Polycystic Kidney Disease(PKD)

[portlowski]

This video is a bit misleading. Infants who die from PKD have the rare, recessive form of the disease. most of us with PKD have the dominant form, which often does not cause probelm until people are in their 40's or 50's. It is not a death sentence. Eat healthy, avoid excessive salt, caffeine and alcohol. I was on dialysis, had both my kidneys removed and had a kidney transplant and am doing great. PKD is not fun, but there is hope.

[razzamehdi]

iam using my husbands info... i love him sumtimes i feel he dont understand the seiouse of this deases... my mom has PKD iam 23 yrs old i just got married i have all the symptoms of it they found the cyst on my kidneys...

i see my mom i see my future where the cyst have spread and is putting pressure on her heart and lungs where she cant breath sumtimes... and she feels her heat beeing squeezed.. i cant stop crying...

[ssuz1]

My sister has polycystic kidney disease, and even though I envy her because she is naturally waif and thin due to the disease - I know the pain it has caused her. I think I will donate to the foundation when I get a little money.

[ColinMeloy91]

I have hydronephrosis so I feel for these people who have this disease and I hope we can fight this off.

[MinecraftRevisionTv]

Who else searched this just because sxephil said he has PKD?

[haydiverr]

Infants rarely make it past the age of 2? I call bs.

[edster86]

holy shit theres so many people commenting on here saying they found out they had this its so sad. I don't know what i'd do if i found out i had something like this. You people are so brave and strong i hope they find a cure.

[Sawubona2007]

God bless those who has this disease. I'm 19 and I was diagnosed with PKD very recently.

[bus140808]

I've got this and it fuckin sucks. When I was younger it never affected me but now I am older I have constant back pain on my left side where that kidney is so huge.

I am lucky enough to be able to have children....I am pregnant at the moment. However my oldest son has inherited it. Thankfully being a boy he wont have to endure all the shit during pregnancy but for me being a woman its a race against time to get pregnant before the bloody things pack up all together.

[john17972]

My mom died from it when she was 42. She seemed normal up until a few months before she died. She started getting sick and stayed in bed all day. She started hallucinating, thinking that people were moving the bed and she was hearing voices that weren't there. She went to a christian science care center and died there.

[wingslykeabutterfly]

i am 16 years old.

i found out just a few weeks ago that i have this.

it is very hard for me to cope with this.

if you have any advice you can reach me on facebook (Cassie Manuel)

i am willing to listen to anything.

[cookieboo26]

@wingslykeabutterfly hey girl. Im sixteen as well. I found out today that I do in fact have this disease. If you want to talk to me you can email me. cruelgirl78@yahoo.com.:)

[BosaFTW]

Im 18 years old and i have it, my dads family has it too.

one of my hobbies is bodybuilding and it fucking depresses me so much, that i cant eat so much protein like the others and so my muscles dont grow that big!!!! :'-(

does anybody have the same problem?

[InfurnusChaotix]

All of my mothers family had this shit, and just my luck, I have no goddamn insurance and my kidneys have been feeling weird and strange for the past 3-4 weeks...I really hate this shit, I'm bawling like a bitch. I can't even go to the doctors cause I don't have a job, -Trying to find one- and I'm praying It's either nothing or a small infection.

[xxxBeccaaLoveexxx]

& keep a good lifestyle you slow down the process ** sorry about the double comment I'm on my iPod.

[xxxBeccaaLoveexxx]

I have PKD too. Was diagnosed at the age of 12..it's been two years & no symptoms yet. If you keep a good diet & ya

[ionmanpaintball]

just diagnosed with it at the age of 15..

[qweencmarie]

Wow. Thanks to philipdefranco for bringing more awareness to this disease

[bbenny0310]

I just YouTubed this cause of phyliD too.

[HEKTOR1X]

Woah! Philipdefranco said he had pkd and I searched it! Holy crap phill!!!

[sk30l]

Vegetarian & low sodium/sugar diet, no caffeine, ACE inhibitors, Soy protein. can all prolong life in people with PKD and avoid the need for transplant.

I know some people that manage it very successfully BUT also that don't.

[Davidwka88999999]

I had this as an infant. The doctor told my mom I would die at 12 months but I didnt so I grieve for those who dont make it. They dont get to go through the treasures of life. I have the most amazing girlfriend and her love makes me so happy that I was given a 2nd chance. RIP 

[MakeTheFace123]

This runs in my family and killed all of my dads family :/

Me and him have it too .

[TheZoeNevada]

I have it too

[PKDFoundation]

Thanks for posting this. Keep spreading the word!

[bus140808]

i got this so does my son and my dad had a kidney transplant in 2005. it sucks ass, i am tired CONSTANTLY because of all the blood pressure tablets i hav to take :-(

[matthewtaylorbrown]

@bus140808 Before my transplant and dialysis I took a B Compex and Cranberry pills that helped with my energy levels. If you are also taking a water pill, ask your doctor about taking potassium to avoid bone problems. Good luck. :)

[Hinderfan89]

To clarify, this was made in 2009. The website i pulled the information from sources were pulled in 2001. Chill OUt.

[scorpgc]

Tx for the video! I was diagnosed at 30 - am 45 now and have excruciating back pain. Glad I live in California, as it's a 420-friendly (with doctor recommendation) state. Has helped me function. PKD runs in my family. grandpa and aunt died with it, my father is on dialysis now. Keeping your blood pressure under control is a huge help.

[ahmadblack]

I have PKD .. and im 19 years old .. the doctor told me its really dangerous coz am still young ! i really hate it !

[ladedicada1]

i have pkd and they are getting big and they are dislocated my disc from my back.iam worry what should i do

[MrRainbowbridge1]

how do people get this disease what age risk are you of getting it?

[TheLadyCatt]

Congratulations and Thanks, five and five!

[Ronniedasmoker]

i tink i am suffering from dis aswell excruating pain in the right kidney highly painfull shit ya know

[scorpgc]

@Ronniedasmoker There usually is no "kidney pain" with this. The pain may be caused from your kidney being the size of a football, rather than a fist. Your kidney growth from the cysts will push your organs around, and put pressure on your back. Sure hope you're not "shitting" with your comment. This is a real and painful disease.

[matthewtaylorbrown]

@scorpgc I had both mine removed, they were a total of 15 lbs, there was much pain as they grew. The pain stopped just as they stopped growing, but that was because they were also failing. Dialysis is a life changer, but get your fistula as soon as possible so it can mature before you have to use it. Transplant is an adventure in itself, but I have no full time pain. The transplant pills caused diabetes; 4 pricks and 5 shots a day. Still, better then failure sickness and dialysis.

[Jsimp0487]

Doh!

how many people came here because they heared SXEPhil had this?

[nipplebrush]

@Jsimp0487 Who?

[MyHonestyMightHurt]

Oh wow, that sucks! Thank you for the info.

[ycsk8kid]

so this is what Phillip Defranco has.... hmmm interesting..,.

[ss4donnie]

fuck that shit sucks lets start cloning kidneys and everything else so they can take bad parts out and put good ones in.

[gavinmod]

sry for pkd ers

[Harddc0ree]

I have PKD.

[coolkorsah1]

that's sick. I feel sorry for the ones who have it.

[donutgirl36]

I was diagnosed with this at an early age and just found out that my children have this also. I am part of a clinical trial and urge others to get involved if they, or someone they know, have this disease.

[cookieboo26]

@donutgirl36 im sixteen and just found out that i have this disease. It runs in my family. I would love to get involved, I would love to find a cure. I think that would be an amazing thing for me to accomplish in my lifetime:)

[nanastiek]

FU U mADE ME THROW UP

[lazlow88]

i just found out i had it cause my mom has it. pisses me off.

[msguidobiatch]

Then do something about it, jackass. Volunteer for a clinical trial so we can find a cure. Channel that anger into finding a cure.

[lazlow88]

your name says it all. hard to read it but i got it now.

[msguidobiatch]

Zzzzzz, you're boring me. Look towards finding a cure instead of wallowing.

[scorpgc]

@msguidobiatch I guess the million + videos on YouTube are for your benefit only. So what brought you to this vid? Thousands die from this. Why not pull your head out of your arse and be sympathetic to people who are suffering. Your comments below "Wrong. Do some research" are not only disturbing, but beg the question, what causes such a hateful and caustic behavior to even spend their time looking at this? Karma my friend....Karma. It'll come back. : )

[peanutcashew23]

sxephil is the reason i looked this up ..wow yeah not cool

[Purplexold]

Sxephil has PKD.

[snarf04rab]

I was diagnosed with PKD at birth and was sick as a small child. I was healthy up until after college and recieved a kidney transplant at age 24. I have had a sucessful 3 years since transplant with only one acute rejection episode at 6 months out. My thoughts are with those of you waiting for a transplant. I will be participating in a walk for pkd in a couple of months.

[Hxcharlotte]

I have ARPKD im 13 and yeh Im not on dialisys Or w.e. Its kindah scary :| I rather have surgery

[n1a1w1a1f]

very stupid informations and the music is also stupid like hell

[bondtasha]

misimforted info on this video, people who are born with it don't die, it doesnt affect them till theyre like 40, loaD OF rubbish.

[tessabinding]

actually my daughter had got pkd and she is not 4 and she suffers really bad.. babies do die from it aswell if they are born with pkd it is a very high fatality rate.. i should know seeing as we are going through it

[tessabinding]

i ment she has pkd and she is now 4

[GVallaBertini]

Actually, you are badly misinformed. I have Polycystic Kidney Disease. I lead a clean life, no smoking, drinking , or drugs(not even aspirins); I had kidney failure at the age of 34, and needed a transplant. I have family members that became sick at a younger age than I did, and some older. There is no way to cure it, and receiving a transplant becomes the only option besides dialysis.

[msguidobiatch]

Wrong. Do some research.

[dramaticmezzo]

@bondtasha The infant mortality rate is extremely high for people born with the recessive form the disease (ARPKD) what most people have is the dominant for (ADPKD) which can manifest anytime from teen years to 60s+. Part of the problem is that it IS so unpredictable. However, if you have never read anything on ARPKD you might want to. It's one of the saddest things ever.

[sprite2233]

i feel so bad for people with PKD I Wish every one luck!

[ultravirgin]

horrible songs, but the healthy kidneys look good to fry up and eat

[Skissey]

I have PKD :\

[nicolachildnicole]

My dad has this and it has led to him having full kidney failure in bot kidnies. I have to be tested when I am aged 16 as it can be herditary.

R.I.P Angels of this diease

God bless the surrvivors

[msguidobiatch]

Don't get tested until you have to.

[carguymiami]

My Dad had PKD and was on Dialysis for 19 years, that's a record.His Dialysis Buddy at one time was Businessmen Santos Trafficante here in Miami.Dad passed away at age 60 the Dialysis takes a toll on the heart at an old age.And Of Course Carbonated Drinks are a Poison!

[carguymiami]

I also have PKD at 47 and know seeing the effects HBP,and now my Kidneys are about 45% functioning.I'm somewhat a Vegan,Non-Drinker,Smoker,the Quiet Type All my Life.We hope they patent and the FDA approves the artificial Kidneys,and Animal Kidney Transplants as I hope that solves the issue somewhat.We Hope.

[sk30l]

@carguymiami

you're good- apparently with blood pressure control and good diet, you can avoid the worse. there is one promising drug (Triptolide) that works in rats but I guess the medical industry is not interested in this area.

I've heard that CoQ10 can help with kidney disease but unsure whether works in PKD as its different from rest.

[Ve0D]

the picture at 49 seconds if from a cat ...

[pegypegpeg]

omg exactly how i feel i never it was like that

[Ikecia1]

Wow...great video. My daughter has polysystic kidney. Good job