no this isnt a seizure. if it were her tongue would be bitten off. seems like a neurological issue. yeah, being this way isnt living at all. im glad now this poor kid can walk upright and be at peace.
I don't know if I would say that she is not in there. My mother had HD and would scream oh god oh god oh god for hours. I know she knew who I was the minute I would walk into her room. This is a most vicious disease anyone can develop. Why people continue to have children thinking that there will be a cure amaze me. GOOD GOD how could anyone risk putting their own children in this situation???
you people are so hateful to put comments like that on here... aparently you looked it up so what kind of person are you!!! keep your opinions to yourself when it comes to things like this... all she was looking for was answers and to maybe help someone else out that is going torough the same thing, to let people they are not alone!!! People like you deserve to suffer not poor innocent children!!! ASS HOLES!!
Wow! I did not know what happened to Keely. Why she died? Does she wear her diapers? I wasn't sure why she was disability. Can she need to stop seizure? She need to get better her treatment.
Thank you for sharing such an intimate moment. Hopefully these videos help diagnose and find a treatment so that patients and their families don't have to go through the agony of having unanswered questions about their loved ones. There really is nothing worse than feeling helpless when you are the caretaker of someone you care about.
My heart goes out to this beautiful child and her family. The worst thing about watching Keely this was the fact that her mother and Grandmother did not know why Keely was screaming out and twictching. I pray that for the bravery of her love ones posting this that it may help another child or family. Thank you for letting us see what cruel diseases can do to us. May God give you all rest.
i think she should be let to die. and beofer anyone stupidly says im hating im not, i dont anyone should be trapped in a body and suffer in pain for ther est of tehre life.
She has Huntington's disease. Her movements are known as Huntington's dance. HD is a serious neurological illness characterized by decreased mental function, abnormal movements and, inevitably, death. A person with HD may look normal, but his/her brain begins wasting away, literally. Autopsy usually reveals large holes in the brain matter.
@nikolagamer222 You aren't commited or engaged to watch this, and probably also you haven't enough brains to notice your lack of comprehension (what seems to haven't any boundery at all) on every topic imaginable, so next time when you feel the need to state such comments, try to do it in real life.
I cannot believe that someone can be so heartless with the comments that you have made towards Keely and her family also towards. It seems that they are right you have no morals respect or dygnaty. U r the type of person that should be in this vidio not Keely.
@nikolagamer222 Well, I must say that you really have a good point here because I also was amazed and had my thoughts about it to find someting like this on youtube. Internet in a way does show of someting of the true nature in the average people it seems. The accusation about your lack of comprehension was made to fast maybe, I'm sorry for that..
@nikolagamer222 Hopefully the filming of these type of incidents catch the right eye. Students and other medical technicians come onto youtube specifically TO see these types of videos. These are the videos that begin life saving research. These videos may be hard to watch, but they serve a higher purpose.. And nobody has forced any of us to watch them. We can be cold, calloused and cruel to an already suffering individual or simply choose not to watch.
Sounds like she's in pain. When you get episodes of extreme, overwhelming pain, you DO zone out becuz it takes so much out of you. It's stupid to hold someone down like that & a lot of times, people talking to you makes it worse. The woman in the background is so dreadfully annoying! I've seen a LOT of seizures & this definately doesn't look like one. My pain theory sticks. She has tears in her eyes. She IS definately in there. Touching her, rubbing her skin, pushing her down can make it worse!
Her movements indicates like she is trying to get up or sit and she is frustrated not being able to do so. At least that s what I read form her movements...
she looks like she's tring ot catch her breath i could be wrong but it does look like she's trying ot catch her breath there are some seizures i know of that were some cases that people move around or ramble when ever she's not in a epsoide try asking her questions about what she feels or what she seeing during a eposide or have her draw them out if she doesnt want ot talk about it. it may get you alittle closer to find out what is happening to Keely. God bless you!
Its great that this is up, this disease is so mysterious and all information on its behavior needs to be shared so maybe one day, someday, there will be a cure.
@LOLOSSKY Looks like to me that she could have lost sight. Also this disease causes dementia. Shes virtually a young nursing home patient with alzheimers. Very tragic.
omg 2010 i was upset because i didnt have my son many christmas presents and this has made me realise how selfish i was :( i was annoyed and i thought we was having a bad christmas and you lost your daughter im so sorry :( ill never have a bad christmas again im so sorry x
After watching the video several times, i noticed that her pupils normal, wich sugests that it may well have been psycological rather then neurological. Maybe an attempt at venting her frustrations caused by the limitations of her disability, or maybe an attempt at communication.
WHY THE FUCK ARE PEOPLE PUTTING THESE VIDEOS ON YOUTUBE...... REALLY????? god damn.... WTF MAN... SHIT.... this is depressing the fuck outta me.... RIP sorry for your loss... but seriously........ whats the point of this... it only made me sad and lucky to be healthy...
@ericmaustin82 The point of it is education. People need to know things like this disease exist. Either so they can simply be educated, in case their friend or family member gets diagnosed with something. Or so they can be aware and help find a cure, by things like donating. And it's also for people who's family have already been affected. By sharing things with each other, they can know they are not alone and learn more by comparing symptoms/occurences. Even strangers can, thru youtube.
@cec060797 It's not about being potty trained. Everyone with HD loses the ability to get up and just go to the bathroom. It is a brain disorder so they cannot always control their bladders or stools. To answer your "hope all is well" it states clearly that she died on Christmas day 2010.
Quaker261, Huntington's disease is an inherited neurodegenerative disorder for which there is no treatment or cure. Keely got it from her father, who got it from his father, etc. When it occurs in children (Juvenile Huntington's Disease or JHD), the progression is much faster than when it occurs in adults, with death occurring usually about 10 years after diagnosis.
Also, please, there is no need to show her bottom on public video as she is obviously a young woman. Simply because she is an invalid is not reason to disrespect her privacy. Also, if she is mentally challenged as well, it does not mean she is "not there." She may very well understand everything you are doing and saying. So please, avoid speaking as if she is "not there."
I am praying for Keely. Much love to her and to you all. I have been having nocturnal seizures and I can tell you that she may very well, "be there," so to speak and know what is going on, though having involuntary movements, etc. When I wake up during, or from seizures, I am "there," and know what is going on, but simply am having involuntary body jerking, grunting or crying sounds. No emotional pain for me though it sounds like I am crying sometimes. Hope this helps!
Have you found out anything from the doctors yet? I am 31 and have just had an episode that looked identical to this. My husband and I are pretty worried and would love to hear what you have found out. I can give you my personal email if you would like? I so hope Keely is ok now.
you should really get approval on these comments before they post. That way you won't have to have ignorant and nasty comments posted here, like the one by the troll multisnootylives 1.
My son died at 11 in April 2009 of jhd and had similar 'tantrums' where he would be on his knees & throw himself on the floor all the time, making these noises. Then a full on seizure would happen. I filmed him but can't watch it back now he's gone. My eldest I can't remember having these episodes but had full on seizures, he died aged 7 in 2001 of jhd. Bloody horrible disease to watch your children go through. Love to you Jan. xxx Keely is gorgeous, especially with the dog. xx
I am not convinced it is seizure, if she has an episode like this tri some strong painkiller and see what happens, because the first thing that pops into my mind is a blather infection or and ear infection, cause it looks like she is in pain from something like that but it's realy hard to tell
This truly broke my heart I am so very sad and sorry you all have to endure such heartache no one most of all a child should ever have to suffer as all children with JHD I know my son died from jhd Jan 22 05, it angers me that doctors ca not get their stuff together yes this is seizure activity. Big Love and hugs too you all..
it does look like seizure activity and could be frontal lobe with the leg movement like that and screaming.. Often over looked as behavior as well.. What do they think it is? Sending lots of prayers.
why would u do that dont record this poor girl
marisolrivera1 4 days ago
no this isnt a seizure. if it were her tongue would be bitten off. seems like a neurological issue. yeah, being this way isnt living at all. im glad now this poor kid can walk upright and be at peace.
misterb1972 4 days ago
That's so messed up I bet some people think this is funny.why would somebody want to film something like that
mayaboo211 6 days ago
@mayaboo211 Probably to show the doctors what was going on to help get a diagnosis
bstuper001 6 days ago
I don't know if I would say that she is not in there. My mother had HD and would scream oh god oh god oh god for hours. I know she knew who I was the minute I would walk into her room. This is a most vicious disease anyone can develop. Why people continue to have children thinking that there will be a cure amaze me. GOOD GOD how could anyone risk putting their own children in this situation???
esbliss 1 week ago
you people are so hateful to put comments like that on here... aparently you looked it up so what kind of person are you!!! keep your opinions to yourself when it comes to things like this... all she was looking for was answers and to maybe help someone else out that is going torough the same thing, to let people they are not alone!!! People like you deserve to suffer not poor innocent children!!! ASS HOLES!!
ilovebabydalton 1 week ago
Keely Kennedy-Todd, received her angel wings at 8 p.m. on Christmas Day 2010. She was only 17 years old when she passed away.
Blondie1973pdb 1 week ago
Wow! I did not know what happened to Keely. Why she died? Does she wear her diapers? I wasn't sure why she was disability. Can she need to stop seizure? She need to get better her treatment.
ScottysAIr 1 week ago
I think shes possed ._.
ThisIsMyDestination0 2 weeks ago
Thank you for sharing such an intimate moment. Hopefully these videos help diagnose and find a treatment so that patients and their families don't have to go through the agony of having unanswered questions about their loved ones. There really is nothing worse than feeling helpless when you are the caretaker of someone you care about.
missmelisa27 2 weeks ago
My heart goes out to this beautiful child and her family. The worst thing about watching Keely this was the fact that her mother and Grandmother did not know why Keely was screaming out and twictching. I pray that for the bravery of her love ones posting this that it may help another child or family. Thank you for letting us see what cruel diseases can do to us. May God give you all rest.
gillyb333 3 weeks ago
i think she should be let to die. and beofer anyone stupidly says im hating im not, i dont anyone should be trapped in a body and suffer in pain for ther est of tehre life.
quaker261 3 weeks ago
i pity her so much.
quaker261 3 weeks ago
She has Huntington's disease. Her movements are known as Huntington's dance. HD is a serious neurological illness characterized by decreased mental function, abnormal movements and, inevitably, death. A person with HD may look normal, but his/her brain begins wasting away, literally. Autopsy usually reveals large holes in the brain matter.
enceph7 3 weeks ago
R.I.P Keely for you i hope there is life after death.
rochelfan 3 weeks ago
who the fuck films this... burn in hell bitch
nikolagamer222 1 month ago
@nikolagamer222 You aren't commited or engaged to watch this, and probably also you haven't enough brains to notice your lack of comprehension (what seems to haven't any boundery at all) on every topic imaginable, so next time when you feel the need to state such comments, try to do it in real life.
Cyfrlingk 1 month ago
@Cyfrlingk oh soo its ok to film your child while its spazing out and put it on youtube -.- you ameicunts really have no moral standarts
nikolagamer222 3 weeks ago
I cannot believe that someone can be so heartless with the comments that you have made towards Keely and her family also towards. It seems that they are right you have no morals respect or dygnaty. U r the type of person that should be in this vidio not Keely.
gillyb333 3 weeks ago
@nikolagamer222 Well, I must say that you really have a good point here because I also was amazed and had my thoughts about it to find someting like this on youtube. Internet in a way does show of someting of the true nature in the average people it seems. The accusation about your lack of comprehension was made to fast maybe, I'm sorry for that..
Cyfrlingk 2 weeks ago
@nikolagamer222 Hopefully the filming of these type of incidents catch the right eye. Students and other medical technicians come onto youtube specifically TO see these types of videos. These are the videos that begin life saving research. These videos may be hard to watch, but they serve a higher purpose.. And nobody has forced any of us to watch them. We can be cold, calloused and cruel to an already suffering individual or simply choose not to watch.
missmelisa27 2 weeks ago
this looks to me like some kind of drug reaction
Thundralight 1 month ago in playlist More videos from jantodd484
Sounds like she's in pain. When you get episodes of extreme, overwhelming pain, you DO zone out becuz it takes so much out of you. It's stupid to hold someone down like that & a lot of times, people talking to you makes it worse. The woman in the background is so dreadfully annoying! I've seen a LOT of seizures & this definately doesn't look like one. My pain theory sticks. She has tears in her eyes. She IS definately in there. Touching her, rubbing her skin, pushing her down can make it worse!
XgayforshaneX 1 month ago
Her movements indicates like she is trying to get up or sit and she is frustrated not being able to do so. At least that s what I read form her movements...
jtor10 1 month ago
Does she ever speak? she looks normal. But her behavior is devastating
christiantruther86bv 1 month ago
she looks like she's tring ot catch her breath i could be wrong but it does look like she's trying ot catch her breath there are some seizures i know of that were some cases that people move around or ramble when ever she's not in a epsoide try asking her questions about what she feels or what she seeing during a eposide or have her draw them out if she doesnt want ot talk about it. it may get you alittle closer to find out what is happening to Keely. God bless you!
Emily585Emily 1 month ago
Its great that this is up, this disease is so mysterious and all information on its behavior needs to be shared so maybe one day, someday, there will be a cure.
tabithawizard 1 month ago
Comment removed
paraadrian11 1 month ago
When I see things like this and no God is no respector of persons, I get scared.
DragonDriver100 1 month ago
@DragonDriver100 It may well be a demon in her.
christiantruther86bv 1 month ago
The nurses keep saying she's not in there BUT WHAT IF SHE IS? This made me want to cry because she sounds like she's in such pain:-(
LOLOSSKY 1 month ago
@LOLOSSKY Looks like to me that she could have lost sight. Also this disease causes dementia. Shes virtually a young nursing home patient with alzheimers. Very tragic.
AbneyParkFan 1 month ago
@iNLorinda864... Wudn say its funny at all !!!! You've probly kids to have of ur own... Karma !!!
tinacolada30 1 month ago
omg 2010 i was upset because i didnt have my son many christmas presents and this has made me realise how selfish i was :( i was annoyed and i thought we was having a bad christmas and you lost your daughter im so sorry :( ill never have a bad christmas again im so sorry x
tornandfrail 1 month ago
After watching the video several times, i noticed that her pupils normal, wich sugests that it may well have been psycological rather then neurological. Maybe an attempt at venting her frustrations caused by the limitations of her disability, or maybe an attempt at communication.
mynappyfull 1 month ago
WHY THE FUCK ARE PEOPLE PUTTING THESE VIDEOS ON YOUTUBE...... REALLY????? god damn.... WTF MAN... SHIT.... this is depressing the fuck outta me.... RIP sorry for your loss... but seriously........ whats the point of this... it only made me sad and lucky to be healthy...
ericmaustin82 1 month ago
@ericmaustin82 The point of it is education. People need to know things like this disease exist. Either so they can simply be educated, in case their friend or family member gets diagnosed with something. Or so they can be aware and help find a cure, by things like donating. And it's also for people who's family have already been affected. By sharing things with each other, they can know they are not alone and learn more by comparing symptoms/occurences. Even strangers can, thru youtube.
garciajennifer223 1 month ago
@iNLorinda864 its not funny u basterd
Dalton115856 1 month ago
how old was shje in this vid?she was beautiful,
Batistamaniac1 2 months ago
Comment removed
christophorM 2 months ago
Is she Potty Trainned and Does she still wear diapers? Hope all is well with her.
cec060797 2 months ago
@cec060797 It's not about being potty trained. Everyone with HD loses the ability to get up and just go to the bathroom. It is a brain disorder so they cannot always control their bladders or stools. To answer your "hope all is well" it states clearly that she died on Christmas day 2010.
crystalschwantes 1 month ago
im sorry for your loss. she was very pretty
blackskatersunite 2 months ago
nice...
GhDorine527 2 months ago
Maybe you who don't understand what is going on should not watch this.
canineacres 2 months ago
I am so sorry for your loss. God Bless you <3
canineacres 2 months ago
why is she screaing..
ToxicKisses315 3 months ago
I'm so sorry for you loss, I hope she haven't died in vain and your videos can help other familys and doctors in the future, brightest blessings
moonwitch1981 3 months ago
seizures no doubt...sorry to hear of her passing..God bless you all...
frannchan 4 months ago
Quaker261, Huntington's disease is an inherited neurodegenerative disorder for which there is no treatment or cure. Keely got it from her father, who got it from his father, etc. When it occurs in children (Juvenile Huntington's Disease or JHD), the progression is much faster than when it occurs in adults, with death occurring usually about 10 years after diagnosis.
jantodd484 4 months ago
aww perhaps, i think you should change her diaper. most people do tend to scream due to soil, or wet diapers.
quaker261 4 months ago
whaT is wrong with her? is it huntigtons disease? if so then can someone please explain to me what huntigtons disease actualy is?
quaker261 4 months ago
I just read about Keely's passing. So sorry. My sympathies to you and your family. I know mere words won't help, but she is in no pain now.
cathyindiawood 5 months ago
Also, please, there is no need to show her bottom on public video as she is obviously a young woman. Simply because she is an invalid is not reason to disrespect her privacy. Also, if she is mentally challenged as well, it does not mean she is "not there." She may very well understand everything you are doing and saying. So please, avoid speaking as if she is "not there."
cathyindiawood 5 months ago
I am praying for Keely. Much love to her and to you all. I have been having nocturnal seizures and I can tell you that she may very well, "be there," so to speak and know what is going on, though having involuntary movements, etc. When I wake up during, or from seizures, I am "there," and know what is going on, but simply am having involuntary body jerking, grunting or crying sounds. No emotional pain for me though it sounds like I am crying sometimes. Hope this helps!
cathyindiawood 5 months ago
Jan, I am so sorry. Love, Christy - Amy's mom
dizneefeeks 5 months ago
So sorry for your loss
jcathomas 5 months ago
this is so sad.i'm sorry for your loss.may you find comfort in the Lord
goldfeatherable 6 months ago
Have you found out anything from the doctors yet? I am 31 and have just had an episode that looked identical to this. My husband and I are pretty worried and would love to hear what you have found out. I can give you my personal email if you would like? I so hope Keely is ok now.
xxxRAMRODxxx 6 months ago
you should really get approval on these comments before they post. That way you won't have to have ignorant and nasty comments posted here, like the one by the troll multisnootylives 1.
SaffronSugar 7 months ago
This comment has received too many negative votes show
shove a sock down her throat!
multisnootylives1 7 months ago
@multisnootylives1 JERK!!!!!!
lindy114 6 months ago
@multisnootylives1 What king of stupid remark is that?! You are such a disgrace!
Yourjoking999 5 months ago
T.T
lorellautner 9 months ago
hopefully the doctor will find the right medicine for her soon.
aemycatty 9 months ago
This was very sad so hoping a cure comes fast I don't like to see people suffer makes me very sad inside so bad
TheShortdawg1970 1 year ago
My son died at 11 in April 2009 of jhd and had similar 'tantrums' where he would be on his knees & throw himself on the floor all the time, making these noises. Then a full on seizure would happen. I filmed him but can't watch it back now he's gone. My eldest I can't remember having these episodes but had full on seizures, he died aged 7 in 2001 of jhd. Bloody horrible disease to watch your children go through. Love to you Jan. xxx Keely is gorgeous, especially with the dog. xx
time4sleeping 1 year ago
@jantodd484 I am so sorry for your lost.
xxxAlphaxxx5 1 year ago
Was she suffer from breathing difficulties ?
xxxAlphaxxx5 1 year ago
I am not convinced it is seizure, if she has an episode like this tri some strong painkiller and see what happens, because the first thing that pops into my mind is a blather infection or and ear infection, cause it looks like she is in pain from something like that but it's realy hard to tell
happymark1805 1 year ago
This truly broke my heart I am so very sad and sorry you all have to endure such heartache no one most of all a child should ever have to suffer as all children with JHD I know my son died from jhd Jan 22 05, it angers me that doctors ca not get their stuff together yes this is seizure activity. Big Love and hugs too you all..
Nonya63 1 year ago
it does look like seizure activity and could be frontal lobe with the leg movement like that and screaming.. Often over looked as behavior as well.. What do they think it is? Sending lots of prayers.
Gretchenfan76 1 year ago