you describe sounds a lot like Lyme. I dont have the snow or floaters but many others with Lyme do. Keep pursuing it. I think you're on the right track. All the best. Thanks for the support.
thane17 5 months ago
so what are the symptoms besides brain fog and memory problems? I think I have this but I never remember getting a rash or flu symptoms, I also don't live in a area where it is very common, but I was bitten by a tick and I am having brain fog and memory problems, lately I've been dealing with slight migraines and my working memory is terrible to the point I can't interact with people well << are these symptoms?
Miikaika25 5 months ago
@Miikaika25 yes unfortunately that sounds a lot like lyme. It's different for everyone, but it tends to include cognitive, emotional, and fatigue symptoms. If you have Netflix I HIGHLY recommend watching the instantly available documentary Under Our Skin. It' will open your eyes. Also connect with some lyme groups in your local area and find out which doctors treat lyme. Most say that will but really they have no clue. Good luck!
thane17 5 months ago
@thane17 ok thank you, but I'm having problems finding a place to get diagnosed, I live in the south. We have lyme here.. however I think I may have SCT (Sluggish Cognitive Tempo) which is on the ADHD spectrum. I don't have much joint pain except when I am walking up a ton of stairs. What does brain fog feel like? is it when you stare off into space or day dream? my other issue is that many of my memory problems started when I tried to become a vegetarian but was not eating right
Miikaika25 5 months ago
@thane17 It seems the biggest problem with lyme disease is trying to rule out any other causes, and that it affects people differently. I've dealt with a few of the issues before I remember any tick bites. Plus people live with lyme for 15-20+ years and never know it. Lyme is so confusing, I study psychology that's why I'm interested in figuring out if I have lyme disease or just regular depression which I suffer from >.< also what's the difference of can't get out of bed and not wanting to
Miikaika25 5 months ago
Yes, I agree. This is such a misdiagnosed illness and affects so many people. And, as you can see, it affects the mental state of people as well. Do a search on youtube under Biological Medicine and check out Dr Rau's video about Lyme Disease. There is hope and he has a product that's helped a lot of people.
mikeywmb1 6 months ago
Thank you for making this video. I am so sorry that you have been affected so much. I too have the brain problems. Yeah, I know about the good days and the bad days. No one can know unless they've walked this road.
ohangiebabydoingHCG 6 months ago
I understand as I 2 have the same problems etc. I am with you I hope we all could get help that we truly need .........
MusicGirl20112 6 months ago
I sympathize W/UI have all the symptoms of Lyme Diseas & understand your frustration and pain. I am in the process of having further testing & have been ill with all these symptoms for over a year now. CranioSacral Institute of Michigan LLC has have developed a process called Craniosacral Therapy to help bring back damage that has occured to the brain. Chk into this maybe it can help you!
LetFreedomRing5 6 months ago
PLEASE THUMBS DOWN AND REPORT THE SPAMMERS WHO GIVE NEG. COMMENTS AND ARE CLUELESS ABOUT WHAT IT IS LIKE TO HAVE LYMES DISEASE.
LetFreedomRing5 6 months ago
@suckbar69: I have a suggestion for you..... Shut the fuck up. You have no idea what Lyme disease is like and I can tell you from experience, you don't want to. This is not a pissing contest to see whose disease is worse or who is more deserving of attention. What makes you think everybody should conform to your one-sided standard of behavior? Get over yourself.
PaxArcanum 7 months ago
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oskaria 7 months ago
brave man
bennett5058 7 months ago
I really feel for you man, I have had CFS/ME for 7 years and can relate to a lot what you are going through, I really hope you get better no matter what, you are a very strong person, when times are really tough that inner strength shines through
Have you ever tried meditation? I find it very relaxing, it calms the mind and body
Thank you for posting this
Peace
rwdford 7 months ago
Thanks so much for your posting this. I just realized this weekend that I have Lyme- 63 out of the 100 symptoms. So, yeah... my brain is going downhill just like other organs and systems. Since I am a writer and musician/ composer, organizational ability and clarity are necessary. When having flare-ups I can't think at all. Now my face is numb all the time, I get confused and emotional, misjudge spatially. It sux. My doctor put me on a one month supply of antibiotics yesterday. After that I do
DamionOmega 7 months ago
Thank you for your courage to share your experience with effects of Lyme brain damage. My toughest challenge of Lyme is brain damage both cognitively & behavior changes. Examples: Anxiety attacks, ADD, changes in sleep patterns & seclusion from life. Cognitively, the affects on concentration, reasoning, logic & expression, despite what a person was Before Lyme, are devastating. I still have hope of recovery w/Support and Treatment. We have to hang in one day at a time! I'm grateful. <3 <3 <3
suzibuzi5964 7 months ago
Quit crying. I have schizophrenia and lived with my mind in chaos nearly all my life.
I live now in a room barely getting outside because I am paranoid that people are after me. I used to be somewhat better and have a college education and had a job making about 70k per year. I lost the job because i became so paranoid and delusional. Now im seriously messed up. But I still go on. That's life and you only get 1 life.
suckbar69 8 months ago
@suckbar69
You tell him to quit crying??!! Here's a recommendation, go post on a channel for people with schizophrenia. We all as humans handle are trials differently and for you to tell him to quit cry is rude, cold and you lack sympathy for his pain. I am sorry for your schizophrenia but there is no way I would make fun of you for expressing your emotional pain of feelings. I have Lyme and I suffer mentally along with this man and all you do with your post is show your level of immaturity.
jonnyboy65ables 8 months ago
@jonnyboy65ables no one shows me any sympathy. they only show me hatred and disgust and ive seen many with mental or neorological disorders treated the same. might as well toughen up and that is the point im trying to make not to look down on him.
suckbar69 7 months ago
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Michele7P 2 months ago
@suckbar69 Complications involved with Lyme Disease include: nerve damage, pain, blindness, paralysis, memory problems, heart failure, death etc.
Lyme Disease mimics complications seen in mental disorders such as: depression, Bi-Polar, and SCHIZOPHRENIA.
Yes, we know your life is SOO much tougher than everyone elses and we all feel SOOOOOO sorry for you. You deserve a fucking national holiday and the Nobel peace prize for your UNRIVALED hardships. -___-
R0b0mammal 7 months ago
@R0b0mammal It is a lot tougher than others and you honestly have no fucking idea. I resent a video that tries to get attention for 'brain fog', shit that is a mere side effect of the medications I have to take. I don't like fucking grown man crying about it on a video, I have never fucking cried over the seizures and other shit that happened to me. So come live my life fucker, enter my hell then you can comment on it. Until then stfu.
suckbar69 7 months ago
@suckbar69 your a fucking asshole. GET OFF YOUR MEDICATION THEN. My boyfriend has lyme and his "brain fog" is also PAINFUL. Its like you have chronic meningitis!! Why ARE YOU COMING ON SOMEONE ELSES VIDEO BITCHING ABOUT YOUR CONDITION??? You selfish prick. the pain this man is feeling is real. im so sorry thane17.
MsJos999 6 months ago
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Michele7P 2 months ago
Thanks for posting this video. I am hope you are doing well these days and found what worked for you to get better and stay that way in the long run. Thanks for being so vulnerable and open about your battle with Lyme Disease. LymeAngele
TheAngbet32 8 months ago
i feel just like you....i hope you are doing much better now.....lyme disease sucks and people who never had it do not understand....horrible disease
bigTman230 8 months ago
Thank you. Thank you for being so brave and giving people like me a voice. You are so strong to express yourself like this and make it public. I know what you are going through and it isn't easy. stay stong. people like us cant give up, just stay positive and know that it will all be better one day.
Carliefl 8 months ago
read this article. hopefully it will raise some awareness about lyme.
you have copy and paste the url to go to the article
socialmedia10.dwight.edu/53151649#comment
RabidMelon 8 months ago
I found a tick on my ... I thought it was a spider, and they freak me out....so I tried to brush it off , but it wouldn't budge...I even pulled on it and it took a times before I could finally get rid of it. It looked like the head was still on it, so everyone told me to not worry....is this true??
thebreed2 8 months ago
Thanks so much. Have you been cured yet? I haven't started treatment yet, but maybe soon. I've had it for possibly up to 39 years, having got it at birth from my mother. My whole life has been one giant torturous hell.
davidwaynemcdaniel 8 months ago
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My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
Peppahmint 9 months ago
My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
Peppahmint 9 months ago
My heart breaks seeing the sadness and torment in your eyes. We can totally relate to your suffering. My daughter is only 25 but has been suffering like you have for NINETEEN years. I have had to watch her suffer, and yes, the brain symptoms are the absolute worst. Please e-mail beanzie@rogers.com so we can support each other. God be with you.
Peppahmint 9 months ago
very brave you made the video! you will get through! I know the combination of antibiotics and immunemodulating threatments that take away the so called "cronic low grade brain inflamation", on long term get you back to health, it just takes a lot of time...so keep strong!
TheKrista56 9 months ago
very brave you made the video! you will get through! I know the combination of antibiotics and imunemodukling threatments on long term get you back, it just takes a lot of time...so keep strong!
TheKrista56 9 months ago
Mate I feel ya pain. have had CFS for 18months i don't know if they are the same conditions. But I have had brain fog now for 18 months. Sleep probs, fatigue etc.
Best thing I can offer, treat the sleep and your brain fog will improve. 1 zopiclone and half an avanza gets me a good solid 8 hours sleep. You need sleep to help your body recover. Hang in there mate. Life has dealt us a shit hand but we will pull through. The mind and brain can repair itself.
Best
MrFoley83 9 months ago
Thanks Thane...brave man...this illness has taught us lots.....faith and hope gives rise to an almost super human courage, that no one will ever see or appreciate, but draws us to a solution to this crippling disease, in nature, there's a cure for everything, natural n'sweet, we just need to re-discover it or find someone who has. With Natural cures its down to individuals personal resolve, which is sapped,but we can do it, hope u have found a way that works.dont give up.
ninaanne3 10 months ago
@ninaanne3 This World needs more people like you. I echo "missjj31" sentiments, faith and prayer for Thane and everyone else suffering from this thing.
frbjoernLA 9 months ago
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You are so brave to share this. It is so true. Keep fighting & stay strong. God Bless you.
missjj31 10 months ago
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You are so brave to share this. It is so true. Keep fighting & stay strong. God Bless you.
missjj31 10 months ago
You are so brave to share this. It is so true. Keep fighting & stay strong. God Bless you.
missjj31 10 months ago
I know the pain. One can not read, can not remember any thing, its fog ness in mind. One can not control his mind. Its just un discribable. Can not rely on mind. Its like some thing in mind is eroding. I live in Pakistan and here there are no doctors available for its diagnose and treatment. Horible horible feeling. I seems you are traped in some cell that no one else can see except he who is suffering. If some one out there has found its solution please share.
alidayyan 10 months ago
Thankyou so much for this vid.I saw it for the first time today and it made me cry.It made me cry for myself.I have lymedisease now for 6 years and I know accectly what you are talking about.I think I am losing my mind.Trying to be brave for my kids,but losing not only my mind but also myself.Thankyou
MissHattieable 10 months ago 2
@MissHattieable
I am in the same boat. I am trying to strong for my daughter and grand kids, but it is very hard. I used to do every thing and now I stay at home don't do too much. I loved talking on the phone now I hate it mostly because I can not think clear and don't remember what someone would say 1 min. later. I wish these Dr.'s would stop trying to hide the problem and try to cure the problem. I guess if they got LYME maybe they would solve the problem!!
SHER7067 10 months ago
@MissHattieable
I am in the same boat. I am trying to stay strong for my daughter and grand kids, but it is very hard. I used to do every thing and now I stay at home don't do too much. I loved talking on the phone now I hate it mostly because I can not think clear and don't remember what someone would say 1 min. later. I wish these Dr.'s would stop trying to hide the problem and try to cure the problem. I guess if they got LYME maybe they would solve the problem!!
SHER7067 10 months ago
I'm so glad this is an old vid and that you are doing much better now. I feel just like you here, my disease, a type of MS, is taking my brain and my body too not to say my soul :(
CuteTeef 10 months ago
to thane17- beautifully said. I'm there, too. I have lost most everything to this evil thing, my poor children were born with it and cannot get diagnosed, and have been denied a referral to the Infectious Disease Doc who dxd me and saved my life. There most definitely a conspiracy among the corporate docs. I get to watch my precious children suffer daily, as a direct result of their arrogance, ignorance and cruelty. We are doing without in Florida. I've had this so long, I have brain lesions.
Tickscorn 10 months ago
I feel just like you. I hope you are better. I don't like being around people, because they have no idea what it is like. I miss me too...God bless you.
amandhillon80 10 months ago
Thank you for putting into this into words...to lose the body is horrible but to lose the mind is another world entirely.
A fellow late stage neuro lymie
peoplesRwe 10 months ago
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peoplesRwe 10 months ago
Hang in there man!! I'm being treated now for lyme after 5 years undiagnosed. It's hell dude. I understand what your going through. It will get better remember that.
mudkme83 10 months ago
I feel your pain.....my brain sometimes feels like raw meat and I have been through IV treatment. Feels like I am going senile before my time.
ecftube 11 months ago
incredibly moving.
pavspup 11 months ago
Man my heart goes out to you. This is a terrible disease. How are you holding up nowadays after the CCSVI procedure? Any new developments or breakthroughs in your health? I see this vid was from 2009 so I hope your doing better. Hang in there bro.
prsglenn 11 months ago
I know how you feel man I'm so scared for the future because I can't work a normal job feeling like this but no one understands because there's not enough awareness of the disease due to propaganda.
deathtotheism 11 months ago
I'm right there with you man. Neurologically things were improving for me... til I lost my insurance last month. I'm done - what can i do? I've lost everything. My house, my wife, and basically my job. Some point you just have to fold. I hope you are doing well since this video was made. This shit is straight up evil.
Defiant14 11 months ago
Aladdin Gee love this it's off the chain your going places in life take this from the Gee thumbs up i rate this video yeh i had to take some time out to show some love to this video
aladdingee 1 year ago
dude... SUMS IT UP!!!
lyme definitely kicks your brain in the ass. makes you feel and act like a totally different person. i used to be very social... now i try to avoid everyone cuz its actually really hard to pretend like ur fine in public.
i had lyme for 2 years undiagnosed. it has now been 8 months since my treatment. and everything seems better EXCEPT my brain function.
did you get any better since making this video? would love some tips...
DreamSurfer21 1 year ago
Speechless... Very sorry you are going through this brother, Thoughts and Prayers are with you.
MaKaElectric 1 year ago
Thane-I totally understand what you are going through and "get it" when you say that lyme has changed the person you once were and who you could have been. That's the hardest part of lyme I think--getting over the anger of knowing that you could have been so much more if not for some tiny little bug. I also don't have family support-they thought I was making up all my symptoms since the dr's couldn't find anything wrong-until recently. I saw a LL naturopath and she has been a life saver!
LittleBoot01 1 year ago
all your words are true - it is so terrible - i am not who i used to be. thank you for posting this and sharing, it helps
golden1789 1 year ago
I feel for you . I have it too . I am under a naturopaths care and also using the salt/apple poly protocol . My mind is slowly coming back . I agree that is the most frightening symptom . Good luck to you , friend .
artemis12061966 1 year ago
I don't know what to say... Obviously even among all of us our experiences are different, but the best I can, I know what you're going through, and I watch you and feel like I see parts of "me" in "you", and during the part where you're not talking, I feel like I know exactly what's going on in your head and I don't know, thanks though. Best wishes.
JSymoNESx 1 year ago
Heard about it. Didn't know much about it. Wishing you well !!!!
Toracube 1 year ago
HELP~ I am in this situation right now!!!! someone please contact me with suggestions and prognisis!!!
DarJadon 1 year ago
hey, i have been where you are at in this video for about a year and it has gotten much worse for me. I was wondering if youve been feeling any relief from this problem at all
Biggiiful 1 year ago
you are not alone, i feel exactly the same as this guy...
k12rising 1 year ago
Try the neuro antioxidant - acetyl L carnitine - for brain fog. It seems to be working well for me.
Ncyim 1 year ago
I read somewhere that you will need 14 days of iv antibiotic and that should get rid of it. For those with lyme, have you tried the solution. I believe it was doxy 2 mg / iv ...and for those with nurological problem they added peniciline. I am just letting you know what i have read. Good Luck.
afshin72ca 1 year ago
Thank you for sharing. This has been one of the hardest parts for me. It's frustrating, embarrassing and just plain sucks. I hate the migraines, the confusion, all of it. Can't remember shit. I'm like a total space cadet, and was always on my A game. Have been suffering since 1992. I know I'm not crazy, and think the meds for depression make it worse. Don't have any Drs in our area. I know what you are going through. Just know u r not alone! Peace.
kaytee288 1 year ago
thank you for sharing this. i was diagnosed when i was 4 and i still suffer today from symptoms that just never go away. it means a lot to me to see that i'm not crazy and other people go through it too. it effect my brain and my nervous system really bad< i have the worst anxiety and depression. if i didnt have God and people like you i wouldn't still be here today <3 we are stronger than we think and we will all make it through to brighter days.
JaclynnOh 1 year ago 2
The only issue I have is that these symptoms and this disease is actually caused by a spirochete bacterium. It seems this was the assumption but I dont think the tests really prove that. From what I see, there are a number of pathogens that cause this range of symptoms.
atbee 1 year ago
AMEN!! Brain fog, that does not even come close. I am so tired of every hair on my head hurting, fevers, not being able to help my daughter with homework. I feel like I am slowly dieing!! And now I can't get health insurance and Social security says nothing is wrong with me. I walk and all of a sudden my get dizzy and It looks like i am drunk but I can't walk in a straight line. I forget where i am going what I am doing, how i got somewhere. please CDC help us get the research, a cure.
cheriwhitt 1 year ago
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Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
kazza391 1 year ago
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Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
kazza391 1 year ago
Excellent outline!! I have many physical & neurological symptoms of lyme. The physical pain is easy 2 handle in comparision 2 what it does to the mind; aside from the short-term memory loss, stuttering, confusion it is the horrible feelings it brings about As you put it "it takes you - who you are". On "good" days u are thankful for what you can do - but they sometimes make the bad ones even worse because u think u may have a chance of getting u back; only to crash again. Hang in there mate :)
kazza391 1 year ago
I'd not wish this for anyone and feel your pain,I'm glad you were brave enough to post this! I hear so many people with physical malfunction,but I never heard people about how much it can mess up your brain,so I always felt very alone.Especially bc people can't see from the outside how sick you are from the inside.I have days where I just wish that I wouldn't wake-up anymore.No feelings,no future aspects,just plain apathy,tiredness,anxiety,depression,though I know I'm not like that.
sculmully 1 year ago
Hang in there bro. I can relate, having brain damage from an accident and also having chronic Lyme which made everything worse and worse. Just know there are MANY MANY others out here who share your hardship and this video will help them tough it out. Some think we are weak, but we are stronger than anyone could know. We HAVE 2 fight on every day, and 'non-sufferers' have no idea what it takes to live with chronic disease. they get a cold or sprain and act like a baby.
You are a true hero!
jmurphy914 1 year ago
Very well said!! I pray that you are healing from this horrific disease!
SellyNue 1 year ago
Thank you. I "don't know what's going on" right now, but you made me feel like I wasn't alone in this confusion and horror. I hope that you are feeling a bit better since this video was made. My heart goes out to you because my brain just keeps deteriorating and I know how scary that is.
Acerbitas 1 year ago
Thank you. I have watched your video several times as it reminds me that I am not alone. It's hard for others to understand the complexity of lyme disease. Thank you for being real about it.....Susan
thesnoozen 1 year ago
U have really made me feel like some one out there understands me. sometimes I want to die cause the pain is so bad....I cant think, I cant remember, I cant speak in words, I get so angry at times its not me. My chest kills me, spinal pain, head pain all the time, arm & leg pains, joint and numbness. It just doesnt stop. thanks so much for sharing. BH from Maine
momu4get 1 year ago
Thank You! People need to know what this disease does. The doctors aren't going to tell them. Many suffer the same effects. I use to beat myself up when I couldn't think straight. I still have issues.........but I did get meds that help me think much closer to the level I was at before. I couldn't count to 20 at one point. Real fun when you run your business alone. DON'T GIVE UP!!! GOD BLESS YOU AND KEEP YOU SAFE!
FloridaSalon 1 year ago
ur feelings r my feeling as well. wow! I thought i was the only one.
BetterdaysJ 1 year ago
Dude i'm so sorry.. I really hope/pray you are doing better!
TheVintageGamer 1 year ago
I am a single mother of two small children and I have had lyme disease for 11 years and only now got diagnosed. I have suffered from extreme depression and rage (plus all the physical symptoms) and have become a mother that I don't want my children to have to grow up with. I used to be so patient, loving, attentive and dedicated to my children, but now I don't even want to get out of bed. Thank you so much for taking away my guilt by knowing I'm not a bad person and it (lyme) is in my head.
TheStaticbullet 1 year ago
Thank you for this.. I cried watching it . I have had Lyme 25 years.. the brain stuff is the absolute worst.. I am now healing thanks to going to the Klinghardt Clinic..Both my children have Lyme also. I used to stutter , go temorarily blind, have severe hallucinations and rage, confusion, heart attacks and seizures.. Now I am healing, my symtoms are halved and each day gets better. I hope you find healing too. <3
poppymoone 1 year ago
I say treat the parasites, not just the bacteria. Flagyl and bactrim and antihelmintics could save our lives! Hugs, lots of strength and sharing the suffering with you!
lymemj 1 year ago
Thank you so much for your video, I didn't think there was anyone else out there who felt exactly like I did about my lyme disease...apparently I was wrong and it's a great relief to know there are more people out there. I appreciate it very much.
odetospot3 1 year ago
well sir, i see in youre eyes you are a broken man ...... since im a warchild i saw things in my childhood that you guys even can not imagine ..... and i know how broken humans look like .....
i realy feel sorry for you !
the first step for a good live is too let love in your mind, heart and soul ....
for my next words i apologize even before but....
you listen to pat condell and his hatred message and on the other hand .....
anyway the healing starts in youre soul my friend ......
peace
mehditalib 1 year ago
hello i have had lyme disease for 14yrs. i have alot symptoms . we h6ave a great lyme doctor. insurance will not cover, so i see him every few months. just to save the 325.00 to pay for the visit. im very lucky to be able to have someone to believe and understand that this shit sucks. to see the video i can understand and most of all the memory. it is like a fog and alot of time cant remember anything. im very lucky to have my husband, he has become a doctor with everything. i understand ..
ae490 1 year ago
Thank you for sharing this! Not enough people understand that without your brain, we are nothing. Derealization, no memory, insomnia, anxiety, confusion. Brain Fog does not do justice here. It is a state on consciousness that I never thought was possible. I have said so many times that I would rather have the pain than not having my brain. I look in the mirror and don't recognize myself. BUT, I too have not lost hope. All we can do is ride the waves. We WILL GET THERE!
lymeguy1 1 year ago
have you considered the possibility that the presence of the bacteria might be related to the presence of auto immune conditions? Auto immune conditions are the major scourge of our society today and whether mild or severe all tend to operate in a similar fashion indicating that there is a similar cause. My theory on Lyme disease is that it is a bacteria that is normally disposed of by a healthy body but is allowed to fester in a body that is attacking itself--autoimmune. We will find cures
superkman8900 1 year ago
Dr. Zhang in NY.. please look into his herbs. It has kept me well. I had all the symptoms.. 14 doctors later I finally found a lyme doctor to get me the correct tests.
It can be cured at best controlled.. I have had it for 5 years now and the herbs keep me stable so I can function.
I had the brain stuff very severe.. felt like lightening bolts going thru my head.. and my heart..and I was paralyzed..
I sat here and sobbed watching you because I have been there. I make no $ from this.
AdrienneLeeMarketing 1 year ago
God bless you. so many people think lyme disease isnt a big deal..only if they knew the mental pain and struggles we go through. one day your fine and then the next your destroyed forever. we wil get through this. ive had lyimes for 3 years..the first time they tried to treat me they gave me the wrong medicine wich made me worse then they tried to treat me again and it was just too late. they told me that i cant be cured that ill never get better..it is a awful diseas. God bless you.
innerbeauty1000 1 year ago
I am glad for you that you have not lost hope :)
1936rugl 1 year ago
Dude, I've had Lyme for 3 years and haven't been in school for 3 years and have to move because of the weather, I really hope you get better =(
AkimboLizard 1 year ago
I'm so sorry -- I agree that the brain fog is the worst. When I was in high school, I was offered academic scholarships to many colleges. Now I can hardly read. It physically hurts to concentrate and focus. I think I've overcome most physical symptoms but the memory loss, depression and brain fog are still there. This disease doesn't kill you - just sucks the life out of you. I watch my friends have full lives - where did mine go? I'm so tired, yet I have to try so hard at everything.
KelMyJo 1 year ago
Your honesty is right on the mark. I've had lyme for 12 years and dealt with incompetent doctors, pain, suffering and similar feelings you've expressed. Don't give up. at the least people with lyme have to go on to help other people with lyme as your video has done. You're right, the mental part is the hardest, being forced to leave behind an old life of health and face the day to day torture the disease inflicts is a mental battle.. Lyme also affects the brain physically as well.
TheDogRibs 1 year ago
Lyme Disease. Good God. I can barely carry a conversation anymore. I wish I could hang out with all of you fellow sufferers. It seems like only you would understand. My friends tell me it's all in my head and that my brain just makes it up. I've had people lash out at me because they don't get it, nor believe me. Maybe I need better friends. I've acted terribly lately, doing things I never would've done before. I feel cursed, maybe I am. A plague for Babylon?
iLoveSydBarrett 1 year ago
Hang in there
superkman8900 1 year ago
Try Colloidal Silver. It's cheap and works for many ailments.
Buy it at a health food store or make it yourself.
There is much info about these.
Couple more things are MSM and MMS.
GrandmasSilverWater 1 year ago
Our brains are powerful. its like you said. so so powerful. What you have is toxins and microorganisms. Hormonal and acidic imbalances in your body. Very complicated but infinitely simple to cure if you look at it the right way. If you do the right things, in my comment below i think that could help you a lot my friend.
yozeroz 1 year ago
Please look into the beck protocol mate. there is so much information out there that can help you be free again. Look into oxygen healing and living foods. It can give you back to you again, i know from experience.
yozeroz 1 year ago
I agree , its what it does to your brain that is the worst. I can relate to everything you said <:*( . I've pretty much given up on the future tho. Ive been too ill too have a job to pay for any treatments, so i'm just waiting for it to kill me, trying to enjoy what life I have left. almost had a heart attack a few weeks ago, and just hope it happens quick like that. good luck sweety
Shewolfen 1 year ago
Wow...someone had posted this link on my facebook and it just hit me..I started crying. Not only for you but for myself and many others. You described this disease PERFECTLY to a tee! My husband watched this as well and as amazing and understanding as he is I think he has a hard time understanding mentally how its broken me down and why I feel the guilt and why I also question at times who I am anymore. I know this video took a lot of courage, and I thank you for that:) Hang in there!!! *hugs*
alicat4377 1 year ago
Listen mate, you cannot see yourself as other see you and clearly you have Lyme as you describe my own experiences. As regards your mind being damaged I say don’t worry as from the outside your one hell of a clear talking intelligent and composed guy, it’s the depressive side of Lyme making your worry that your mind is permanently damaged.
Keep up some good Lyme antibiotic treatment my friend; your good and bright mind is still in there waiting to take control again.
Trust me, your minds A1.
Ilovedownloads 1 year ago
How are you doing Thane??
Amos1010 1 year ago