Re: A little on the moya moya disease

[mzhwngrl1269]

mahalo! for putting your video up. I had EDAS surgery in July '08 and will be undergoing my right EDAS surgery on 11/30/09. Even though I've been through it before, it's still scary as the first time.

Thank You for allowing others to be aware of this disease. I pray that everything is ok for you now & that you are recuperating just fine.

[ellesse808]

Good luck to you! you will be fine! I do totally understand... Yep, still scary not knowing the future. Long process... Much Love, Aki.

[zfashionz]

i love mystery diagnosis and i heard about a girl called daphne with that disease...thats so intresting!!Daphne had 2 years when she started with her attacks i think so...but i hope you watch in "Discovery home and health" the program of

"Mystery Diagnosis"

Thankx!!

[reyitodelosreyes]

Thank you for your videos.  Check out Avery's fight on my videos. He is fighting to regain his speach, ability to walk and move his arm.

[ellesse808]

Hello! I saw your videos...I'm glad to find you. He WILL regain everything!=D Avery is a strong boy (Superboy)~ It seems like you had a EDAS surgery?! (I noticed Avery's scar.) Let's fight together ok?! Love, Aki.

[stormvixen]

Five star video. Very interesting. I had never heard of moya moya before and possibly would never have if I had not seen your channel

[ellesse808]

Hello. Very rare disease. Thank you for finding the channel. Peace to you~ =D

[mirokuit]

hey girl, yeah dali made a great things so people have another chance to know about this.

i'm glad i met ya on here, and i admire you so much, but i've already said it! :D a big hug Aki, mikko

[ellesse808]

LOL~I know you SAID many times~ SORRY~!<<<BIG HUGS>> Mikko!

[USALawyer]

The condition leads to irreversible blockage of the carotid arteries to the brain as they enter into the skull. It is a disease that tends to affect children and adults in the third to fourth decades of life. In children it tends to cause strokes or seizures. In adults it tends to cause bleeding or strokes. The clinical features are cerebral ischaemia (strokes), recurrent transient ischaemic attacks (TIAs or "mini strokes"), sensorimotor paralysis (numbness in the

[ellesse808]

That is correct.. children will most likely make it... For adults, it is indeed....I have to try to live..... Now, the studies shows that it is not just "Asians" anymore... everyday, finds out from all over the world.... from Netherland, Germany, American-Caucasian, etc.... Thank you for your comment. I appreciate you! Peace to you!

[USALawyer]

I could not figure out what it is: Wikipedia shows: Moyamoya disease is an extremely rare disorder in most parts of the world except in Japan. The pathogenesis of Moyamoya disease is unknown. Moyamoya disease is characterized by progressive intracranial vascular stenoses of the circle of Willis, resulting in successive ischemic events. Hemorrhagic events can also occur.

[OHTXAZ]

Dali Is A Special Person. You Have A Great Friend There. Love You Much

Roberta

[ellesse808]

Roberta, Daliwolf is a very special person! Thank you for supporting me throughout the year Roberta! <<hugs>>

[Daliwolf]

*hugs you tight* I am SERIOUSLY glad you got the surgery. I want to keep you in my life for a long long time :) You are the one who Rocks girl! I love you too very much :) We should have relations. *giggles*

[ellesse808]

<<<DALI>>>> LOL~ another REALATIONS~~! I'm game~ (Now.. 4 relations~LOL) OH~LORDY~~ (By the way, THE COMMNETS are sooooo screwed up~! OMG) Love ya Dali!

[TexarkanaBraveheart]

Again another great video :)

[ellesse808]

Thank you Texas~ Peace to you. "Daliwolf" is a special person on YouTube. =D I've met great people on YouTube. You are one of us. Great Community...