Hi again! The point I was getting at above (PETEYSOFINE), is that without awareness, children, mothers, sisters and daughters, brothers, fathers,sons and husbands will continue to needlessly suffer, many even die. We need to let the world know we are out there, living among the rest of society. Also, it would be nice to hear somebody say for once that they know what Lupus is. Us Lupus sufferers just don't hear that enough.We aren't victims, if anything, just the opposite.But,we need support.x-PT
At 31 yrs of age, having already spent an entire year of my life in and out of physician's offices, hospitals (including Mayo Clinic & hospital) without any diagnosis for the flurry of debilitatingly painful symptoms, I was alas diagnosed by Dr. Wallace (Lupus LA Founder/board of Rhumatology at Cedars Sinai Hosp in LA). Placed on a strict regimen of plaquinol (antimalarials), Chemotherapy (to slow down my own body from destroying it's own tissue,organs & blood vessels) & high dose i.v. steroids.
RIGHT ON VENICE!
aroyn7 1 year ago
Know one understands less they have it or knw someone with it i got diagnosed at 16 im 18 now and doing fantatsic still on meds but im good.
Im grateful i can walk and do things my self when i was ill i could barely move.
YazzieBean 2 years ago
Hi again! The point I was getting at above (PETEYSOFINE), is that without awareness, children, mothers, sisters and daughters, brothers, fathers,sons and husbands will continue to needlessly suffer, many even die. We need to let the world know we are out there, living among the rest of society. Also, it would be nice to hear somebody say for once that they know what Lupus is. Us Lupus sufferers just don't hear that enough.We aren't victims, if anything, just the opposite.But,we need support.x-PT
PETEYSOFINE 2 years ago
At 31 yrs of age, having already spent an entire year of my life in and out of physician's offices, hospitals (including Mayo Clinic & hospital) without any diagnosis for the flurry of debilitatingly painful symptoms, I was alas diagnosed by Dr. Wallace (Lupus LA Founder/board of Rhumatology at Cedars Sinai Hosp in LA). Placed on a strict regimen of plaquinol (antimalarials), Chemotherapy (to slow down my own body from destroying it's own tissue,organs & blood vessels) & high dose i.v. steroids.
PETEYSOFINE 2 years ago
you go, girl!
mizflow 2 years ago 3
positive attitude, it's contagious! Lupus is not!
LALupusLady 2 years ago 4